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Went to see a rheumatology
Hi I was referred to a rheumatology due to a marker been down on my last two blood test. Can anyone make any sense of this please? See is 28 eosinophil is 0.4 lymphocytes is 2.3, crp is 8.6, corrected calcium 2.26, and had normal lft's. She is AnA and rheumatoid factor negative and her complements were
Hi I was referred to a rheumatology due to a marker been down on my last two blood test. Can anyone make any sense of this please? See is 28 eosinophil is 0.4 lymphocytes is 2.3, crp is 8.6, corrected calcium 2.26, and had normal lft's. She is AnA and rheumatoid factor negative and her complements were
Haze1975
in
Thyroid UK
8 years ago
IVIG in the UK?
Hi folks I've had a chest infection for the last four weeks and I'm now on my fifth lot of anti biotics this year. I spent 7 days in bed recently and I was also feverish. Reading on here it seems that some of you folks have been put on IVIG when you have had similar experiences. ( note: I have already
Hi folks I've had a chest infection for the last four weeks and I'm now on my fifth lot of anti biotics this year. I spent 7 days in bed recently and I was also feverish. Reading on here it seems that some of you folks have been put on IVIG when you have had similar experiences. ( note: I have already
Jamie_james
in
CLL Support
8 years ago
Muscle wasting hands and feet, please help!
Dear fellow lupies(alike), Like you know I have since 2 years a diagnosis of UCTD (undifferentiated connective tissue disease). My rheumatologist prescribed Plaquenil 200mg per day. Some of my symptoms are reduced, but for over a year I have increasingly suffered from muscle weakness, muscle atrophy
Dear fellow lupies(alike), Like you know I have since 2 years a diagnosis of UCTD (undifferentiated connective tissue disease). My rheumatologist prescribed Plaquenil 200mg per day. Some of my symptoms are reduced, but for over a year I have increasingly suffered from muscle weakness, muscle atrophy
Patricia2015
in
LUPUS UK
8 years ago
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High anticardiolipin AB igm then negative
Hi. I'm grateful to be able to ask a question here and hope I can get some understanding. I had a positive anticardiolipin IGM test and then 6 months later it was negative. Not sure what that really means. Any help is appreciated. Thank you!
Hi. I'm grateful to be able to ask a question here and hope I can get some understanding. I had a positive anticardiolipin IGM test and then 6 months later it was negative. Not sure what that really means. Any help is appreciated. Thank you!
Kimberlygolden
in
Hughes Syndrome APS Forum
8 years ago
To be or not to be
I have been going to specialist after specialist for months. I haven't gotten any answers. However most recently my labs came back slightly abnormal. My IgG was 571 mg/dL(LOW) ref rang - 700 mg/dL-1600 mg/dL, my IgM was 78mg/dL which is low but still in the ref range, my IgA is 93 mg/dL which is also
I have been going to specialist after specialist for months. I haven't gotten any answers. However most recently my labs came back slightly abnormal. My IgG was 571 mg/dL(LOW) ref rang - 700 mg/dL-1600 mg/dL, my IgM was 78mg/dL which is low but still in the ref range, my IgA is 93 mg/dL which is also
madamp
in
CLL Support
8 years ago
IVIG
I am wondering if anyone here with SS has been treated with IVIG? If so, what sort of benefit did you derive from it.....such as, did you have an improvement in symptoms, reduction in your pain levels, slowed progression of the extraglandular manifestations? Were you seeing a Rheumatologist at a large
I am wondering if anyone here with SS has been treated with IVIG? If so, what sort of benefit did you derive from it.....such as, did you have an improvement in symptoms, reduction in your pain levels, slowed progression of the extraglandular manifestations? Were you seeing a Rheumatologist at a large
Megansheart
in
The Australian Sjögren's Syndrome Association
8 years ago
My New Hematologist's update for me.
I saw my new DR at the Yale NewHaven clinic in CT last week. She ran all the tests to confirm all my dx's. She ran some other tests also. I just received a message to make an appt to come back in, so will call tomorrow. These were her results: Beta2 Glycoprotein 1 IGM 46.9 cu Anticardiolipin IGM 43.7
I saw my new DR at the Yale NewHaven clinic in CT last week. She ran all the tests to confirm all my dx's. She ran some other tests also. I just received a message to make an appt to come back in, so will call tomorrow. These were her results: Beta2 Glycoprotein 1 IGM 46.9 cu Anticardiolipin IGM 43.7
dar58
in
Hughes Syndrome APS Forum
8 years ago
☠ ☣ Asbestos Fibres Being Engulfed by Antibodies Under Microscope.
Quite a story finding asbestos fibres being engulfed by antibodies macrophage 's LIKE where do I start .. Guess will start from asbestos fibbers I coughed up. Picture on left of screen is what I believe to be asbestos I coughed up as you can see this blob at top of fibber "looks like jelly" well that
Quite a story finding asbestos fibres being engulfed by antibodies macrophage 's LIKE where do I start .. Guess will start from asbestos fibbers I coughed up. Picture on left of screen is what I believe to be asbestos I coughed up as you can see this blob at top of fibber "looks like jelly" well that
Hidden
in
Lung Conditions Community Forum
8 years ago
Ivig
I just came to get support I'm very lost and anxious with all of this. My 4 month old was diagnosed with ITP his platelets were at 7,000 and now up to 214,000. He got ivig a week ago and now the petechiae is back and I'm scared his platelets are going down again.
I just came to get support I'm very lost and anxious with all of this. My 4 month old was diagnosed with ITP his platelets were at 7,000 and now up to 214,000. He got ivig a week ago and now the petechiae is back and I'm scared his platelets are going down again.
kjosborne
in
ITP Support Association
8 years ago
ataxia, as a way of life, ugh
Yesterday, I went to my neuro and it seems the IVIg has cleared up my weird antibody issue ( thought to bring on the ataxia), and I no longer get long-term hives (another symptom), but the ataxia remained and is advancing. My neuro thinks some antibodies are still around. They are going on that. Nevertheless
Yesterday, I went to my neuro and it seems the IVIg has cleared up my weird antibody issue ( thought to bring on the ataxia), and I no longer get long-term hives (another symptom), but the ataxia remained and is advancing. My neuro thinks some antibodies are still around. They are going on that. Nevertheless
neta
in
Ataxia UK
8 years ago
Tad Graphic : You Ever GET The Feeling A Pervious Occupation Is Coming Back To Haunt You
I had few breathing issues and tad of a rank cough TaLK about look after you lungs. If only my previous employers had told me about ASBESTOS and risk ... Eh anyway getting back to my rank cough ... Think mine was down to something rank from previous occupation LUKY me eh ... I managed to cough it up
I had few breathing issues and tad of a rank cough TaLK about look after you lungs. If only my previous employers had told me about ASBESTOS and risk ... Eh anyway getting back to my rank cough ... Think mine was down to something rank from previous occupation LUKY me eh ... I managed to cough it up
Hidden
in
Lung Conditions Community Forum
8 years ago
Giant cell hepatitis
Hi all I'm new to this page I'm looking for information on giant cell hepatitis if anyone has any I would be very great full, my son is two year old and has giant cell hepatitis and autoimmune haemolytic anaemia I no to have both them together its very rare, he went into full liver failure 11 months
Hi all I'm new to this page I'm looking for information on giant cell hepatitis if anyone has any I would be very great full, my son is two year old and has giant cell hepatitis and autoimmune haemolytic anaemia I no to have both them together its very rare, he went into full liver failure 11 months
Rueben13
in
Children's Liver Disease Foundation
8 years ago
FCR follow up is CT necessary?
Hi, we are coming up on two years since my husband finished a 6 month treatment with fcr. We had been told he had a "complete response with incomplete recovery of the bone marrow." His blood counts improve some then dwindle some; currently neutropenic again barely above 500. His onco has been insisting
Hi, we are coming up on two years since my husband finished a 6 month treatment with fcr. We had been told he had a "complete response with incomplete recovery of the bone marrow." His blood counts improve some then dwindle some; currently neutropenic again barely above 500. His onco has been insisting
dwolden
in
CLL Support
8 years ago
Is "watch and wait" approach to treatment a risky decision?
Greetings everyone! This is my first post, so I hope you will bear with me please. I’ve tried to be explicit but brief, but I apologize now for the length of this post! I’m seeking advice/reassurance about my recent diagnosis (4 months ago) of a cutaneous vasculitis. I’ll put my questions first and
Greetings everyone! This is my first post, so I hope you will bear with me please. I’ve tried to be explicit but brief, but I apologize now for the length of this post! I’m seeking advice/reassurance about my recent diagnosis (4 months ago) of a cutaneous vasculitis. I’ll put my questions first and
judya
in
Vasculitis UK
8 years ago
I've now been told ok to stop Fragmin at 12 weeks pregnant due to second test being negative.... Nervous
Brief background: I have one 5 year old boy and one 2 year old boy-no problems getting pregnant with them. Then had 1 miscarriage at 10 weeks (stopped developing by 6 though) and 2 chemical pregnancies, both which ended by 5 weeks. Tested high positive (64) for IgM cardiolipin antibodies. Got pregnant
Brief background: I have one 5 year old boy and one 2 year old boy-no problems getting pregnant with them. Then had 1 miscarriage at 10 weeks (stopped developing by 6 though) and 2 chemical pregnancies, both which ended by 5 weeks. Tested high positive (64) for IgM cardiolipin antibodies. Got pregnant
Pregnantk
in
Hughes Syndrome APS Forum
8 years ago
Ivig
Has anyone found that the r e treatment of Ivig as not been as affective after a short time of having the treatment . I had my 4th round and don't feel it worked as good as the other times .I also had a headache for around 3 weeks from the last day of treatment x
Has anyone found that the r e treatment of Ivig as not been as affective after a short time of having the treatment . I had my 4th round and don't feel it worked as good as the other times .I also had a headache for around 3 weeks from the last day of treatment x
Jane1869
in
Myasthenia Gravis Association
8 years ago
Myasthenia gravis
Hi is there anyone in here who has ivig for myasthenia gravis . I am trying to find out if the treatment has worked and for how long Ect . I had my 4th ivig given over 5 days and it did not seem to work as well as the other 3 times x
Hi is there anyone in here who has ivig for myasthenia gravis . I am trying to find out if the treatment has worked and for how long Ect . I had my 4th ivig given over 5 days and it did not seem to work as well as the other 3 times x
Jane1869
in
Vasculitis UK
8 years ago
Thyroid function test
Do you think it could have more to do with my autoimmune system, as my
immunoglobulin
A level was also below range, and my platelet count was below range, but the doctors never mentioned that to me?
Do you think it could have more to do with my autoimmune system, as my
immunoglobulin
A level was also below range, and my platelet count was below range, but the doctors never mentioned that to me?
ajb1969
in
Thyroid UK
8 years ago
Shingles prior to ITP Diagnosis
I would be interested in hearing how many of us have had a bout of shingles in the months/years prior to getting diagnosed with ITP. This follows two conversations I have recently had whilst being given IVIG in hospital with fellow IVIG recipients who also had ITP and had had a bout of shingles prior
I would be interested in hearing how many of us have had a bout of shingles in the months/years prior to getting diagnosed with ITP. This follows two conversations I have recently had whilst being given IVIG in hospital with fellow IVIG recipients who also had ITP and had had a bout of shingles prior
rjsmyth
in
ITP Support Association
8 years ago
IGM Cardiolipin Positive, low vitamin D and fluctuating calcium levels (low normal PTH)
Hi folks, I have just been found to be positive for IGM Cardiolipin, but not for the other cardiolipin antibody, and I'm due to be re-tested in few weeks' time. I have also been identified as being vitamin D deficient. My last blood test showed by calcium levels to be within range, so I am now due
Hi folks, I have just been found to be positive for IGM Cardiolipin, but not for the other cardiolipin antibody, and I'm due to be re-tested in few weeks' time. I have also been identified as being vitamin D deficient. My last blood test showed by calcium levels to be within range, so I am now due
Heytch
in
Hughes Syndrome APS Forum
8 years ago
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