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The answer I received from my concern about the treatments on the RLS Foundation website
My email to Karla Dzienkowski, who is Executive Director of the Restless Legs Syndrome Foundation: Recently a post on the forum indicated that Dr. John Winkleman has set up a site for health professionals to learn about RLS at rlscurbside.org/resources/. Naturally I went out there and was quite disturbed
My email to Karla Dzienkowski, who is Executive Director of the Restless Legs Syndrome Foundation: Recently a post on the forum indicated that Dr. John Winkleman has set up a site for health professionals to learn about RLS at rlscurbside.org/resources/. Naturally I went out there and was quite disturbed
SueJohnson
in
Restless Legs Syndrome
4 months ago
Duloxetine - restless legs
Hi, I am on Duloxetine 60 mg and Trazadone 100 mg. Since going on the Duloxetine my RLS seems to be worse. I don’t really want to give it up right now as I have only been on it 3 weeks and since I have tried several anti-depressants I want to give this one a fair go. The Trazadone helps me sleep a
Hi, I am on Duloxetine 60 mg and Trazadone 100 mg. Since going on the Duloxetine my RLS seems to be worse. I don’t really want to give it up right now as I have only been on it 3 weeks and since I have tried several anti-depressants I want to give this one a fair go. The Trazadone helps me sleep a
Chamie
in
Restless Legs Syndrome
4 months ago
The problem with Buprenorphine, BTBD9 and serotonin syndrome
This is for those of you who are really struggling with the remedies for RLS. Apologies for not referencing all my research but I’ve been completely wiped out for weeks now. However I wanted to share some insights I’ve had recently and hope it inspires thoughts and research. Adenosine is a chemical
This is for those of you who are really struggling with the remedies for RLS. Apologies for not referencing all my research but I’ve been completely wiped out for weeks now. However I wanted to share some insights I’ve had recently and hope it inspires thoughts and research. Adenosine is a chemical
Typicallygaslit
in
Restless Legs Syndrome
4 months ago
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Medical cannabis for RLS/PLMD
Has anybody tried and had good results with Medical Cannabis for RLS/PLMD. Looking at this in case Buprenorphine does not work. So far on 0.4 sublingual tablet, severe side effects during day and not working at night now!! Worked for first 3 nights. Beginning to think that husband cannot take any prescribed
Has anybody tried and had good results with Medical Cannabis for RLS/PLMD. Looking at this in case Buprenorphine does not work. So far on 0.4 sublingual tablet, severe side effects during day and not working at night now!! Worked for first 3 nights. Beginning to think that husband cannot take any prescribed
Ephemera
in
Restless Legs Syndrome
4 months ago
Restless leg syndrome
I have been taking 1 or 2 mg ropinorole for about 5 years. It worked sometimes, my Doctor started giving me 5/325 hydrocodone which has helped me ALOT. It seems if I walk a lot or have a lot of stress my legs get bad at night. At least I know that I will make it through the night. I also take trazadone
I have been taking 1 or 2 mg ropinorole for about 5 years. It worked sometimes, my Doctor started giving me 5/325 hydrocodone which has helped me ALOT. It seems if I walk a lot or have a lot of stress my legs get bad at night. At least I know that I will make it through the night. I also take trazadone
Lynnygrl
in
Restless Legs Syndrome
4 months ago
pregabalin vs buprenorphine
I’ve been off pramipexole for a bit over two weeks. I had a fairly easy transition off it thanks to buprenorphine and cannabis, along with pointers picked up here about iron supplements, diet, etc. I started pregabalin but stopped taking it after 10 days or so because of the comments about it not fully
I’ve been off pramipexole for a bit over two weeks. I had a fairly easy transition off it thanks to buprenorphine and cannabis, along with pointers picked up here about iron supplements, diet, etc. I started pregabalin but stopped taking it after 10 days or so because of the comments about it not fully
707twitcher
in
Restless Legs Syndrome
4 months ago
Out of Remission
Well, I got some not so good news today. I had my CLL check today and I'm out of remission. My WBC is now 14K. My platelets are 152. My doctor wants to start me on Zanabrutinib now. I know it seems silly when just getting out of remission and I'm not even close to a WBC of 30K yet, and I have no other
Well, I got some not so good news today. I had my CLL check today and I'm out of remission. My WBC is now 14K. My platelets are 152. My doctor wants to start me on Zanabrutinib now. I know it seems silly when just getting out of remission and I'm not even close to a WBC of 30K yet, and I have no other
MyCLLJourney
in
CLL Support
8 months ago
Suboxone's side effects
Hi, I have been taking Suboxone for almost two and half months now without too much undesirable effects, but lately all of a sudden my blood pressure goes up to 170 systole after I take Suboxone and I also experience heart palpitation. My blood pressure usually ranges from 110 systole so I am not sure
Hi, I have been taking Suboxone for almost two and half months now without too much undesirable effects, but lately all of a sudden my blood pressure goes up to 170 systole after I take Suboxone and I also experience heart palpitation. My blood pressure usually ranges from 110 systole so I am not sure
halperinchen
in
Restless Legs Syndrome
4 months ago
SERTRALINE VERSUS TRAZODONE
I have been weaning myself off Sertraline and am now down from 75mg to 25mg daily. It has at times, been a torturous process. I was recommended by Sue to try Trazodone instead of Sertraline so that was why I began weaning off it. However, on reading the leaflet for Trazodone the side effects are quite
I have been weaning myself off Sertraline and am now down from 75mg to 25mg daily. It has at times, been a torturous process. I was recommended by Sue to try Trazodone instead of Sertraline so that was why I began weaning off it. However, on reading the leaflet for Trazodone the side effects are quite
Lettucenotforget
in
Restless Legs Syndrome
4 months ago
My profile
Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
BillCapita
in
PMRGCAuk
4 months ago
Hello, nasal congestion every morning (&night if slow to go to sleep) as a result of ropinirole - anyone similar? How to fix
So, I developed rls suddenly, in the middle of one of the covid lockdowns. While it appears impossible to fully identify the cause, I suffer from hydrocephalus, so have had about 4 neurosurgical procedures. It is apparently common with those with my condition. It took about 4 nights to fully remove my
So, I developed rls suddenly, in the middle of one of the covid lockdowns. While it appears impossible to fully identify the cause, I suffer from hydrocephalus, so have had about 4 neurosurgical procedures. It is apparently common with those with my condition. It took about 4 nights to fully remove my
Sniffly
in
Restless Legs Syndrome
4 months ago
buprenorphine dose
I’m in the US, and just started a Suboxone Rx two weeks ago at dosage of 2/.5. I’d like to get lower dosage if I can, but I don’t see any US companies advertising the .2/.05 tablets that you have in UK. I’ve found that using 1/4 strip every other day works fine for me. I assume the long half-life
I’m in the US, and just started a Suboxone Rx two weeks ago at dosage of 2/.5. I’d like to get lower dosage if I can, but I don’t see any US companies advertising the .2/.05 tablets that you have in UK. I’ve found that using 1/4 strip every other day works fine for me. I assume the long half-life
707twitcher
in
Restless Legs Syndrome
4 months ago
New RLS member
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
Ddski5
in
Restless Legs Syndrome
4 months ago
Switched from Methadone at 10 mg to Buprenorphine 10 mcg
Good Morning, As of June 2023, I began with 5 mg of methadone, and gradually increased it to 20 mg by August. I reported to the forum in early November, a transformation occurred, with the leg spasms virtually gone, caused by RLS at night. I began tapering off, and reduced it to 7.5 mg and have remained
Good Morning, As of June 2023, I began with 5 mg of methadone, and gradually increased it to 20 mg by August. I reported to the forum in early November, a transformation occurred, with the leg spasms virtually gone, caused by RLS at night. I began tapering off, and reduced it to 7.5 mg and have remained
vikkitennis
in
Restless Legs Syndrome
4 months ago
Neupro Patch Weaning
I’ve read most of the forum’s input regarding Neupro Patches and relayed the information to the physician. He has decided to optimize the Gabapentin dose and discontinue the patch. A bit of history…….. the patch was started 12/19/23…10 days ago. Prior to that, ropinirole was weaning off (dose on
I’ve read most of the forum’s input regarding Neupro Patches and relayed the information to the physician. He has decided to optimize the Gabapentin dose and discontinue the patch. A bit of history…….. the patch was started 12/19/23…10 days ago. Prior to that, ropinirole was weaning off (dose on
Busunsc713
in
Restless Legs Syndrome
4 months ago
Escape from Augmentation
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
I have continued to make progress on my path to getting my dopamine receptors back to somewhere near normal. I last used a DA patch in September. I am using buprenorphine patches and pregabalin as RLS blockers to assist in the process. There is some improvement (perhaps 60%) in my sleep regime and in
davchar23
in
Restless Legs Syndrome
4 months ago
Hydrocodone to Tramadol?
So the USA ran out of Hydrocodone 10/325 due to DEA putting limits on annual production. My last fill was 11-6-23. Luckily I had saved up 90 units for emergency (proof I'm not abusing) but that ran out yesterday. I asked my doc to prescribe tramadol hcl 50mg to get by until production resumes. Started
So the USA ran out of Hydrocodone 10/325 due to DEA putting limits on annual production. My last fill was 11-6-23. Luckily I had saved up 90 units for emergency (proof I'm not abusing) but that ran out yesterday. I asked my doc to prescribe tramadol hcl 50mg to get by until production resumes. Started
billy_in_slo
in
Restless Legs Syndrome
4 months ago
hot flushes
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
Freshairfiend
in
PMRGCAuk
4 months ago
Longest bout of RLS 13 days of no sleep
I’m exhausted! I twitch and full body movements every night until 3AM then wake up at 6. On top of the RLS, I have now developed an upper respiratory infection. I was prescribed cough syrup with phenegran and it made me have the worst ever attack. I have called the doctor and he gave me gabapentin and
I’m exhausted! I twitch and full body movements every night until 3AM then wake up at 6. On top of the RLS, I have now developed an upper respiratory infection. I was prescribed cough syrup with phenegran and it made me have the worst ever attack. I have called the doctor and he gave me gabapentin and
Bulldogmom2003
in
Restless Legs Syndrome
4 months ago
Therapulse - Do I really need to scale up slowly the way the maker says to?
I've had RLS for decades & currently take Horizant, methadone, and a small amount of Mirapex (I ran into trouble when I tried to drop the Mirapex completely so my specialist suggested leaving a small amount in for now). To help further lower my med doses, or to help with handling flareups without increasing
I've had RLS for decades & currently take Horizant, methadone, and a small amount of Mirapex (I ran into trouble when I tried to drop the Mirapex completely so my specialist suggested leaving a small amount in for now). To help further lower my med doses, or to help with handling flareups without increasing
UsableThought
in
Restless Legs Syndrome
4 months ago
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