I am wondering if anyone here with SS has been treated with IVIG? If so, what sort of benefit did you derive from it.....such as, did you have an improvement in symptoms, reduction in your pain levels, slowed progression of the extraglandular manifestations?
Were you seeing a Rheumatologist at a large public hospital? What were the deciders for you being eligible and who organised the treatment initially?
Sorry for all the questions!! 😏