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5 months after stopping the 4 mos of taking orgovyx still very symptomatic of low t (miserable)..told t may never recover (79),take trt? ?
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
JWS13
in
Advanced Prostate Cancer
9 months ago
rehab question
We’ve been told that he will now need to move onto a continuing
care
/slow stream rehab from
intensive
. I am concerned about this next stage as he is still making great progress where he is, but we are being told funding can’t continue for intensive rehab.
We’ve been told that he will now need to move onto a continuing
care
/slow stream rehab from
intensive
. I am concerned about this next stage as he is still making great progress where he is, but we are being told funding can’t continue for intensive rehab.
B17D
in
Headway
3 months ago
Update: PSA after IMRT
After my 40 treatments, I wanted to get off the bicalutamide I had been on for 2 months. My breasts had not only gotten enlarged but they had also become quite painful, and the Tamoxifen my RO had put me on did not help with this. He then ordered an early PSA test, and when it came back at just .12
After my 40 treatments, I wanted to get off the bicalutamide I had been on for 2 months. My breasts had not only gotten enlarged but they had also become quite painful, and the Tamoxifen my RO had put me on did not help with this. He then ordered an early PSA test, and when it came back at just .12
Smarks42
in
Prostate Cancer Network
9 months ago
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Hi All, my first post.
During December last year I fell seriously ill, taken to
intensive
critical
care
, with aggressive Pneumonia, Sepsis, even Covid for a while, a very scary time. Spent two months in the main hospital then another month in rehab where I learned how to walk again.
During December last year I fell seriously ill, taken to
intensive
critical
care
, with aggressive Pneumonia, Sepsis, even Covid for a while, a very scary time. Spent two months in the main hospital then another month in rehab where I learned how to walk again.
curryholic
in
Restless Legs Syndrome
8 months ago
Asking for advice
Since I first diagnosed with PC (T3bNx, GS 3+4)last February, 2023, I’ve been through RP, ADT and IMRT continuously. I had Firmagon shot twice before RP and switched ADT to Eligard. Then I started 25 sessions of IMRT. All the treatments was done within 3 and half months. Now I am exhausted. I am
Since I first diagnosed with PC (T3bNx, GS 3+4)last February, 2023, I’ve been through RP, ADT and IMRT continuously. I had Firmagon shot twice before RP and switched ADT to Eligard. Then I started 25 sessions of IMRT. All the treatments was done within 3 and half months. Now I am exhausted. I am
ventusbella
in
Advanced Prostate Cancer
9 months ago
My son’s Testosterone results:
Last week I posted my son’s three month PSA test and learned that it was the same as last time <0.10 and now I have the matching testosterone results of 7.0. How good or bad is that? I am unfamiliar with testosterone numbers after all the medicines he’s taken, and radiation. I don’t know what the previous
Last week I posted my son’s three month PSA test and learned that it was the same as last time <0.10 and now I have the matching testosterone results of 7.0. How good or bad is that? I am unfamiliar with testosterone numbers after all the medicines he’s taken, and radiation. I don’t know what the previous
Cactus297
in
Advanced Prostate Cancer
9 months ago
Does pee urgency get worse after radiation?
I had IMRT 60 Gy circa August 2022. Since then sometimes it is very hard to hold a pee back. I'm concerned it might be getting worse. This is probably going to get a lot of responses -- please bring them on!
I had IMRT 60 Gy circa August 2022. Since then sometimes it is very hard to hold a pee back. I'm concerned it might be getting worse. This is probably going to get a lot of responses -- please bring them on!
Derf4223
in
Advanced Prostate Cancer
9 months ago
Treatment - radiation vs. surgery
Hello, I posted previously after I was first diagnosed and had some great feedback. I wanted to try once more after being able to spend the past couple of months researching and trying to make the best treatment decision moving forward. For anyone similarly affected, it might help to reflect on what
Hello, I posted previously after I was first diagnosed and had some great feedback. I wanted to try once more after being able to spend the past couple of months researching and trying to make the best treatment decision moving forward. For anyone similarly affected, it might help to reflect on what
TonyTx
in
Prostate Cancer Network
9 months ago
abiraterone first line use in high risk in U.K. debate after stampede research results
Lots of current comments in U.K. press re the funding for using abiraterone for high risk first line HT. I was Dx with Gleason 9 - T2cN0M0 (10% 5 70% 4 20% 3 in one area plus couple of areas G7 8 months past failed HIFU for G7 (3+4 <10% 4 one site only) PSMA = locally contained No SV evidence. I
Lots of current comments in U.K. press re the funding for using abiraterone for high risk first line HT. I was Dx with Gleason 9 - T2cN0M0 (10% 5 70% 4 20% 3 in one area plus couple of areas G7 8 months past failed HIFU for G7 (3+4 <10% 4 one site only) PSMA = locally contained No SV evidence. I
SimMartin
in
Advanced Prostate Cancer
9 months ago
Palliative care
Hi all. Mum's GP has recently suggested involving the palliative care team for her heart failure. She was very upset and declined. It would be really useful to learn about other people's experiences of palliative care so we can understand the potential benefits.
Hi all. Mum's GP has recently suggested involving the palliative care team for her heart failure. She was very upset and declined. It would be really useful to learn about other people's experiences of palliative care so we can understand the potential benefits.
Joluu
in
British Heart Foundation
1 year ago
Am I too late?
I was discharged from the
intensive
care
unit after 6 days, with a planned follow up with the neurosurgeons 5 to 6 weeks later. My report says that they were happy with my progress after this follow up and didn’t plan any further follow ups.
I was discharged from the
intensive
care
unit after 6 days, with a planned follow up with the neurosurgeons 5 to 6 weeks later. My report says that they were happy with my progress after this follow up and didn’t plan any further follow ups.
Mike442
in
Headway
2 months ago
My son’s PSA rose a bit today.
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
Cactus297
in
Advanced Prostate Cancer
9 months ago
Unexpected Dive in PSA
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
805guy
in
Prostate Cancer And Gay Men
9 months ago
PSMA scans and radiation of oligometastases
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
Horse12888
in
Advanced Prostate Cancer
9 months ago
Unexpected Dive in PSA
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
Was diagnosed with Gleason 7 (4+3) in June. PSA was initially 19.76 in April, went up to 21.78 in May to confirm first high PSA, retested again in August at 19.39. Started taking Orgovyx on 9/11 and began IMRT (37 fractions, 70-78gy to prostate, SIB boost to 85-90gy) on 9/28. Had my PSA checked again
805guy
in
Prostate Cancer Under 60
9 months ago
SBRT alternative
So I've been trying to decide on what treatment I wanted to do and finally decided that I'd go with SBRT. Well unfortunately the MRIdian SBRT is going away at the end of the month. I reached out to Dr. Kishan to verify and this was the response "Unfortunately that is likely correct. We will be doing
So I've been trying to decide on what treatment I wanted to do and finally decided that I'd go with SBRT. Well unfortunately the MRIdian SBRT is going away at the end of the month. I reached out to Dr. Kishan to verify and this was the response "Unfortunately that is likely correct. We will be doing
MauiJef
in
Prostate Cancer Network
10 months ago
I am livid, confused , worried and scared as hell that my ORGOVYX -ADT symptoms are mine for life.
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
JWS13
in
Advanced Prostate Cancer
10 months ago
[b]HOW LONG TO GET YOUR TESTOSTERONE BACK TO NORMAL (4-500) AFTER 4 MOS Treatment WITH ORGOVYX. It is now 5 months post treatment with Orgovyx.[/b]
[i]
HOW LONG TO GET YOUR TESTOSTERONE BACK AFTER 4 MOS TX WITH ORGOVYX.
[/i] Finally 7 mos . Post 20 imrt TX, 5 months post 4 mos. tx with Orgovyx, got my final blood labs:
PSA .2 PSA free.1
,very happy with this!
Testosterone 79
-VERY UNHAPPY WITH THIS ( still symptomatic for
[i]
HOW LONG TO GET YOUR TESTOSTERONE BACK AFTER 4 MOS TX WITH ORGOVYX.
[/i] Finally 7 mos . Post 20 imrt TX, 5 months post 4 mos. tx with Orgovyx, got my final blood labs:
PSA .2 PSA free.1
,very happy with this!
Testosterone 79
-VERY UNHAPPY WITH THIS ( still symptomatic for
JWS13
in
Advanced Prostate Cancer
10 months ago
Food supplements I hope will help
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
Brad70
in
Advanced Prostate Cancer
10 months ago
Has anyone experienced this...
So partner needs transplant, had assessment app last week but got cancelled due to being an in patient in hospital with sepsis. Infection cleared but today doc said kidneys not doing so well today. He has bleeding from lips and nose due to low platelets but they have said they are not giving him platelets
So partner needs transplant, had assessment app last week but got cancelled due to being an in patient in hospital with sepsis. Infection cleared but today doc said kidneys not doing so well today. He has bleeding from lips and nose due to low platelets but they have said they are not giving him platelets
Fauncey
in
British Liver Trust
1 year ago
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