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concurrent salvage ADT with IRMT
Hello, 1st time caller, History: RALP - 1/2020, Gleason 7 (4+3), pre treatment psa of 11, psa started climbing 5/2023 to 1.651, was at 2.5 prior to psma/pet/ct on 6/21/2023. Impression: Equivocal small faint focal uptake in prostatetectomy bed and non enlarged left external iliac nodes. Doc at AHN
Hello, 1st time caller, History: RALP - 1/2020, Gleason 7 (4+3), pre treatment psa of 11, psa started climbing 5/2023 to 1.651, was at 2.5 prior to psma/pet/ct on 6/21/2023. Impression: Equivocal small faint focal uptake in prostatetectomy bed and non enlarged left external iliac nodes. Doc at AHN
live2play
in
Advanced Prostate Cancer
10 months ago
Mastocytosis?
I ended up in
Intensive
care
and I have never fully recovered. I then started having terrible attacks involving my gallbladder and was hospitalised many time. There where no stones.
I ended up in
Intensive
care
and I have never fully recovered. I then started having terrible attacks involving my gallbladder and was hospitalised many time. There where no stones.
Redfleur
in
The UK Mastocytosis Support Group
1 year ago
Air fryer?
I've been eating LCHF for 4 years, and have experienced many health benefits from it. But while eating high fat, I have never turned to deep fried foods. That's mostly because I am not prepared to deep fry in my home, and outside the oil is mostly seed oils, that is highly recycled. Thus I have been
I've been eating LCHF for 4 years, and have experienced many health benefits from it. But while eating high fat, I have never turned to deep fried foods. That's mostly because I am not prepared to deep fry in my home, and outside the oil is mostly seed oils, that is highly recycled. Thus I have been
atrax_robustus
in
Low-Carb High-Fat (LCHF)
8 months ago
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New Study - Men on adt for 6 months- 75% recover Testosterone BUT median time is 18 MONTHS!!!????-Orgovyxx may be different? Yes I Hope??
New Meta Analysis From Marcap Consortium says :
Men on adt for 6 months -75% recover Testosterone BUT the median recovery time is 18 months !!!
AND THE OTHER 25% -NEVER!??
I TOOK ORGOVYXX FOR 4 MONTHS ???? THEY SAY IT MAY BE DIFFERENT FOR ORGOVYXX??
P.S. Any studies
New Meta Analysis From Marcap Consortium says :
Men on adt for 6 months -75% recover Testosterone BUT the median recovery time is 18 months !!!
AND THE OTHER 25% -NEVER!??
I TOOK ORGOVYXX FOR 4 MONTHS ???? THEY SAY IT MAY BE DIFFERENT FOR ORGOVYXX??
P.S. Any studies
JWS13
in
Advanced Prostate Cancer
10 months ago
SIB/Flame Protocol
The RO recommends Simultaneous Integrated Boost (SIB) as part of my treatment. PSA was 19.76 (4/2023), then 21.78 (5/2023 to confirm initial PSA). He is concerned that the PSA does not match the Gleason score (4+3, grade 3) as PSA has surpassed 20. Multiplanar MRI and PSMA PET indicated no metastasis
The RO recommends Simultaneous Integrated Boost (SIB) as part of my treatment. PSA was 19.76 (4/2023), then 21.78 (5/2023 to confirm initial PSA). He is concerned that the PSA does not match the Gleason score (4+3, grade 3) as PSA has surpassed 20. Multiplanar MRI and PSMA PET indicated no metastasis
805guy
in
Prostate Cancer Network
10 months ago
Gleason 10 Stage 4 Metastatic Responding Well to Treatment
At this time I feel well with minimal side effects. Feel free to ask questions. Here's a time line of my experience this summer: Investigative Procedures: 22-Mar - PSA test: 26.5 ng/mL 18-Apr - Repeat PSA test: 25.0 ng/mL 1-May - MRI scan of pelvic region for biopsy planning 19-Mar - Transperineal
At this time I feel well with minimal side effects. Feel free to ask questions. Here's a time line of my experience this summer: Investigative Procedures: 22-Mar - PSA test: 26.5 ng/mL 18-Apr - Repeat PSA test: 25.0 ng/mL 1-May - MRI scan of pelvic region for biopsy planning 19-Mar - Transperineal
Brad70
in
Advanced Prostate Cancer
10 months ago
Final stages of CBD
Hi all My dad is in the final stages of CBD and in fact the Palliative Care Consultant seems to think we have less than 3 months left with him. I am really really struggling with this and can't bear the thought of not having my dad but this illness is the cruellest illness I have ever encountered.
Hi all My dad is in the final stages of CBD and in fact the Palliative Care Consultant seems to think we have less than 3 months left with him. I am really really struggling with this and can't bear the thought of not having my dad but this illness is the cruellest illness I have ever encountered.
Stormtrooper4
in
PSP Association
1 year ago
HIP XRAYS- Will they effect my recovery or effect my Prostate Cancer-I am now 7 months post IMRT Treatment and healing fine.
Docs want me to take hip xrays ... I am healing well 7 months post IMRT 20 TX now . no major Urinary and rectal issues. Worried that hip xrays may effect my recovery. I know it's not much radiation but I am doing so well...dont want to "POKE THE BEAR"... Thanks JWS All thoughts welcome!!! 62 20
Docs want me to take hip xrays ... I am healing well 7 months post IMRT 20 TX now . no major Urinary and rectal issues. Worried that hip xrays may effect my recovery. I know it's not much radiation but I am doing so well...dont want to "POKE THE BEAR"... Thanks JWS All thoughts welcome!!! 62 20
JWS13
in
Prostate Cancer Network
11 months ago
Depression, anxiety higher in lupus patients at risk of heart disease
“The findings of this study suggest the need for more
intensive
and global
care
, particularly regarding mental health, when considering SLE patients with a high cardiovascular risk profile,” its researchers wrote.
“The findings of this study suggest the need for more
intensive
and global
care
, particularly regarding mental health, when considering SLE patients with a high cardiovascular risk profile,” its researchers wrote.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
9 months ago
1st post-IMRT PSA = 2.1
I completed IMRT on 5/22/23. My last recorded PSA from 1/23 was 4.31. My 1st PSA draw on 8/22/23 came back 2.12. I've read and have been told that PSA doesn't go down immediately with radiation, unlike surgery, and can take up to 2 years to hit its nadir. The RO NP was happy and pretty much said that
I completed IMRT on 5/22/23. My last recorded PSA from 1/23 was 4.31. My 1st PSA draw on 8/22/23 came back 2.12. I've read and have been told that PSA doesn't go down immediately with radiation, unlike surgery, and can take up to 2 years to hit its nadir. The RO NP was happy and pretty much said that
EJC61
in
Prostate Cancer Network
11 months ago
Radiation
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
sillyoyster
in
Advanced Prostate Cancer
11 months ago
Post op update.
The observation bit was normal the 12 sticky pad were not so much, yet another eeg, then the anesthesiologist drH and his young apprentice came to see me, with quite a lot of information about my bypass drugs and
intensive
care
treatment, I may be on the cancer track but my quad cabg is being considered
The observation bit was normal the 12 sticky pad were not so much, yet another eeg, then the anesthesiologist drH and his young apprentice came to see me, with quite a lot of information about my bypass drugs and
intensive
care
treatment, I may be on the cancer track but my quad cabg is being considered
Rogo23
in
British Heart Foundation
1 year ago
What would be next?
From my hx, Gleason 9 RP. PSA went to 0.2 8 months later. PSMA 4 hot spots. IMRT, Lupron and Zytiga. Doing great thus far. MO said if recurrence, Provenge next. Agree? No scan till PSA rise. Agree?thank you
From my hx, Gleason 9 RP. PSA went to 0.2 8 months later. PSMA 4 hot spots. IMRT, Lupron and Zytiga. Doing great thus far. MO said if recurrence, Provenge next. Agree? No scan till PSA rise. Agree?thank you
rfgh20
in
Advanced Prostate Cancer
11 months ago
New bone met
I have a consult with radiation oncologist on Wednesday and wanted to ask if any of you have had very targeted radiation therapy to one small new spot on bone when your systemic treatment (Ibrance and Letrozole) is still working on other mets. I saw there is SBRT and IMRT. Are these appropriate options
I have a consult with radiation oncologist on Wednesday and wanted to ask if any of you have had very targeted radiation therapy to one small new spot on bone when your systemic treatment (Ibrance and Letrozole) is still working on other mets. I saw there is SBRT and IMRT. Are these appropriate options
Trissh
in
SHARE Metastatic Breast Cancer
11 months ago
Imaging Guidelines - Salvage IMRT Planning
I'm planning to start my post-op salvage treatment after my PSA breached 0.1 few weeks ago. I'm OK with the extent of the treatment proposed, which is 5 weeks of IMRT (VMAT) to the prostatic fossa and pelvic LNs. However, I'm not confident with the accuracy of radiation delivery to the target area. Knowing
I'm planning to start my post-op salvage treatment after my PSA breached 0.1 few weeks ago. I'm OK with the extent of the treatment proposed, which is 5 weeks of IMRT (VMAT) to the prostatic fossa and pelvic LNs. However, I'm not confident with the accuracy of radiation delivery to the target area. Knowing
Rams91
in
Prostate Cancer Network
11 months ago
Update post follow up PSMA PET/CT
Just updated my profile to include recent events. In brief, in March 2023 I had a PSMA PET/CT which Dr. Kwon at Mayo clinic somehow got my insurance to pay for even though my PSA was undetectable. It defined a abdominal retro-aortic mass that was significantly avid. Underwent 4 weeks of standard
Just updated my profile to include recent events. In brief, in March 2023 I had a PSMA PET/CT which Dr. Kwon at Mayo clinic somehow got my insurance to pay for even though my PSA was undetectable. It defined a abdominal retro-aortic mass that was significantly avid. Underwent 4 weeks of standard
slpdvmmd
in
Advanced Prostate Cancer
11 months ago
anaesthetic
I was transferred to
intensive
care
. It was the most terrifying experience ever. Nobody seems to know why I reacted like this but not to have a GA again until they have found out what the hell happened Has anyone else had a reaction like this on Pregabalin .
I was transferred to
intensive
care
. It was the most terrifying experience ever. Nobody seems to know why I reacted like this but not to have a GA again until they have found out what the hell happened Has anyone else had a reaction like this on Pregabalin .
SilverEvie
in
Restless Legs Syndrome
1 year ago
3 Months post ADT (Orgovyx) Still having hot flashes and fatigue-doing blood test in two weeks..for hopefully nadir..
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
JWS13
in
Prostate Cancer Network
11 months ago
Anyone have a dramatic drop in WBC bordering on neutropenia from pelvic radiation (not chemo)?
Husband is 3/4 of the way through an escalated course of IMRT Prostate bed only radiation (plan was for 33 days but they gave larger doses per day and are trying to do it in 20 days). Today (Saturday) we ended up going to the ER because he was having some strange symptoms. Labs showed his WBC counts
Husband is 3/4 of the way through an escalated course of IMRT Prostate bed only radiation (plan was for 33 days but they gave larger doses per day and are trying to do it in 20 days). Today (Saturday) we ended up going to the ER because he was having some strange symptoms. Labs showed his WBC counts
StephH72
in
Advanced Prostate Cancer
11 months ago
Covid Vaccination Study
Eight were admitted to
intensive
care
, and two died from their symptoms. "The short time span between COVID-19 vaccine administration and the onset of R-IMIDs suggests the potential possibility of a cause-and-effect relationship," the authors wrote.
Eight were admitted to
intensive
care
, and two died from their symptoms. "The short time span between COVID-19 vaccine administration and the onset of R-IMIDs suggests the potential possibility of a cause-and-effect relationship," the authors wrote.
noslak
in
PMRGCAuk
9 months ago
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