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Hereditary kidney disease
Hi everyone, if you have kidney disease and you don’t have a cause for it but you have a parent with it and possibly other family members, you may look up a disease called MUC1. After decades of searching my family found the answer as to what was causing our unknown disease. It’s characteristics are
Hi everyone, if you have kidney disease and you don’t have a cause for it but you have a parent with it and possibly other family members, you may look up a disease called MUC1. After decades of searching my family found the answer as to what was causing our unknown disease. It’s characteristics are
MsJasmine
in
Kidney Dialysis
3 years ago
Traveling to Venice, Italy
Hello, I am traveling to Venice, Italy in October and have exhausted all searches for locations for hemodialysis. Nephrocare, Davita and any other sight that talks about overseas travel does not list Venice as a dialysis location, which cannot be the case. I am hoping someone can give me the name of
Hello, I am traveling to Venice, Italy in October and have exhausted all searches for locations for hemodialysis. Nephrocare, Davita and any other sight that talks about overseas travel does not list Venice as a dialysis location, which cannot be the case. I am hoping someone can give me the name of
Jduane2021
in
Kidney Dialysis
3 years ago
4 year old starting school and still will only poo in a pull up
My 4 year old starts reception in 2 weeks and still cannot poo in the toilet, only in a pull up, despite 2 years of me trying and failing to achieve this. He also soils and is on Movicol and Senna. If I am slow to give him a pull up (in the hope that as he’s so desperate to go it might just slip out
My 4 year old starts reception in 2 weeks and still cannot poo in the toilet, only in a pull up, despite 2 years of me trying and failing to achieve this. He also soils and is on Movicol and Senna. If I am slow to give him a pull up (in the hope that as he’s so desperate to go it might just slip out
OhBoy07
in
ERIC
3 years ago
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Covid -19, still a big risk for some.
Some time ago, I wanted to post up a warning about the various covid vaccines, and of the lack of protection they might offer for some. Back in April, (not long after I had my first covid-19 vaccine), news began to filter through on the “Royal Free Hospital London, Liver Transplant Support Group” Facebook
Some time ago, I wanted to post up a warning about the various covid vaccines, and of the lack of protection they might offer for some. Back in April, (not long after I had my first covid-19 vaccine), news began to filter through on the “Royal Free Hospital London, Liver Transplant Support Group” Facebook
Richard-Allen
in
British Liver Trust
3 years ago
Confused?
Hi, yesterday I downloaded the NHS app for my COVID pass information, under my medical conditions it lists liver steatosis (last april U.S) and renal fibrosis? (November U.S). I thought renal was kidney related? at no point has anything other than liver fibrosis been confirmed to me by letter or phone
Hi, yesterday I downloaded the NHS app for my COVID pass information, under my medical conditions it lists liver steatosis (last april U.S) and renal fibrosis? (November U.S). I thought renal was kidney related? at no point has anything other than liver fibrosis been confirmed to me by letter or phone
Muse12
in
British Liver Trust
3 years ago
5-minute breathing workout lowers blood pressure as much as exercise, drugs
"A new study shows that a breathing exercise known as Inspiratory Muscle Strength Training can reduce blood pressure in weeks, with benefits on par with daily exercise or medication." This article is from Science Daily You can read more in the link below: https://www.sciencedaily.com/releases/2021/06
"A new study shows that a breathing exercise known as Inspiratory Muscle Strength Training can reduce blood pressure in weeks, with benefits on par with daily exercise or medication." This article is from Science Daily You can read more in the link below: https://www.sciencedaily.com/releases/2021/06
sandybrown
in
Diabetes India
3 years ago
T2
I understand that it is now believed that T2, like T3, is produced by the Thyroid as well as through conversion, much like T3, and that this small amount is responsible for particularly metabolism and: Affecting and improving cholesterol Maintaining muscular activity Helping the liver and muscles burn
I understand that it is now believed that T2, like T3, is produced by the Thyroid as well as through conversion, much like T3, and that this small amount is responsible for particularly metabolism and: Affecting and improving cholesterol Maintaining muscular activity Helping the liver and muscles burn
annnsandell
in
Thyroid UK
3 years ago
Mohs Surgery with Kidney Disease
Does the Mohs surgeon have to do something different for kidney disease patients to avoid bleeding, promote healing, etc?
Does the Mohs surgeon have to do something different for kidney disease patients to avoid bleeding, promote healing, etc?
KGsrKGsr
in
Kidney Dialysis
3 years ago
Post dental extraction
I had a molar removed yesterday afternoon due to severe pain and swelling. In my ignorant bliss I thought tooth out, pain and facial swelling will be gone, how wrong was I. Swelling worse and more widespread and pain is building back up. Has anyone suffered the same and found Prednisolone helped ?
I had a molar removed yesterday afternoon due to severe pain and swelling. In my ignorant bliss I thought tooth out, pain and facial swelling will be gone, how wrong was I. Swelling worse and more widespread and pain is building back up. Has anyone suffered the same and found Prednisolone helped ?
ParsnipSoup
in
PMRGCAuk
3 years ago
Genetic test that spots rare 'hidden' Diabetes
This morning, I read the article below and found it very interesting. "
Genetic test that spots rare 'hidden' Diabetes
” New NHS check could provide breakthrough and spare thousands of patients from wrong treatment" "Monogenic diabetes is often mistaken for the type 1 or type 2 forms It means many
This morning, I read the article below and found it very interesting. "
Genetic test that spots rare 'hidden' Diabetes
” New NHS check could provide breakthrough and spare thousands of patients from wrong treatment" "Monogenic diabetes is often mistaken for the type 1 or type 2 forms It means many
sandybrown
in
Diabetes India
3 years ago
Kidney transplant 17 yrs. survived Covid 3/2020 and still have antibodies. Unvaccinated wondering if others concerned with immune response.
Unsure if I should get the vaccine as I have antibodies.
Unsure if I should get the vaccine as I have antibodies.
homerontherange
in
Kidney Transplant
3 years ago
Fluid retention / edema
Hi -- I'm 5 years post kidney transplant and over the past year I've developed swelling (pitting edema) in my lower legs. My eyes are also extemely puffy in the morning as the fluid pools there overnight. I'm curiuos if others have taken diuretics (lasix) to address this, or why they have chosen not
Hi -- I'm 5 years post kidney transplant and over the past year I've developed swelling (pitting edema) in my lower legs. My eyes are also extemely puffy in the morning as the fluid pools there overnight. I'm curiuos if others have taken diuretics (lasix) to address this, or why they have chosen not
SoCal1
in
Kidney Transplant
3 years ago
stomach ache
pain in stomach at the moment I'm taking trimethoprim for a bladder infection and it was 3-day course I'm almost at the end but I've got pain in my stomach and I feel nauseous will this stop once I finish the course?
pain in stomach at the moment I'm taking trimethoprim for a bladder infection and it was 3-day course I'm almost at the end but I've got pain in my stomach and I feel nauseous will this stop once I finish the course?
paboje47
in
CLL Support
3 years ago
Brachytherapy HDR
So, after 3 months of scans the EBRT here locally was canceled. Today Jim's RO from UCSF called and said the radiation board talked a long time and decided Brachytherapy HDR was appropriate. Jim will have two treatments at an overnight stay. After all the frustration and anxiety over the delays
So, after 3 months of scans the EBRT here locally was canceled. Today Jim's RO from UCSF called and said the radiation board talked a long time and decided Brachytherapy HDR was appropriate. Jim will have two treatments at an overnight stay. After all the frustration and anxiety over the delays
JWPMP
in
Advanced Prostate Cancer
3 years ago
Lupus related nodular prurigo
Does anyone with Lupus suffer from nodular prurigo? I’m climbing the walls with the pain and itching. Haven’t been able to see my consultant for over 2 years now. Any tips would be greatly appreciated. All the best to fellow Lupus sufferers.
Does anyone with Lupus suffer from nodular prurigo? I’m climbing the walls with the pain and itching. Haven’t been able to see my consultant for over 2 years now. Any tips would be greatly appreciated. All the best to fellow Lupus sufferers.
Oshachota
in
LUPUS UK
3 years ago
Bladder pain?
I may have mentioned this before on here but honestly I just want to hear people’s stories and not feel alone in this. I currently get really bad bladder pain (what I assume is bladder pain). I get pain when my bladder is full and really bad pain as I emptying and after it is empty. It’s pain like I’
I may have mentioned this before on here but honestly I just want to hear people’s stories and not feel alone in this. I currently get really bad bladder pain (what I assume is bladder pain). I get pain when my bladder is full and really bad pain as I emptying and after it is empty. It’s pain like I’
Poppy96
in
Endometriosis UK
3 years ago
PD and stress
I have being doing CAPD for about 18months now, it has really helped to keep me going whilst I wait for my transplant. I just worry constantly between getting the balance of exercise diet and laxative. When I get stressed I get constipated, when I get constipated I get even more stressed so I end up
I have being doing CAPD for about 18months now, it has really helped to keep me going whilst I wait for my transplant. I just worry constantly between getting the balance of exercise diet and laxative. When I get stressed I get constipated, when I get constipated I get even more stressed so I end up
Dora86
in
Kidney Dialysis
3 years ago
Dialysis HEADACHE!
I get a headache almost every time I go to dialysis lately. My blood pressure goes up during dialysis and that may be the trigger, but curious if anyone else has had this issue and how they deal with it or avoid it. I tried magnesium supplements and that does seem to help.
I get a headache almost every time I go to dialysis lately. My blood pressure goes up during dialysis and that may be the trigger, but curious if anyone else has had this issue and how they deal with it or avoid it. I tried magnesium supplements and that does seem to help.
MP11
in
Kidney Dialysis
3 years ago
Declining utilization of prostate brachytherapy.
New U.S. study below. [1] "We analyzed 178,837 patients {from the National Cancer Database (NCDB)} with localized adenocarcinoma of the prostate treated between 2010 and 2015 with radiation therapy." "During this period, the use of EBRT {external beam radiation} increased from 67% to 78%, "BT {brachytherapy
New U.S. study below. [1] "We analyzed 178,837 patients {from the National Cancer Database (NCDB)} with localized adenocarcinoma of the prostate treated between 2010 and 2015 with radiation therapy." "During this period, the use of EBRT {external beam radiation} increased from 67% to 78%, "BT {brachytherapy
pjoshea13
in
Advanced Prostate Cancer
3 years ago
Update to my 10.1 elf
From previous post where dr wouldn't do scan as elf was under 10.5, which nice guidelines do state, but my concern was my drs think anything upto 10.5 is completely normal range with no other references, I did book a private ultrasound last week which showed nothing at all with my liver not even any
From previous post where dr wouldn't do scan as elf was under 10.5, which nice guidelines do state, but my concern was my drs think anything upto 10.5 is completely normal range with no other references, I did book a private ultrasound last week which showed nothing at all with my liver not even any
Poe2012
in
British Liver Trust
3 years ago
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