Search
Search
About
Log in
Join
Experiences with
Islet cell transplant
Posts
Communities
3,648 public posts
Filter results
Steroids and BK virus
Six months after my 2nd kidney transplant I started rejecting and they discovered I had the BK virus so they took mr off MMF and kept me on Adoport and added Prednisolone which is now at 10mg per day and have been on this now for 18 months and have been told I will have to stay on this dose always .
Six months after my 2nd kidney transplant I started rejecting and they discovered I had the BK virus so they took mr off MMF and kept me on Adoport and added Prednisolone which is now at 10mg per day and have been on this now for 18 months and have been told I will have to stay on this dose always .
smashandgrab
in
Kidney Transplant Patient Support
5 years ago
TigerBalm
Morning All, Just a quick question... I am a kidney transplant patient with painful arthritis. Someone has recomended Tiger Balm.... Does anyone else use this? Is it ok with transplant meds? Thanks Mgt
Morning All, Just a quick question... I am a kidney transplant patient with painful arthritis. Someone has recomended Tiger Balm.... Does anyone else use this? Is it ok with transplant meds? Thanks Mgt
Mgt8
in
Kidney Transplant Patient Support
5 years ago
Devastated is this the end?
My husband has had a cirrhotic liver and alcoholic liver disease for a number of years coupled with all the complications this brings. He has now been abstinent for 4 and a half years, as I write he is spending his 17th night in hospital, this is his 3rd stay this year. In January this year he was told
My husband has had a cirrhotic liver and alcoholic liver disease for a number of years coupled with all the complications this brings. He has now been abstinent for 4 and a half years, as I write he is spending his 17th night in hospital, this is his 3rd stay this year. In January this year he was told
Billfury
in
British Liver Trust
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Update on My Father's Cirrhosis - Seems Stable
Hello, As we found out about my father's Cirrhosis in February after we noticed his swollen stomach. His Ascites of 2.5ltr was drained in on Feb 23, 2019. It was followed by Endoscopy where grade 3 varices were diagnosed. He never had bleeding, but doctors recommended banding, so he had it done in
Hello, As we found out about my father's Cirrhosis in February after we noticed his swollen stomach. His Ascites of 2.5ltr was drained in on Feb 23, 2019. It was followed by Endoscopy where grade 3 varices were diagnosed. He never had bleeding, but doctors recommended banding, so he had it done in
zvhipp
in
British Liver Trust
5 years ago
Newbie ...
Hi, I've just joined this group. I was diagnosed with leukaemia in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular
Hi, I've just joined this group. I was diagnosed with leukaemia in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular
SomersetJo
in
British Heart Foundation
5 years ago
Ventolin Inhaler -Alternative
Good evening everyone, I have taken my Ventolin Inhaler for many years of me having COPD and Bronchiectasis, I am now stage 4 COPD and awaiting a lung transplant. Although I have to regularly take lots of medication daily as well as nebulisers I have noticed that my Ventolin Inhaler doesn’t seem to work
Good evening everyone, I have taken my Ventolin Inhaler for many years of me having COPD and Bronchiectasis, I am now stage 4 COPD and awaiting a lung transplant. Although I have to regularly take lots of medication daily as well as nebulisers I have noticed that my Ventolin Inhaler doesn’t seem to work
Joseph260268
in
Lung Conditions Community Forum
5 years ago
AmazonSmile - charity donations
There maybe a few people out there who may not be aware of AmazonSmile. I daresay we all buy something from Amazon on a regular bases. (I for one buy my printer ink cartridges from Amazon, and I also got my "Liver Transplant" T-shirt from them). If a person was to register with AmazonSmile and place
There maybe a few people out there who may not be aware of AmazonSmile. I daresay we all buy something from Amazon on a regular bases. (I for one buy my printer ink cartridges from Amazon, and I also got my "Liver Transplant" T-shirt from them). If a person was to register with AmazonSmile and place
Hidden
in
British Liver Trust
5 years ago
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve.
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve. He refused stem cell transplant therapy after researching it, and instead started his own research. He was later treated for Graves’ disease which led him to LDN
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve. He refused stem cell transplant therapy after researching it, and instead started his own research. He was later treated for Graves’ disease which led him to LDN
liveurlife
Volunteer
in
LDN Research Trust
5 years ago
I have TP53
I was told I will not react to chemo (anymore) and based on my mutations is either CarT or Stem Cell Transplant. I am deadly afraid of the latter and can't afford CarT. Are there any Clinical trials for CarT at this point? Presently I am on Ibrutinib (have been for 10 months and doing relatively well
I was told I will not react to chemo (anymore) and based on my mutations is either CarT or Stem Cell Transplant. I am deadly afraid of the latter and can't afford CarT. Are there any Clinical trials for CarT at this point? Presently I am on Ibrutinib (have been for 10 months and doing relatively well
Doremefasol
in
CLL Support
5 years ago
Decompensated to compensated?
Hi all, I'm new to here but very concerned about my dad. He has been diagnosed with cirrhosis a few months ago but his tummy is full of fluid (ascites) which is his main issue. He also has varices but thankfully has never had a bleed. As his liver is now decompensated my question is this. Is it possible
Hi all, I'm new to here but very concerned about my dad. He has been diagnosed with cirrhosis a few months ago but his tummy is full of fluid (ascites) which is his main issue. He also has varices but thankfully has never had a bleed. As his liver is now decompensated my question is this. Is it possible
Hidden
in
British Liver Trust
5 years ago
Improved Peak Flow
It’s been a busy few months..... Harefield have said I’m a good candidate for a lung transplant and once I’ve signed the forms I can go on the list!!!! We all know this is a double edged sword!!! Happy I’m viable but scared about the possible outcome!!! 2 weeks ago I saw my consultant, a locum at my
It’s been a busy few months..... Harefield have said I’m a good candidate for a lung transplant and once I’ve signed the forms I can go on the list!!!! We all know this is a double edged sword!!! Happy I’m viable but scared about the possible outcome!!! 2 weeks ago I saw my consultant, a locum at my
Lynnelovessunshine
in
Lung Conditions Community Forum
5 years ago
Update! (Cancer, dialysis & bypass)
75 year old male turning 76 in early July. Started HD dialysis January 2019. Left kidney renal cell carcinoma (3.5 cm) removed by cryogenic ablation in Mid-March. I am now cancer free!! Successful Quadruple bypass on April 17; now I think I am ready for my July 11th kidney transplant evaluation! 2019
75 year old male turning 76 in early July. Started HD dialysis January 2019. Left kidney renal cell carcinoma (3.5 cm) removed by cryogenic ablation in Mid-March. I am now cancer free!! Successful Quadruple bypass on April 17; now I think I am ready for my July 11th kidney transplant evaluation! 2019
MPK0706
in
Kidney Dialysis
5 years ago
Kidney transplant
Hi i had a kidney transplant in 2007 December It is still working but I also have a lot of other complications is there anyone else with other health issues which effect their daily life
Hi i had a kidney transplant in 2007 December It is still working but I also have a lot of other complications is there anyone else with other health issues which effect their daily life
Mohammed1985
in
Kidney Transplant Patient Support
5 years ago
Travel insurance for post liver transplant child
Hello, can anyone advise on holiday insurance for my daughter, who is aged 12 and coming up to 5 years post liver transplant. I have got travel insurance before through a local broker and it was extremely expensive. Thanks in advance for any advice.
Hello, can anyone advise on holiday insurance for my daughter, who is aged 12 and coming up to 5 years post liver transplant. I have got travel insurance before through a local broker and it was extremely expensive. Thanks in advance for any advice.
sineadh
in
Children's Liver Disease Foundation
5 years ago
10 months post Stem Cell Transplant
It's been a long time since I last posted on here! 10 months ago I was lucky enough to receive donor cells from a 10/10 match. It's been a rollercoaster ride but looking back, I've been very lucky as it has been nowhere near as bad as I had read it could be. Yes there have been some challenges, felt
It's been a long time since I last posted on here! 10 months ago I was lucky enough to receive donor cells from a 10/10 match. It's been a rollercoaster ride but looking back, I've been very lucky as it has been nowhere near as bad as I had read it could be. Yes there have been some challenges, felt
KAS8
in
CLL Support
5 years ago
Am a newbie
Am new to this site am very lucky that a friend told be about it. I have LAM and have had it for 7years now was completly unaware i was ill until i had a spontaneous collapsed lung on New Years day 2014. Had lots of tests and went to the QMC in Nottingham where the LAM centre is and they tryed a drug
Am new to this site am very lucky that a friend told be about it. I have LAM and have had it for 7years now was completly unaware i was ill until i had a spontaneous collapsed lung on New Years day 2014. Had lots of tests and went to the QMC in Nottingham where the LAM centre is and they tryed a drug
Kylabreath
in
Lung Conditions Community Forum
5 years ago
Optometrist
Hi good day Is there any other treatments options for kidney failure rather than kidney transplant thank you
Hi good day Is there any other treatments options for kidney failure rather than kidney transplant thank you
Optometrist
in
Kidney Transplant
5 years ago
Kidney Transplant 101
Can someone tell me what to expect as far as inquiring a kidney transplant, as far as the process goes? thank you!
Can someone tell me what to expect as far as inquiring a kidney transplant, as far as the process goes? thank you!
NoorBaq
in
Kidney Transplant
5 years ago
World first ?
I've just read about a 15yr old cystic fibrosis double lung transplant recipient who has been saved from a antibiotic resistant infection with something called phages, as far as I can gather these " phages" are friendly viruses that attack infections , under the microscope this particular phase looks
I've just read about a 15yr old cystic fibrosis double lung transplant recipient who has been saved from a antibiotic resistant infection with something called phages, as far as I can gather these " phages" are friendly viruses that attack infections , under the microscope this particular phase looks
soulboy118
in
Lung Conditions Community Forum
5 years ago
Sleep anxiety
Over the last 3 months I have had chest pains, trouble sleeping, muscle weakness and other strange feelings in my body. I went to the doctors and hospital where they’ve told me I’m okay and I’m not going to have a heart attack or a stroke, I’ve previously had a kidney transplant which causes me to have
Over the last 3 months I have had chest pains, trouble sleeping, muscle weakness and other strange feelings in my body. I went to the doctors and hospital where they’ve told me I’m okay and I’m not going to have a heart attack or a stroke, I’ve previously had a kidney transplant which causes me to have
Cookej05
in
Anxiety Support
5 years ago
1
...
79
80
81
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
695 results
Lung Conditions Community Forum
455 results
Kidney Transplant
420 results
View top 10 communities
Sort by
Most Relevant
Newest