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Another CLL ‘wobble’, seems like I’m ‘losing it’ slightly.
Hi all, and once more I am looking for information from the vast well of expertise which is out there. Recently I ‘wobbled’ about being in subset 6. The thing that precipitated my regrettable ‘wobble’ and erroneous ‘consultation’ with Dr Google & Dr ChatGPT was the fact that I was reviewing my CLL position
Hi all, and once more I am looking for information from the vast well of expertise which is out there. Recently I ‘wobbled’ about being in subset 6. The thing that precipitated my regrettable ‘wobble’ and erroneous ‘consultation’ with Dr Google & Dr ChatGPT was the fact that I was reviewing my CLL position
Petroc
in
CLL Support
1 year ago
notalgia paresthetica
I have vasculitis, MPA, and have developed nostalgia paresthetica, (my own diagnosis). Intense itching on my back is driving me crazy. This has been going on for a few months. Does anyone have experience with this and advice to share??
I have vasculitis, MPA, and have developed nostalgia paresthetica, (my own diagnosis). Intense itching on my back is driving me crazy. This has been going on for a few months. Does anyone have experience with this and advice to share??
GinnyMa
in
Vasculitis UK
1 year ago
Endo/cyst on the kidney after MRI - could this happen to you?
Hi ladies! The results came in for the first MRI (still waiting for the results of the second MRI). A cyst was spotted on one of my kidneys and the blood test indicated issues with my kidneys. I know this might indicate deep infiltrating endometriosis on the kidney/ureter or... I know that endo can lead
Hi ladies! The results came in for the first MRI (still waiting for the results of the second MRI). A cyst was spotted on one of my kidneys and the blood test indicated issues with my kidneys. I know this might indicate deep infiltrating endometriosis on the kidney/ureter or... I know that endo can lead
Endosufferer1
in
Endometriosis UK
1 year ago
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Kidney disease and inheritance.
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
nlee
in
Kidney Transplant
1 year ago
Kidney transplant and children
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
nlee
in
Kidney Transplant Patient Support
1 year ago
Lightheadedness and Knee heaviness/dull pain after kidney transplant
Hi everyone, My client developed lightheadedness after kidney transplant, he's 3 months post transplant now. Actually, he had dizziness and imbalance pre-transplant and it worsen after the transplant. Moreover, he complains of knee heaviness, sometimes with dull pain. His BP is quite stable, not taking
Hi everyone, My client developed lightheadedness after kidney transplant, he's 3 months post transplant now. Actually, he had dizziness and imbalance pre-transplant and it worsen after the transplant. Moreover, he complains of knee heaviness, sometimes with dull pain. His BP is quite stable, not taking
Jeeeemv
in
Kidney Transplant
1 year ago
how common is Hypoparathyroidism after TT
hi all. Back again 😬 my endo tells me this is really common and she sees it a lot with the surgeon I’m scheduled to see but that he’s a very good surgeon. Do I need to look into seeing someone else? My endo told me it happens in between 5 and 10 per cent of TTs. She never mentioned the possibility
hi all. Back again 😬 my endo tells me this is really common and she sees it a lot with the surgeon I’m scheduled to see but that he’s a very good surgeon. Do I need to look into seeing someone else? My endo told me it happens in between 5 and 10 per cent of TTs. She never mentioned the possibility
Rowan4
in
Thyroid UK
1 year ago
GREAT INFO FROM EXPERIENCED KIDNEY DOCTOR
I’d like you recommend this very informative video from Dadvice TV. The nephrologist gives explanation and advice for different stages of kidney disease, what is and what isn’t really kidney disease, appropriate treatments and diet, etc. I have seen this nephrologist several times online and he is
I’d like you recommend this very informative video from Dadvice TV. The nephrologist gives explanation and advice for different stages of kidney disease, what is and what isn’t really kidney disease, appropriate treatments and diet, etc. I have seen this nephrologist several times online and he is
HisLittleOne
in
Early CKD Support
1 year ago
3 months post kidney transplant question
My husband is 3 months post kidney transplant. He is experiencing severe gut issues. Can he take probiotics, Vitamins like fish oil, Turmeric and add more fiber into diet? Regular doctors are not offering ANY assistance. H. pylori and BK came back negative. He is nauseous, gassy and has lost over
My husband is 3 months post kidney transplant. He is experiencing severe gut issues. Can he take probiotics, Vitamins like fish oil, Turmeric and add more fiber into diet? Regular doctors are not offering ANY assistance. H. pylori and BK came back negative. He is nauseous, gassy and has lost over
Loveoflife
in
Kidney Transplant
1 year ago
always ANA positive with lupus?
hi all, I was diagnosed privately in 2019 with SLE and Sjogrens , but my current GP is querying this, its an ongoing issue and a long story. She has said that if my ANA comes back neg then I don't have lupus or sjorgrens, despite all mys symptoms and being on ongoing treatment for it? My questions
hi all, I was diagnosed privately in 2019 with SLE and Sjogrens , but my current GP is querying this, its an ongoing issue and a long story. She has said that if my ANA comes back neg then I don't have lupus or sjorgrens, despite all mys symptoms and being on ongoing treatment for it? My questions
Foodman500
in
LUPUS UK
1 year ago
Dating and kissing for young adults with kidney transplant
Please answer only if you have gone through the same situation. How do you do to avoid rejection when meeting a potential romantic partner? I wear a mask in closed public places. All women I met when they know that I have a kidney transplant start to keep distance and do not give me a chance to
Please answer only if you have gone through the same situation. How do you do to avoid rejection when meeting a potential romantic partner? I wear a mask in closed public places. All women I met when they know that I have a kidney transplant start to keep distance and do not give me a chance to
vision22
in
Kidney Transplant
1 year ago
Narirutin found in lemons, oranges, passion fruit, bergamot and grapefruit may be chemopreventive agent for hormone-resistant PC
Narirutin. A flavonoid found in citrus fruits modulates cell cycle phases and inhibits the proliferation of hormone-refractory prostate cancer cells by targeting hyaluronidase Author links open overlay panelShilpi Singh a b, Akhilesh Kumar Maurya c, Abha Meena a b, Nidhi Mishra c, Suaib Luqman a b
Narirutin. A flavonoid found in citrus fruits modulates cell cycle phases and inhibits the proliferation of hormone-refractory prostate cancer cells by targeting hyaluronidase Author links open overlay panelShilpi Singh a b, Akhilesh Kumar Maurya c, Abha Meena a b, Nidhi Mishra c, Suaib Luqman a b
Graham49
in
Advanced Prostate Cancer
1 year ago
Have kidney transplant and dr found a intraduct mass on my breast is really small but im so worried
I going through a difficult time here I have a kidney transplant for 22 years just when to get a ultrasound and they found an intraductal mass which is really mass . I did a biopsy and I'm terrified that it could be cancerous. I don't want to know waiting for results is torture for me. I read and did
I going through a difficult time here I have a kidney transplant for 22 years just when to get a ultrasound and they found an intraductal mass which is really mass . I did a biopsy and I'm terrified that it could be cancerous. I don't want to know waiting for results is torture for me. I read and did
jennifer24
in
Kidney Transplant
1 year ago
Edema
Due to ADT, I have swelling of the stomach due to edema, i guess. Anybody have the same problem? Treatent I should go over with my doc? Also a bit of gynomastia. .
Due to ADT, I have swelling of the stomach due to edema, i guess. Anybody have the same problem? Treatent I should go over with my doc? Also a bit of gynomastia. .
gsun
in
Advanced Prostate Cancer
1 year ago
de novo metastatic prostate cancer
hello, I was diagnosed in march with a very aggressive and advanced case, with many skeletal lesions - high volume/high risk. I’ve been on degarelix/Firmagon and Abiraterone for the past 3.5 months and it seems to be working well - just had my 3 month scans. And the terrible fatigue is under control
hello, I was diagnosed in march with a very aggressive and advanced case, with many skeletal lesions - high volume/high risk. I’ve been on degarelix/Firmagon and Abiraterone for the past 3.5 months and it seems to be working well - just had my 3 month scans. And the terrible fatigue is under control
NewGame
in
Advanced Prostate Cancer
1 year ago
Neuropsychiatric webinar.
Hi,I have seen from Cocos post that the webinar about neuropsychiatric Lupus will be available to watch on YouTube. Can anyone from LUK confirm when it will be available please? I was really sorry to have missed it as it sounds like it could benefit both me and my family. My father had a real grasp
Hi,I have seen from Cocos post that the webinar about neuropsychiatric Lupus will be available to watch on YouTube. Can anyone from LUK confirm when it will be available please? I was really sorry to have missed it as it sounds like it could benefit both me and my family. My father had a real grasp
happytulip
in
LUPUS UK
1 year ago
CKD new diagnosis.
I have several spinal injuries, successive surgeries etc. blah blah blahDealing with chronic pain 24/7. Recently had bood and iron transfused due to severe Anaemia. HG 72 They also did blood and urine tests and told me I had CKD Stage 3 which was a complete shock, and has left me scared and confused
I have several spinal injuries, successive surgeries etc. blah blah blahDealing with chronic pain 24/7. Recently had bood and iron transfused due to severe Anaemia. HG 72 They also did blood and urine tests and told me I had CKD Stage 3 which was a complete shock, and has left me scared and confused
Jane_the_Pain
in
Pain Concern
1 year ago
does half a mg make so much difference
about three weeks ago I started to feel the familiar aches associated with pmr. Prior to this I had dropped from 3.5 to 3. I contacted my rheumatologist department and had a blood test which showed cpr <5 cor but I had symptoms. I’ve arranged a further blood test next week and was advised to stay with
about three weeks ago I started to feel the familiar aches associated with pmr. Prior to this I had dropped from 3.5 to 3. I contacted my rheumatologist department and had a blood test which showed cpr <5 cor but I had symptoms. I’ve arranged a further blood test next week and was advised to stay with
Rosina1871
in
PMRGCAuk
1 year ago
Dialysis and transplant.
I want to tell everyone my experience, with dialysis and trying to be put transplant list.The experiences I have had at have been good and bad. The good is when I no cramps and good blood pressure. The is when the total opposite. This has happened several times. I would say be your own advocate.
I want to tell everyone my experience, with dialysis and trying to be put transplant list.The experiences I have had at have been good and bad. The good is when I no cramps and good blood pressure. The is when the total opposite. This has happened several times. I would say be your own advocate.
Fsgs57
in
Kidney Dialysis
1 year ago
er scare
yesterday I had my worst “episode” ever—after an uneventful start to my day, I suddenly felt like I was going to collapse. Couldn’t breathe, could barely talk, weak, too weak to stand. My husband took me to er where my bp was very high (of course); spent the day. Long story short: not one thing wrong
yesterday I had my worst “episode” ever—after an uneventful start to my day, I suddenly felt like I was going to collapse. Couldn’t breathe, could barely talk, weak, too weak to stand. My husband took me to er where my bp was very high (of course); spent the day. Long story short: not one thing wrong
Twopies
in
PMRGCAuk
1 year ago
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