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Introducing myself
I am Allison. I live in Texas. I unfortunately became very sick in late 2014, bit didn't go to the Dr for a few months. I was hospitalized and diagnosed with stage 4 cirrhosis. Recieved a liver transplant Thanksgiving day 2016. Was doing well until at a regular 3 month lab ALP jumped from 150 to 450
I am Allison. I live in Texas. I unfortunately became very sick in late 2014, bit didn't go to the Dr for a few months. I was hospitalized and diagnosed with stage 4 cirrhosis. Recieved a liver transplant Thanksgiving day 2016. Was doing well until at a regular 3 month lab ALP jumped from 150 to 450
Allison57
in
PBCers Organization
4 years ago
Itching
I am 79 years had a kidney transplant 18 years ago and now on Hemo dialysis. My problem is instense itchying every day. What can I do about it. I can’t take Benadryl. It’s driving me crazy.
I am 79 years had a kidney transplant 18 years ago and now on Hemo dialysis. My problem is instense itchying every day. What can I do about it. I can’t take Benadryl. It’s driving me crazy.
rosepd
in
Kidney Disease
4 years ago
The Good Doctor - NOT good advice!
I just watched the March 2nd episode of the TV show The Good Doctor. There was a potential kidney transplant talked about and a potential live donor. He was only 16, but what the "doctors" told him about being a donor was SO over the top, I don't think ANYONE would want to be a live donor! It was
I just watched the March 2nd episode of the TV show The Good Doctor. There was a potential kidney transplant talked about and a potential live donor. He was only 16, but what the "doctors" told him about being a donor was SO over the top, I don't think ANYONE would want to be a live donor! It was
Crocheting-Cricket
in
Kidney Donation
4 years ago
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Options other than transplant?
Hi, I'm new to the forum and was wondering if anybody has chosen not to go for stem cell transplant after getting good bone marrow results after the consolidation phase of chemo? I'm also struggling to find other people who have been diagnosed with A.L.L. in their 50s like me as it seems to usually bea
Hi, I'm new to the forum and was wondering if anybody has chosen not to go for stem cell transplant after getting good bone marrow results after the consolidation phase of chemo? I'm also struggling to find other people who have been diagnosed with A.L.L. in their 50s like me as it seems to usually bea
Gemini1967
in
Leukaemia CARE
4 years ago
Bactrim
I'ts been 2 years since my kidney transplant and along with my anti rejection meds I have been taking bactrim for the last 2 years and i have had no infections yet my doctor has not advised me to stop taking this med and i have heard that taking it unnecessarily long term can actually cause problems.
I'ts been 2 years since my kidney transplant and along with my anti rejection meds I have been taking bactrim for the last 2 years and i have had no infections yet my doctor has not advised me to stop taking this med and i have heard that taking it unnecessarily long term can actually cause problems.
Hidden
in
Kidney Transplant
4 years ago
Lung Transplant update 3
Hello, I posted a few weeks ago about my mother’s lung transplant journey. To recap my mum is 62 and had her single lung transplant on the 30th October, since then she has spent 105 days in critical care. It has been traumatic on the whole family and of course my mother. She has since been moved to the
Hello, I posted a few weeks ago about my mother’s lung transplant journey. To recap my mum is 62 and had her single lung transplant on the 30th October, since then she has spent 105 days in critical care. It has been traumatic on the whole family and of course my mother. She has since been moved to the
Queenbean
in
Lung Conditions Community Forum
4 years ago
I want to be fit and healthy for my liver transplant.
Diagnosed with Fibromyalgia 20years ago, diagnosed PBC 9years ago. Now been given the news that I will need a liver transplant in the next two to three years. I am looking for any reading material on how to stay healthy and loose weight before I have to have my transplant.
Diagnosed with Fibromyalgia 20years ago, diagnosed PBC 9years ago. Now been given the news that I will need a liver transplant in the next two to three years. I am looking for any reading material on how to stay healthy and loose weight before I have to have my transplant.
BettyBoop788-69
in
British Liver Trust
4 years ago
No oxygen
As anyone ad a double lung transplant for severe emphasema. Without ever being on oxygen
As anyone ad a double lung transplant for severe emphasema. Without ever being on oxygen
skylas
in
Lung Conditions Community Forum
4 years ago
Has anyone had parathyroid surgery post kidney transplant?
I have hypercalcemia resulting from hyperparathyroidism and was wondering if anyone has had parathyroid surgery. I have been considering surgery but would first love to know others experiences.
I have hypercalcemia resulting from hyperparathyroidism and was wondering if anyone has had parathyroid surgery. I have been considering surgery but would first love to know others experiences.
TmWeed
in
Kidney Transplant
4 years ago
Trial IPT Drug rapamycin
Trial IPT Drug https://www.pdsa.org/products-a-publications/e-news/2018-enews/item/1613-pdsa-enews-032818.html Rapamycin is an interesting drug. First, in trials as a cure for (I think) athletes' foot, it was never marketed for that because it was a powerful immune suppressor. It became the "go to
Trial IPT Drug https://www.pdsa.org/products-a-publications/e-news/2018-enews/item/1613-pdsa-enews-032818.html Rapamycin is an interesting drug. First, in trials as a cure for (I think) athletes' foot, it was never marketed for that because it was a powerful immune suppressor. It became the "go to
SurferDude
in
ITP Support Association
4 years ago
High tacro level and increased creatine
Hi my husband had kidney transplant on August 2019 first 3-4 month his creatine was very fluctuating 1.40 then 1.25 then 1.19 again 1.25 and now after 6mth his tacrolimus level shows 16.70 which is high and creatine level also increased 1.25 to 1.52..is anyone face the same prob ...
Hi my husband had kidney transplant on August 2019 first 3-4 month his creatine was very fluctuating 1.40 then 1.25 then 1.19 again 1.25 and now after 6mth his tacrolimus level shows 16.70 which is high and creatine level also increased 1.25 to 1.52..is anyone face the same prob ...
Falakjalal
in
British Liver Trust
4 years ago
End-Stage doesn’t mean it’s the end.
They sometimes refer to Stage lV as End-stage emphysema but don’t think it means you will die soon. I’ve been stage IV (FEV1 <30%) for 10 years now, following pulmonologist’s strict orders...stop smoking, exercise, and take meds. Yes, I go on waiting list in September for a lung transplant (single
They sometimes refer to Stage lV as End-stage emphysema but don’t think it means you will die soon. I’ve been stage IV (FEV1 <30%) for 10 years now, following pulmonologist’s strict orders...stop smoking, exercise, and take meds. Yes, I go on waiting list in September for a lung transplant (single
Sharp5Flat13
in
Lung Conditions Community Forum
4 years ago
KIDNEY DONOR ASSISTANCE
LOOKING FOR KIDNEY DONOR FOR LOISE, 62 YEARS . SAVE HER LIFE Loise suffers from a kidney failure and she was put on dialysis, which she attends a local hospital thrice a week. Through this, she has positive changes and much improvement. it has been our family desire to have our mother Loise undergo
LOOKING FOR KIDNEY DONOR FOR LOISE, 62 YEARS . SAVE HER LIFE Loise suffers from a kidney failure and she was put on dialysis, which she attends a local hospital thrice a week. Through this, she has positive changes and much improvement. it has been our family desire to have our mother Loise undergo
Phinehas
in
Kidney Transplant
4 years ago
Transplant meetings
I'm on the waiting list for double lung transplant.. they do meetings nearly every month where you get to meet others on list as well. Does anyone go or have been to them . X
I'm on the waiting list for double lung transplant.. they do meetings nearly every month where you get to meet others on list as well. Does anyone go or have been to them . X
skylas
in
Lung Conditions Community Forum
4 years ago
10 weeks. Since Liver Transplant, had problems sleeping ( insomnia),anyone else experienced this?
10 weeks since liver transplant and have sleeping problems ( insomnia),anyone else experienced this?
10 weeks since liver transplant and have sleeping problems ( insomnia),anyone else experienced this?
Alyson84
in
British Liver Trust
4 years ago
Heart issues after kidney transplant
Hello all, Had a transplant 13 years ago and slowly kidney function has decreased. Current creat is 3.4 and bun in 60's. Have started to feel some compression around heart this weak and wondering if others out there have also as well and if you have any suggestions on care for heart now that I am in
Hello all, Had a transplant 13 years ago and slowly kidney function has decreased. Current creat is 3.4 and bun in 60's. Have started to feel some compression around heart this weak and wondering if others out there have also as well and if you have any suggestions on care for heart now that I am in
Chris0909
in
Early CKD Support
4 years ago
Frustrated by Kidney Transplant Evaluation
My kidneys holding steady at stage 4 and renal function a little better. Getting AV fistula in my left upper arm next Monday. Started eval in November. US showed a suspicious mass in right kidney so just had an MRI last week and is a suspicious solid mass that could be renal cell carcinoma. Waiting
My kidneys holding steady at stage 4 and renal function a little better. Getting AV fistula in my left upper arm next Monday. Started eval in November. US showed a suspicious mass in right kidney so just had an MRI last week and is a suspicious solid mass that could be renal cell carcinoma. Waiting
SadMad
in
Kidney Disease
4 years ago
Play ideas for a 5 year old 6 months after transplant
It has been 6 months now since my son had his kidney transplant. My son really wants to go and have some fun , does anyone have any ideas on where I can take him ? I am scared of all the germs but I can’t keep him from wanting to play he is only 5 years old . Any ideas anyone?
It has been 6 months now since my son had his kidney transplant. My son really wants to go and have some fun , does anyone have any ideas on where I can take him ? I am scared of all the germs but I can’t keep him from wanting to play he is only 5 years old . Any ideas anyone?
Quamel_Mom
in
Parents of Children with Kidney Disease
4 years ago
Ppfe
Last week my daughter was confirmed as having ppfe. She had a bone marrow transplant 11 yrs ago as she had acute lymphoblastic leukaemia. Is there anyone out there in the same situation?
Last week my daughter was confirmed as having ppfe. She had a bone marrow transplant 11 yrs ago as she had acute lymphoblastic leukaemia. Is there anyone out there in the same situation?
Kcn3
in
Lung Conditions Community Forum
4 years ago
New to lung cancer
Hello 2 greys sorry for your news.I am new to this site but have been on the copd for sometime. Now Discovered by accident I have a 4 cm tumour on my left lung.Am waiting on a biopsy to confirm if cancerous.My lung doc thinks it is.I am 80 years young and have lung problems for years so didn't think
Hello 2 greys sorry for your news.I am new to this site but have been on the copd for sometime. Now Discovered by accident I have a 4 cm tumour on my left lung.Am waiting on a biopsy to confirm if cancerous.My lung doc thinks it is.I am 80 years young and have lung problems for years so didn't think
Ragrug
in
Lung Conditions Community Forum
4 years ago
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