Spinal Fusion identified while on Lung Transplant List

[Joseph260268]

Good morning all,

I have been listed on the Lung Transplant List for over 2 1/2 years now. They noticed I had the start of osteoporosis when I was officially listed which they put down to years of taking prednisolone. I have recently had another bone density scan and it showed up a spinal fusion? Has anyone else been taken off the lung transplant list because of this? I ask because my sternum would need opening up or ribs might need to be removed to perform the operation and with softening of the bones further problems may occur.

I welcome all your comments.

Joseph x

[2greys]

Whilst I am not on a transplant list, there are obvious complications that may arise. You will need to discuss it with your consultant. I have found some info to help you formulate the questions for you to to ask.

ncbi.nlm.nih.gov/pmc/articl...

[Joseph260268 in reply to 2greys]

Thank you 🙏

[Sandrute2]

Hi Joseph why you was on transplant list

[Joseph260268 in reply to Sandrute2]

Hi there, I am on the Transplant List because I need a double lung Transplant.

[Sandrute2 in reply to Joseph260268]

Why do you need it.

[Joseph260268]

Hello again, I had part of one of my lungs removed at 6 months of age I was born with brittle asthma. I was then diagnosed with severe bronchiectasis at 36 with COPD and now I am stage 4 COPD.

[Sandrute2 in reply to Joseph260268]

As I understand small part of your lung was removed. Becouse of asma when you was very young.

[Dedalus]

Sincerely hope this won't stop you getting your lung transplant. Good luck and all best wishes.

[Joseph260268 in reply to Dedalus]

Thank you. 🙏

[crashdoll]

I’m sorry to hear this, Joseph. I don’t have personal experience but wondered if you’d been put on any home protecting medications? Take care.

[Joseph260268 in reply to crashdoll]

I have been on Alandronic acid for the last 5 years to help strengthen my bones but as everyone gets older even healthier people their bones start to go into decline. Thank you for replying 🙏

[crashdoll in reply to Joseph260268]

I’m so sorry. I wish I had helpful advice but I hope they can figure something out to help you. Sending good wishes to you.

[Biofreak in reply to Joseph260268]

Hi Joseph. I also have osteoporosis and I also take alendronic acid as well as Adcal which I take daily. I really hope this doesn't affect your prospects for lung transplant. Hopefully taking the alendronic acid will have had a beneficial effect. It did in my case but I am not waiting for a transplant so can't comment on the implications. The only thing I can tell you is that I was told to stop taking it after 6 years and have a rest because there is a fear that it can make your bones more susceptible to fracture if taken for too long. I was off it for 4 years and have now been put back on it. Good luck.

[Joseph260268 in reply to Biofreak]

Thank you for your reply 🙏