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First Appointment re Stem Cell Transplant
This week I have my first appointment with a stem cell transplant specialist. I haven't made up my mind yet and I'm seeing this as a fact finding appointment. I've made a list of questions to ask: What exactly does it involve, step by step? What can go wrong? And if something goes wrong, what is the
This week I have my first appointment with a stem cell transplant specialist. I haven't made up my mind yet and I'm seeing this as a fact finding appointment. I've made a list of questions to ask: What exactly does it involve, step by step? What can go wrong? And if something goes wrong, what is the
Otterfield
in
MPN Voice
3 years ago
Kidney transplant 17 yrs. survived Covid 3/2020 and still have antibodies. Unvaccinated wondering if others concerned with immune response.
Unsure if I should get the vaccine as I have antibodies.
Unsure if I should get the vaccine as I have antibodies.
homerontherange
in
Kidney Transplant
3 years ago
It's back
Hi this is my first post on this forum I had bad psoriasis until I got a heart transplant last year and it cleared up totally it was brilliant and I really thought because of the immusupprestants it would stay away, how wrong I was after stopping the steroids it's back with a vengeance totally gutted
Hi this is my first post on this forum I had bad psoriasis until I got a heart transplant last year and it cleared up totally it was brilliant and I really thought because of the immusupprestants it would stay away, how wrong I was after stopping the steroids it's back with a vengeance totally gutted
Thanksnhs
in
Beyond Psoriasis
3 years ago
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Fluid retention / edema
Hi -- I'm 5 years post kidney transplant and over the past year I've developed swelling (pitting edema) in my lower legs. My eyes are also extemely puffy in the morning as the fluid pools there overnight. I'm curiuos if others have taken diuretics (lasix) to address this, or why they have chosen not
Hi -- I'm 5 years post kidney transplant and over the past year I've developed swelling (pitting edema) in my lower legs. My eyes are also extemely puffy in the morning as the fluid pools there overnight. I'm curiuos if others have taken diuretics (lasix) to address this, or why they have chosen not
SoCal1
in
Kidney Transplant
3 years ago
Oldest Heart Transplant Patient Turns 90
Britain's oldest heart transplant patient, Ted Warner, recently turned 90. Ted had his transplant 31 years ago but many have survived far longer. https://www.bbc.co.uk/news/uk-england-cambridgeshire-58361917
Britain's oldest heart transplant patient, Ted Warner, recently turned 90. Ted had his transplant 31 years ago but many have survived far longer. https://www.bbc.co.uk/news/uk-england-cambridgeshire-58361917
MichaelJH
Heart Star
in
British Heart Foundation
3 years ago
Hope for us hearties
UK's oldest living heart transplant patient marks 90th birthday. What brilliant news, only expected a few more years to live after transplant (BBC news)Transplant op in August 1990. Never give in! Take care all
UK's oldest living heart transplant patient marks 90th birthday. What brilliant news, only expected a few more years to live after transplant (BBC news)Transplant op in August 1990. Never give in! Take care all
sherwood123
in
British Heart Foundation
3 years ago
Understanding Dexa scan results
Hi. I've had some results of my latest Dexa scan today. I'm due to speak to the consultant next week so I thought I'd jump the gun and ask some questions so I could prepare for the conversation. This is a summary: " Dexa scan shows an unreliable score at the lumbar spine due to the presence of vertebral
Hi. I've had some results of my latest Dexa scan today. I'm due to speak to the consultant next week so I thought I'd jump the gun and ask some questions so I could prepare for the conversation. This is a summary: " Dexa scan shows an unreliable score at the lumbar spine due to the presence of vertebral
Flowergirl24
in
Bone Health and Osteoporosis UK
3 years ago
Who should receive a 3rd COVID-19 dose according to the CDC
I just received this email from Tufts Medical Center in Boston, Massachusetts and it's another confirmation as to who is really immunocompromised. I hope this helps some members of this forum who are on higher doses of Pred. "Patient Update - Dear Tufts Medical Center and Tufts Children’s Hospital Community
I just received this email from Tufts Medical Center in Boston, Massachusetts and it's another confirmation as to who is really immunocompromised. I hope this helps some members of this forum who are on higher doses of Pred. "Patient Update - Dear Tufts Medical Center and Tufts Children’s Hospital Community
kulina
in
PMRGCAuk
3 years ago
Pancreatic issues, post liver transplant
Hi, has anyone had issues with their pancreas, post liver transplant. I had my transplant 16months ago, and due to ongoing pain and bowel issues, they conducted an MRCP, which showed, I have an Atrophic pancreas, any info would be great. Thank you
Hi, has anyone had issues with their pancreas, post liver transplant. I had my transplant 16months ago, and due to ongoing pain and bowel issues, they conducted an MRCP, which showed, I have an Atrophic pancreas, any info would be great. Thank you
TBSW
in
British Liver Trust
3 years ago
Three and a half years with Mantle cell lymphoma
I got diagnosed with Mantle Cell Lymphoma in March 2018 when I was 61. As it had already spread from my lymph nodes to multiple organs I was immediately admitted to hospital and began six rounds of Nordic protocol chemotherapy, followed by a stem cell bone marrow transplant. After my transplant I had
I got diagnosed with Mantle Cell Lymphoma in March 2018 when I was 61. As it had already spread from my lymph nodes to multiple organs I was immediately admitted to hospital and began six rounds of Nordic protocol chemotherapy, followed by a stem cell bone marrow transplant. After my transplant I had
GT97
in
CLL Support
3 years ago
Has anyone achieved a reduction in fatigue from PMR through the introduction of tocilizumab (Actemra) into their treatment regimen?
Lately it seems as though my fatigue and depression are getting worse. I've had PMR for about 3 years now and it seems as though I am going downhill in so far as exhaustion is concerned. I almost have no desire, and to some extent, no ability to get anything done. I have read that the IL6 pathway is
Lately it seems as though my fatigue and depression are getting worse. I've had PMR for about 3 years now and it seems as though I am going downhill in so far as exhaustion is concerned. I almost have no desire, and to some extent, no ability to get anything done. I have read that the IL6 pathway is
Ozark
in
PMRGCAuk
3 years ago
3rd dose of COVID vaccine….
I am trying to schedule an appointment for the 3rd dose of COVID vaccine done at the hospital I had my kidney transplant. However, this particular hospital only offers Pfizer. I am very uncomfortable getting a different brand as CDC recommended the same brand for all three. https://www.cdc.gov/coronavirus
I am trying to schedule an appointment for the 3rd dose of COVID vaccine done at the hospital I had my kidney transplant. However, this particular hospital only offers Pfizer. I am very uncomfortable getting a different brand as CDC recommended the same brand for all three. https://www.cdc.gov/coronavirus
Warrior1211
in
Kidney Transplant
3 years ago
Liver Rejection
Hi everyone hope you’re all well, some may have seen my posts before So had liver transplant about two and half years ago now and haven’t had any issues apart from slight markers in my kidneys, so my first consultation since covid was three weeks ago and gave blood as usual. Then this weekend received
Hi everyone hope you’re all well, some may have seen my posts before So had liver transplant about two and half years ago now and haven’t had any issues apart from slight markers in my kidneys, so my first consultation since covid was three weeks ago and gave blood as usual. Then this weekend received
Rockefeller20
in
British Liver Trust
3 years ago
Complications from Immunosuppressants
I am almost 6 months post kidney transplant. I developed a 24 hr fever on July 30, along with headaches and very large painful mouth sores. I could barely eat or talk. My white blood cell count was low but creatinine was normal. The docs tested for everything including CMV, Epstein Barr, and did swabs
I am almost 6 months post kidney transplant. I developed a 24 hr fever on July 30, along with headaches and very large painful mouth sores. I could barely eat or talk. My white blood cell count was low but creatinine was normal. The docs tested for everything including CMV, Epstein Barr, and did swabs
Tallyn
in
Kidney Transplant
3 years ago
Caring for mam Post Liver Transplant
So nervous! My mam is in the operating theatre finally getting her #livertransplant It's been a rough few years (including dealing with the alcoholism). I can't believe it's actually happening. Anyone been a carer for liver failure then transplant? Just wondering how long should I expect to continue
So nervous! My mam is in the operating theatre finally getting her #livertransplant It's been a rough few years (including dealing with the alcoholism). I can't believe it's actually happening. Anyone been a carer for liver failure then transplant? Just wondering how long should I expect to continue
Ra1nb0wgirl
in
British Liver Trust
3 years ago
Colonoscopy
My husband is 8 years post liver transplant has CKD, insulin diabetic, bp, had TIA. At the mom thing good. Needs colonoscopy, I'm so worried daycase but no covid immunity. So worried about affect on liver kid,diabetes. Anyone had colonoscopy after transplant would a scan mri etc not be easier. New to
My husband is 8 years post liver transplant has CKD, insulin diabetic, bp, had TIA. At the mom thing good. Needs colonoscopy, I'm so worried daycase but no covid immunity. So worried about affect on liver kid,diabetes. Anyone had colonoscopy after transplant would a scan mri etc not be easier. New to
Katielou14
in
British Liver Trust
3 years ago
Day 4 of husbands single lung transplant
Friday 13th - what a lucky day forMy husband . He was I believe quite close to death and docs were querying whether to put him on a machine to take over breathing, ECMO I think they call it . IPF had finally got the better of him and ironically he was taken in to A & E just as he was about to sign the
Friday 13th - what a lucky day forMy husband . He was I believe quite close to death and docs were querying whether to put him on a machine to take over breathing, ECMO I think they call it . IPF had finally got the better of him and ironically he was taken in to A & E just as he was about to sign the
Woolfe31
in
Lung Conditions Community Forum
3 years ago
Post Transplant warts
I am 16 months post kidney transplant. My question has anyone started getting small warts mostly on my legs since the transplant? If so, what have you done to get rid of them??
I am 16 months post kidney transplant. My question has anyone started getting small warts mostly on my legs since the transplant? If so, what have you done to get rid of them??
Charly1429
in
Kidney Transplant
3 years ago
Where can I find...
I would like to read Post liver transplant patient accounts..where can I find these?
I would like to read Post liver transplant patient accounts..where can I find these?
taar
in
British Liver Trust
3 years ago
Denied a transplant
Hello, just curious iff anyone has been denied a kidney transplant ? If so , would did you do? Thank uou
Hello, just curious iff anyone has been denied a kidney transplant ? If so , would did you do? Thank uou
Megan024
in
Kidney Transplant
3 years ago
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