Hospital Service Experience for Bilir... - Children's Liver ...

Children's Liver Disease Foundation

2,050 members710 posts

Hospital Service Experience for Bilirary Atresia, Leed, Uk

Dominic1975 profile image
1 Reply

Our daughter will have another operation to attempt to try and clear her Jaundice next week. She had a Kasia on Dec' 14th (born 14/10/20). They will give her a DISDA scan tomorrow (17/02/20) and hopefully try and establish the location of the problem that is still preventing her Jaundice from clearing. If this second operation is unsuccessful then a liver transplant seems inevitbale as the end result. If this happends then we may move back to the Uk from Bangkok, where we currenlty live. I wondered if anyone has had any direct, personal experience with Leeds hospitals UK, particularly with having a child undergo a Liver transplant there. We are unsure if we could be compatable as a living donor (me and my wife have type "A" blood and our daughter is type "B", so we may need to go on a wating list. Our dilema is which country has the shortest donor queue? Is there a way to find out the length of the UKs donor waiting list? Our doctor here in bangkok I suppose would just tell us but it would be good to compare. Does anyone know if we could be compatable having Type A blood and our daughtr Type B blood. Any information would be gratefully received. Thanks, Dominic

Written by
Dominic1975 profile image
Dominic1975
To view profiles and participate in discussions please or .
Read more about...
1 Reply
MichelleCLDF profile image
MichelleCLDFPartnerCLDF

Hello, I am sorry for all the uncertainty you are going through just now. Your doctor will be best placed to advise you on waiting lists. I can assure you that Leeds is a fantastic centre with a wonderful transplant team and your daughter would be in safe hands there. Warmest regards, Kate

Not what you're looking for?

You may also like...

Hi I am new to this''' I would like to talk to some people who are goin or been through same situation as I am goin through now.

My daughter was diagnosed with billiary atresia at 8 weeks had the Kasai at 9 weeks. Everything...
leather profile image

Formula suggestions for a 4 week old Biliary Atresia newborn

I am very new to this and needing help and support in any way that I can. My daughter was born on...
Mbradle2 profile image

Biliary atresia

Hi everyone, my name is Louise Currie, I was born with Biliary Atresia and was given the kasai...
Loooooo profile image

Suggestions on how to include my 3 year old now my baby has been diagnosed with biliary atresia please?

Our worlds have just been turned upside down... Thought our son had breast feeding jaundice went...
Blazer profile image

Billirubin levels in patients with alagille syndrome

Hi everyone, We've been to doctors yesterday, my 8 months old daughter has been diagnosed with...
Dina1986 profile image

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.