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Is there any advantage to putting off increasing my gabapentin?
Up until about 6 weeks ago the 1500 gabapentin that I take completely controlled my restless legs. Then about once a week I got restless legs. I have exercises that I do that take about 10 minutes that allows me to go back to bed without symptoms. It seems pretty obvious to me that I will eventually
Up until about 6 weeks ago the 1500 gabapentin that I take completely controlled my restless legs. Then about once a week I got restless legs. I have exercises that I do that take about 10 minutes that allows me to go back to bed without symptoms. It seems pretty obvious to me that I will eventually
SueJohnson
in
Restless Legs Syndrome
3 years ago
Shingles live vaccine
I have just spoken to my GPs surgery and I am due a shingles vaccine but they're telling me the only one they are offering is a live vaccine and it is my decision if I want to have it!! Explained I am on steroids and apparently they will not give non live vaccine. I am on 4mg and they said I should be
I have just spoken to my GPs surgery and I am due a shingles vaccine but they're telling me the only one they are offering is a live vaccine and it is my decision if I want to have it!! Explained I am on steroids and apparently they will not give non live vaccine. I am on 4mg and they said I should be
Rosshigh
in
PMRGCAuk
3 years ago
NAC for RLS?
Has anyone tried NAC N-acetylcysteine? Did it help? I accidentally found this, my first thought was how could they miss this? "Glutamate can be reduced in the brains of persons with high glutamate levels within an hour of oral ingestion of N-acetylcysteine" I am taking it at the wrong time! If your
Has anyone tried NAC N-acetylcysteine? Did it help? I accidentally found this, my first thought was how could they miss this? "Glutamate can be reduced in the brains of persons with high glutamate levels within an hour of oral ingestion of N-acetylcysteine" I am taking it at the wrong time! If your
WideBody
in
Restless Legs Syndrome
3 years ago
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Relief at last from RSL
Relief at last for my hubby who has suffered with RLS for more then 30 yrs to the point of not being able to sleep or sit down for as long as 52 hours at at time sometimes. Horrible torment. But 3weeks into taking Liquid Magnesium and Liquid Iron and of course lots of prayer he has had almost total
Relief at last for my hubby who has suffered with RLS for more then 30 yrs to the point of not being able to sleep or sit down for as long as 52 hours at at time sometimes. Horrible torment. But 3weeks into taking Liquid Magnesium and Liquid Iron and of course lots of prayer he has had almost total
Nahfranz
in
Restless Legs Syndrome
3 years ago
Newbie - where to start ?
As the title says, I’m new to the forum and very new to RLS. I feel that I’ve been suffering for around 5 years, but of recent it’s getting worst. I have been referred to a chiropractor, but apart from a nice massage, this isn’t helping.. So, I’m 31 years old, 6ft 4 and ‘normal’ build. I lead a fairly
As the title says, I’m new to the forum and very new to RLS. I feel that I’ve been suffering for around 5 years, but of recent it’s getting worst. I have been referred to a chiropractor, but apart from a nice massage, this isn’t helping.. So, I’m 31 years old, 6ft 4 and ‘normal’ build. I lead a fairly
Mpdeadman
in
Restless Legs Syndrome
3 years ago
Possible Eplilepsy
My daughter (22) had a night seizure a few weeks ago (first time) that her friend saw - she didn't recall it until her friend described it. Following that she has recalled having night episodes that sound like potential night seizures over the last few years that doctors put down to anxiety. She has
My daughter (22) had a night seizure a few weeks ago (first time) that her friend saw - she didn't recall it until her friend described it. Following that she has recalled having night episodes that sound like potential night seizures over the last few years that doctors put down to anxiety. She has
rladva
in
Epilepsy Action
3 years ago
SHARING A SUCCESSFUL EXPERIENCE
I was going to answer Shumbah, but then I thought that the answer could be interesting for all RLS sufferers. Hello Shumbah and other sufferers: I´m RLS since 30 years ago , I have never taken buprenorphine or any other opioid. I used Dopamine Agonists (in pills and patches) for years, but when the
I was going to answer Shumbah, but then I thought that the answer could be interesting for all RLS sufferers. Hello Shumbah and other sufferers: I´m RLS since 30 years ago , I have never taken buprenorphine or any other opioid. I used Dopamine Agonists (in pills and patches) for years, but when the
Arjiji
in
Restless Legs Syndrome
3 years ago
pramipexole withdrawal
Hi, Will someone give me a good slap for being an old fool ,still off the 0.180 micrograms so halved the o.350 micrograms 2 nights ago and managed to cope ,then last night I thought I wold be smart Alec and took no pramipexole ,was up all night legs doing the highland fling calmed down now ,will not
Hi, Will someone give me a good slap for being an old fool ,still off the 0.180 micrograms so halved the o.350 micrograms 2 nights ago and managed to cope ,then last night I thought I wold be smart Alec and took no pramipexole ,was up all night legs doing the highland fling calmed down now ,will not
auldreekie18
in
Restless Legs Syndrome
3 years ago
Artificial Sweetener +=insomnia and RLS
I thought I would share my christmas discovery The perils of being a woman always thinking about of waistline. Over the party season , I inceasead my artificial sweetner intake to approximately 6 sachets mostly at night. Most unusual for me I was having nights of being wide awake then resorting to taking
I thought I would share my christmas discovery The perils of being a woman always thinking about of waistline. Over the party season , I inceasead my artificial sweetner intake to approximately 6 sachets mostly at night. Most unusual for me I was having nights of being wide awake then resorting to taking
Shumbah
in
Restless Legs Syndrome
3 years ago
No support from GP - need to change meds
Hi everyone and Merry Christmas! This is my first post to the forum and I'm sorry it's quite a long one. I'm hoping that someone can advise me about a change of medication. I've had RLS since a teenager (now in my 50s). I augmented on Pramipexole about 5 years ago and went through hell to stop. I tried
Hi everyone and Merry Christmas! This is my first post to the forum and I'm sorry it's quite a long one. I'm hoping that someone can advise me about a change of medication. I've had RLS since a teenager (now in my 50s). I augmented on Pramipexole about 5 years ago and went through hell to stop. I tried
Night_raven
in
Restless Legs Syndrome
3 years ago
Shingle vaccine
Had my shingles vaccine yesterday and was told I will have to have another one in four weeks.
Had my shingles vaccine yesterday and was told I will have to have another one in four weeks.
Blackcat1M
in
PMRGCAuk
3 years ago
mouth ulcer remedy suggestions, pls
Currently recovering from a flare and I've got a mouth ulcer positioned within an awkward place on the roof of my mouth. Never had it there before! FYI - Alongside my Lupus, I also have Sjogren's. Any remedy suggestions would be greatly appreciated that doesn't involve reaching out to a GP. Thanking
Currently recovering from a flare and I've got a mouth ulcer positioned within an awkward place on the roof of my mouth. Never had it there before! FYI - Alongside my Lupus, I also have Sjogren's. Any remedy suggestions would be greatly appreciated that doesn't involve reaching out to a GP. Thanking
Amakura
in
LUPUS UK
3 years ago
Meningitis
I’m scared I have meningitis, I’ve had a bad headache on and off for 2 days, and a tiny fever I think I feel hot anyway and a rash on my neck, I’ve tried the glass test and I’m unsure on whether it goes or not it looks paler than what it was but still red I’m just scared :(
I’m scared I have meningitis, I’ve had a bad headache on and off for 2 days, and a tiny fever I think I feel hot anyway and a rash on my neck, I’ve tried the glass test and I’m unsure on whether it goes or not it looks paler than what it was but still red I’m just scared :(
anxietymadman123
in
Anxiety Support
3 years ago
tramadol does it work
Hi , Merry Xmas to everyone another year of hell survived with this curse ,on pramipexole for years not working well now thinking of going on tramadol whats your views ,what difference if it is addictive at 83 not long to go so make them better. tried Gabapenton not for me as well as pregabelon appreiate
Hi , Merry Xmas to everyone another year of hell survived with this curse ,on pramipexole for years not working well now thinking of going on tramadol whats your views ,what difference if it is addictive at 83 not long to go so make them better. tried Gabapenton not for me as well as pregabelon appreiate
auldreekie18
in
Restless Legs Syndrome
3 years ago
Leg
So I ended up with cellulitis in my leg been on penicillin since last Tuesday never felt so poorly 😷 in my life
So I ended up with cellulitis in my leg been on penicillin since last Tuesday never felt so poorly 😷 in my life
Deejojo
in
NRAS
3 years ago
Zinc deficiency
Hi all, I found out i have a zinc deficiency. I have PA and also exocrine pancreatic insufficiency. I am also currently suffering from chronic sinusitis and tinitus. Do any of you have any experience of zinc deficiency? I had a commercial genetic dna test a few years ago and i think the raw data says
Hi all, I found out i have a zinc deficiency. I have PA and also exocrine pancreatic insufficiency. I am also currently suffering from chronic sinusitis and tinitus. Do any of you have any experience of zinc deficiency? I had a commercial genetic dna test a few years ago and i think the raw data says
Luac
in
Pernicious Anaemia Society
3 years ago
New guy with old RLS
70 year-old Vietnam veteran… AND Jazz guitar player ;-) Tramadol times eight years, (hellish withdrawal x 14 mos), 12 years to present on hydrocodone 10 mg 4 x a day. My doctor is going to switch me to Suboxone because I’m going through opioid withdrawal 4 x a day. Besides refractory RLS, I have chronic
70 year-old Vietnam veteran… AND Jazz guitar player ;-) Tramadol times eight years, (hellish withdrawal x 14 mos), 12 years to present on hydrocodone 10 mg 4 x a day. My doctor is going to switch me to Suboxone because I’m going through opioid withdrawal 4 x a day. Besides refractory RLS, I have chronic
OudisCool
in
Restless Legs Syndrome
3 years ago
Tapering while suffering with shingles?
Was recently hospitalized for asthma in October and put on mega doses of steroids. When I came down to 12 1/2 I parked. I started to reduce a half a milligram and now at 12. Just came down with the most wicked form of shingles. I went to the hospital in an ambulance! It was so painful I couldn’t even
Was recently hospitalized for asthma in October and put on mega doses of steroids. When I came down to 12 1/2 I parked. I started to reduce a half a milligram and now at 12. Just came down with the most wicked form of shingles. I went to the hospital in an ambulance! It was so painful I couldn’t even
Karenjaninaz
in
PMRGCAuk
3 years ago
RLS-ROPINOLE
Thanks for all your help. i have been off ropinirole for 7 days. it has took me over 9 months to reduce dosage down. still not able to sleep for first 4 hrs at nite. getting 3 to 4 hrs of sleep at night. this miracle for me whith out taking any meds. i believe longer i go with out better i will get.i
Thanks for all your help. i have been off ropinirole for 7 days. it has took me over 9 months to reduce dosage down. still not able to sleep for first 4 hrs at nite. getting 3 to 4 hrs of sleep at night. this miracle for me whith out taking any meds. i believe longer i go with out better i will get.i
help3
in
Restless Legs Syndrome
3 years ago
Efficacy of methadone for refractory RLS
Fellow RLS sufferers, For a short bio, if you don't mind, you can skip to the second paragraph: I'm in my early 30s. Suffered mild RLS as long as I can remember I (didn't know it was RLS at the time). RLS increased in intensity and frequency during my 20s. It became a nightly thing around the time I
Fellow RLS sufferers, For a short bio, if you don't mind, you can skip to the second paragraph: I'm in my early 30s. Suffered mild RLS as long as I can remember I (didn't know it was RLS at the time). RLS increased in intensity and frequency during my 20s. It became a nightly thing around the time I
GuillaumeL
in
Restless Legs Syndrome
3 years ago
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