Myasthenia Gravis Association | HealthUnlocked

Despite mounting evidence that I have progressively-worsening MG with Class III weakness, I still don't have a diagnosis, let alone a treatment. I can't do...

so today had tests and told its most certainly myasthenia. still I have lots of questions as ptosis followed by awful systemic problems and myasthenia is...

I know there's the Facebook page but is anyone here , not everyone ha Facebook and feel one shouldn't cancel the other HU has been invaluable a shame to see...

Hi I am to have a general anaesthesia and with no diagnosis of myasthenia but fitting symptoms for years and told by one doc they think it is and another no...

After many years, I still have no diagnosis. I have all the symptoms of PMR, but no detectable inflammation (which is the usual cause). I also have half the...

I recently found out I have 0.12nmol/L of anti-AChR antibodies, but am told that's too low to be of any consequence. I certainly don't have the tell-tale...

I have no diagnosis but symptoms suggestive of mg, ice opens eye and weakness comes and goes and have had flares of hoarseness but now more often when suffer...

hi has anyone had negative bloods but positive ice test for myasthenia

has anyone with myasthenia here had svcs (super venous cava syndrome thankyou or any doctors reading have any advice with this please

I am undiagnosed but fitting symptoms and specialists leading this way though would be seronegative if is. the newest symptom I have is sometimes half of my...

I am somewhat confused. I was diagnosed with Fibromyalgia a few years ago and as I was aware of Myasthenia Gravis due to my dad having the condition I asked to...

Hi. Almost two year ago i start having a small ptosis that later bring pain around the eye, eyebrow tgat transform in drooling face for few minute and lost of...

has anyone had many difficulties with nausea while on cellcept? I seem to be struggling a bit and think cellcept may be the culprit. Thanks

My husband and I, retired traveled lots prior to Covid. Now MG diagnosis of two years has me in panic. Neurologist says only travel near a Trauma center,...

Has anyone been diagnosed with Ocular Myasthenia Gravis which may have been a misdiagnosis? Husband diagnosed with seronegative OMG in 2008 age...

I have a couple, one being Fatigue, also my pain due to other illness has deteriorated badly that now im nearly housebound. Last one my diet, with having...

It makes me very tired and I cannot walk comfortably more than 50 yards., usually with a stick. I also sleep a great deal and my legs ache.

Is anyone able to explain the MG blood test to me please. Seen the neurologist today, who said my symptoms lead her to believe it’s MG and my blood test that...

Can anyone relate to this photo?? - I’m under investigation for many things atm autoimmune and autoinflammatory related issues. This has been happening from...

Hi all! I have been on the long journey to getting my symptoms diagnosed for years! I have muscle weakness in limbs, difficulty breathing often, muscle pain...

Hello everyone I have been told over the years that there was a good possibility of me having myasthenia due to ptosis of my eyelid, exotropia, exophoria,...

Can MG test ever be a false positive?

Hi everyone, I wonder if you could help me out. Could my symptoms be related to Myasthenia Gravis? I've been very sick for some time, which has got...

just watching the FAST Stroke advert on tv tonight and realised the stroke symtoms are incredibly similar to MG. Drooping face, eyelids, mouth, slurred speech,...

The connection between Simvastatin and PMR is established, and I would be grateful for any feedback on the statement below: The use of blood...

I am so grateful and blessed to still live ,life , to have a heartbeat , respiration without assistance ,brainwave activity ,swallowing ,talking , walking...

Diagnosing was just as problematic as Living with Myasthenia Gravis , just like the Dandelion. I pluck from my garden ,they disappear momentarily and reappear,...

Hi I have Anti-MuSK MG I’m on 35mg prednisolone soon starting on Azathioprine. Any one else on this medication for MG ?

Tengo miastenia desde hace tres años pero no he conocido a nadie con esta enfermedad

How would you suggest reducing steroids from 15mg to 10mg? I have been on steroids for many years? Many thanks Annette