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Livedo reticularis
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F3 Fibrosis Regression
hi all First post and have to say, read a lot of posts and can only thank everyone who contributes and helps educate others about their own personal way forward. So here is my question. How long does it realistically take ( with doing everything possible ) to regress from F3 severe fibrosis to F2?
hi all First post and have to say, read a lot of posts and can only thank everyone who contributes and helps educate others about their own personal way forward. So here is my question. How long does it realistically take ( with doing everything possible ) to regress from F3 severe fibrosis to F2?
Smif56
in
British Liver Trust
5 months ago
Post Op
Done my liver resection on 14 March 2024 coz found tumour in it since 2023. Went through Y90 treatment to shrink the tumour. Doc removed the tumour via keyhole with a drainage wound. After the op, stayed in hospital for 7 days till I’m stable and independent enough to walk on my own so wouldn’t be
Done my liver resection on 14 March 2024 coz found tumour in it since 2023. Went through Y90 treatment to shrink the tumour. Doc removed the tumour via keyhole with a drainage wound. After the op, stayed in hospital for 7 days till I’m stable and independent enough to walk on my own so wouldn’t be
SunnyShoe
in
British Liver Trust
5 months ago
always question
Just this morning there was a post about questioning the legitimacy of a survey about itching - and receiving payment for completing it. Some of you reached out to The PBC Foundation (as did I) to just make sure it was 'for real'. I am just as hopeful that when any of you don't feel the care you receive
Just this morning there was a post about questioning the legitimacy of a survey about itching - and receiving payment for completing it. Some of you reached out to The PBC Foundation (as did I) to just make sure it was 'for real'. I am just as hopeful that when any of you don't feel the care you receive
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
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Nicotine patches vs gum.
if you’re not aware, I’ve been experimenting with the nicotine patch. I found that it’s too much. I wonder if that why the trial failed. I found a couple pieces of gum, 3-4 a day as needed better. I will soon be off meds. They never really worked that good anyway. Nicotine works just as good if not
if you’re not aware, I’ve been experimenting with the nicotine patch. I found that it’s too much. I wonder if that why the trial failed. I found a couple pieces of gum, 3-4 a day as needed better. I will soon be off meds. They never really worked that good anyway. Nicotine works just as good if not
38yroldmale
in
Cure Parkinson's
5 months ago
Is it just me?
Wondering if anyone else isn't sold on the concept of taking a sledgehammer to the immune system to treat RRMS. I am looking forward to these meds finishing clinical trials: * Vidofludimus calcium [It's both anti-EBV and neuroprotective effect] (Link: https://multiplesclerosisnewstoday.com
Wondering if anyone else isn't sold on the concept of taking a sledgehammer to the immune system to treat RRMS. I am looking forward to these meds finishing clinical trials: * Vidofludimus calcium [It's both anti-EBV and neuroprotective effect] (Link: https://multiplesclerosisnewstoday.com
By-Design-1000
in
My MSAA Community
5 months ago
b12 liver stores
Hi everyone, Just a quick question for those of us with PA. When we have b12 loading doses I have read this replenishes liver stores. Can anyone tell me does this b12 always successfully make it into the liver stores? I ask because my body does not reflect this. Loading doses did nothing to alleaviate
Hi everyone, Just a quick question for those of us with PA. When we have b12 loading doses I have read this replenishes liver stores. Can anyone tell me does this b12 always successfully make it into the liver stores? I ask because my body does not reflect this. Loading doses did nothing to alleaviate
brenanddave
in
Pernicious Anaemia Society
5 months ago
Ultrasound/Biopsy show cirrhosis, but fibroscan score is 7.4
I’m somewhat perplexed… since my diagnosis I’ve been told I have cirrhosis, because of my biopsy and ultrasound results. A recent fibroscan score was 7.4, which is fibrosis. Although some parts of the fibroscan were as high as 8. Can someone explain this? My dr. was very vague in his explanation. Thank
I’m somewhat perplexed… since my diagnosis I’ve been told I have cirrhosis, because of my biopsy and ultrasound results. A recent fibroscan score was 7.4, which is fibrosis. Although some parts of the fibroscan were as high as 8. Can someone explain this? My dr. was very vague in his explanation. Thank
Danteskid
in
PBC Foundation
5 months ago
Update
Just thought I would update my situation after being diagnosed with Nash in 2019. After changing my diet and losing 20 kilos I have been told by my surgeon who recently performed an operation to repair a large hiatus hernia that I do not have Nash. My liver has returned to its normal size and it's a
Just thought I would update my situation after being diagnosed with Nash in 2019. After changing my diet and losing 20 kilos I have been told by my surgeon who recently performed an operation to repair a large hiatus hernia that I do not have Nash. My liver has returned to its normal size and it's a
Mizcole
in
Living with Fatty Liver and NASH
5 months ago
1st year
Just a little post on good news . Im just about to go out and have lunch with all my family to celebrate my 1st year of Liver Transplant 🎉🎉🥳🥳💕💕. I hope everyone else has a great day 💕💕. Stay safe all Dogbot 🐶Dave
Just a little post on good news . Im just about to go out and have lunch with all my family to celebrate my 1st year of Liver Transplant 🎉🎉🥳🥳💕💕. I hope everyone else has a great day 💕💕. Stay safe all Dogbot 🐶Dave
Dogbot
in
British Liver Trust
5 months ago
AASLD organization
www.aasld.org This is the site for the [u][i]
American
[/i][/u] Association for the Study of Liver Diseases. They make the AASLD Guidelines for the Diagnosis and Treatment of PBC. Every one should take the time to read this. Take a copy of it to your doctor as well. They should be familiar
www.aasld.org This is the site for the [u][i]
American
[/i][/u] Association for the Study of Liver Diseases. They make the AASLD Guidelines for the Diagnosis and Treatment of PBC. Every one should take the time to read this. Take a copy of it to your doctor as well. They should be familiar
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Coping
My story starting in 2020,light headed,weight loss,in and out if the toilet.When i eventually went to the hospital was tokd Cirrhosis,been in and out since,they never explained diet so i have had a couple of burst blood vessels not nice. Now i am aware this us my 1st week of rabbit food!! No booze for
My story starting in 2020,light headed,weight loss,in and out if the toilet.When i eventually went to the hospital was tokd Cirrhosis,been in and out since,they never explained diet so i have had a couple of burst blood vessels not nice. Now i am aware this us my 1st week of rabbit food!! No booze for
Rawai
in
British Liver Trust
5 months ago
Has methotrexate caused liver damage
I had a blood test which showed raised levels of ALP 136, Aspartate Transaminase 68. My GP said that my RA meds have caused damage to my liver!!! I am having a liver fibroscan tommorrow to check for fatty liver. Very anxious but will need to take it one step at a time. Any guidance and advice welcome
I had a blood test which showed raised levels of ALP 136, Aspartate Transaminase 68. My GP said that my RA meds have caused damage to my liver!!! I am having a liver fibroscan tommorrow to check for fatty liver. Very anxious but will need to take it one step at a time. Any guidance and advice welcome
Beanyynwa
in
NRAS
5 months ago
for all new members of late.....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
first line treatment with bendamustin and rithoximab
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
09123836306
in
CLL Support
5 months ago
highest liver - don’t know why think it’s thyroid
Hi any idea why so high Zero alcohol drugs or sex I did hve carbs for a week as needed to put on weight I had Hida scan 5 days before test - gallbladder fine I stopped all supplements except NAC for a week I used to take milk thistle before and my Enzymes were lower . Everyone warns against
Hi any idea why so high Zero alcohol drugs or sex I did hve carbs for a week as needed to put on weight I had Hida scan 5 days before test - gallbladder fine I stopped all supplements except NAC for a week I used to take milk thistle before and my Enzymes were lower . Everyone warns against
Chouchou1234
in
Thyroid UK
5 months ago
Fibroscan results
Find Your Fibrosis ScoreDisease Diagnosis Liver Stiffness Result Your Liver Cholestatic Disease 2 to 7 kPa Is normal. 7 to 9 kPa Has moderate scarring. 9 to 17 kPa Has severe scarring. 17 kPa or higher Has cirrhosis.
Find Your Fibrosis ScoreDisease Diagnosis Liver Stiffness Result Your Liver Cholestatic Disease 2 to 7 kPa Is normal. 7 to 9 kPa Has moderate scarring. 9 to 17 kPa Has severe scarring. 17 kPa or higher Has cirrhosis.
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Wednesday's 'Word'
[u][i]
Hepatocytes -
[/i][/u] These are simply the cells of the liver. Each of these cells performs all of the functions of the liver - there is no difference in what any of them do for us. Liver failure occurs when there are not enough functioning hepatocytes to do all the functions they are
[u][i]
Hepatocytes -
[/i][/u] These are simply the cells of the liver. Each of these cells performs all of the functions of the liver - there is no difference in what any of them do for us. Liver failure occurs when there are not enough functioning hepatocytes to do all the functions they are
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Healthy liver to Cirrhosis
Hello, approximately two years ago I was submitted to hospital with Jaundice after a binge drinking session. I was given an Ultrasound, and told that my results were “clear” and that my liver was normal sized and regular in outline. I was released the next day and given a prescription of Thymine .
Hello, approximately two years ago I was submitted to hospital with Jaundice after a binge drinking session. I was given an Ultrasound, and told that my results were “clear” and that my liver was normal sized and regular in outline. I was released the next day and given a prescription of Thymine .
DJK78
in
British Liver Trust
5 months ago
Ascites
Hi in June 2019 whilst on holiday in Italy my tummy swelled up a n d I felt unwell on return to England was taken to hospital when my tummy was drained and I was diagnosed with liver cirrhosisI have never been a big drinker so was very shocked since then I don't have a drink and very careful with salt
Hi in June 2019 whilst on holiday in Italy my tummy swelled up a n d I felt unwell on return to England was taken to hospital when my tummy was drained and I was diagnosed with liver cirrhosisI have never been a big drinker so was very shocked since then I don't have a drink and very careful with salt
Rookery31
in
British Liver Trust
5 months ago
Prescription drug induced Fibrosis
Hi. Wondering if anyone on here has had the above diagnosis. The drug involved was Nitrofuratan. The Consultant has told me the scarring will not heal.
Hi. Wondering if anyone on here has had the above diagnosis. The drug involved was Nitrofuratan. The Consultant has told me the scarring will not heal.
Suekee2
in
British Liver Trust
5 months ago
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