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An update on my tocilizumab experience.
Hello Everyone, from Downunder, I have now had my 12th jab of tocilizumab and my inflammatory markers have reduced to “normal” levels. I feel strong, full of energy and mentally positive for the first time in some months. My pred is down to 6.5mgs, Rheumatologist thinks I could reduce more rapidly,
Hello Everyone, from Downunder, I have now had my 12th jab of tocilizumab and my inflammatory markers have reduced to “normal” levels. I feel strong, full of energy and mentally positive for the first time in some months. My pred is down to 6.5mgs, Rheumatologist thinks I could reduce more rapidly,
LemonZest11
in
PMRGCAuk
4 years ago
Psoriatic Arthritis: What Immunosuppressants Help to Control Both Psoriasis and Arthritis? I'm New Here. :-)
I was prescribed Humira for Psoriasis by my dermatologist and it worked for a while and then seemed to stop. Derm recommended more topical Triamcinolone and wait out the flare. My rheumatologist did blood work that showed I had developed an immunity to Humira and prescribed Enbrel for Psoriatic Arthritis
I was prescribed Humira for Psoriasis by my dermatologist and it worked for a while and then seemed to stop. Derm recommended more topical Triamcinolone and wait out the flare. My rheumatologist did blood work that showed I had developed an immunity to Humira and prescribed Enbrel for Psoriatic Arthritis
NoGoodNamesLeft
in
NRAS
4 years ago
Hard to sleep
Hi, I have thoracic scoliosis which has caused osteoarthritis in my T - spine. Couple this with tennis elbow and I'm finding it vwry difficult to sleep comfortably. Any suggestions?
Hi, I have thoracic scoliosis which has caused osteoarthritis in my T - spine. Couple this with tennis elbow and I'm finding it vwry difficult to sleep comfortably. Any suggestions?
Olliecollie
in
Pain Concern
4 years ago
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Hi i was dignosed with Tempola Arteritis a week ago today after having severe head pain so much so that it hurt to lay my head on the pillow. I was given an emergency hospital appointment at a good hospital on Monday whereby my head was scanned and I was confirmed with this condition. The doctor told
Hi i was dignosed with Tempola Arteritis a week ago today after having severe head pain so much so that it hurt to lay my head on the pillow. I was given an emergency hospital appointment at a good hospital on Monday whereby my head was scanned and I was confirmed with this condition. The doctor told
shekinah66
in
PMRGCAuk
4 years ago
Gout or RA
Hi all, long time no post and hope everyone is as safe and well as can be. Looks like mine has decided to aggravate me, now fingers tad painful just below nail bed , whatever that joint is as well as my knuckles. So trying to get appointment as looks like I may start with meds for the first time. However
Hi all, long time no post and hope everyone is as safe and well as can be. Looks like mine has decided to aggravate me, now fingers tad painful just below nail bed , whatever that joint is as well as my knuckles. So trying to get appointment as looks like I may start with meds for the first time. However
HappyD34
in
NRAS
4 years ago
Newbie
Hi all. I'm new here. I don't have a diagnosis of Rheumatoid Arthritis but I do have hashimotos disease. What were your symptoms that lead to a diagnosis? I have widespread body pains. Lower back, wrists, fingers but the worst is across my mid to upper back. Sometimes I get burning sensations in my thigh
Hi all. I'm new here. I don't have a diagnosis of Rheumatoid Arthritis but I do have hashimotos disease. What were your symptoms that lead to a diagnosis? I have widespread body pains. Lower back, wrists, fingers but the worst is across my mid to upper back. Sometimes I get burning sensations in my thigh
Nessynu
in
NRAS
4 years ago
I have suspected arthritis in my elbow and knees... what exercise can I do that won’t put pressure on those joints?
Exercise Arthritis Knees
Exercise Arthritis Knees
Champe
2020 June
in
Weight Loss Support
4 years ago
Still wondering if it’s a flare or osteoarthritis
Hello all, I posted a few days ago about being in pain and wondering if I can start a new taper with back/sacral pain going on. If it’s a flare I don’t want to make it worse, and I’ve read on here not to taper if you are having pain. I’m currently without a rheumatologist. My GP ordered
Hello all, I posted a few days ago about being in pain and wondering if I can start a new taper with back/sacral pain going on. If it’s a flare I don’t want to make it worse, and I’ve read on here not to taper if you are having pain. I’m currently without a rheumatologist. My GP ordered
Mstiles
in
PMRGCAuk
4 years ago
Cytokine Dump and Osteoarthritis ?
Followed with interest the thread on Cytokine storm and our PMR cytokine dump and wondered if it occurs in OA. I am woken most early mornings around 2 to 3am with severe pain in my arthritic knees . Decided 3 days ago to add an extra 1 mg of Pred as an evening dose to the 5mg I take in the morning and
Followed with interest the thread on Cytokine storm and our PMR cytokine dump and wondered if it occurs in OA. I am woken most early mornings around 2 to 3am with severe pain in my arthritic knees . Decided 3 days ago to add an extra 1 mg of Pred as an evening dose to the 5mg I take in the morning and
mtrafter
in
PMRGCAuk
4 years ago
Pain and fatigue at 8mg
I was Diagnosed Jan. 2018, PMR/GCA, and put on 40 mg of pred. Over the past few months I’ve had increasing pain in the sacral joints and lower back, some temporary neck and shoulder pain and stiffness, stiff neck when turning head to the side, elbow pain when holding a book up to read for long
I was Diagnosed Jan. 2018, PMR/GCA, and put on 40 mg of pred. Over the past few months I’ve had increasing pain in the sacral joints and lower back, some temporary neck and shoulder pain and stiffness, stiff neck when turning head to the side, elbow pain when holding a book up to read for long
Mstiles
in
PMRGCAuk
4 years ago
Multi joint arthritis
Hi everyone, I was diagnosed with multi joint arthritis in my hip, both knees a, back and toe. I take naproxen and cocadomal to relieve the pain and stop inflammation. I also take turmeric with pepper. Am I taking too many pain killers? Cocodamol gives me constipation and turmeric gives me the runs.
Hi everyone, I was diagnosed with multi joint arthritis in my hip, both knees a, back and toe. I take naproxen and cocadomal to relieve the pain and stop inflammation. I also take turmeric with pepper. Am I taking too many pain killers? Cocodamol gives me constipation and turmeric gives me the runs.
Akuno
in
Arthritis Action
4 years ago
Knee problems
Hi Just starting C to 5 journey Have arthritis knee and ankle Hope last the course Any tips very much welcome Thanks and good luck to all
Hi Just starting C to 5 journey Have arthritis knee and ankle Hope last the course Any tips very much welcome Thanks and good luck to all
Kneejerker
in
Couch to 5K
4 years ago
Hi I’m new to this group and I have bone on bone knee arthritis. I can feel my bones creaking and wondered if this was normal
Knee arthritis
Knee arthritis
Eileen1602
in
Arthritis Action
4 years ago
Just listened to a very informative Rheumatoid panel online discussion a must watch/listen!
Morning peeps 🙂 I have just spent the last hour, listening to this online discussion, Q&A Do patients with autoimmune diseases have an increased risk of contracting the virus? Should patients be seeing their Rheumatologists in person, or aiming for teleconferencing? Medication considerations –
Morning peeps 🙂 I have just spent the last hour, listening to this online discussion, Q&A Do patients with autoimmune diseases have an increased risk of contracting the virus? Should patients be seeing their Rheumatologists in person, or aiming for teleconferencing? Medication considerations –
Moomin8
in
NRAS
4 years ago
Shoulder pain / arthritis
Hi, I’m new here. I’m looking for anyone else who has experienced pain / arthritis with hypothyroidism. How old were you when you first got it, and how do you look after yourself? I’ve been getting pain there for a few years, and it’s flared up again recently. Unfortunately unable to get a doc appt
Hi, I’m new here. I’m looking for anyone else who has experienced pain / arthritis with hypothyroidism. How old were you when you first got it, and how do you look after yourself? I’ve been getting pain there for a few years, and it’s flared up again recently. Unfortunately unable to get a doc appt
CalamityGem
in
Thyroid UK
4 years ago
Op
Iv had my op 24 th February complete knee? since this virus Iv been in so much pain with my arthritis due to not been on any medication I’m taking painkillers put not doing anything haven’t sleept properly for ages now every joint is swollen and painful the next appointment is in September 🤦♀️
Iv had my op 24 th February complete knee? since this virus Iv been in so much pain with my arthritis due to not been on any medication I’m taking painkillers put not doing anything haven’t sleept properly for ages now every joint is swollen and painful the next appointment is in September 🤦♀️
Beth72
in
NRAS
4 years ago
COVID and Quality of Life for people with Inflammatory Arthritis and Lupus Project
Researchers at King’s College London are looking at the impact of COVID19 on health-related quality of life for people with inflammatory arthritis conditions, through several questionnaires, qualitative interviews and a daily diary study. It is open to those aged 18 and over with any form of inflammatory
Researchers at King’s College London are looking at the impact of COVID19 on health-related quality of life for people with inflammatory arthritis conditions, through several questionnaires, qualitative interviews and a daily diary study. It is open to those aged 18 and over with any form of inflammatory
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
4 years ago
Recent possible fibro diagnosis
Hello - having been given a possible early ra or palindromic arthritis diagnosis, I am now told it may be fibromyalgia. All bloods were normal except raised rheumatoid factor. Symptoms are joint pain, stiffness all over on & off, especially after rest, hands joints v painful with some swelling in the
Hello - having been given a possible early ra or palindromic arthritis diagnosis, I am now told it may be fibromyalgia. All bloods were normal except raised rheumatoid factor. Symptoms are joint pain, stiffness all over on & off, especially after rest, hands joints v painful with some swelling in the
Sunnyseas
in
Fibromyalgia Action UK
4 years ago
Benepali
I am currently on benepali injection once a week for arthritis no other underlying heath conditions and very well managed RA. Should I be shielding what are others doing? I am seeing so much differing advice I’m confused. I have been told to shield yet other trusts aren’t shielding
I am currently on benepali injection once a week for arthritis no other underlying heath conditions and very well managed RA. Should I be shielding what are others doing? I am seeing so much differing advice I’m confused. I have been told to shield yet other trusts aren’t shielding
Shekl1p
in
NRAS
4 years ago
Kate Gilbert’s book. Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide. 2nd edition.
I just had to write to say how good this book is and I couldn’t recommend it more highly. I know many of you will already know it well but I’ve only just read it and apart from finding it full of useful information I was surprised at how enjoyable it was to read. I hadn’t bothered with it earlier in
I just had to write to say how good this book is and I couldn’t recommend it more highly. I know many of you will already know it well but I’ve only just read it and apart from finding it full of useful information I was surprised at how enjoyable it was to read. I hadn’t bothered with it earlier in
Seraphina56
in
PMRGCAuk
4 years ago
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