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Post IMRT questions
Have not been here for a while. I had IMRT about 14 months ago and have been on Lupron for a little longer. My Questions: Had a recent heart attack (minor) and have a history of heart trouble. I believe I read somewhere during my furious research phase at the beginning that Lupron may not be the best
Have not been here for a while. I had IMRT about 14 months ago and have been on Lupron for a little longer. My Questions: Had a recent heart attack (minor) and have a history of heart trouble. I believe I read somewhere during my furious research phase at the beginning that Lupron may not be the best
Stellabell
in
Prostate Cancer Network
4 years ago
Fenbendazole probably not working for me
In my case I think it is pretty clear that Fenbendazole has not been effective. Old History PSA 5.3, RP March 2009, Gleason 3+4, focal PNI PSA undetectable until Oct. 2011 PSA 0.658, Salvage Radiation Sept/Oct 2012 No impact on PSA, RO clueless July 2014, Nano-MRI at Radboud
In my case I think it is pretty clear that Fenbendazole has not been effective. Old History PSA 5.3, RP March 2009, Gleason 3+4, focal PNI PSA undetectable until Oct. 2011 PSA 0.658, Salvage Radiation Sept/Oct 2012 No impact on PSA, RO clueless July 2014, Nano-MRI at Radboud
cigafred
in
Advanced Prostate Cancer
4 years ago
Aggressive Clinical Trial Patient at JH
Hi, I’m happy to have found this network. I’m in a clinical trial at Johns Hopkins. My treatment course is more aggressive than standard and beyond obviously hoping it eradicates my cancer, It should do a tiny bit to shed more light on the efficacy of early aggressive multi modal treatment after RP
Hi, I’m happy to have found this network. I’m in a clinical trial at Johns Hopkins. My treatment course is more aggressive than standard and beyond obviously hoping it eradicates my cancer, It should do a tiny bit to shed more light on the efficacy of early aggressive multi modal treatment after RP
London441
in
Prostate Cancer Network
4 years ago
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Looking for Reassurance For My Dad
However, he was out of
intensive
care
within 24 hours and despite a difficult time with recovering his mental state from the trauma of the operation, physically he seemed to be doing quite well.
However, he was out of
intensive
care
within 24 hours and despite a difficult time with recovering his mental state from the trauma of the operation, physically he seemed to be doing quite well.
Tanglewood1
in
British Heart Foundation
4 years ago
Feeling very, very lucky after baby was in intensive care.....
But when they took the oxygen levels down after he looked so much better he became worse and ended up in
intensive
care
. He had a tube down into his lungs to do his breathing for him.
But when they took the oxygen levels down after he looked so much better he became worse and ended up in
intensive
care
. He had a tube down into his lungs to do his breathing for him.
Georgielouise
in
Pregnancy and Parenting Support
5 years ago
I am still here😉😀
I haven't written on here for a few months but,I have checked in now and then.Had a difficult few months.Had burst water pipe in house which ruined kitchen,sitting room ,hall and corridor so, we had to seek accommodation and stay away from home for over two months.I missed my home so much and eventually
I haven't written on here for a few months but,I have checked in now and then.Had a difficult few months.Had burst water pipe in house which ruined kitchen,sitting room ,hall and corridor so, we had to seek accommodation and stay away from home for over two months.I missed my home so much and eventually
annieH1
in
OvaCare
5 years ago
LCHF diet advice
I have been going to slimming world for just over a year and had lost over 2 1/2 stone. However lately I have been struggling and put on a few lbs and I am also finding as I get older certain foods seem to upset me. I have decided to completely change the foods I eat, I have avoided sugars and rarely
I have been going to slimming world for just over a year and had lost over 2 1/2 stone. However lately I have been struggling and put on a few lbs and I am also finding as I get older certain foods seem to upset me. I have decided to completely change the foods I eat, I have avoided sugars and rarely
Loraine518
7lbs
in
Weight Loss Support
4 years ago
New Oncologst
Hi everyone, it’s been a while since I’ve posted but i do follow everyone’s posts. I’m seriously considering getting a new oncologist. Whenever I have called in the past with a symptom or side effects, I am mostly told “oh that’s not not a side effect” or “it doesn’t sound cancer related”. Well a few
Hi everyone, it’s been a while since I’ve posted but i do follow everyone’s posts. I’m seriously considering getting a new oncologist. Whenever I have called in the past with a symptom or side effects, I am mostly told “oh that’s not not a side effect” or “it doesn’t sound cancer related”. Well a few
Lisa11171
in
SHARE Metastatic Breast Cancer
5 years ago
Struggling
Well it’s a new year and I am praying it’s a better one than last year 🤞🤞🤞 This was my first Christmas after mine fertility journey has ended, and I’ve really struggled 😪 I just want my own family 💔 I work in Paediatric
intensive
care
, which is hard in many levels, but it’s a large number of female
Well it’s a new year and I am praying it’s a better one than last year 🤞🤞🤞 This was my first Christmas after mine fertility journey has ended, and I’ve really struggled 😪 I just want my own family 💔 I work in Paediatric
intensive
care
, which is hard in many levels, but it’s a large number of female
Shelbe77
in
More To Life
5 years ago
Cardiac Insufficiency
He was heavily sedated for a few days, and sent to
intensive
care
due to respiratory decompensation. I am unable to get any proper information as to his current condition. I find him sedated and confused which is unlike my dad as he is a man with a sane mind.
He was heavily sedated for a few days, and sent to
intensive
care
due to respiratory decompensation. I am unable to get any proper information as to his current condition. I find him sedated and confused which is unlike my dad as he is a man with a sane mind.
gnatercia
in
British Heart Foundation
5 years ago
Seeking Post-RP Advice for Very High Risk, G9, Low PSA
I had RP in Aug 2019 at 56 years of age. Pre-surgery PSA was 5.3. Pathology showed G9, negative margins, ECE, seminal vesicle invasion and 1 positive lymph node, stage T3bN1. Based on my 3mth PSA of <0.03, my urologist is taking a wait and see approach to follow on treatment. My 6 month follow up is
I had RP in Aug 2019 at 56 years of age. Pre-surgery PSA was 5.3. Pathology showed G9, negative margins, ECE, seminal vesicle invasion and 1 positive lymph node, stage T3bN1. Based on my 3mth PSA of <0.03, my urologist is taking a wait and see approach to follow on treatment. My 6 month follow up is
DJBUNK
in
Advanced Prostate Cancer
4 years ago
Hello from Indiana, USA
My husband and I were both English teachers. He is 11 years older than me and retired in 2014, a year after having five stents put in his heart. I took early retirement in 2017, a month before he was diagnosed with PSP. I started noticing cognitive symptoms on a trip to Ireland in 2012. The years that
My husband and I were both English teachers. He is 11 years older than me and retired in 2014, a year after having five stents put in his heart. I took early retirement in 2017, a month before he was diagnosed with PSP. I started noticing cognitive symptoms on a trip to Ireland in 2012. The years that
Writingwithcats
in
PSP Association
5 years ago
Bronchietasis/LPR nightmare!
Intensive
care
post op etc. 2 yrs is too long to wait to be listened to. My life is consumed with Meds...news...nausea....and the knowledge of the damage this is doing is scary!! I have done some research as I'm sure so many have.
Intensive
care
post op etc. 2 yrs is too long to wait to be listened to. My life is consumed with Meds...news...nausea....and the knowledge of the damage this is doing is scary!! I have done some research as I'm sure so many have.
Helroo
in
Lung Conditions Community Forum
5 years ago
Hey There! About Me...
I was in the
Intensive
Care
Unit for 5 days. Then trauma step down for another couple of days. Over the last three years I went from a 5/7 in pants to a 3, 2, 1, 0 and now I am a double 00. I am super insecure due to the abuse, even though I am not alone and super insecure about how I look.
I was in the
Intensive
Care
Unit for 5 days. Then trauma step down for another couple of days. Over the last three years I went from a 5/7 in pants to a 3, 2, 1, 0 and now I am a double 00. I am super insecure due to the abuse, even though I am not alone and super insecure about how I look.
lexidoodle2727
in
Anxiety and Depression Support
4 years ago
Hello, looking for advice
A doctor in
intensive
care
gave me a prognosis of 2 months which another doctor later said was not right, that you cant give a prognosis like that with this disease? Very confusing and distressing. I'm trying to sort out benefits for her.
A doctor in
intensive
care
gave me a prognosis of 2 months which another doctor later said was not right, that you cant give a prognosis like that with this disease? Very confusing and distressing. I'm trying to sort out benefits for her.
Kiki123peace
in
Lung Conditions Community Forum
5 years ago
Gemcitabine and Carboplatin tomorrow
Good evening fellow teal friends. I saw my oncologist this morning and I am starting Gemcitabine and Carboplatin in the morning. My Ca125 has gone up to 374 from 166 in December and I have the new tumours. I am pleased that I can still have chemo although I'm slightly concerned by comments like "it's
Good evening fellow teal friends. I saw my oncologist this morning and I am starting Gemcitabine and Carboplatin in the morning. My Ca125 has gone up to 374 from 166 in December and I have the new tumours. I am pleased that I can still have chemo although I'm slightly concerned by comments like "it's
Welshandproud
in
My Ovacome
5 years ago
Tapering from 10 to 9, grief aver a friend and pain
I had an appointment with my rheumatologist the first week in January. 2 days before the appointment my best friend of 40 years was in a serious car accident and put in
intensive
care
on life support.
I had an appointment with my rheumatologist the first week in January. 2 days before the appointment my best friend of 40 years was in a serious car accident and put in
intensive
care
on life support.
Mstiles
in
PMRGCAuk
4 years ago
Stopping Casodex before stopping Lupron
I am on day 30/34 of IMRT Salvage Radiation. I started Bicalutimide just prior to starting Leuprolide Acetate back in November. I have tolerated the ADT treatment fairly well with minimal side effects. A Decipher test was performed midway through this per my request and my Decipher score came back
I am on day 30/34 of IMRT Salvage Radiation. I started Bicalutimide just prior to starting Leuprolide Acetate back in November. I have tolerated the ADT treatment fairly well with minimal side effects. A Decipher test was performed midway through this per my request and my Decipher score came back
SooHwa99
in
Advanced Prostate Cancer
4 years ago
Saddest of News
It is with immense sorrow, I tell you that, My darling husband, Tony, passed away on Monday 30th December. He died at home , as we both wished. with support from wonderful Palliative care nurses. The only consolation is that he is now free from this dreadful disease and at peace. The last few months
It is with immense sorrow, I tell you that, My darling husband, Tony, passed away on Monday 30th December. He died at home , as we both wished. with support from wonderful Palliative care nurses. The only consolation is that he is now free from this dreadful disease and at peace. The last few months
Elletheelephant
in
Multiple System Atrophy Trust
5 years ago
1st Anniversary
Well it's 18.40 on 28/12/2019, and 1 year ago at this time I was in an
Intensive
care
room in Liverpool Heart and Chest Hospital, in an induced coma and blissfully unaware that I'd had heart attack/cardiac arrest earlier!
Well it's 18.40 on 28/12/2019, and 1 year ago at this time I was in an
Intensive
care
room in Liverpool Heart and Chest Hospital, in an induced coma and blissfully unaware that I'd had heart attack/cardiac arrest earlier!
SpiritoftheFloyd
in
British Heart Foundation
5 years ago
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