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Islet cell transplant
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BONE MARROW TRANSPLANT
Good evening to you , I hope you are all well. I would like to share my special news with you all , today I completed day 2 of my conditioning ahead of my BMT on Thursday 2nd February 2023. I am both privileged and excited about my journey and have no fear or doubts. Special thanks to all of you,
Good evening to you , I hope you are all well. I would like to share my special news with you all , today I completed day 2 of my conditioning ahead of my BMT on Thursday 2nd February 2023. I am both privileged and excited about my journey and have no fear or doubts. Special thanks to all of you,
kevinbros
in
MPN Voice
1 year ago
4 months post transplant
Is been at least 4 months post liver transplant. I would like to know from patients with experience how long it'll take for me to stop getting tired easily and still shaky sometimes? I also have on and off severe headaches and my appetite is the worse.....
Is been at least 4 months post liver transplant. I would like to know from patients with experience how long it'll take for me to stop getting tired easily and still shaky sometimes? I also have on and off severe headaches and my appetite is the worse.....
Kamx
in
British Liver Trust
1 year ago
Anti Covid treatments for the Immuno-compromised
I wrote the following to my MP on 22nd November last David , we have corresponded about this many times, and I know you are sympathetic to the problem. Things are getting worse, not better, and despite covid numbers falling, many of us are having to become more and more cautious in our already restricted
I wrote the following to my MP on 22nd November last David , we have corresponded about this many times, and I know you are sympathetic to the problem. Things are getting worse, not better, and despite covid numbers falling, many of us are having to become more and more cautious in our already restricted
RogerPinner
in
CLL Support
1 year ago
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Relief for swollen feet ....
Hello, An update, my son has been put forward for an assessment for a liver transplant. There may be light at the end of the tunnel and we know there is still a long way to go, it gives us hope.I was wondering if anyone has any tips on any relief for very swollen feet due to oedema.. My son is having
Hello, An update, my son has been put forward for an assessment for a liver transplant. There may be light at the end of the tunnel and we know there is still a long way to go, it gives us hope.I was wondering if anyone has any tips on any relief for very swollen feet due to oedema.. My son is having
Charlieathome
in
British Liver Trust
1 year ago
Transplant list waiting. Mgus57
This is Mgus57 I did another blood test at Mayo Clinic. This journey to be put on the kidney transplant,list has been emotional one. The feedback I received from the team, at Mayo has positive. They tell me I should be a candidate for a transplant. I hope I receive a kidney soon. I want to wish
This is Mgus57 I did another blood test at Mayo Clinic. This journey to be put on the kidney transplant,list has been emotional one. The feedback I received from the team, at Mayo has positive. They tell me I should be a candidate for a transplant. I hope I receive a kidney soon. I want to wish
Fsgs57
in
Kidney Disease
1 year ago
Ureteral stricture surgery/Ureteral retransplantation, replacement of ureter w small intestines etc and specialists who do this
I have a third kidney transplant and a ureteral stricture. We have tried everything to fix the stricture but nothing has worked. So my transplant team decided that surgery was the option ,surgical retransplantation of the ureter using a piece of my small intestines where the stricture was ,in its place
I have a third kidney transplant and a ureteral stricture. We have tried everything to fix the stricture but nothing has worked. So my transplant team decided that surgery was the option ,surgical retransplantation of the ureter using a piece of my small intestines where the stricture was ,in its place
Calebzztop
in
Kidney Transplant
1 year ago
CLL Society interview - Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
lankisterguy
Volunteer
in
CLL Support
1 year ago
What is yin yoga...and why it matters
For all the yang in the world, we need the softer yin to balance. To harmonise. To experience viscerally, our inner equipose. A sojourn to an old converted olive farm in Andalucia in 2012, was my first entry point into a formal yoga teacher training (YTT). As a woman then in my 30s, a healthy functioning
For all the yang in the world, we need the softer yin to balance. To harmonise. To experience viscerally, our inner equipose. A sojourn to an old converted olive farm in Andalucia in 2012, was my first entry point into a formal yoga teacher training (YTT). As a woman then in my 30s, a healthy functioning
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
1 year ago
Media Request: West Devon
Do you live in or near West Devon and would you be happy to share your story with local press? TheTavistock Times would like to speak to someone living with non alcohol related liver disease, alcohol related liver disease or viral hepatitis who has received a liver transplant. If you're able to help
Do you live in or near West Devon and would you be happy to share your story with local press? TheTavistock Times would like to speak to someone living with non alcohol related liver disease, alcohol related liver disease or viral hepatitis who has received a liver transplant. If you're able to help
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
Update on my previous post trapped nerve and PMR.
After an MRI on my spine I do not have a trapped nerve in my back and my pain is two vertebrae bones crumbling. I have come to the conclusion that the pain in my back and bottom area is mainly my PMR flare, it is so bad I can't move without pain while in bed. Tried increasing my pred dosage from 6mg
After an MRI on my spine I do not have a trapped nerve in my back and my pain is two vertebrae bones crumbling. I have come to the conclusion that the pain in my back and bottom area is mainly my PMR flare, it is so bad I can't move without pain while in bed. Tried increasing my pred dosage from 6mg
Washingup
in
PMRGCAuk
1 year ago
Pregnancy
Hi all I am 6.5 years post single lung transplant and recently found out I am 7 weeks pregnant . I'm super shocked as I was told I would never have another child ( I also have a 13 year old daughter) And im super worried about how my body is going to cope with this pregnancy. My transplant unit have
Hi all I am 6.5 years post single lung transplant and recently found out I am 7 weeks pregnant . I'm super shocked as I was told I would never have another child ( I also have a 13 year old daughter) And im super worried about how my body is going to cope with this pregnancy. My transplant unit have
Hidden
in
Lung Conditions Community Forum
1 year ago
Holiday insurance
Anyone been going on holiday not sure about insurance answered as best I can but varices question stuck o now no acites swelling gone down one report from 2021 decsaid grade one varices but none now never had tied or tipped or whatever goes with varices no bleeding n no liver transplant mentioned not
Anyone been going on holiday not sure about insurance answered as best I can but varices question stuck o now no acites swelling gone down one report from 2021 decsaid grade one varices but none now never had tied or tipped or whatever goes with varices no bleeding n no liver transplant mentioned not
Morkmindy
in
British Liver Trust
1 year ago
Exhausted but happy.
I spent seven hours at the lung transplant clinic at Harefield yesterday. I was weighed and measured many times, sometimes with boots (dockers!) on sometimes off, ECG, echocardiogram, chest xray, blood tests, blood pressure test, lung function test, urine test, and finally mrsa test! Everone
I spent seven hours at the lung transplant clinic at Harefield yesterday. I was weighed and measured many times, sometimes with boots (dockers!) on sometimes off, ECG, echocardiogram, chest xray, blood tests, blood pressure test, lung function test, urine test, and finally mrsa test! Everone
Karenanne61
in
Lung Conditions Community Forum
1 year ago
COVID VACCINE MANDATE
My ex husband is in need of a kidney. He has been evaluated at 2 separate centers but they refuse to list him unless he gets the COVID vaccine. This seems an unreasonable requirement since the long term effects of the vaccine are unknown in kidney transplant patients. He will be looking into other
My ex husband is in need of a kidney. He has been evaluated at 2 separate centers but they refuse to list him unless he gets the COVID vaccine. This seems an unreasonable requirement since the long term effects of the vaccine are unknown in kidney transplant patients. He will be looking into other
green1981
in
Kidney Donation
1 year ago
Does Tacrolimus cause forgetfulness for anyone?
I recently was speaking with a recent kidney transplant recipient, and he has memory lapses, sometimes forgetting conversations he's had. His nephrologist said it can be the Tacro as it is one of the possible side effects. He's being switched to another medication. I had not heard this, and just
I recently was speaking with a recent kidney transplant recipient, and he has memory lapses, sometimes forgetting conversations he's had. His nephrologist said it can be the Tacro as it is one of the possible side effects. He's being switched to another medication. I had not heard this, and just
Kbristow
in
Kidney Transplant
1 year ago
NHS Blood and Transplant are seeking the views of patients on living donor liver transplantation
Living donor liver transplantation emerged across the world in the early 1990s in response to the shortfall in available donor organs for patients in need of a liver transplantation. Since 1998, paediatric centres in the UK have been offering living donor transplantation for children on the active waiting
Living donor liver transplantation emerged across the world in the early 1990s in response to the shortfall in available donor organs for patients in need of a liver transplantation. Since 1998, paediatric centres in the UK have been offering living donor transplantation for children on the active waiting
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
Interesting transplant discussion tomorrow night
Sharing that I am hosting what I hope will be a great Zoom discussion tomorrow Jan. 23 featuring Robert Kolker ("Hidden Valley Road"), a New York Times Best-Selling author and Oprah's Book Club pick and the author of the viral 2021 New York Times Magazine article, "Who is the Bad Art Friend" (https:/
Sharing that I am hosting what I hope will be a great Zoom discussion tomorrow Jan. 23 featuring Robert Kolker ("Hidden Valley Road"), a New York Times Best-Selling author and Oprah's Book Club pick and the author of the viral 2021 New York Times Magazine article, "Who is the Bad Art Friend" (https:/
EmilyKidney
in
PKD Charity for Autosomal Dominant PKD
1 year ago
Hand Sanitizer gel
Hi I am 2 weeks post liver transplant. Just had a thought that I am carry round Carex hand sanitiser gel which I use all the time, but just realised it contains 70% Alcohol. Is this okay to use as know you should not use mouth wash that has alcohol in it thanks
Hi I am 2 weeks post liver transplant. Just had a thought that I am carry round Carex hand sanitiser gel which I use all the time, but just realised it contains 70% Alcohol. Is this okay to use as know you should not use mouth wash that has alcohol in it thanks
Bantam2
in
British Liver Trust
1 year ago
Preparations afoot for my stem cell transplant
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
I've finally got dates for my sct. I have a CT scan next week in preparation for radiotherapy to shrink my spleen . That will be followed by 6 days of radiotherapy as an out patient then 24 Jan I get admitted and start chemo. Donor cells getting infused a few days later. I knew all along this was going
Scaredy_cat
in
MPN Voice
1 year ago
Update on progress with MF and the FEDORA clinical trial
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
Flyingsteamer
in
MPN Voice
1 year ago
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