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European Headache Federation recommendations for neurologists managing giant cell arteritis - 17 Mch 2020
I found this today which I hope is useful as it is very recent. https://thejournalofheadacheandpain.biomedcentral.com/articles/10.1186/s10194-020-01093-7?fbclid=IwAR1i7sx8Kt7LSlfbwdRfOCRBz9By1CN1ypVSHXPORkD4ownoa_pTCc2xj0M
I found this today which I hope is useful as it is very recent. https://thejournalofheadacheandpain.biomedcentral.com/articles/10.1186/s10194-020-01093-7?fbclid=IwAR1i7sx8Kt7LSlfbwdRfOCRBz9By1CN1ypVSHXPORkD4ownoa_pTCc2xj0M
Sefu
in
PMRGCAuk
4 years ago
A newly discovered disease may lead to better treatment of cystic fibrosis.
Cystic fibrosis is the most frequent severe inherited disorder worldwide. Every year, hundreds of families are confronted with this diagnosis – and to date, there is no cure for this disease that mainly affects the respiratory system. Besides supportive treatments, a lung transplant is often the only
Cystic fibrosis is the most frequent severe inherited disorder worldwide. Every year, hundreds of families are confronted with this diagnosis – and to date, there is no cure for this disease that mainly affects the respiratory system. Besides supportive treatments, a lung transplant is often the only
2greys
in
Lung Conditions Community Forum
4 years ago
Taking suppliment in post transplant?
I am wondering that is there anyone who take mineral suppliments after kidney transplant?
I am wondering that is there anyone who take mineral suppliments after kidney transplant?
3idoits
in
Kidney Transplant
4 years ago
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Diet after Kidney and Pancreas Transplant
Im 16 months post transplant and in the last 5 months I have gain so much weight. I used to weigh 135-145lbs. before transplant and back in Feb. I was 153 lbs. And now 4 months later Im 186 lbs. can someone please explain why Im gaining this weight so fast. I dont eat much. Anyone who can help me. Ive
Im 16 months post transplant and in the last 5 months I have gain so much weight. I used to weigh 135-145lbs. before transplant and back in Feb. I was 153 lbs. And now 4 months later Im 186 lbs. can someone please explain why Im gaining this weight so fast. I dont eat much. Anyone who can help me. Ive
KatieJohnston
in
Kidney Transplant
4 years ago
Diet after Transplant
Hello warriors, I am 18-month post kidney transplant. I am 28. I am just started woking a month ago. I have been told by My transplant doct to always eat fresh hot food. But since I am working away from home I wont be able to manage arrage fresh hot food. I was thinking about taking a tiffin box with
Hello warriors, I am 18-month post kidney transplant. I am 28. I am just started woking a month ago. I have been told by My transplant doct to always eat fresh hot food. But since I am working away from home I wont be able to manage arrage fresh hot food. I was thinking about taking a tiffin box with
pateldev
in
Kidney Transplant
4 years ago
Less than satisfactory telephone consultation
Hi all , after singing the praises of the dentist last week I have had a very disappointing consultant appointment today. Firstly it wasn’t a consultant but one of the team. Having discussed my medication and health, he went off to discuss with the consultant that I had stopped the methotrexate. He came
Hi all , after singing the praises of the dentist last week I have had a very disappointing consultant appointment today. Firstly it wasn’t a consultant but one of the team. Having discussed my medication and health, he went off to discuss with the consultant that I had stopped the methotrexate. He came
Devoid
in
PMRGCAuk
4 years ago
Loungingsofa - With regards to pins and needles
Since having my liver transplant in Feb of this year I have had numbness and pins and needles in both hands especially in the thumbs and index fingers. I have to be very wary that I don't burn myself as I have little sensation of temperature. i spoke with .my.consultant about this who said that it is
Since having my liver transplant in Feb of this year I have had numbness and pins and needles in both hands especially in the thumbs and index fingers. I have to be very wary that I don't burn myself as I have little sensation of temperature. i spoke with .my.consultant about this who said that it is
Loungingsofa
in
Positive Wellbeing During Self-Isolation
4 years ago
Loungingsofa70
I am three months out of having my liver transplant on .23rd Feb. I am not feeling any pain from the operation except in my back a d left hand side but I have been assured that this is quite common. My main problem at the moment is tireness. I can not walk much further than about 2000 steps without becoming
I am three months out of having my liver transplant on .23rd Feb. I am not feeling any pain from the operation except in my back a d left hand side but I have been assured that this is quite common. My main problem at the moment is tireness. I can not walk much further than about 2000 steps without becoming
Loungingsofa
in
British Liver Trust
4 years ago
Covid19 and transplant patients
Hi all, hope you're all as well as can be expected. I haven't been around for quite some time now. I guess normal life gets back in the way eventually. Bit of background, I am a Liver Transplant patient, Kings College Hospital 2014, so coming up to 6th year anniversary. I've been doing well and got back
Hi all, hope you're all as well as can be expected. I haven't been around for quite some time now. I guess normal life gets back in the way eventually. Bit of background, I am a Liver Transplant patient, Kings College Hospital 2014, so coming up to 6th year anniversary. I've been doing well and got back
RodeoJoe
in
British Liver Trust
4 years ago
Worrying Autoimmune
Good afternoon I hope everyone is enjoying the bank holiday and keeping safe, my question is I have been told I have NAFLD which is being monitored, also I worry a lot as I have a very large retrosternal goitre which is growing downwards and has caused narrowing of the trachea, I have to decide whether
Good afternoon I hope everyone is enjoying the bank holiday and keeping safe, my question is I have been told I have NAFLD which is being monitored, also I worry a lot as I have a very large retrosternal goitre which is growing downwards and has caused narrowing of the trachea, I have to decide whether
Bumblebee288
in
British Liver Trust
4 years ago
A Promising Drug for the Treatment of Severe Lung Inflammation in COVID-19 Patients.
Montefiore Health System and Albert Einstein College of Medicine are the first sites in the nation to begin evaluating an investigational drug in two separate, FDA-approved trials: one to treat mild-to-moderate cases of COVID-19 and the other to treat severely ill COVID-19 patients. They are hopeful
Montefiore Health System and Albert Einstein College of Medicine are the first sites in the nation to begin evaluating an investigational drug in two separate, FDA-approved trials: one to treat mild-to-moderate cases of COVID-19 and the other to treat severely ill COVID-19 patients. They are hopeful
2greys
in
Lung Conditions Community Forum
4 years ago
CLL - Extremely Vulnerable clarified
Previous posts have discussed the contentious issue of which CLL patients in the UK are classed as Extremely Vulnerable and are therefore eligible for government support. Members on watch and wait in Scotland have been excluded as they are not among those "who are at any stage of treatment". While few
Previous posts have discussed the contentious issue of which CLL patients in the UK are classed as Extremely Vulnerable and are therefore eligible for government support. Members on watch and wait in Scotland have been excluded as they are not among those "who are at any stage of treatment". While few
bennevisplace
in
CLL Support
4 years ago
Post Transplant Emotions
MyStory so Far from Dodger1953
MyStory so Far from Dodger1953
Dodger1953
in
British Liver Trust
4 years ago
Help me win £1,000 for the BLF
It's been a while since I was last on here - a good six months at least. A lot's happened in that time both personally and in the world. Back in February I suffered another pneumothorax - my fourth in three years and worst to date. I was off work for 5 weeks in total and for a long time it looked like
It's been a while since I was last on here - a good six months at least. A lot's happened in that time both personally and in the world. Back in February I suffered another pneumothorax - my fourth in three years and worst to date. I was off work for 5 weeks in total and for a long time it looked like
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
4 years ago
New Member
Hello everyone I'm new here, I am one of the fortunate ones, I had a Liver Transplant 6 yrs ago, and I look forward to putting my story on here, when I find the courage to write it.
Hello everyone I'm new here, I am one of the fortunate ones, I had a Liver Transplant 6 yrs ago, and I look forward to putting my story on here, when I find the courage to write it.
Dodger1953
in
British Liver Trust
4 years ago
An account of a brain cell transplant
This stem cell transplant did not produce a cure but it is an interesting read to understand where the state of medicine is right now regarding a cure or at least a treatment for Parkinson's disease. https://www.statnews.com/2020/05/12/medical-first-parkinsons-brain-cell-transplant-stem-cells/
This stem cell transplant did not produce a cure but it is an interesting read to understand where the state of medicine is right now regarding a cure or at least a treatment for Parkinson's disease. https://www.statnews.com/2020/05/12/medical-first-parkinsons-brain-cell-transplant-stem-cells/
Zardoz
in
Cure Parkinson's
4 years ago
Giant Cell Arteritis
Hi, can someone help with describing what the double vision element is with GCA? Most of the time my eye sight feels ok... except at certain distances say watching a game of football I see two copies of the player.. if I close one eye it’s ok! Also when driving I don’t necessarily see two cars as I wouldn
Hi, can someone help with describing what the double vision element is with GCA? Most of the time my eye sight feels ok... except at certain distances say watching a game of football I see two copies of the player.. if I close one eye it’s ok! Also when driving I don’t necessarily see two cars as I wouldn
Hidden
in
PMRGCAuk
4 years ago
Precautions for kidney patients
What precautions kidney transplant patients like me needs to take if they have to work in office and in outdoor activities during post lockdown.
What precautions kidney transplant patients like me needs to take if they have to work in office and in outdoor activities during post lockdown.
Satishhbnk
in
Kidney Disease
4 years ago
Lung transplants
As anyone ad any lung transplants done. While all this coronavirus is going on and what hospital are you at.im at wythenshawe x thanks cheryl x
As anyone ad any lung transplants done. While all this coronavirus is going on and what hospital are you at.im at wythenshawe x thanks cheryl x
skylas
in
Lung Conditions Community Forum
4 years ago
Liver Transplant recipient now has MF
Hello and new to the site, just been diagnosed with MF after long use of anti rejection medication for a liver transplant 15 years ago
Hello and new to the site, just been diagnosed with MF after long use of anti rejection medication for a liver transplant 15 years ago
Plumberasscrack
in
MPN Voice
4 years ago
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