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Intensive Care Society Patients and Relatives Research seeking volunteers
You will be helping patients and families in the
intensive
care
unit in the future. Who Where When How People with experience of any
care
on the
intensive
care
unit, in the United Kingdom, as a patient or relative.
You will be helping patients and families in the
intensive
care
unit in the future. Who Where When How People with experience of any
care
on the
intensive
care
unit, in the United Kingdom, as a patient or relative.
Copse77
in
ICUsteps
3 months ago
can’t get this out of my head
I ended up in
intensive
care
, I suffered sepsis, pneumonia, multi organ failure and was put in an induced coma. My Glasgow coma scale score was 3, my family were told I was unlikely to survive. I did survive and the
intensive
care
staff told me its a miracle I did.
I ended up in
intensive
care
, I suffered sepsis, pneumonia, multi organ failure and was put in an induced coma. My Glasgow coma scale score was 3, my family were told I was unlikely to survive. I did survive and the
intensive
care
staff told me its a miracle I did.
Hidden
in
ICUsteps
17 days ago
Heart Bypass
I’ve had my anaesthetic pre op and he said that due to my size my recovery will be harder and I need to get my lungs as healthy as possible and I will probably be in
Intensive
care
for around 5/6 days.I’m very scared but I have to have the op hoping for any advice please it will be much appreciated thank
I’ve had my anaesthetic pre op and he said that due to my size my recovery will be harder and I need to get my lungs as healthy as possible and I will probably be in
Intensive
care
for around 5/6 days.I’m very scared but I have to have the op hoping for any advice please it will be much appreciated thank
Shanty123
in
British Heart Foundation
24 days ago
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hello, my partner has been in
intensive
care
coming up to 5 months now. I feel incredibly lonely, and would love to speak to someone going through a similar thing and maybe be able to support each other.
hello, my partner has been in
intensive
care
coming up to 5 months now. I feel incredibly lonely, and would love to speak to someone going through a similar thing and maybe be able to support each other.
Xoxoxok
in
ICUsteps
4 months ago
ICU and teeth/dental hygiene gums
Hello, this might seem a strange one, given all the other major after-effects of
intensive
care
, but I got a bit of a shock yesterday to be told I have gum disease.
Hello, this might seem a strange one, given all the other major after-effects of
intensive
care
, but I got a bit of a shock yesterday to be told I have gum disease.
Gooddaysunshine
in
ICUsteps
7 months ago
Dearest friends
I have been in
Intensive
Care
Unit for 4 weeks with pneumonia in both lungs and also a virus. I am much improved and although very weak, I am hoping to be home in the next couple of days. It's going to be a slow recovery but I will be back with you in the next week or two.
I have been in
Intensive
Care
Unit for 4 weeks with pneumonia in both lungs and also a virus. I am much improved and although very weak, I am hoping to be home in the next couple of days. It's going to be a slow recovery but I will be back with you in the next week or two.
chloe40
Administrator
in
Bereavement Care & Share
6 months ago
ICU intensive care/Covid and Osteoporosis
Hello, this is a bit of a left field one, and it has come as a complete shock, but on top of all my other post-covid pneumonitis debilitations I have now been diagnosed with osteoporosis. It seems some of the bones in my spine are not what they should be and are pinching nerves, and this is contributing
Hello, this is a bit of a left field one, and it has come as a complete shock, but on top of all my other post-covid pneumonitis debilitations I have now been diagnosed with osteoporosis. It seems some of the bones in my spine are not what they should be and are pinching nerves, and this is contributing
Gooddaysunshine
in
ICUsteps
10 months ago
My 84 year old mom who has MBC (metastasized to lungs and liver) has Tested Positive for Covid
Her oncologist wants us to consult an
intensive
care
physician. All inputs are appreciated🙏🏼
Her oncologist wants us to consult an
intensive
care
physician. All inputs are appreciated🙏🏼
ANKN25
in
SHARE Metastatic Breast Cancer
8 months ago
sensitive rainbow 🌈 baby 🥰
6ibs 5oz… both of us ended up in
intensive
care
so it has been bitter sweet time for us but I’d do it all again in a heartbeat just to have him in my arms❤️ So this is little Noah Shaun evans His middle name is after my dad who was tragically taken away from us 2 years ago ❤️
6ibs 5oz… both of us ended up in
intensive
care
so it has been bitter sweet time for us but I’d do it all again in a heartbeat just to have him in my arms❤️ So this is little Noah Shaun evans His middle name is after my dad who was tragically taken away from us 2 years ago ❤️
Hells18
in
Fertility Network UK
8 months ago
Help needed
I’ve just come out of
intensive
care
as I had fluid around the heart and pneumonia but I’m feeling exhausted has anybody ever have this how long does it take to get your strength back thank you very much
I’ve just come out of
intensive
care
as I had fluid around the heart and pneumonia but I’m feeling exhausted has anybody ever have this how long does it take to get your strength back thank you very much
Laceygreen
in
NRAS
10 months ago
Mastocytosis?
I ended up in
Intensive
care
and I have never fully recovered. I then started having terrible attacks involving my gallbladder and was hospitalised many time. There where no stones.
I ended up in
Intensive
care
and I have never fully recovered. I then started having terrible attacks involving my gallbladder and was hospitalised many time. There where no stones.
Redfleur
in
The UK Mastocytosis Support Group
14 days ago
is it usual to have pain 10 weeks after anigram in arm
Just been diagnosed with afib which I didn’t have when I had the anigram which they did when I was in
intensive
care
for 5 days what they thought was a Takitsubos. they are still not sure If it was or not but since the anagram the pain in my wrist is also up my arm and my hand feels funny too.
Just been diagnosed with afib which I didn’t have when I had the anigram which they did when I was in
intensive
care
for 5 days what they thought was a Takitsubos. they are still not sure If it was or not but since the anagram the pain in my wrist is also up my arm and my hand feels funny too.
Timetraveler67
in
AF Association
6 months ago
Husband in intensive care
He was transferred through with
intensive
care
team to a city hospital as there was nothing more they could do. He had then also started bleeding in his stomach.
He was transferred through with
intensive
care
team to a city hospital as there was nothing more they could do. He had then also started bleeding in his stomach.
Leia01
in
British Liver Trust
1 year ago
Worried wife triple bypass update 2
Last night roger had 45 minutes of arterial fibulation he is receiving medicine for it intravenously which will ladt for 24 hours hoping to see him today he will proberbly have to stay in cardiac
intensive
care
again ( sorry about spelling/ typing bit of a technphob !
Last night roger had 45 minutes of arterial fibulation he is receiving medicine for it intravenously which will ladt for 24 hours hoping to see him today he will proberbly have to stay in cardiac
intensive
care
again ( sorry about spelling/ typing bit of a technphob !
RevRog
in
British Heart Foundation
11 months ago
Final stages of CBD
Hi all My dad is in the final stages of CBD and in fact the Palliative Care Consultant seems to think we have less than 3 months left with him. I am really really struggling with this and can't bear the thought of not having my dad but this illness is the cruellest illness I have ever encountered.
Hi all My dad is in the final stages of CBD and in fact the Palliative Care Consultant seems to think we have less than 3 months left with him. I am really really struggling with this and can't bear the thought of not having my dad but this illness is the cruellest illness I have ever encountered.
Stormtrooper4
in
PSP Association
3 days ago
Failed tumour surgery, what are my options now?
Hello all, I wondered if there is anyone in our community who has/is having a similar experience to mine and has any ideas or guidance on next steps. To summarise, I was diagnosed with a stage 2/3 poorly differentiated Mullerian tumour arising in endometriosis with concurrent Stage 1A LGSOC in the
Hello all, I wondered if there is anyone in our community who has/is having a similar experience to mine and has any ideas or guidance on next steps. To summarise, I was diagnosed with a stage 2/3 poorly differentiated Mullerian tumour arising in endometriosis with concurrent Stage 1A LGSOC in the
Peony13
in
My Ovacome
25 days ago
5 Year old with asthma
He was life-watched by helicopter to a bigger city with a pediatric
intensive
care
unit. He was then diagnosed with moderate asthma. They noticed his adenoids were enlarged. He had them removed. We have never experienced asthma in our family so this is all new to us.
He was life-watched by helicopter to a bigger city with a pediatric
intensive
care
unit. He was then diagnosed with moderate asthma. They noticed his adenoids were enlarged. He had them removed. We have never experienced asthma in our family so this is all new to us.
Timt17
in
Asthma Community Forum
3 months ago
Well, so much for feeling normal....
Some of you may have read my long story on the Enhertu infusion. I have it in my lungs, spine and then it spread to my liver and the next treatment (Xeloda, I think) and after three months still progression. If you have the time, grab a cup of coffee and read. OR, if you are having trouble sleeping
Some of you may have read my long story on the Enhertu infusion. I have it in my lungs, spine and then it spread to my liver and the next treatment (Xeloda, I think) and after three months still progression. If you have the time, grab a cup of coffee and read. OR, if you are having trouble sleeping
kearnan
in
SHARE Metastatic Breast Cancer
1 month ago
Change from Ropinerole to Rigotine patches
I saw a new Neurologist at my local hospital last week as my RLS has been made worse by the chemo I am on. I am stage 4 and Palliative care for Sarcoma with mets in liver, chest wall and spine. I told him I can’t wean off Ropinerole so he suggested changing to Rigotine patches which, as I also have IBS
I saw a new Neurologist at my local hospital last week as my RLS has been made worse by the chemo I am on. I am stage 4 and Palliative care for Sarcoma with mets in liver, chest wall and spine. I told him I can’t wean off Ropinerole so he suggested changing to Rigotine patches which, as I also have IBS
Ruffabug
in
Restless Legs Syndrome
1 month ago
with the news about former president Jimmy Carter, maybe a video about palliative care would be appropriate
Palliative care and panel discusssion about active surveillance for prostate cancer https://youtu.be/DmFYLTPYwt0
Palliative care and panel discusssion about active surveillance for prostate cancer https://youtu.be/DmFYLTPYwt0
Bethishere
Administrator
in
Advanced Prostate Cancer
1 month ago
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