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low WBC Count & CMV Update
Okey, I haven’t posted for a while because I haven’t felt terribly well. I’m fairly sure this is due to the high dose of Valcyte I’m taking and have taken for all but 2 months since the first week of June. BACKGROUND I had a kidney transplant the week before Thanksgiving 2022. The surgery went well
Okey, I haven’t posted for a while because I haven’t felt terribly well. I’m fairly sure this is due to the high dose of Valcyte I’m taking and have taken for all but 2 months since the first week of June. BACKGROUND I had a kidney transplant the week before Thanksgiving 2022. The surgery went well
Jayhawker
in
Kidney Transplant
1 year ago
PMR Heavy Legs / Lead Legs / Low Energy
Hello, I haven't posted in a long time. I've read many articles. I didn't know what DSNS was until I went to the FAQ's and then tapering plans page. Both PMRpro and DorsetLady, and others have tapering plans (thank you PMRpro & DorsetLady). I have bounced around 15 to 5 MG for the past year. I'm currently
Hello, I haven't posted in a long time. I've read many articles. I didn't know what DSNS was until I went to the FAQ's and then tapering plans page. Both PMRpro and DorsetLady, and others have tapering plans (thank you PMRpro & DorsetLady). I have bounced around 15 to 5 MG for the past year. I'm currently
Me_2
in
PMRGCAuk
1 year ago
Update on Dipyridamole
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
WideBody
in
Restless Legs Syndrome
1 year ago
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cystitisy like feelings
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Norelo8
in
My Ovacome
1 year ago
Update: re my "draining fluid" post
I recently about (4th August) posted on the above topic. I thought I was going into hospital to have fluid drained. To those that replied, sorry for the delay! I will be reading and responding over the next few days, but in the meantime, thanks to all of you, you are a great source of support and
I recently about (4th August) posted on the above topic. I thought I was going into hospital to have fluid drained. To those that replied, sorry for the delay! I will be reading and responding over the next few days, but in the meantime, thanks to all of you, you are a great source of support and
taar
in
British Liver Trust
1 year ago
CTC MEANING
I entered the SPLASH trial in Spet 2022 and had my first treatment in Dec 2022. I had mets from PSMA scan aZhang at Moffitt. He thought I had responded rather well to the treaments and suggested I shoudl get a CTC (curculating tumor) test and as long as that was under 5 perhaps Provenge treatment. The
I entered the SPLASH trial in Spet 2022 and had my first treatment in Dec 2022. I had mets from PSMA scan aZhang at Moffitt. He thought I had responded rather well to the treaments and suggested I shoudl get a CTC (curculating tumor) test and as long as that was under 5 perhaps Provenge treatment. The
Joeym1040
in
Advanced Prostate Cancer
1 year ago
Curious about Hyper-magnesium and hypothyroidism
Has anyone experienced hyper magnesium with hypothyroidism? Im curious because my mag levels (although not reliable) is on the higher side and Im just wondering about this. Link below that I was reading. https://www.merckmanuals.com/professional/endocrine-and-metabolic-disorders/electrolyte-disorders
Has anyone experienced hyper magnesium with hypothyroidism? Im curious because my mag levels (although not reliable) is on the higher side and Im just wondering about this. Link below that I was reading. https://www.merckmanuals.com/professional/endocrine-and-metabolic-disorders/electrolyte-disorders
Batty1
in
Thyroid UK
1 year ago
If it’s not one thing, it's another! Update
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Gulfstream_Maggie
in
Fibromyalgia Action UK
1 year ago
Second kidney transplant
Hi, My nephrologist is putting in the application for me to go back onto the transplant list. I am very lucky as I have had my first transplant for over 28 years. My GFR is running at 12. Something I wondered about is do they remove my previous transplant and put the new one in the same place? I
Hi, My nephrologist is putting in the application for me to go back onto the transplant list. I am very lucky as I have had my first transplant for over 28 years. My GFR is running at 12. Something I wondered about is do they remove my previous transplant and put the new one in the same place? I
DoylerOz
in
Kidney Transplant
1 year ago
Blood clots in calf
Has anyone had issues with blood clots (superficial vein thrombosis) in their legs? In April I thought I’d just pulled a calf muscle but on the advice of my Pilates teacher (!) saw my GP who immediately prescribed blood-thinning medication and sent me off to the emergency hospital clinic the next
Has anyone had issues with blood clots (superficial vein thrombosis) in their legs? In April I thought I’d just pulled a calf muscle but on the advice of my Pilates teacher (!) saw my GP who immediately prescribed blood-thinning medication and sent me off to the emergency hospital clinic the next
Susiemac1321
in
NRAS
1 year ago
gobsmacked
I can't believe they won't prescribe Subutex to a suffering chronic pain sufferer, but freely give it out to drug addicts.......I'm just gobsmacked. There is a drug out there that could potentially stop me from jumping off a bridge but they won't give it to me. They look at me as if I'm a drug seeker
I can't believe they won't prescribe Subutex to a suffering chronic pain sufferer, but freely give it out to drug addicts.......I'm just gobsmacked. There is a drug out there that could potentially stop me from jumping off a bridge but they won't give it to me. They look at me as if I'm a drug seeker
Hidden
in
Restless Legs Syndrome
1 year ago
microscopic blood in urine.
Hi (sorry for a long one) I am a 34 year old Female and have recently had trouble with bowels and abdomen pain, so I saw my GP for that and while she wasn’t interested in that (put it down to IBS), she was very interested in the fact I have had Microscopic Haematuria in my Urine in the past. I was
Hi (sorry for a long one) I am a 34 year old Female and have recently had trouble with bowels and abdomen pain, so I saw my GP for that and while she wasn’t interested in that (put it down to IBS), she was very interested in the fact I have had Microscopic Haematuria in my Urine in the past. I was
Elliehca
in
Pelvic Pain Support Network
1 year ago
Severn Bridge 10k - long post warning ⚠️
Everyone else has written brilliant posts on the Race Support Forum but here is version 4 and I’ve put it on the Bridge Forum to give those on the journey to 10k an inkling of the excitement of a 10k race! I have been wanting to do the Severn Bridge 10k for years, having read many race reports by
Everyone else has written brilliant posts on the Race Support Forum but here is version 4 and I’ve put it on the Bridge Forum to give those on the journey to 10k an inkling of the excitement of a 10k race! I have been wanting to do the Severn Bridge 10k for years, having read many race reports by
Dexy5
Graduate10
in
Bridge to 10K
1 year ago
strange feeling
wondering if anyone can help for about 4 months now I have had a stitch like feeling that comes and goes in kidney area! I see doctor who said not to worry all seems fine 🤷♀️. So I made another appointment had bloods and kidney function was ok! Since then I still have the stitch feeling, have had UTI
wondering if anyone can help for about 4 months now I have had a stitch like feeling that comes and goes in kidney area! I see doctor who said not to worry all seems fine 🤷♀️. So I made another appointment had bloods and kidney function was ok! Since then I still have the stitch feeling, have had UTI
Readbecgar
in
Early CKD Support
1 year ago
Advice on blood test please
Hi everyone Just got these results back today A few elevated levels..one below Also elevated APTT 38.5 (26.9-34.5) below range GFR 74 (90-200) Any idea please ..feeling pretty rough x
Hi everyone Just got these results back today A few elevated levels..one below Also elevated APTT 38.5 (26.9-34.5) below range GFR 74 (90-200) Any idea please ..feeling pretty rough x
Lincsangel1
in
Pernicious Anaemia Society
1 year ago
Noo shoos!
Having looked into these shoes that Frizzbomb67 asked about, I decided to order the support version, Brookes Launch GTS. They arrived quickly, and included a free pair of running socks! When I first tried them on I thought they were awful, really stiff and solid, like putting a cardboard box on my feet
Having looked into these shoes that Frizzbomb67 asked about, I decided to order the support version, Brookes Launch GTS. They arrived quickly, and included a free pair of running socks! When I first tried them on I thought they were awful, really stiff and solid, like putting a cardboard box on my feet
Curlygurly2
Graduate
in
Couch to 5K
1 year ago
Stage 5 Chronic Kidney Disease (CKD)
Dialysis and kidney transplant are the only two treatments for people with kidney failure. It is also important for patients to continue managing any other health conditions they may have, including high blood pressure and/or diabetes. Learn more at: https://www.kidney.org/atoz/content/stage-5-chronic-kidney-disease-ckd
Dialysis and kidney transplant are the only two treatments for people with kidney failure. It is also important for patients to continue managing any other health conditions they may have, including high blood pressure and/or diabetes. Learn more at: https://www.kidney.org/atoz/content/stage-5-chronic-kidney-disease-ckd
JackieJ_NKF
Partner
in
Kidney Dialysis
1 year ago
Protein Question
Is anyone eating a high protein diet but worried about the effects on their kidneys? Would a high protein intake cause kidney disease eventually?
Is anyone eating a high protein diet but worried about the effects on their kidneys? Would a high protein intake cause kidney disease eventually?
FlippinOut
in
British Liver Trust
1 year ago
Strange eGFR Reading?
Last month, my blood test showed a Creatinine level of 1.64 and an eGRF of 45. A follow up test 3 weeks later showed a Creatinine level of 1.60 and an eGFR of 32. Yes, I was a little dehydrated for the 2nd test, but these results make no sense to me. I then used several online calculators and keep
Last month, my blood test showed a Creatinine level of 1.64 and an eGRF of 45. A follow up test 3 weeks later showed a Creatinine level of 1.60 and an eGFR of 32. Yes, I was a little dehydrated for the 2nd test, but these results make no sense to me. I then used several online calculators and keep
Saltyy
in
Early CKD Support
1 year ago
Transplant.vs dialysis
Hi. I am going through the process for a kidney transplant. I had my first appointment with the transplant deans was supposed by what he was saying. I felt like he was trying to talk me ougetting a transplant. He told me there was no guarantee a transplant would improve my life more than dialysis.
Hi. I am going through the process for a kidney transplant. I had my first appointment with the transplant deans was supposed by what he was saying. I felt like he was trying to talk me ougetting a transplant. He told me there was no guarantee a transplant would improve my life more than dialysis.
Jade1982
in
Kidney Transplant Patient Support
1 year ago
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