Experiences with

Islet cell transplant

August 7,2024 article from Scitechdaily.com Breakthrough Parkinson’s Treatment Enters Human Trials After Primate Success TOPICS:BrainNeuroscienceParkinson's DiseaseUniversity Of Wisconsin-Madison By UNIVERSITY OF WISCONSIN-MADISON AUGUST 7, 2024 A clinical trial has begun to offer a new treatment

Hi All 👋 We recently had a patient reach out to us about the TPIAT while on Medicare. Medicare covers the removal of the pancreas, but it does not cover the islet cell transplantation; the patient was quoted $70K for the islet cell transplantation. 🙁 They ask that anyone who has also navigated the

Hey all. I don't know if I'm asking a question or just venting so bare with me.Brief history- 31yr old female. Diagnosed Jak2+ ET start of this year but going by bloodwork, I have had it since 2019. Had a BMB in the summer which showed "mild fibrosis" and "hypercellular marrow" but diagnosis remained

It’s been awhile for an update, here is the latest. I’m at Day plus 127 from my Bone Marrow Transplant. I saw my doctor (main specialist) on day+119. This was after a BMBiopsy +105 and colonoscopy +109! Those results revealed the great and not so good! There’s no sign of cancer in my BoneMarrow, and

Hello! This is my first post. Since my teen years, I know I've had some repetitive movements of my fingers, ticks/twitches of my eyebrows and face, and counting even and odd numbers, often imagining doing so on my front teeth (sounds a bit odd, but that's what it is!) It was manageable and possibly annoying

I just wanted to let everyone know that I made my decision and I’m going through with a SCT. I have been seeing a transplant doctor at Dana Farber in Boston for about a year and he feels I’m strong enough now to have one. Now we have to find a donor and I have to start making preparations. We are shooting

Late April prior to treatment September after 4 cycles This is an update to my Diagnosed with Richters post a month or so back. I now go to MDA every 28 days and every third visit is a PET/CT scan and bone marrow along with

I have not posted in a while. About 5 years ago my blood pressure went up (180/110). I was put on over 10 different blood pressure meds. Nothing took it down. Last November I was diagnosed, via kidney biopsy, with something called MGRS (monoclonal gammopathy of renal significance). The illness

it’s been a while and my last post was not very positive . This is a quick update . I’m still unclear as to how I got here with my illness but I received palliative chemotherapy six cylcles one every three weeks. I think it was a variation of chop plus an immunotherapy drug beginning with B . The treatment

Hi everyone , I am so glad with this site. My name is Anja, 67 years old , and I live in the Netherlands. I was diagnosed with CLL in september 2010. In 2012 I got FCR for six rounds. After that I was stuffy and it occurred that I had heart failure because of the chemo therapy. It took me years

This is day +67 for me since by Bone Marrow Transplant. Happy Labor Day here in the USA. I had been cruising along with a few seemingly minor issues. GI tract at times has been an issue especially with bowel movements. As I was weened off the steroid Prednisone I have recently been put on the steroid

Hi everyone. 9+ years on (take a peek at my bio.) Stage IV pca. I'm still hormone sensitive with undetectable PSA. Living life and enjoying my time with friends and family. In November I will enter year 2 of multiple myeloma DX. Have been through induction but not needing a stem cell transplant

We've had a few members post about Richter's recently so I thought it might be time for a bit of an update on new treatments. In these reports there is not a lot of information about clonality and which mutations the patients have. Extensive pretesting for these variables as well as the clinical ones

My history is a CLL diagnosis around Sept of 2016. I started the Ibrutinib/Venetoclax trial at MDA in Jan 2017 achieving MRD U in April 2019. Clear sailing until April ‘22 when my blood test showed .07 CLL cells that doubled every 6 months. Showing no symptoms, my Doc did not recommend treatment.

I’ve been wanting to update my Stem Cell Transplant journey with good news and today I was going to post that, instead I’ve been told that a lot of my lymph nodes are enlarged again. It’s so disappointing to say the least, not what I was expecting as I feel quite well and most of the GVHD issues have

This article is for those who may have C.o.p.d due to smoking although there are a few tips for those who are quitting smoking whether they have Copd or not. Copd. Chronic obstructive pulmonary disease or COPD is one of the most common lung conditions, affecting more than 65 million

Should kidney transplant patients know when a kidney offer is turned down? Discover how transparency can empower waitlisted patients to make informed decisions about their health. https://www.kidney.org/news-stories/giving-people-kidney-transplant-waitlist-voice-organ-offers

I did a 6minute walk test and pulomnary function test and had a chest xray due to low oxygen saturtions at doctor's office. I stay in the 80's most the time but do get up to low 90's eventually when resting. My PCP says she thinks it is just a result of my kidney function being so low. The translplant

Hello everyone I’ve recently been told that my son Jamie who is 15 years old will need a liver transplant due to portal hypertension and varices There was an official meeting the following week where it was decided he would be having one However fast forward 7 weeks and his liver Co-ordinator

Definition of Folliculitis is: Folliculitis is a common skin condition that happens when hair follicles become inflamed. It's often caused by an infection with bacteria. My research indicates that this condition is fairly common to transplant precipitants. Does anyone have any experience with this