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International Volunteers Day. Day 5 of ' Our' Advent Calendar. A tip on how to give our busy Family and Carers our Thanks before Christmas.
Today is for Volunteers , but if you need more
intensive
Care
from Paid or Charity Support , it's good to know that they are Volunteers in lots of ways too.
Today is for Volunteers , but if you need more
intensive
Care
from Paid or Charity Support , it's good to know that they are Volunteers in lots of ways too.
Blearyeyed
in
PMRGCAuk
4 years ago
Sore, tired and dumping syndrome - tips please
I had major complications and spent two months in
intensive
care
. I’m starting to feel human again however my back is still very painful. I get extremely tired and I have dumping syndrome at least once a day and some days every time I eat.
I had major complications and spent two months in
intensive
care
. I’m starting to feel human again however my back is still very painful. I get extremely tired and I have dumping syndrome at least once a day and some days every time I eat.
Janashlin
in
Oesophageal & Gastric Cancer
5 years ago
Skydive at 15,000 - ahhhh🙈😫🤪
I am doing a skydive at 15,000ft to raise money for the Wallace and Grommits Grand Appeal at Bristol Childrens Hospital for the
intensive
care
unit.These amazing people saved my son's life when he was 6weeks old.
I am doing a skydive at 15,000ft to raise money for the Wallace and Grommits Grand Appeal at Bristol Childrens Hospital for the
intensive
care
unit.These amazing people saved my son's life when he was 6weeks old.
Petal30
in
British Heart Foundation
5 years ago
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By post IPF??
Hello everyone, I don't post often but I do read every post. I had my consultant appointment last week, I just got his letter where he refer my problem as Hypoxic IPF, what is hypoxy? Never heard the term, before I consult Dr Google I thought someone here would be able to explain to me what it is. Also
Hello everyone, I don't post often but I do read every post. I had my consultant appointment last week, I just got his letter where he refer my problem as Hypoxic IPF, what is hypoxy? Never heard the term, before I consult Dr Google I thought someone here would be able to explain to me what it is. Also
Margot13
in
Lung Conditions Community Forum
5 years ago
Fast PSA Rise
I just got back from vacation and had another PSA test. The time between tests was 3 months and the rise was from 12.79 to 29.5 resulting in a doubling time of 2.5 months. I am waiting for the oncologist to find my records and call back so it will be a while before I get his opinion as to what to do.
I just got back from vacation and had another PSA test. The time between tests was 3 months and the rise was from 12.79 to 29.5 resulting in a doubling time of 2.5 months. I am waiting for the oncologist to find my records and call back so it will be a while before I get his opinion as to what to do.
spencoid2
in
Prostate Cancer And Gay Men
4 years ago
My counsellor told me I had PTSD and then said she was not doing anymore sessions :(
in
intensive
care
with 11 blood transfusions in the 3 months that followed So I contacted a counsellor took me years after having rubbish ones and she was good she said I have ptsd and then she stopped practicing and since then I’ve given up trying tinsitt my anxiety out :(
in
intensive
care
with 11 blood transfusions in the 3 months that followed So I contacted a counsellor took me years after having rubbish ones and she was good she said I have ptsd and then she stopped practicing and since then I’ve given up trying tinsitt my anxiety out :(
Runrabbit50
in
Anxiety and Depression Support
5 years ago
Day 11 Post Circumcision
I still put a dressing around the shaft for comfort and use Vaseline
intensive
care
advanced repair body lotion on it. Some stitches have come out and hopefully others will follow quickly. I’m not sure that I can manage without masturbating for 4 weeks haha! Any advice guys?
I still put a dressing around the shaft for comfort and use Vaseline
intensive
care
advanced repair body lotion on it. Some stitches have come out and hopefully others will follow quickly. I’m not sure that I can manage without masturbating for 4 weeks haha! Any advice guys?
Hidden
in
Men's Health Forum (Penis Health)
5 years ago
Grunting
Grunting like catching a breath 2-3 times a day. On palliative care anyone had experience of this?
Grunting like catching a breath 2-3 times a day. On palliative care anyone had experience of this?
eekk
in
British Liver Trust
5 years ago
Checking in with an update
I see it is 5 months since we last posted. We don't look back or forward with this awful, energy sapping, debilitating disease we just survive. Each day has it own risks and its own delights. Ch is almost bedridden now. He sleeps a lot more. We have help in on Monday (3hr break for me) Friday (a 4hr
I see it is 5 months since we last posted. We don't look back or forward with this awful, energy sapping, debilitating disease we just survive. Each day has it own risks and its own delights. Ch is almost bedridden now. He sleeps a lot more. We have help in on Monday (3hr break for me) Friday (a 4hr
crab2093
in
PSP Association
5 years ago
ANXIETY I’ve IBSD and travel anxiety and have a hospital appointment Monday
I also had late pregnancy loss in 2015 to sepsis and critical
care
stay in
intensive
care
followed by 11 blood transfusions in 3 months all at the same hospital Anyone know any new techniques to get me to hospital I really am anxious told no one as they will mention it all the time I’ve lied to my
I also had late pregnancy loss in 2015 to sepsis and critical
care
stay in
intensive
care
followed by 11 blood transfusions in 3 months all at the same hospital Anyone know any new techniques to get me to hospital I really am anxious told no one as they will mention it all the time I’ve lied to my
Runrabbit50
in
Anxiety and Depression Support
5 years ago
Cirrhosis update
Well here I am again, not quite sure what I’m doing most of the time but still plodding along. Dad has stage 4 cirrhosis and as most of you know comes with a whole host of problems. I feel slightly more at ease this week then I have. He had a fall 2 weeks ago out of bed, spent 41/2 hours waiting for
Well here I am again, not quite sure what I’m doing most of the time but still plodding along. Dad has stage 4 cirrhosis and as most of you know comes with a whole host of problems. I feel slightly more at ease this week then I have. He had a fall 2 weeks ago out of bed, spent 41/2 hours waiting for
Bubbles201271
in
British Liver Trust
5 years ago
Second Clinical Trial:
After consulting with our oncologist in Virginia, our former trial study doc, NIH, and Georgetown University, my husband has decided to participate in another clinical trial at Georgetown. This study has two arms, and he will be in the monotherapy only, Part 2 group, if accepted. This part of the study
After consulting with our oncologist in Virginia, our former trial study doc, NIH, and Georgetown University, my husband has decided to participate in another clinical trial at Georgetown. This study has two arms, and he will be in the monotherapy only, Part 2 group, if accepted. This part of the study
missyrand
Ambassador
in
Melanoma Caregivers
5 years ago
Reminder from Simone
Hello everyone. Simone also reminded me that I hadn't posted for 4 years. At that time my daughters condition worsened, she couldn't stand, was regularly falling on her head, and became unable to live on her own. Social workers most of whom did not understand the condition Ataxia, and against my pleading
Hello everyone. Simone also reminded me that I hadn't posted for 4 years. At that time my daughters condition worsened, she couldn't stand, was regularly falling on her head, and became unable to live on her own. Social workers most of whom did not understand the condition Ataxia, and against my pleading
pazzamadre
in
Ataxia UK
5 years ago
PALLIATIVE CARE
Feeling very naked and exposed, Peeps has spent most of September in the Liver Unit at London Bridge Hospital but has finally been sent home to die. There is nothing more that can medically be done. He is now subject to Palliative Care at home with the help of the GP, District and Hospice Nurses but
Feeling very naked and exposed, Peeps has spent most of September in the Liver Unit at London Bridge Hospital but has finally been sent home to die. There is nothing more that can medically be done. He is now subject to Palliative Care at home with the help of the GP, District and Hospice Nurses but
Peeps7
in
British Liver Trust
5 years ago
Friends Any suggestion for frequent urination
With Firmagon since 4 months and IMRT now for 2 weeks ....total 4 weeks hyperfraction 3Gy.... I have frequent urination ... Every hour.... Trying Pelvic strengthening and serenoa repens(not much help)... RO suggested alpha blocker URICOR....very aggressive reaction of diarrhea and cramps ....so stopped
With Firmagon since 4 months and IMRT now for 2 weeks ....total 4 weeks hyperfraction 3Gy.... I have frequent urination ... Every hour.... Trying Pelvic strengthening and serenoa repens(not much help)... RO suggested alpha blocker URICOR....very aggressive reaction of diarrhea and cramps ....so stopped
Karmaji
in
Advanced Prostate Cancer
4 years ago
ore details on degarelix (Firmagon)
After a single dose (120 mg) of degarelix to support my ST-ADT in conjunction with pelvic lymph node IMRT, my Testosterone level is castrate (>20 ng/dl). I added this as estradiol patches were slow to get there (T = 63 after 2 weeks). And I am feeling surprisingly good as previously reported with no
After a single dose (120 mg) of degarelix to support my ST-ADT in conjunction with pelvic lymph node IMRT, my Testosterone level is castrate (>20 ng/dl). I added this as estradiol patches were slow to get there (T = 63 after 2 weeks). And I am feeling surprisingly good as previously reported with no
MateoBeach
in
Advanced Prostate Cancer
4 years ago
D-dimer, Radiation & Disseminated Intravascular Coagulation [DIC]
New study below [1]. I have a number of old posts on coagulation/nattokinase /D-dimer. Cancer increases the risk of life-threatening coagulation, as well as metastasis. Nattokinase, which can dissolve the fibrin in clots, is thought by many men to be protective, but I suspect that most simply take
New study below [1]. I have a number of old posts on coagulation/nattokinase /D-dimer. Cancer increases the risk of life-threatening coagulation, as well as metastasis. Nattokinase, which can dissolve the fibrin in clots, is thought by many men to be protective, but I suspect that most simply take
pjoshea13
in
Advanced Prostate Cancer
4 years ago
Palliative Care
Has anyone experienced palliative care. I think I need help with cognition, my extreme debilitating side-effects (musculoskeletal) if I/F combo (which is worse on week off Ibrance), maybe anxiety & insomnia & some social anxiety issues I’m having due to loss of cognition. I am also having a brain
Has anyone experienced palliative care. I think I need help with cognition, my extreme debilitating side-effects (musculoskeletal) if I/F combo (which is worse on week off Ibrance), maybe anxiety & insomnia & some social anxiety issues I’m having due to loss of cognition. I am also having a brain
Bailey3266
in
SHARE Metastatic Breast Cancer
5 years ago
Early palliative care for advanced lung cancer increases survival.
Early palliative care is associated with better survival in patients with advanced lung cancer, according to a study by VA Portland Health Care System and Oregon Health and Science University researchers. Lead author Dr. Donald Sullivan, with the VA Portland Health Care System Center to Improve Veteran
Early palliative care is associated with better survival in patients with advanced lung cancer, according to a study by VA Portland Health Care System and Oregon Health and Science University researchers. Lead author Dr. Donald Sullivan, with the VA Portland Health Care System Center to Improve Veteran
2greys
in
Lung Conditions Community Forum
5 years ago
Pancreas cancer...Periampullary carcinoma...Whipple's procedure surgery done....Abcess in liver....Multiple SOL in liver
So he was in
intensive
care
of the doctors and was hospitalised for 1 month. Then he recovered his swollen body and the pleural effusion reduced and scrotum became well. But recent ultrasonogram showed 2 SOL in liver. His CA 19.9 is below 40 and CEA is below 4.
So he was in
intensive
care
of the doctors and was hospitalised for 1 month. Then he recovered his swollen body and the pleural effusion reduced and scrotum became well. But recent ultrasonogram showed 2 SOL in liver. His CA 19.9 is below 40 and CEA is below 4.
Zahid100
in
Breast Cancer India
5 years ago
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