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Need help/suggestions
Does anyone have any suggestions on where I could receive more
intensive
care
? I don’t want to just be admitted to a psych ward and have more drugs given to me. But I feel like I need more personalized and individualized care. I need something. I don’t know what to do anymore.
Does anyone have any suggestions on where I could receive more
intensive
care
? I don’t want to just be admitted to a psych ward and have more drugs given to me. But I feel like I need more personalized and individualized care. I need something. I don’t know what to do anymore.
acoates
in
Anxiety and Depression Support
5 years ago
Disagree with consultant's discharge for dad.
Hi all, I'm new here so apologies if this post gets too long. Here goes, my dad has psp and his swallowing difficulties have started. Was admitted to hospital a month ago and got IV antibiotics for a chest infection. Remained weak and confused and we were told he was suffering from delerium due to the
Hi all, I'm new here so apologies if this post gets too long. Here goes, my dad has psp and his swallowing difficulties have started. Was admitted to hospital a month ago and got IV antibiotics for a chest infection. Remained weak and confused and we were told he was suffering from delerium due to the
NCISfan
in
PSP Association
5 years ago
Consolidating and chipping away the miles
Haven’t posted in a bit: I am chipping away at my target mileage for the month (aiming for 20+ to achieve 250 over the year: modest for many but an achievable challenge for me), running usually twice a week, 4 or 5k each run. Managed three runs this week: a gentle 3.5k shuffle this afternoon to take
Haven’t posted in a bit: I am chipping away at my target mileage for the month (aiming for 20+ to achieve 250 over the year: modest for many but an achievable challenge for me), running usually twice a week, 4 or 5k each run. Managed three runs this week: a gentle 3.5k shuffle this afternoon to take
molly1973
Graduate
in
Couch to 5K
5 years ago
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Taking a long time to get over it. And work issue
I was put in HDU under the
care
of
intensive
care
because there were no bed up in ITU... I was on so many meds anyway a week later I was aloud home... i was signed from the 27th nov untill the 22dec... which then I had two weeks holiday as I work in a scho....
I was put in HDU under the
care
of
intensive
care
because there were no bed up in ITU... I was on so many meds anyway a week later I was aloud home... i was signed from the 27th nov untill the 22dec... which then I had two weeks holiday as I work in a scho....
Krissy43
in
Asthma Community Forum
5 years ago
ADT Holiday to Locate and Zap Metastases?
My RO has suggested I might wish to consider an ADT holiday and then, when PSA reaches a sufficient level (1.7?), doing an axumin scan. If there are no bone or non-lymph visceral mets, then radiate the pelvic lymph nodes. This was in response to my question about maybe just radiating them now. I will
My RO has suggested I might wish to consider an ADT holiday and then, when PSA reaches a sufficient level (1.7?), doing an axumin scan. If there are no bone or non-lymph visceral mets, then radiate the pelvic lymph nodes. This was in response to my question about maybe just radiating them now. I will
cigafred
in
Advanced Prostate Cancer
5 years ago
More proof that results of SBRT are equivalent to IMRT (yet faster and cheaper)
I am pleased that SBRT was my choice of primary therapy 8 years ago. The randomized comparisons are showing that it is at least as beneficial as IMRT, but it takes only 4 or 5 treatments and costs a lot less too. Here are the results of two more randomized clinical trials so far: https://pcnrv.blogspot.com
I am pleased that SBRT was my choice of primary therapy 8 years ago. The randomized comparisons are showing that it is at least as beneficial as IMRT, but it takes only 4 or 5 treatments and costs a lot less too. Here are the results of two more randomized clinical trials so far: https://pcnrv.blogspot.com
Tall_Allen
in
Prostate Cancer Network
5 years ago
Has anyone experienced an under active thyroid while on Lupron? If so, how was it treated?
My husband, diagnosed 12/2017, RP 12/2017 (pelvic region was full of cancer - prostate, seminal vesicles, and many nerves removed. Cancer found in several lymph nodes and neck of bladder), PSA at diagnosis 12, Gleason 9, IMRT fall 2018, has been on Lupron since January 2018 with an undetectable PSA
My husband, diagnosed 12/2017, RP 12/2017 (pelvic region was full of cancer - prostate, seminal vesicles, and many nerves removed. Cancer found in several lymph nodes and neck of bladder), PSA at diagnosis 12, Gleason 9, IMRT fall 2018, has been on Lupron since January 2018 with an undetectable PSA
APL1881
in
Advanced Prostate Cancer
5 years ago
Thermal vapour ablation
Hi guys ,hope you're all good and keeping warm !!! This cold ,damp weather is causing me big problems with my breathing !!! I saw my specialist on Tuesday and he has put me on the list to have this thermal vapour ablation basically a steam clean of the lungs ,he said it's new in the UK and he is just
Hi guys ,hope you're all good and keeping warm !!! This cold ,damp weather is causing me big problems with my breathing !!! I saw my specialist on Tuesday and he has put me on the list to have this thermal vapour ablation basically a steam clean of the lungs ,he said it's new in the UK and he is just
Hidden
in
Lung Conditions Community Forum
5 years ago
Help with sweats night and day Lorraine
Hi Ladies could you help with advice on sweats they are so bad I need to change my cloth, I'm trying to see the palliative care DR but it is had in our area as we only have 3 for the whole area. I will try my GP it only getting hard to leave the house so, i've turn to you my friends.Take care Lorraine
Hi Ladies could you help with advice on sweats they are so bad I need to change my cloth, I'm trying to see the palliative care DR but it is had in our area as we only have 3 for the whole area. I will try my GP it only getting hard to leave the house so, i've turn to you my friends.Take care Lorraine
lorraine71-Australia
in
My Ovacome
5 years ago
Tip for pain during salvage IMRT
After a month of radiation I was getting extreme pain during defecation, particularly bad was uncontrollable spasms in my butt during defecation and even during urination. No one told me about changing diet till now. Anyway, problem fixed, almost instantly, by taking Imodium (with simethicone) which
After a month of radiation I was getting extreme pain during defecation, particularly bad was uncontrollable spasms in my butt during defecation and even during urination. No one told me about changing diet till now. Anyway, problem fixed, almost instantly, by taking Imodium (with simethicone) which
Hidden
in
Advanced Prostate Cancer
5 years ago
I'm new here, but been reading for a while! Really need help from all the knowledgeable people here!
My husband was dx with aggressive PC July 2014 at age 57 by 12 core prostate biopsies - 6 on left negative, 6 on right side all with high Gleason scores 3+4, 4+3, 4+3, 4+4, 4+5, 4+4. PSA was only 3.2 but had risen from 2.5 in only 3.5 months so PC was suspected. Due to high GS decided on RP using Robotic
My husband was dx with aggressive PC July 2014 at age 57 by 12 core prostate biopsies - 6 on left negative, 6 on right side all with high Gleason scores 3+4, 4+3, 4+3, 4+4, 4+5, 4+4. PSA was only 3.2 but had risen from 2.5 in only 3.5 months so PC was suspected. Due to high GS decided on RP using Robotic
sjc2
in
Advanced Prostate Cancer
5 years ago
PSMA Scan and HU Altered my Treatment Plan
Thanks to an NIH Clinical Trial and sage advice rendered and received on this forum my treatment plan has changed. I have gone from waiting for my PSA doubling time to reach a critical level to moving forward with aggressive treatment in hopes of beating or beating back my PCa. My background is: RP
Thanks to an NIH Clinical Trial and sage advice rendered and received on this forum my treatment plan has changed. I have gone from waiting for my PSA doubling time to reach a critical level to moving forward with aggressive treatment in hopes of beating or beating back my PCa. My background is: RP
Moespy
in
Advanced Prostate Cancer
5 years ago
sinusitus issues..
I also meant to add to my post that 4 years ago my step daughter died of sepsis aged 44, i was in close contact before she was admitted to hospital and then for 3 weeks in
intensive
care
before she lost the fight. cheers Dawn
I also meant to add to my post that 4 years ago my step daughter died of sepsis aged 44, i was in close contact before she was admitted to hospital and then for 3 weeks in
intensive
care
before she lost the fight. cheers Dawn
dees2201
in
LUPUS UK
5 years ago
Just introducing myself
Hi everyone, just saying a warm hello to the community. I'm in the Stage 4C incurable platinum refractory club - a really rubbish subdivision of a club that in any event no-one wants to be member of! I was diagnosed with my 3rd hit of OC in December 2017 following emergency hospitalisation due to a collpased
Hi everyone, just saying a warm hello to the community. I'm in the Stage 4C incurable platinum refractory club - a really rubbish subdivision of a club that in any event no-one wants to be member of! I was diagnosed with my 3rd hit of OC in December 2017 following emergency hospitalisation due to a collpased
Middz
in
My Ovacome
5 years ago
Just saying hello
Hi everyone, just saying a warm hello to the community. I'm in the Stage 4C incurable platinum refractory club - a really rubbish subdivision of a club that in any event no-one wants to be member of! I was diagnosed with my 3rd hit of OC in December 2017 following emergency hospitalisation due to a collpased
Hi everyone, just saying a warm hello to the community. I'm in the Stage 4C incurable platinum refractory club - a really rubbish subdivision of a club that in any event no-one wants to be member of! I was diagnosed with my 3rd hit of OC in December 2017 following emergency hospitalisation due to a collpased
Middz
in
SHARE Ovarian Cancer Support
5 years ago
PSA and testosterone post radiation
Completed 25 IMRT (45 Gy) and brachtherapy "boost" (110Gy, 39 seeds) with ongoing Firmagon/Eligard (5 mos thus far. Btw, hate the hormones.) Most recent PSA 0.1 and testosterone <3. Methinks both numbers are unreliable given continued hormone therapy but who knows? Anyone out there with similar experience
Completed 25 IMRT (45 Gy) and brachtherapy "boost" (110Gy, 39 seeds) with ongoing Firmagon/Eligard (5 mos thus far. Btw, hate the hormones.) Most recent PSA 0.1 and testosterone <3. Methinks both numbers are unreliable given continued hormone therapy but who knows? Anyone out there with similar experience
EdinBmore
in
Prostate Cancer And Gay Men
5 years ago
Initial Diagnosis PCa Stage 4 Mets to Bone (Pelvis)
Age 68 at diagnosis July 2018, prostate biopsy showed 12 segments positive, Gleason=8, subsequent biopsy of pelvis bone positive. Stage 4 metastatic at original diagnosis probably attributed to no PSA test for several years. On degarelix 3 months then switched to Lupron 1 week ago and will continue
Age 68 at diagnosis July 2018, prostate biopsy showed 12 segments positive, Gleason=8, subsequent biopsy of pelvis bone positive. Stage 4 metastatic at original diagnosis probably attributed to no PSA test for several years. On degarelix 3 months then switched to Lupron 1 week ago and will continue
6357axbz
in
Prostate Cancer Network
5 years ago
Decompensated Liver/End stage Liver Disease
Hello. My husband detoxed in Nov this year paid privately as I could see that his health was fast deteriorating. He was drinking the large litre bottles of whisky and rum everyday and got to the point where he was vomiting, blood in urine, jaundice. On the day of discharge from the detox centre they
Hello. My husband detoxed in Nov this year paid privately as I could see that his health was fast deteriorating. He was drinking the large litre bottles of whisky and rum everyday and got to the point where he was vomiting, blood in urine, jaundice. On the day of discharge from the detox centre they
Diesel101
in
British Liver Trust
5 years ago
2019
2019...... I know it’s gonna be a tough year for lots of ladies here, I know it’s highly unlikely my special person’s chemo will work Dr Eye Candy said they’ll offer chemo for as long as possible (didn’t sound too enthusiastic).... I know this was probably my special person’s last Christmas and she spent
2019...... I know it’s gonna be a tough year for lots of ladies here, I know it’s highly unlikely my special person’s chemo will work Dr Eye Candy said they’ll offer chemo for as long as possible (didn’t sound too enthusiastic).... I know this was probably my special person’s last Christmas and she spent
CallmeMum
in
My Ovacome
5 years ago
Radio Interview
With the end of 2018 fast approaching it's time to reflect on my 5 years as an ICUsteps trustee and to thank all my fellow trustees for the amazing work they've done throughout the year from research to attending and speaking at conferences, sending out our two booklet guides "The
Intensive
Care
Guide
With the end of 2018 fast approaching it's time to reflect on my 5 years as an ICUsteps trustee and to thank all my fellow trustees for the amazing work they've done throughout the year from research to attending and speaking at conferences, sending out our two booklet guides "The
Intensive
Care
Guide
Luckyone
in
ICUsteps
5 years ago
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