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Post op update.
The observation bit was normal the 12 sticky pad were not so much, yet another eeg, then the anesthesiologist drH and his young apprentice came to see me, with quite a lot of information about my bypass drugs and
intensive
care
treatment, I may be on the cancer track but my quad cabg is being considered
The observation bit was normal the 12 sticky pad were not so much, yet another eeg, then the anesthesiologist drH and his young apprentice came to see me, with quite a lot of information about my bypass drugs and
intensive
care
treatment, I may be on the cancer track but my quad cabg is being considered
Rogo23
in
British Heart Foundation
10 months ago
Well, so much for feeling normal....
Some of you may have read my long story on the Enhertu infusion. I have it in my lungs, spine and then it spread to my liver and the next treatment (Xeloda, I think) and after three months still progression. If you have the time, grab a cup of coffee and read. OR, if you are having trouble sleeping
Some of you may have read my long story on the Enhertu infusion. I have it in my lungs, spine and then it spread to my liver and the next treatment (Xeloda, I think) and after three months still progression. If you have the time, grab a cup of coffee and read. OR, if you are having trouble sleeping
kearnan
in
SHARE Metastatic Breast Cancer
1 year ago
HIP XRAYS- Will they effect my recovery or effect my Prostate Cancer-I am now 7 months post IMRT Treatment and healing fine.
Docs want me to take hip xrays ... I am healing well 7 months post IMRT 20 TX now . no major Urinary and rectal issues. Worried that hip xrays may effect my recovery. I know it's not much radiation but I am doing so well...dont want to "POKE THE BEAR"... Thanks JWS All thoughts welcome!!! 62 20
Docs want me to take hip xrays ... I am healing well 7 months post IMRT 20 TX now . no major Urinary and rectal issues. Worried that hip xrays may effect my recovery. I know it's not much radiation but I am doing so well...dont want to "POKE THE BEAR"... Thanks JWS All thoughts welcome!!! 62 20
JWS13
in
Prostate Cancer Network
8 months ago
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Change from Ropinerole to Rigotine patches
I saw a new Neurologist at my local hospital last week as my RLS has been made worse by the chemo I am on. I am stage 4 and Palliative care for Sarcoma with mets in liver, chest wall and spine. I told him I can’t wean off Ropinerole so he suggested changing to Rigotine patches which, as I also have IBS
I saw a new Neurologist at my local hospital last week as my RLS has been made worse by the chemo I am on. I am stage 4 and Palliative care for Sarcoma with mets in liver, chest wall and spine. I told him I can’t wean off Ropinerole so he suggested changing to Rigotine patches which, as I also have IBS
Ruffabug
in
Restless Legs Syndrome
1 year ago
with the news about former president Jimmy Carter, maybe a video about palliative care would be appropriate
Palliative care and panel discusssion about active surveillance for prostate cancer https://youtu.be/DmFYLTPYwt0
Palliative care and panel discusssion about active surveillance for prostate cancer https://youtu.be/DmFYLTPYwt0
Bethishere
Administrator
in
Advanced Prostate Cancer
1 year ago
Question to my NJ sisters
I got to the point that I can’t stay with my oncologist any more for many reasons. One of them is that she doesn’t see me as a patient, but just as cancer. No symptoms that could be seen as a sign of cancer or side effect of the therapy are of interest. After I was hospitalized for urosepsis and anemia
I got to the point that I can’t stay with my oncologist any more for many reasons. One of them is that she doesn’t see me as a patient, but just as cancer. No symptoms that could be seen as a sign of cancer or side effect of the therapy are of interest. After I was hospitalized for urosepsis and anemia
Tolife_18
in
SHARE Metastatic Breast Cancer
1 year ago
1st post-IMRT PSA = 2.1
I completed IMRT on 5/22/23. My last recorded PSA from 1/23 was 4.31. My 1st PSA draw on 8/22/23 came back 2.12. I've read and have been told that PSA doesn't go down immediately with radiation, unlike surgery, and can take up to 2 years to hit its nadir. The RO NP was happy and pretty much said that
I completed IMRT on 5/22/23. My last recorded PSA from 1/23 was 4.31. My 1st PSA draw on 8/22/23 came back 2.12. I've read and have been told that PSA doesn't go down immediately with radiation, unlike surgery, and can take up to 2 years to hit its nadir. The RO NP was happy and pretty much said that
EJC61
in
Prostate Cancer Network
8 months ago
Radiation
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
sillyoyster
in
Advanced Prostate Cancer
8 months ago
Air fryer?
I've been eating LCHF for 4 years, and have experienced many health benefits from it. But while eating high fat, I have never turned to deep fried foods. That's mostly because I am not prepared to deep fry in my home, and outside the oil is mostly seed oils, that is highly recycled. Thus I have been
I've been eating LCHF for 4 years, and have experienced many health benefits from it. But while eating high fat, I have never turned to deep fried foods. That's mostly because I am not prepared to deep fry in my home, and outside the oil is mostly seed oils, that is highly recycled. Thus I have been
atrax_robustus
in
Low-Carb High-Fat (LCHF)
6 months ago
What would be next?
From my hx, Gleason 9 RP. PSA went to 0.2 8 months later. PSMA 4 hot spots. IMRT, Lupron and Zytiga. Doing great thus far. MO said if recurrence, Provenge next. Agree? No scan till PSA rise. Agree?thank you
From my hx, Gleason 9 RP. PSA went to 0.2 8 months later. PSMA 4 hot spots. IMRT, Lupron and Zytiga. Doing great thus far. MO said if recurrence, Provenge next. Agree? No scan till PSA rise. Agree?thank you
rfgh20
in
Advanced Prostate Cancer
8 months ago
😪😡😪 Need to vent.
So palliative care and the transplant team have asked the gp to provide particular care and meds, have they NO!!! Can I make an appointment to speak to a gp? NO!!! The only thing to reduce me to tears is trying to deal with the incompetence of my gp surgery.
So palliative care and the transplant team have asked the gp to provide particular care and meds, have they NO!!! Can I make an appointment to speak to a gp? NO!!! The only thing to reduce me to tears is trying to deal with the incompetence of my gp surgery.
Karenanne61
in
Lung Conditions Community Forum
1 year ago
Androgens & colorectal cancer
.· 2function perioperative medicine and
intensive
care
, karolinska university hospital, stockholm, sweden. richard.shore@regionstockholm.se.· 3department of medical epidemiology and biostatistics (meb), karolinska institutet, stockholm, sweden.· 4department of surgical sciences
.· 2function perioperative medicine and
intensive
care
, karolinska university hospital, stockholm, sweden. richard.shore@regionstockholm.se.· 3department of medical epidemiology and biostatistics (meb), karolinska institutet, stockholm, sweden.· 4department of surgical sciences
pca2004
in
Fight Prostate Cancer
10 months ago
New bone met
I have a consult with radiation oncologist on Wednesday and wanted to ask if any of you have had very targeted radiation therapy to one small new spot on bone when your systemic treatment (Ibrance and Letrozole) is still working on other mets. I saw there is SBRT and IMRT. Are these appropriate options
I have a consult with radiation oncologist on Wednesday and wanted to ask if any of you have had very targeted radiation therapy to one small new spot on bone when your systemic treatment (Ibrance and Letrozole) is still working on other mets. I saw there is SBRT and IMRT. Are these appropriate options
Trissh
in
SHARE Metastatic Breast Cancer
8 months ago
Imaging Guidelines - Salvage IMRT Planning
I'm planning to start my post-op salvage treatment after my PSA breached 0.1 few weeks ago. I'm OK with the extent of the treatment proposed, which is 5 weeks of IMRT (VMAT) to the prostatic fossa and pelvic LNs. However, I'm not confident with the accuracy of radiation delivery to the target area. Knowing
I'm planning to start my post-op salvage treatment after my PSA breached 0.1 few weeks ago. I'm OK with the extent of the treatment proposed, which is 5 weeks of IMRT (VMAT) to the prostatic fossa and pelvic LNs. However, I'm not confident with the accuracy of radiation delivery to the target area. Knowing
Rams91
in
Prostate Cancer Network
8 months ago
Update post follow up PSMA PET/CT
Just updated my profile to include recent events. In brief, in March 2023 I had a PSMA PET/CT which Dr. Kwon at Mayo clinic somehow got my insurance to pay for even though my PSA was undetectable. It defined a abdominal retro-aortic mass that was significantly avid. Underwent 4 weeks of standard
Just updated my profile to include recent events. In brief, in March 2023 I had a PSMA PET/CT which Dr. Kwon at Mayo clinic somehow got my insurance to pay for even though my PSA was undetectable. It defined a abdominal retro-aortic mass that was significantly avid. Underwent 4 weeks of standard
slpdvmmd
in
Advanced Prostate Cancer
8 months ago
3 Months post ADT (Orgovyx) Still having hot flashes and fatigue-doing blood test in two weeks..for hopefully nadir..
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
JWS13
in
Prostate Cancer Network
8 months ago
Anyone have a dramatic drop in WBC bordering on neutropenia from pelvic radiation (not chemo)?
Husband is 3/4 of the way through an escalated course of IMRT Prostate bed only radiation (plan was for 33 days but they gave larger doses per day and are trying to do it in 20 days). Today (Saturday) we ended up going to the ER because he was having some strange symptoms. Labs showed his WBC counts
Husband is 3/4 of the way through an escalated course of IMRT Prostate bed only radiation (plan was for 33 days but they gave larger doses per day and are trying to do it in 20 days). Today (Saturday) we ended up going to the ER because he was having some strange symptoms. Labs showed his WBC counts
StephH72
in
Advanced Prostate Cancer
8 months ago
metallic taste in mouth during pelvic radiation
Has anyone dealt with a metallic taste in mouth during radiation to prostate bed? Husband is 3/4 of the way through his IMRT pelvic radiation and the last few days the sour metallic taste is ever present plus he’s been nauseous with vomiting occasionally and more fatigue. Anyone experienced this during
Has anyone dealt with a metallic taste in mouth during radiation to prostate bed? Husband is 3/4 of the way through his IMRT pelvic radiation and the last few days the sour metallic taste is ever present plus he’s been nauseous with vomiting occasionally and more fatigue. Anyone experienced this during
StephH72
in
Advanced Prostate Cancer
8 months ago
Brain metastasis
New (Portuguese) anecdotal case study below. [1] When I began reading PCa studies on PubMed, I saw a lot of cell studies that used LNCaP (from a lymph PCa cell), PC3 (from a bone PCa cell) &/or DU145 (supposedly a brain met cell, but now described as "derived from a central nervous system metastasis
New (Portuguese) anecdotal case study below. [1] When I began reading PCa studies on PubMed, I saw a lot of cell studies that used LNCaP (from a lymph PCa cell), PC3 (from a bone PCa cell) &/or DU145 (supposedly a brain met cell, but now described as "derived from a central nervous system metastasis
pca2004
in
Fight Prostate Cancer
8 months ago
ED No More (the prequel)
I've had so many comments since my post "ED no more" that I felt I should offer more. I'm a neophyte on this site. As a matter of fact I avoid this site. I have always adopted an "ignorance is bliss" attitude towards life and my PC. My wife, on the other hand, is a nervous but adventurous individual
I've had so many comments since my post "ED no more" that I felt I should offer more. I'm a neophyte on this site. As a matter of fact I avoid this site. I have always adopted an "ignorance is bliss" attitude towards life and my PC. My wife, on the other hand, is a nervous but adventurous individual
Bangkok
in
Advanced Prostate Cancer
9 months ago
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