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Inconsistent and Confusing Advice about Isolation, Social Distance and Shielding and WHY this is REALLY IMPORTANT.
This post began life as a response to another user's post. It got a bit long, so I am posting it in its own right. I would love to hear people's responses and experience of this. I interpreted the recent rheumatology advice in the same way (see the other post here: https://healthunlocked.com/lupusuk/
This post began life as a response to another user's post. It got a bit long, so I am posting it in its own right. I would love to hear people's responses and experience of this. I interpreted the recent rheumatology advice in the same way (see the other post here: https://healthunlocked.com/lupusuk/
WinterSwimmer
in
LUPUS UK
4 years ago
In extremely vulnerable group but don't understand why
On Monday I got a text, followed by a letter, informing me that I have been identified as someone at risk of severe illness and thereby extremely vulnerable if I were to catch coronavirus. Instructions are not to leave home, even for food and meds, and stay away from others indoors. There is a list of
On Monday I got a text, followed by a letter, informing me that I have been identified as someone at risk of severe illness and thereby extremely vulnerable if I were to catch coronavirus. Instructions are not to leave home, even for food and meds, and stay away from others indoors. There is a list of
Hidden
in
British Heart Foundation
4 years ago
Hair loss after kidney transplant
I am 65 years old and received a kidney transplant from my husband in September 2019 and all went well. However in the past couple of months I have noticed significant hair loss. I had really thick hair which is rapidly thinning. I believe this could be caused by one of the many drugs. Any suggestions
I am 65 years old and received a kidney transplant from my husband in September 2019 and all went well. However in the past couple of months I have noticed significant hair loss. I had really thick hair which is rapidly thinning. I believe this could be caused by one of the many drugs. Any suggestions
Charity23
in
Kidney Transplant
4 years ago
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Lymphoedema and Covid19
This email was sent out by the Wittlinger Therapy Centre, Austria, earlier today - it explains a lot in an easy to read way: Dear patients! Since we have received more requests in the past few days about whether people with lymphoedema disease have an increased risk of COVID 19 infection, we have summarized
This email was sent out by the Wittlinger Therapy Centre, Austria, earlier today - it explains a lot in an easy to read way: Dear patients! Since we have received more requests in the past few days about whether people with lymphoedema disease have an increased risk of COVID 19 infection, we have summarized
Lynora
in
LSN
4 years ago
Lung Transplant Update 4
Hello all, In the midst of all the worry, anxiety and devastation with the Carona outbreak, I wanted to share some good news. To recap - my mum had a single left lung transplant on the 30th October 19 and had a number of complications post-op. I have written a few updates about how shes been getting
Hello all, In the midst of all the worry, anxiety and devastation with the Carona outbreak, I wanted to share some good news. To recap - my mum had a single left lung transplant on the 30th October 19 and had a number of complications post-op. I have written a few updates about how shes been getting
Queenbean
in
Lung Conditions Community Forum
4 years ago
Stay positive and notice your patterns
Hi All, I am 5 months post 2nd kidney transplant. Being in London and under the care of an excellent hospital, it is absolutely necessary to be getting bloods done in such an early stage. I am at least fortnightly presently and needed to go back today after just one week as having a recent biopsy due
Hi All, I am 5 months post 2nd kidney transplant. Being in London and under the care of an excellent hospital, it is absolutely necessary to be getting bloods done in such an early stage. I am at least fortnightly presently and needed to go back today after just one week as having a recent biopsy due
WhollyAligned
in
Kidney Transplant
4 years ago
Liver Transplants in the Covid 19 Era
Hi all, I’m currently on the transplant list at QE Birmingham, does anyone know the current status of Liver Transplants I.e. are they operational, are they at reduced capacity? Would be interesting to know. Thanks, Tom
Hi all, I’m currently on the transplant list at QE Birmingham, does anyone know the current status of Liver Transplants I.e. are they operational, are they at reduced capacity? Would be interesting to know. Thanks, Tom
tommyc
in
British Liver Trust
4 years ago
Liver transplants, and a moan?
I have Liver Cirrhosis and my liver is ok thanks to the gods, but I asked my Doctor if If I should go on the transfer list just in case, but he told me I wouldn't get one because of my age I,m only 62 . this really upset me. Youth these days need a brain transplant ?
I have Liver Cirrhosis and my liver is ok thanks to the gods, but I asked my Doctor if If I should go on the transfer list just in case, but he told me I wouldn't get one because of my age I,m only 62 . this really upset me. Youth these days need a brain transplant ?
Nictesla
in
British Liver Trust
4 years ago
Sharing My Experience: Lean, Mean, Fighting Machine to Obese Individual With Full Blown Live Cirrhosis
I will be 64 years old this May. I was a born a male and weighed 9 lbs, 6 ounces at birth, the first of seven sons to Irish Catholic parents. For most of my life I was lean and reached 5 feet, 11 inches, 143 lbs when I entered college. Throughout 4 years of college and 2 years of grad school, I never
I will be 64 years old this May. I was a born a male and weighed 9 lbs, 6 ounces at birth, the first of seven sons to Irish Catholic parents. For most of my life I was lean and reached 5 feet, 11 inches, 143 lbs when I entered college. Throughout 4 years of college and 2 years of grad school, I never
Hidden
in
Living with Fatty Liver and NASH
4 years ago
Acyclovir and kidney transplant
A few weeks ago I had shingles. I was put on acyclovir 800mg 5x a day. Then, from different doctors, they kept telling me that's a high dose for a kidney transplant patient as it can damage it. I spoke to my nephrologist and he didnt seem concerned at all and told me to take them as prescribed by my
A few weeks ago I had shingles. I was put on acyclovir 800mg 5x a day. Then, from different doctors, they kept telling me that's a high dose for a kidney transplant patient as it can damage it. I spoke to my nephrologist and he didnt seem concerned at all and told me to take them as prescribed by my
Dna4christ
in
Kidney Transplant
4 years ago
Acyclovir, shingles, kidney transplant
A few weeks ago I had shingles. I was put on acyclovir 800mg 5x a day. Then, from different doctors, they kept telling me that's a high dose for a kidney transplant patient as it can damage it. I spoke to my nephrologist and he didnt seem concerned at all and told me to take them as prescribed by my
A few weeks ago I had shingles. I was put on acyclovir 800mg 5x a day. Then, from different doctors, they kept telling me that's a high dose for a kidney transplant patient as it can damage it. I spoke to my nephrologist and he didnt seem concerned at all and told me to take them as prescribed by my
Dna4christ
in
Kidney Transplant Patient Support
4 years ago
Hello
Hi everyone 😊 I i had my telephone consult at home from my liver transplant consultant. I asked if I could be allowed to go for a walk answer was no but I’m allowed to go into my garden I totally forgot to ask him if I could walk out to my car and just have a drive around the estate where I live I’
Hi everyone 😊 I i had my telephone consult at home from my liver transplant consultant. I asked if I could be allowed to go for a walk answer was no but I’m allowed to go into my garden I totally forgot to ask him if I could walk out to my car and just have a drive around the estate where I live I’
Hidden
in
British Liver Trust
4 years ago
OFFICIAL NHS LETTER
Hi yet again! Quick addition to my earlier post! I have just received the 'official' NHS shieldimg letter in today's post. Was half expecting it, but it has still made me feel a bit strange to actually have it (don't know if that sounds a bit silly)? Anyway, it's addressed to me personally as the person
Hi yet again! Quick addition to my earlier post! I have just received the 'official' NHS shieldimg letter in today's post. Was half expecting it, but it has still made me feel a bit strange to actually have it (don't know if that sounds a bit silly)? Anyway, it's addressed to me personally as the person
Kags1068
in
NRAS
4 years ago
Routine blood work and risk of Coronavirus
Hi, How is everyone doing their routine blood draws these days? I'm a kidney transplant and pancreas transplant patient and I'm afraid of going to my local lab which is highly populated and would put me at a risk of COVID-19 infection.
Hi, How is everyone doing their routine blood draws these days? I'm a kidney transplant and pancreas transplant patient and I'm afraid of going to my local lab which is highly populated and would put me at a risk of COVID-19 infection.
Hashtagger56
in
Kidney Transplant
4 years ago
Meals In, now I'm Quarantined
Dear All, I'm in the 'High Risk Group', I have Vasculitis- an Auto-Immune Condition, am a Kidney Transplant Recipient.... yes I DO 'tick' ALL those boxes☹. Fortunately I live in 'Supported Living', so I have Staff available, should I need them- I had a 'little knock' earlier, "was I OK, did I need anything
Dear All, I'm in the 'High Risk Group', I have Vasculitis- an Auto-Immune Condition, am a Kidney Transplant Recipient.... yes I DO 'tick' ALL those boxes☹. Fortunately I live in 'Supported Living', so I have Staff available, should I need them- I had a 'little knock' earlier, "was I OK, did I need anything
AndrewT
in
Healthy Eating
4 years ago
Routine lab draws and risk of coronavirus
Hi, How is everyone doing their routine blood draws these days? I'm a kidney and pancreas transplant patient and I'm afraid of going to my local lab which is highly populated and would put me at a risk of COVID-19 infection.
Hi, How is everyone doing their routine blood draws these days? I'm a kidney and pancreas transplant patient and I'm afraid of going to my local lab which is highly populated and would put me at a risk of COVID-19 infection.
Hashtagger56
in
Kidney Transplant Patient Support
4 years ago
Confused /scared about Covid 19
Hi there I’m guessing that a lot of people are in the same boat about Covid19. My husband recently underwent a stem cell transplant for ALL and is now taking immunosuppressant medication. I currently work part time in the retail sector and I’m really confused and anxious about what to do for the best
Hi there I’m guessing that a lot of people are in the same boat about Covid19. My husband recently underwent a stem cell transplant for ALL and is now taking immunosuppressant medication. I currently work part time in the retail sector and I’m really confused and anxious about what to do for the best
Clarence45
in
Leukaemia Support
4 years ago
Lung transplant
I was listed for a double lung transplant and last week received a call to say due to the risks associated with coronovirus I had to be removed all followup clinics cancelled very disappointing but totally understandable anybody else had this?
I was listed for a double lung transplant and last week received a call to say due to the risks associated with coronovirus I had to be removed all followup clinics cancelled very disappointing but totally understandable anybody else had this?
Twinsmum10
in
Lung Conditions Community Forum
4 years ago
kidney transplant cancelled
My son was scheduled to donate kidney to my wife and NYU just cancelled. Does anyone know of any hospitals in country still performing living donor transplants?
My son was scheduled to donate kidney to my wife and NYU just cancelled. Does anyone know of any hospitals in country still performing living donor transplants?
teamroney
in
Kidney Donation
4 years ago
Week 1
Hi everyone I am new to this so please be gentle with me. I’ve decided to get my backside of the couch and get moving. I am on Dialysis and awaiting a kidney transplant. It has taken me months to have the courage to go out the house and start the couch to 5k as I am embarrassed as I am very overweight
Hi everyone I am new to this so please be gentle with me. I’ve decided to get my backside of the couch and get moving. I am on Dialysis and awaiting a kidney transplant. It has taken me months to have the courage to go out the house and start the couch to 5k as I am embarrassed as I am very overweight
Jd76
in
Couch to 5K
4 years ago
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