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Dialysis struggles
I have been on dialysis for a year .I am a diabetic. My dad was on dialysis and passed at 58 waiting on a kidney. I feel like ive been given a death sentence. One thing that's hard for me im on home peritoneal dialysis and have gained 60lbs in one year.i have always had low self esteem now this has dropped
I have been on dialysis for a year .I am a diabetic. My dad was on dialysis and passed at 58 waiting on a kidney. I feel like ive been given a death sentence. One thing that's hard for me im on home peritoneal dialysis and have gained 60lbs in one year.i have always had low self esteem now this has dropped
NurseRed
in
Kidney Dialysis
4 years ago
October 15th - 21 Years & Counting!!
Hi all! This is the day, 21 years ago (1999), that changed my LIFE FOREVER!!! It's my MIRACLE DAY! Yes, it's the day I got the CALL for a kidney transplant. It seems like a long time ago, and yet seems like just yesterday. I have a life, thanks to a family who was grieving for their 16 year old son
Hi all! This is the day, 21 years ago (1999), that changed my LIFE FOREVER!!! It's my MIRACLE DAY! Yes, it's the day I got the CALL for a kidney transplant. It seems like a long time ago, and yet seems like just yesterday. I have a life, thanks to a family who was grieving for their 16 year old son
WYOAnne
NKF Ambassador
in
Kidney Transplant
4 years ago
Pausing of Sheilding - Renal Letter
Hey all Hope everyone is coping in mad times. Just thought I'd ask if anyone has received a letter regarding the pausing of Sheilding? I have come home from work, where I was pressured to return to the moment shielding was lifted to a letter that as far as I can make out should have been sent in July
Hey all Hope everyone is coping in mad times. Just thought I'd ask if anyone has received a letter regarding the pausing of Sheilding? I have come home from work, where I was pressured to return to the moment shielding was lifted to a letter that as far as I can make out should have been sent in July
MOOG144
in
LUPUS UK
4 years ago
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New Rhuematologist
Hi Everyone! Thanks so much for your replies on the last post, i have been busy and so i just saw them and i appreciate all the advice! so i had my appointment with my rheumatologist today and she put me back on hydrochloroquine and ordered more blood tests for me. I just got some of the results back
Hi Everyone! Thanks so much for your replies on the last post, i have been busy and so i just saw them and i appreciate all the advice! so i had my appointment with my rheumatologist today and she put me back on hydrochloroquine and ordered more blood tests for me. I just got some of the results back
aimenkhattak27
in
LUPUS UK
4 years ago
Lymphadenopathies, cortical calcifications
After my mother's increasing CA125 trend, we went to have ct scan and the result can be summarized as follows: cortical calcifications, lymphadenopathies and renal cyst Bosniak type 1 (which i read is benign, but because of her history, i dont know what to believe anymore.) Anyone who has an idea about
After my mother's increasing CA125 trend, we went to have ct scan and the result can be summarized as follows: cortical calcifications, lymphadenopathies and renal cyst Bosniak type 1 (which i read is benign, but because of her history, i dont know what to believe anymore.) Anyone who has an idea about
Kwiskwos
in
My Ovacome
4 years ago
Laxido causing magnesium crystals in urine?!
Has anyone ever heard of macrogol causing magnesium crystals in urine? My daughter often gets glittery crystals in urine, obviously v painful. It seems to have started when we began regular laxido (1.5 sachets paediatric plain daily). We've just got our first Urology appointment but I'm desperate to
Has anyone ever heard of macrogol causing magnesium crystals in urine? My daughter often gets glittery crystals in urine, obviously v painful. It seems to have started when we began regular laxido (1.5 sachets paediatric plain daily). We've just got our first Urology appointment but I'm desperate to
J2Boo
in
ERIC
4 years ago
Help! Thought it was a severe kidney infection?!
Help please. I have always suspected i have had endometriosis. Typical symptoms horrendous painful periods, ovulation pain...the usual list. But the symptoms pass in 4 days when my period goes. But this time there has been a big change. Last week I started my period abd could not physically walk unaided
Help please. I have always suspected i have had endometriosis. Typical symptoms horrendous painful periods, ovulation pain...the usual list. But the symptoms pass in 4 days when my period goes. But this time there has been a big change. Last week I started my period abd could not physically walk unaided
VicB8t
in
Endometriosis UK
4 years ago
Getting ready
Was anyone scared about surgery for hemodialysis? And how to get mentally ready for dialysis? Any good advice out there let me know.
Was anyone scared about surgery for hemodialysis? And how to get mentally ready for dialysis? Any good advice out there let me know.
Quita55
in
Kidney Dialysis
4 years ago
COVID-19’ & Bronchiectasis
Does anyone know how the new COVID-19 affects the lungs .? My daughter had a kidney transplant 17 years ago ,so apart from the fact it’s now failing & her immune system is compromised, three years ago she developed bronchiectasis. We just wondered how the virus affects the lungs .Does it cause severe
Does anyone know how the new COVID-19 affects the lungs .? My daughter had a kidney transplant 17 years ago ,so apart from the fact it’s now failing & her immune system is compromised, three years ago she developed bronchiectasis. We just wondered how the virus affects the lungs .Does it cause severe
rossiedavid
in
Lung Conditions Community Forum
4 years ago
Lovely, just wonderful.
Dear All, I'm sitting in my Favourite Chair, with the window 'slightly' open.... Listening to the Wind And Rain😁. It's such a 'Change' from ALL that Sun..... I have to be so careful, you see. Not only have I ANCA Vasculitis, but also have had a Kidney Transplant, so I have to use a Factor Fifty Plus
Dear All, I'm sitting in my Favourite Chair, with the window 'slightly' open.... Listening to the Wind And Rain😁. It's such a 'Change' from ALL that Sun..... I have to be so careful, you see. Not only have I ANCA Vasculitis, but also have had a Kidney Transplant, so I have to use a Factor Fifty Plus
AndrewT
in
Positive Wellbeing During Self-Isolation
4 years ago
NICE appraisal of belimumab (Benlysta) - please complete our anonymous online survey
The National Institute for Health and Care Excellence (NICE) are doing an appraisal of belimumab (Benlysta) to produce new guidance for its use in the treatment of adults with SLE in England. LUPUS UK is a registered consultee (stakeholder) and will be submitting evidence. To help with this and to
The National Institute for Health and Care Excellence (NICE) are doing an appraisal of belimumab (Benlysta) to produce new guidance for its use in the treatment of adults with SLE in England. LUPUS UK is a registered consultee (stakeholder) and will be submitting evidence. To help with this and to
Paul_Howard
LUPUS UK
in
LUPUS UK
4 years ago
I need help how can I handle this situation
Hi, My kidneys damaged due to preeclampsia in pregnancy. I had 4 months old baby girl. My kidney function improving since my baby born. Last week doctor told me do kidney transplant after result of renal biopsy. Very upset after this.
Hi, My kidneys damaged due to preeclampsia in pregnancy. I had 4 months old baby girl. My kidney function improving since my baby born. Last week doctor told me do kidney transplant after result of renal biopsy. Very upset after this.
Savreen1
in
Kidney Disease
4 years ago
CA125 increasing, no symptoms, 7 years remission
My mother was diagnosed with stage 3C endometrial cancer. She underwent TAHBSO, had 6 cycles of chemo and 25 sessions of radiotherapy. Then we had monitoring. Everything is well until 2years ago, her CA125 started to increase. It will increase by 6, then decreas by 2 on the next check. I was worried.
My mother was diagnosed with stage 3C endometrial cancer. She underwent TAHBSO, had 6 cycles of chemo and 25 sessions of radiotherapy. Then we had monitoring. Everything is well until 2years ago, her CA125 started to increase. It will increase by 6, then decreas by 2 on the next check. I was worried.
Kwiskwos
in
My Ovacome
4 years ago
DS dna antibody or ANA antibody
Has anyone had a positive ANA or a positive DS dna titer?
Has anyone had a positive ANA or a positive DS dna titer?
Dotie
in
Thyroid UK
4 years ago
Pbc
Fealing very upset with my doctor struggling with fatigue ache all over asked doctor to write a letter explaining this to my employer to support me as I'm finding working my shift pattern difficult hes reply was your bloods are ok also your liver scan so he said I cant understand why your fealing tired
Fealing very upset with my doctor struggling with fatigue ache all over asked doctor to write a letter explaining this to my employer to support me as I'm finding working my shift pattern difficult hes reply was your bloods are ok also your liver scan so he said I cant understand why your fealing tired
Purdy2017
in
PBC Foundation
4 years ago
Kidney test
I test creatinine, urea in every six months and microalbumin in every 6months.is there any other test require to check the functioning of kidney.i m diabetic since last 6years and age is 39.
I test creatinine, urea in every six months and microalbumin in every 6months.is there any other test require to check the functioning of kidney.i m diabetic since last 6years and age is 39.
nita123
in
Diabetes India
4 years ago
NKF Virtual Patient Event: Everything You Need to Know About Insurance
Are you looking for more information about insurance options for people with kidney disease? Are you enrolled in Medicare (or looking to enroll soon) and want to learn more about your options? Have you seen information about Medicare Advantage Plans and want to learn more? Join us for a free webinar
Are you looking for more information about insurance options for people with kidney disease? Are you enrolled in Medicare (or looking to enroll soon) and want to learn more about your options? Have you seen information about Medicare Advantage Plans and want to learn more? Join us for a free webinar
KristiS_NKF
Administrator
in
Parents of Children with Kidney Disease
4 years ago
NKF Virtual Patient Event: Everything You Need to Know About Insurance
Are you looking for more information about insurance options for people with kidney disease? Are you enrolled in Medicare (or looking to enroll soon) and want to learn more about your options? Have you seen information about Medicare Advantage Plans and want to learn more? Join us for
Are you looking for more information about insurance options for people with kidney disease? Are you enrolled in Medicare (or looking to enroll soon) and want to learn more about your options? Have you seen information about Medicare Advantage Plans and want to learn more? Join us for
KristiS_NKF
Administrator
in
Kidney Transplant
4 years ago
NKF Virtual Patient Event: Everything You Need to Know About Insurance
Are you looking for more information about insurance options for people with kidney disease? Are you enrolled in Medicare (or looking to enroll soon) and want to learn more about your options? Have you seen information about Medicare Advantage Plans and want to learn more? Join us for a free webinar
Are you looking for more information about insurance options for people with kidney disease? Are you enrolled in Medicare (or looking to enroll soon) and want to learn more about your options? Have you seen information about Medicare Advantage Plans and want to learn more? Join us for a free webinar
KristiS_NKF
Administrator
in
Kidney Disease
4 years ago
NKF Virtual Patient Event: Everything You Need to Know About Insurance
Are you looking for more information about insurance options for people with kidney disease? Are you enrolled in Medicare (or looking to enroll soon) and want to learn more about your options? Have you seen information about Medicare Advantage Plans and want to learn more? Join us for a free webinar
Are you looking for more information about insurance options for people with kidney disease? Are you enrolled in Medicare (or looking to enroll soon) and want to learn more about your options? Have you seen information about Medicare Advantage Plans and want to learn more? Join us for a free webinar
KristiS_NKF
Administrator
in
Kidney Dialysis
4 years ago
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