Search
Search
About
Log in
Join
Experiences with
Islet cell transplant
Posts
Communities
3,698 public posts
Filter results
Thriving with Congestive Heart Failure and a Left Ventricular Assist Device as I await a Heart Transplant.
Hi all- I am a retired dental surgeon with Congestive Heart Failure. I currently have a Left Ventricular Assist Device and am hoping for a call for a heart transplant in the next few weeks. I will be glad to share my experiences over the past twenty years with any of you. I have had 2 aortic valve replacement
Hi all- I am a retired dental surgeon with Congestive Heart Failure. I currently have a Left Ventricular Assist Device and am hoping for a call for a heart transplant in the next few weeks. I will be glad to share my experiences over the past twenty years with any of you. I have had 2 aortic valve replacement
Hidden
in
British Heart Foundation
3 years ago
Ongoing liver assessment stress
Over the last few weeks my husband has been assessed on an outpatient basis to see whether he's suitable for a liver transplant. His last test was this week on Wednesday when he had to do a treadmill test to see how fit his heart is. Just by chance we were looking at his medical record on line and
Over the last few weeks my husband has been assessed on an outpatient basis to see whether he's suitable for a liver transplant. His last test was this week on Wednesday when he had to do a treadmill test to see how fit his heart is. Just by chance we were looking at his medical record on line and
Corrine1
in
British Liver Trust
3 years ago
Re: WARWICK's ASCT Journey Begins Today...
Afternoon all... Warwick has managed to POST a reply on MATES, and if any of you can, I am sure that he would love to say hi... He's not feeling terribly himself Eight (8) days into his Stem Cell Transplant, but he did manage to
[i]POST[/i]
the message below on MATES, and so I Posted here again
Afternoon all... Warwick has managed to POST a reply on MATES, and if any of you can, I am sure that he would love to say hi... He's not feeling terribly himself Eight (8) days into his Stem Cell Transplant, but he did manage to
[i]POST[/i]
the message below on MATES, and so I Posted here again
socrates_8
in
MPN Voice
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
METAVIVE experience and why I stopped. (a long post sorry!!) Please read and tell me what you think...
I posted a few times about Metavive here first: https://healthunlocked.com/thyroiduk/posts/145085653/metavive-experience and there later: https://healthunlocked.com/thyroiduk/posts/145251376/metavive-experience-feedback My decision to try Metavive (porcine l and ll) was to try to find a product I could
I posted a few times about Metavive here first: https://healthunlocked.com/thyroiduk/posts/145085653/metavive-experience and there later: https://healthunlocked.com/thyroiduk/posts/145251376/metavive-experience-feedback My decision to try Metavive (porcine l and ll) was to try to find a product I could
Starsw
in
Thyroid UK
3 years ago
Update to ? Tocilizumab
I recently wrote for advice prior to starting on Tocilizumab as I was little nervous about side effects. I have now had 3 injections and my CRP is back to normal so have started to taper my prednisone down again. However I have been having sharp pains in my head, Rt temporal area, but also above and
I recently wrote for advice prior to starting on Tocilizumab as I was little nervous about side effects. I have now had 3 injections and my CRP is back to normal so have started to taper my prednisone down again. However I have been having sharp pains in my head, Rt temporal area, but also above and
Hiland
in
PMRGCAuk
3 years ago
Webinar 9.30am, Wednesday 3rd March - Acute promyelocytic leukaemia (APL) treatment update
Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Kidney failure stage 4 and am worried?
My mother had a kidney failure she's on stage 4, her GFR was 17% on December 2020, now its increased to 25% (UP & DOWN) she was prepared for kidney transplant (I am the donor) , but now the doctor postponed transplant until it goes down (below 20%), does she really need to do the transplant now or she
My mother had a kidney failure she's on stage 4, her GFR was 17% on December 2020, now its increased to 25% (UP & DOWN) she was prepared for kidney transplant (I am the donor) , but now the doctor postponed transplant until it goes down (below 20%), does she really need to do the transplant now or she
MAK88
in
Kidney Disease
3 years ago
COVID vaccines and the immune system
This is for information only. There are many people out there who may have a weakened or lowered immune system due to several reasons including a liver transplant and who might be struggling with concerns over whether a covid vaccine is safe to have or not. There is a presentation being given on the
This is for information only. There are many people out there who may have a weakened or lowered immune system due to several reasons including a liver transplant and who might be struggling with concerns over whether a covid vaccine is safe to have or not. There is a presentation being given on the
Richard-Allen
in
British Liver Trust
3 years ago
Lupus life insurance is it possible!
Hi everyone, it’s been a very long time since I’ve posted anything on this forum. Hope you’re all as well as you can possibly be, if not I hope you feel better soon. I have a question for you all and although it’s through the possible worst pandemic this country has been through, I would like to ask
Hi everyone, it’s been a very long time since I’ve posted anything on this forum. Hope you’re all as well as you can possibly be, if not I hope you feel better soon. I have a question for you all and although it’s through the possible worst pandemic this country has been through, I would like to ask
Wolf_1
in
LUPUS UK
3 years ago
Journey update: LVV/GCA, tocilizumab and exercise
I have been diagnosed with LVV/GCA beginning of February (though MRI/MRA and PET/CT were not fully conclusive). With the help of Tocilizumab I now arrived at 12.5 mg prednisolone per day. I know that this is a very fast taper but it worked well until now and from now on the steps will become much smaller
I have been diagnosed with LVV/GCA beginning of February (though MRI/MRA and PET/CT were not fully conclusive). With the help of Tocilizumab I now arrived at 12.5 mg prednisolone per day. I know that this is a very fast taper but it worked well until now and from now on the steps will become much smaller
DeepThought2
in
PMRGCAuk
3 years ago
Covid vaccine & PMR
Having had my vaccine today, I asked the nurse if my antibodies would produce equally as well as someone who didn’t have autoimmune issues. She said probably not but the only way to find out that would be to have an antibody test after the 2nd vaccine. I have thyroid issues, hashimotos, and PMR, has
Having had my vaccine today, I asked the nurse if my antibodies would produce equally as well as someone who didn’t have autoimmune issues. She said probably not but the only way to find out that would be to have an antibody test after the 2nd vaccine. I have thyroid issues, hashimotos, and PMR, has
Daisy1624
in
PMRGCAuk
3 years ago
Peripheral Neuropathy in feet
Hi everyone. I have painful , numb feet due to PN for about a year. Did not improve during dialysis and now that I recently had a kidney transplant I am hoping there may be some change? Treating it with pregabalin for the pain. Has anybody else had the same and found any improvement?
Hi everyone. I have painful , numb feet due to PN for about a year. Did not improve during dialysis and now that I recently had a kidney transplant I am hoping there may be some change? Treating it with pregabalin for the pain. Has anybody else had the same and found any improvement?
Weimarador
in
Kidney Transplant Patient Support
3 years ago
Hospital Service Experience for Bilirary Atresia, Leed, Uk
Our daughter will have another operation to attempt to try and clear her Jaundice next week. She had a Kasia on Dec' 14th (born 14/10/20). They will give her a DISDA scan tomorrow (17/02/20) and hopefully try and establish the location of the problem that is still preventing her Jaundice from clearing
Our daughter will have another operation to attempt to try and clear her Jaundice next week. She had a Kasia on Dec' 14th (born 14/10/20). They will give her a DISDA scan tomorrow (17/02/20) and hopefully try and establish the location of the problem that is still preventing her Jaundice from clearing
Dominic1975
in
Children's Liver Disease Foundation
3 years ago
VO2max vs cardio fitness
I'm new to this site. I'm a 74 year old man living in York, UK. My Fitbit gives me a score of 42 which is supposed to be excellent for my age. Not long ago I had a proper VO2 max test where I rode an exercise bike with a mask on and they measured my respiratory gases. I was given a score of 13. This
I'm new to this site. I'm a 74 year old man living in York, UK. My Fitbit gives me a score of 42 which is supposed to be excellent for my age. Not long ago I had a proper VO2 max test where I rode an exercise bike with a mask on and they measured my respiratory gases. I was given a score of 13. This
Andyv1
in
Bridge to 10K
3 years ago
Transurethral Urinary Bladder Resection #2...coming up!
Well, mates...I made it for three years with the bladder neoplasia in check, and undergoing BCG vaccine every few months. Remember I could now go on the lung transplant list having been cancer free for three years. Well Thursday’s cystoscopy put an end to that (although my oncologist argues this type
Well, mates...I made it for three years with the bladder neoplasia in check, and undergoing BCG vaccine every few months. Remember I could now go on the lung transplant list having been cancer free for three years. Well Thursday’s cystoscopy put an end to that (although my oncologist argues this type
Sharp5Flat13
in
Lung Conditions Community Forum
3 years ago
WARWICK's ASCT Journey Begins Today...
Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met
Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met
socrates_8
in
MPN Voice
3 years ago
Has anyone had more than one FISH test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
steve_canada
in
CLL Support
3 years ago
Help , feeling really anxious and worried
Hi my brother has been on a ventilator for 5 days with covid, he is currently on 100% oxygen, he has type 1 diabetes and has a kidney transplant, feel like my world has fallen apart and helpless as I can’t be there with him,. Would appreciate any words of encouragement. Thankyou
Hi my brother has been on a ventilator for 5 days with covid, he is currently on 100% oxygen, he has type 1 diabetes and has a kidney transplant, feel like my world has fallen apart and helpless as I can’t be there with him,. Would appreciate any words of encouragement. Thankyou
Hidden
in
ICUsteps
3 years ago
Valentine's Day!
National Donate Life! I was 49 when I got my GIFT OF LIFE - my kidney transplant! It was 1999 , 21+ years ago. I had strep throat as a child and would up in kidney failure some 30 years later. I have friends that complain about their wrinkles and their grey hair and I thank GOD for every wrinkle
National Donate Life! I was 49 when I got my GIFT OF LIFE - my kidney transplant! It was 1999 , 21+ years ago. I had strep throat as a child and would up in kidney failure some 30 years later. I have friends that complain about their wrinkles and their grey hair and I thank GOD for every wrinkle
WYOAnne
NKF Ambassador
in
Kidney Transplant
3 years ago
Spinal Fusion identified while on Lung Transplant List
Good morning all, I have been listed on the Lung Transplant List for over 2 1/2 years now. They noticed I had the start of osteoporosis when I was officially listed which they put down to years of taking prednisolone. I have recently had another bone density scan and it showed up a spinal fusion? Has
Good morning all, I have been listed on the Lung Transplant List for over 2 1/2 years now. They noticed I had the start of osteoporosis when I was officially listed which they put down to years of taking prednisolone. I have recently had another bone density scan and it showed up a spinal fusion? Has
Joseph260268
in
Lung Conditions Community Forum
3 years ago
1
...
51
52
53
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
700 results
Lung Conditions Community Forum
455 results
Kidney Transplant
428 results
View top 10 communities
Sort by
Most Relevant
Newest