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Juvenile idiopathic arthritis
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GTPS?
Mid 50s. Enjoy tennis, cold water swimming and cycling. Diagnosed with osteoarthritis in my left hip 9 months ago, but X-ray was normal and my symptoms were less typical (pain down outer side of thigh and shin; none in hip). More recently diagnosed with GTPS in my right hip (very sore around my hip
Mid 50s. Enjoy tennis, cold water swimming and cycling. Diagnosed with osteoarthritis in my left hip 9 months ago, but X-ray was normal and my symptoms were less typical (pain down outer side of thigh and shin; none in hip). More recently diagnosed with GTPS in my right hip (very sore around my hip
TennisLover123
in
Arthritis Action
1 year ago
good morning
I am currently being treated for latent TB with Rifampin and on prednisone 6mg. I was doing so so well before this new med and it seems rifampin decreases the effects of prednisone which I’ve noticed so much lately! Ugh! I feel as if I’m back to square 1 with the PMR. Is anyone aware of how much I
I am currently being treated for latent TB with Rifampin and on prednisone 6mg. I was doing so so well before this new med and it seems rifampin decreases the effects of prednisone which I’ve noticed so much lately! Ugh! I feel as if I’m back to square 1 with the PMR. Is anyone aware of how much I
Curry_girl
in
PMRGCAuk
1 year ago
steroid injection
I have inflammatory arthritis and started methotrexate having been on Prednisolone for 5 years - for PMR which seems to have flipped to arthritis My knees are v swollen,stiff and have difficulty walking- have had 2 lots of steroid inj into my r knee- Rheumy wants to try a third inj when I have enough
I have inflammatory arthritis and started methotrexate having been on Prednisolone for 5 years - for PMR which seems to have flipped to arthritis My knees are v swollen,stiff and have difficulty walking- have had 2 lots of steroid inj into my r knee- Rheumy wants to try a third inj when I have enough
bakingD
in
NRAS
1 year ago
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PMR 15 Years On
Has anybody experienced PMR 15 years after first diagnosis. Have tapered properly a few times but always seemed to come back. Have tapered from 10mg of Prednisolone over 18 months and arrived at zero two months ago. Have osteoarthritis of hip and one knee and scheduled for hip procedure. The hip pain
Has anybody experienced PMR 15 years after first diagnosis. Have tapered properly a few times but always seemed to come back. Have tapered from 10mg of Prednisolone over 18 months and arrived at zero two months ago. Have osteoarthritis of hip and one knee and scheduled for hip procedure. The hip pain
Pred5
in
PMRGCAuk
1 year ago
painful lower thumb
the lower thumb next to my forefinger is stiff and v painful, I am wearing an arthritis glove, is this appropriate pls? never had this problem in 5 years of R A am on MXT 20mgm weekly
the lower thumb next to my forefinger is stiff and v painful, I am wearing an arthritis glove, is this appropriate pls? never had this problem in 5 years of R A am on MXT 20mgm weekly
QAGS
in
NRAS
1 year ago
New here
Hi everyone, I am new here. I have had rheumatoid arthritis for a long time but was diagnosed more recently with fibromyalgia as my consultant explained to me that a lot of my pain is not consistent with rheumatoid arthritis but is consistent with fibromyalgia as are other symptoms I have. The pain
Hi everyone, I am new here. I have had rheumatoid arthritis for a long time but was diagnosed more recently with fibromyalgia as my consultant explained to me that a lot of my pain is not consistent with rheumatoid arthritis but is consistent with fibromyalgia as are other symptoms I have. The pain
ma73jon
in
Fibromyalgia Action UK
1 year ago
Just diagnosed
Hi all. I have just been diagnosed with fibromyalgia along with Tendinopathy(bit like tendonitis) having previously been suspected to have Rheumatoid Arthritis. This new diagnosis makes more sense. Would the Fibromyalgia have come on recently, or could I have had it for years and not realised? I've always
Hi all. I have just been diagnosed with fibromyalgia along with Tendinopathy(bit like tendonitis) having previously been suspected to have Rheumatoid Arthritis. This new diagnosis makes more sense. Would the Fibromyalgia have come on recently, or could I have had it for years and not realised? I've always
BakerTom
in
Fibromyalgia Action UK
1 year ago
Retiredlass
I am 73 and have had fibro for 7 years. I live alone with my 2 dogs and 2 cats. I am currently on no pain medication although I do take Duloxetine twice a day. I also have osteoarthritis and currently am awaiting a knee replacement. I already have one hip replacement. Like a lot of you I am sure have
I am 73 and have had fibro for 7 years. I live alone with my 2 dogs and 2 cats. I am currently on no pain medication although I do take Duloxetine twice a day. I also have osteoarthritis and currently am awaiting a knee replacement. I already have one hip replacement. Like a lot of you I am sure have
Retiredlass
in
Fibromyalgia Action UK
1 year ago
NovoThor
Has anyone tried or have any knowledge of NovoThor PBM Therapy light beds? A friend saw a leaflet in a waiting room recently, so I’ve done a bit of research and it looks very interesting and if the stats are true good be very helpful for fibromyalgia sufferers, no mention of cost though! My fibromyalgia
Has anyone tried or have any knowledge of NovoThor PBM Therapy light beds? A friend saw a leaflet in a waiting room recently, so I’ve done a bit of research and it looks very interesting and if the stats are true good be very helpful for fibromyalgia sufferers, no mention of cost though! My fibromyalgia
Onlymeandyou
in
Fibromyalgia Action UK
1 year ago
Tooth extraction and tocilizumab
Hi I am going to have to have a tooth extraction....dentist says chance of jaw necrosis from tocilizumab and I wonder if anyone has had this ....I know from here that it is only a small chance but its scary ! Also will I need to come off medications (tocilizumab and methotrexate) first? Advice appreciated
Hi I am going to have to have a tooth extraction....dentist says chance of jaw necrosis from tocilizumab and I wonder if anyone has had this ....I know from here that it is only a small chance but its scary ! Also will I need to come off medications (tocilizumab and methotrexate) first? Advice appreciated
WaltzG
in
PMRGCAuk
1 year ago
I have arthritis and scleroderma. My calves are really painful when I walk and when I wake up in the morning my feet are also bright red
I have scleroderma and arthritis. My lower legs are very painful when walking for 10 minutes. Also painful when I wake up . I get tingling feelings throughout my lower body and my feet are bright red when I first get out of bed. Any help/advice would be appreciated.
I have scleroderma and arthritis. My lower legs are very painful when walking for 10 minutes. Also painful when I wake up . I get tingling feelings throughout my lower body and my feet are bright red when I first get out of bed. Any help/advice would be appreciated.
joanne2
in
NRAS
1 year ago
Government Survey
Was sent this link from Versus Arthritis, bit long winded to complete the survey but could be worth the effort https://www.gov.uk/government/consultations/major-conditions-strategy-call-for-evidence-easy-read
Was sent this link from Versus Arthritis, bit long winded to complete the survey but could be worth the effort https://www.gov.uk/government/consultations/major-conditions-strategy-call-for-evidence-easy-read
Baner
in
PMRGCAuk
1 year ago
Ateritis, arthritis... how to make friends and family recognise the difference!
I have just been trying to explain GCA to some former work colleagues and been stumped trying to convincingly make the distinction between arteritis and arthritis (similar pronunciation, even in French 😏) to those not familiar with our condition. Very frustrating when they come back with "Oh, yes, my
I have just been trying to explain GCA to some former work colleagues and been stumped trying to convincingly make the distinction between arteritis and arthritis (similar pronunciation, even in French 😏) to those not familiar with our condition. Very frustrating when they come back with "Oh, yes, my
Dochaz
in
PMRGCAuk
1 year ago
Seeking a good travel insurance company for rheumatoid arthritis
Just wondered if anyone has any advise on travel companies they have used that covers rheumatoid arthritis. Also I noticed that for Corona virus cover you have to be up to date with COVID vaccines and unfortunately I missed the spring booster so any advise for cover would be gratefully received. Many
Just wondered if anyone has any advise on travel companies they have used that covers rheumatoid arthritis. Also I noticed that for Corona virus cover you have to be up to date with COVID vaccines and unfortunately I missed the spring booster so any advise for cover would be gratefully received. Many
RobbieM
in
NRAS
1 year ago
Legs thighs and calfs pain
Legs thighs and calfs started hurting after reducing prednisone from 20.0 to 17.5 mg 3 days ago. Should I stay at 17.5 mg and give it more time to see if the pain diminishes.
Legs thighs and calfs started hurting after reducing prednisone from 20.0 to 17.5 mg 3 days ago. Should I stay at 17.5 mg and give it more time to see if the pain diminishes.
Seal49
in
PMRGCAuk
1 year ago
Weight Loss
Hi, I wonder if anyone can help me, sorry in advance for the long post! I suffer from a muscle weakening condition which makes it very tricky for me to exercise like I used to - it is a very hard condition to manage because there are so many triggers. I also have fibromyalgia and osteoarthritis and
Hi, I wonder if anyone can help me, sorry in advance for the long post! I suffer from a muscle weakening condition which makes it very tricky for me to exercise like I used to - it is a very hard condition to manage because there are so many triggers. I also have fibromyalgia and osteoarthritis and
blackphoenix
in
Weight Loss Support
1 year ago
Hand cramp
I'm on prednisone since mid April and so far have been able go from 30 mg to 22.5mg a day Body feels fine but getting cramps only on my right hand which I use alot. Is this a pmr or prednisone side affect or could I have some sort of arthritis also
I'm on prednisone since mid April and so far have been able go from 30 mg to 22.5mg a day Body feels fine but getting cramps only on my right hand which I use alot. Is this a pmr or prednisone side affect or could I have some sort of arthritis also
Seal49
in
PMRGCAuk
1 year ago
Different
Hello, I have different types of arthritis, rheumatoid arthritis, osteoarthritis, and arthritis in the rest of my joints, ankles, hands and such. I also have crepitus in my right shoulder due to an accident which has also damaged my back. Yes, I know, need a new body but until medical science catches
Hello, I have different types of arthritis, rheumatoid arthritis, osteoarthritis, and arthritis in the rest of my joints, ankles, hands and such. I also have crepitus in my right shoulder due to an accident which has also damaged my back. Yes, I know, need a new body but until medical science catches
Jinnty89
in
Arthritis Action
1 year ago
Autoimmune Registry
I didn't know there was an Autoimmune Registry. However polymyalgia rheumatica is not found through their opening page search although it is on the list as a vascular disease, as is giant cell arteritis. Maybe their search function is as useful as HU's (used to be)? :D Or maybe they just haven't got
I didn't know there was an Autoimmune Registry. However polymyalgia rheumatica is not found through their opening page search although it is on the list as a vascular disease, as is giant cell arteritis. Maybe their search function is as useful as HU's (used to be)? :D Or maybe they just haven't got
HeronNS
in
PMRGCAuk
1 year ago
Best Arthur description I’ve read!
Found this on the South Wales Police Facebook page, of all places. Describes our illness so well… #HumansOfSWP | 💬 "I suffer with rheumatoid arthritis (RA), which is an autoimmune and inflammatory disease. In basic terms it means my immune system attacks healthy cells in my body by mistake, causing
Found this on the South Wales Police Facebook page, of all places. Describes our illness so well… #HumansOfSWP | 💬 "I suffer with rheumatoid arthritis (RA), which is an autoimmune and inflammatory disease. In basic terms it means my immune system attacks healthy cells in my body by mistake, causing
Llanberisman
in
NRAS
1 year ago
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