Kidney failure stage 4 and am worried?

[MAK88]

My mother had a kidney failure she's on stage 4, her GFR was 17% on December 2020, now its increased to 25% (UP & DOWN) she was prepared for kidney transplant (I am the donor) , but now the doctor postponed transplant until it goes down (below 20%), does she really need to do the transplant now or she should wait? and what is the right thing to do? Im happy to donate my kidney for my mother and im worried about her now.

[Bassetmommer NKF Ambassador]

The decision to have the transplant is based on many factors. But with her function above 20, she is ok to wait I would think. There are many of us who function with way lower GFRs with out transplants or dialysis.

[MAK88 in reply to Bassetmommer]

Thank you for your reply.

last year it happens to her it was around 20 then it increased to 25, few months later it dropped to 16 and now it increased to 25, and she has the syndrome of stage 4 kidney failure which makes me worrying

[Bassetmommer NKF Ambassador in reply to MAK88]

As long as she feels good, then that's great. GFR will bounce but even at 16, if she is functioning, I would be happy. Seems like your doctor is on it. What a wonderful person you are for donating you kidney. You definitely earned your angel wings here on earth.

[MAK88 in reply to Bassetmommer]

Bassetmommer, thank you for your wonderful words, shes my mother she rised me and did everything for me, this is the least thing to do for her. Thank you again .

[Darlenia]

Hi Mak88. It's probably fine to wait. Your mother likely can function reasonably well with the numbers given, as Bassetmommer noted. The egfr number that drives many procedures in the US is an egfr of 15 or lower as that's when most insurances cover costs. At that point, when it's consistently low, it's not unusual for patients to be quite ill. In the interim, I hope your mom will continue to maintain her current numbers for some time and feel reasonably fine. You're a wonderful person for your willingness to donate your kidney to her. Wishing you and your mother the very best!

[MAK88 in reply to Darlenia]

Thank you Darlenia, at this stage I will keep an eye on her and keep doing blood work for her every month. thanks again

[rkoking]

Hi I had the same scenario the consultant always will try there best to utilise your existing kidneys typicqlly with a threshold of 20% I was at stage 4 for of years before I started dialysis and was luck enough to find a match from a deceased donor.

[MAK88 in reply to rkoking]

Thank you rkoking for your reply, wish you all the best and hope you get well.

[Newday123]

I think that everyone is different. My son was with no symptoms with GFR of 5%. He is 23 years old which might play the role in him feeling well. The way she feels is very important and her other health conditions. Important thing is to make sure you are approved to be a donor so that you are ready if she needs it sooner. Approval process might be really slow, and some tests are only valid for a year, and then You have to be reapproved.. lot to consider in any case. All the best!

[MAK88 in reply to Newday123]

what make me worry more is when I see my mother doesn't eat and when she eat she through up whatever she eats, and she has pain in her hands she cannot hold a cup of tea, lake on sleep, those things makes me feels worry. thanks for your reply hope everyone gets safe.

[daxielovinglady]

Hi Mak88, Talk to your Renal Team as much as you need about anything & everything that bothers you, they do understand. Wishing you & your Mother better days. X

[MAK88 in reply to daxielovinglady]

I will talk to them soon, thanks daxielovinglady.

[gopaingo]

I have stage 3b kidney disease, my kidneys go up and down alot and I think it's a good idea to wait for as long as possible. Your lovely to donate one of yours when it's needed, but don't worry the doctors are best to not rush when she has improved function. Best of luck to you both

[MAK88 in reply to gopaingo]

Thank you gopaingo, hope you get soon and can maintain your kidney functions.

[Wizboz]

Aaawe ... I’m stage 3.... it drops to stage 2 now snd again... I’m on lisinopril to help to stabilize my condition.,. But it’s ok... I live normally but I do have water retention ... stay strong lovey... to be a donor for your mum is truly amazing... but she should be ok🙏Especially having you behind her... lots of love😘

[MAK88 in reply to Wizboz]

thank you wizboz for your lovely words