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Experiences with
Juvenile idiopathic arthritis
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Communities
15 public communities
JIA-at-NRAS
395 members
This community is for anyone affected by the condition, Juvenile Idiopathic Arthritis (JIA). It is run by the National Rheumatoid Arthritis Society (NRAS) and HealthUnlocked and exists to help you find support and information from other people living with or affected by JIA. This is an independent, patient led, forum so please take time to read our community guidelines which you can read under ‘Pinned Posts’. NRAS are a UK based charity providing support, information, and advocacy for people with juvenile idiopathic arthritis and rheumatoid arthritis, their families, friends, and carers. Our vision is for everyone with JIA (Juvenile Idiopathic Arthritis) and RA (Rheumatoid Arthritis) to be able to live their life to the full. We have a helpline which is open Mon-Fri, 9.30am - 4.30pm and is free for landlines: 0800 298 7650 or email helpline@nras.org.uk Free information booklets are available for download or to order as hardcopy from our online shop, visit www.jia.org.uk/shop to get your copies of JIA Explained, Managing JIA in schools, Medicines in Juvenile Idiopathic Arthritis.
NRAS
36,602 members
Welcome to the community for people with rheumatoid arthritis (RA). This is run by the National Rheumatoid Arthritis Society (NRAS) and exists to help you find support and information from other people living with RA. You may be newly diagnosed or have had RA for some time or you might not have a diagnosis yet - everyone is welcome! NRAS also support people with juvenile idiopathic arthritis (JIA) and other forms of inflammatory arthritis. NRAS is a UK based charity providing support, information and advocacy for people with rheumatoid arthritis and juvenile idiopathic arthritis, their families, friends and carers. Our vision is for everyone with RA to be able to live the life they want to. We have a helpline which is open Mon-Fri, 9.30am - 4.30pm and is free for landlines. We also have a huge range of free information booklets available to order or download from our website.
Cure Arthritis Community
2,789 members
We’re a US-based non-profit searching for a cure to help an estimated 50 million Americans and 300,000 children afflicted with various forms of arthritis. This arthritis foundation is focused entirely on research. The Arthritis National Research Foundation is committed to funding cutting-edge research and pushing the field of arthritis research forward!
Arthritis Ireland
455 members
Arthritis Ireland works to reduce the pain and improve the lives of almost one million children and adults in Ireland with arthritis.
Arthritis New Zealand
86 members
Arthritis Action
7,538 members
Arthritis Action is a UK charity helping people with arthritis to live fuller lives with less pain. The charity offers a ‘self-management’ approach, providing services and resources on diet and nutrition, weight management, exercise and staying active, mental and emotional wellbeing, and pain management. Our approach helps people gain the knowledge and confidence to better manage their condition. For more information, visit www.arthritisaction.org.uk
FieryBones - RA Community
674 members
Rheumatoid Arthritis, or RA, is a type of auto-immune disease where the body's immune system starts attacking its own tissues and joints. It can happen at any age and is one of the most common form of arthritis. Some of the common symptoms are painful and swollen joints, fatigue and weakness. For people living with RA, it is a daily struggle to balance their personal and professional lives with the unpredictability of this painful disease. FieryBones has been created to connect all the RA warriors and caregivers throughout the world on a single platform. Nothing makes us feel better than reading inspirational blogs of how our RA peers are coping with this illness and sharing our story with the community that truly understands!
Cloudy with a Chance of Pain
1,493 members
A community for people with chronic pain or arthritis. Cloudy with a Chance of Pain is a UK smartphone study and citizen science experiment studying the association between weather and pain.
Myositis UK
1,223 members
Myositis UK is a community providing information and support to individuals and their families affected by Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis. The community is managed by Myositis UK registered charity No 327791.
Beyond Psoriasis
2,719 members
We’re a community of people affected by psoriasis and psoriatic arthritis but looking beyond our diagnosis. Join the movement! Work, play, family and the daily grind are as important to us as our symptoms, treatment and research. Beyond Psoriasis is supported by funding from LEO Innovation Lab.
ITP Support Association
4,091 members
Registered UK charity supporting sufferers of the auto immune bleeding disorder Immune Thrombocytopenia. Views expressed are those of individuals & not the ITP Support Association. The content on the ITP Support Association Healthunlocked Group does not replace the relationship between you and doctors or other healthcare professionals NOR the advice you receive from them. Joining or following this Healthunlocked Group or any of the social network platforms made available by the ITP Support Association does not mean that this makes such followers of any of these social network platforms a MEMBER of the ITP Support Association itself. Membership of the Association can be arranged separately via the main ITP Support Association website at www.itpsupport.org.uk
PMRGCAuk
20,334 members
Polymyalgia Rheumatica and Giant Cell Arteritis UK (PMRGCAuk) is a UK-wide charity set up to provide information and support, raise awareness, and foster research into PMR and GCA. On this forum you can share your own experiences of dealing with these little-known and frightening conditions with others who know what you are talking about; and also gain ideas about ways to take care of yourself and help yourself on the road to recovery. Do discuss ideas you find on the forum with your doctor, especially if you are considering changing your level of medication Our website is http://www.pmrgca.org.uk.
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