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suggest me about revolade in children, my daughter is suffering from itp since four years, she has taken Retuximab, IVIG, Steriode, Anti -D
suggest me about revolade in children, my daughter is suffering from itp since four years, she has taken Retuximab, IVIG, Steriode, Anti -D. she suffer from ITP in 4 years old now she is 8 years. her plts acount are between 15000 - 20000 only.
suggest me about revolade in children, my daughter is suffering from itp since four years, she has taken Retuximab, IVIG, Steriode, Anti -D. she suffer from ITP in 4 years old now she is 8 years. her plts acount are between 15000 - 20000 only.
Purpura1
in
ITP Support Association
12 years ago
What next?
Hi all, my husband (34yrs, very, very fit and healthy man with the exception of ITP) has had ITP for just over a year and a half. He has tried (in order) prednisolone, Ivig, menthol prednisolone, eltrombopag, romoplostim. None of which has worked. During this time his platelet counts has been as high
Hi all, my husband (34yrs, very, very fit and healthy man with the exception of ITP) has had ITP for just over a year and a half. He has tried (in order) prednisolone, Ivig, menthol prednisolone, eltrombopag, romoplostim. None of which has worked. During this time his platelet counts has been as high
clh02
in
ITP Support Association
12 years ago
Ivig?
Hi, sorry for all the questions. I'm running ahead of myself but I really don't want to go down the steroid or immune supressent route. My friend said at the hospital she goes to some people with behcets go and have ivig which works well for them. I already have thin bones and am worried what steroids
Hi, sorry for all the questions. I'm running ahead of myself but I really don't want to go down the steroid or immune supressent route. My friend said at the hospital she goes to some people with behcets go and have ivig which works well for them. I already have thin bones and am worried what steroids
vikkilouise
in
Behçet's UK
12 years ago
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whats everyones thoughts on cyclosporine, tried promacta, ivig, n plate, everything, seems cyclosporine is keeping my wife at good levels
musicguy60
in
ITP Support Association
12 years ago
The Thief of Many Lives By Kathleen Houghton
I am constantly on the prowl in search of new victims. I do not discriminate--health care workers, teachers, students, airline personnel, teens, and innocent children are my prey. If you are dynamic and have a lust for life, I will seek you out, and I will find you. Just when you are at the peak
I am constantly on the prowl in search of new victims. I do not discriminate--health care workers, teachers, students, airline personnel, teens, and innocent children are my prey. If you are dynamic and have a lust for life, I will seek you out, and I will find you. Just when you are at the peak
keno25
in
Fibromyalgia Action UK
12 years ago
Confused and worried
I was diagnosed with APS after having 3 miscarriages and raised Igm levels of 21. Apart from the miscarriages I feel fine, so Dr Khamashta said I have pregnancy/obstetric only APS and advised I take 75mg aspirin daily. I'm worried because I've been reading about some of the awful symptoms some of
I was diagnosed with APS after having 3 miscarriages and raised Igm levels of 21. Apart from the miscarriages I feel fine, so Dr Khamashta said I have pregnancy/obstetric only APS and advised I take 75mg aspirin daily. I'm worried because I've been reading about some of the awful symptoms some of
HWickers
in
Hughes Syndrome APS Forum
13 years ago
Antiphospholipid Antibodies
Hi my name is Beccy im 30years old and im from Bournemouth could anyone, give me some info on my ailement on Antiphospholipid Antibodies 7 moths agoi found out that i had a rash and i just been told that i got this condtions Livedo Reticularis. my blood count is entirely normal including
Hi my name is Beccy im 30years old and im from Bournemouth could anyone, give me some info on my ailement on Antiphospholipid Antibodies 7 moths agoi found out that i had a rash and i just been told that i got this condtions Livedo Reticularis. my blood count is entirely normal including
beccs1
in
Hughes Syndrome APS Forum
13 years ago
New to APS and terrifie.
Hi. My name is Linda. I'm from Ohio. I just got my test results today and found that my Beta 2 Glycoprotein IgM is high for the second time since the first test, so the doctor has diagnosed me with APS (the lab doctor, not my vasculitic doctor so far). I'm terrified as I cannot take blood thinners
Hi. My name is Linda. I'm from Ohio. I just got my test results today and found that my Beta 2 Glycoprotein IgM is high for the second time since the first test, so the doctor has diagnosed me with APS (the lab doctor, not my vasculitic doctor so far). I'm terrified as I cannot take blood thinners
Lindajoy
in
Hughes Syndrome APS Forum
12 years ago
Does anyone has had a plasmapheresis and antiphospholipid syndrome??
I´ve had a miscarriage due to my IgG and IgM high levels. I want to make a second try and my doctor had recommended a plasmapheresis therapy first to clean up my body. Does anyone has done this??
I´ve had a miscarriage due to my IgG and IgM high levels. I want to make a second try and my doctor had recommended a plasmapheresis therapy first to clean up my body. Does anyone has done this??
yazel50
in
Hughes Syndrome APS Forum
12 years ago
neurological symptoms
Hi I found out today I have Hughes syndrome after having 3 different elevated IgM anticardiolipin antibodies. The levels were 22, 19 and 14 so I think I'm of pretty low level. However I've been really ill all year starting with daily migraines for 3 months then having a possible transverse myelitis
Hi I found out today I have Hughes syndrome after having 3 different elevated IgM anticardiolipin antibodies. The levels were 22, 19 and 14 so I think I'm of pretty low level. However I've been really ill all year starting with daily migraines for 3 months then having a possible transverse myelitis
miffy
in
Hughes Syndrome APS Forum
13 years ago
Newbie
In June he had Kawazaki disease which is treated with intravenous
immunoglobulin
which has given us the best 6 months with his asthma yet, but now the effects of this have worn off and I feel we are back to being uncontrolled.
In June he had Kawazaki disease which is treated with intravenous
immunoglobulin
which has given us the best 6 months with his asthma yet, but now the effects of this have worn off and I feel we are back to being uncontrolled.
Hidden
in
Asthma Community Forum
18 years ago
Severe asthma - Unconventional Treatment
Hi I have had severe asthma since infancy, but the past 1.5 years it has gotten much worse. I am on every asthma medication available, including at least 40 mg of prednisone a day, xolair, and ivig. my docs are now suggesting trying more aggresive treatments, as my pft's are slowly drifting down and
Hi I have had severe asthma since infancy, but the past 1.5 years it has gotten much worse. I am on every asthma medication available, including at least 40 mg of prednisone a day, xolair, and ivig. my docs are now suggesting trying more aggresive treatments, as my pft's are slowly drifting down and
Hidden
in
Asthma Community Forum
18 years ago
Iv Immunoglobulin
Hi I went to see my consultant yesterday and he said that he wants to start me on Iv immunoglobulins in the New Year to try and keep me off of pred as much as possible. Has anybody else had this? Has it helped? Thanks Sarah
Hi I went to see my consultant yesterday and he said that he wants to start me on Iv immunoglobulins in the New Year to try and keep me off of pred as much as possible. Has anybody else had this? Has it helped? Thanks Sarah
Hidden
in
Asthma Community Forum
17 years ago
Asthma injection
It specifically targets the antibody
immunoglobulin
E (IgE), which is involved in the allergic process in asthma. In trials involving 4,300 patients, the medicine has been shown to reduce asthma attacks and hospitalisations, and to help improve lung function and quality of life.
It specifically targets the antibody
immunoglobulin
E (IgE), which is involved in the allergic process in asthma. In trials involving 4,300 patients, the medicine has been shown to reduce asthma attacks and hospitalisations, and to help improve lung function and quality of life.
Hidden
in
Asthma Community Forum
18 years ago
A Basic Guide to Immunology
A BASIC GUIDE TO IMMUNOLOGY Right guys, I’ll try (being non-medic) and give you a very basic insight into immunological mechanisms. …Sit up straight at the back!!, and stop munching on that bar of chocolate – swallow it now!! (shouts he wearing his demon headmaster wig) - LOL You will know doubt
A BASIC GUIDE TO IMMUNOLOGY Right guys, I’ll try (being non-medic) and give you a very basic insight into immunological mechanisms. …Sit up straight at the back!!, and stop munching on that bar of chocolate – swallow it now!! (shouts he wearing his demon headmaster wig) - LOL You will know doubt
Hidden
in
Asthma Community Forum
18 years ago
IV Immunoglobulin - any advice
Hi everyone, and a happy Easter to all hope you are enjoying the holidays. As title suggests I am after any advice from anyone who has had IVIG. My son had his first dose over last weekend - 2 lots of 16 hour infusions. He tolerated it well and apart from a sore cannula site he left hospital on Monday
Hi everyone, and a happy Easter to all hope you are enjoying the holidays. As title suggests I am after any advice from anyone who has had IVIG. My son had his first dose over last weekend - 2 lots of 16 hour infusions. He tolerated it well and apart from a sore cannula site he left hospital on Monday
Hidden
in
Asthma Community Forum
15 years ago
Immunoglobulin deficiancy
Hi All, Does any of you suffer with an
immunoglobulin
(I Gg) deficiancy, proff ayres mentiones that it is common in Brittles but not always any bennifit treating it, i am treated with IV Vigam every month and feel so much better, generally, my asthma is better and i dont get so many infections. does
Hi All, Does any of you suffer with an
immunoglobulin
(I Gg) deficiancy, proff ayres mentiones that it is common in Brittles but not always any bennifit treating it, i am treated with IV Vigam every month and feel so much better, generally, my asthma is better and i dont get so many infections. does
Hidden
in
Asthma Community Forum
17 years ago
Does anyone have immunoglobulin infusions to treat brittle asthma?
Hi there I am currently recieving
immunoglobulin
infusions to treat my brittle asthma ive been having them for 6 months. apparenly its just being trialed and there not sure how it helps asthma but studies have found that it does.
Hi there I am currently recieving
immunoglobulin
infusions to treat my brittle asthma ive been having them for 6 months. apparenly its just being trialed and there not sure how it helps asthma but studies have found that it does.
Hidden
in
Asthma Community Forum
16 years ago
Portacath
Due to having extremely rubbish veins and needing iv
immunoglobulin
every 3 weeks, I was told yesterday to consider having a portacath. I know all about them as I am a paediatric nurse on a CF ward, am just after personal opinions of anyone who has one.
Due to having extremely rubbish veins and needing iv
immunoglobulin
every 3 weeks, I was told yesterday to consider having a portacath. I know all about them as I am a paediatric nurse on a CF ward, am just after personal opinions of anyone who has one.
Hidden
in
Asthma Community Forum
16 years ago
I keep getting pneumonia
Now, my resp consultant is checking my
immunoglobulin
levels to see if, for some reason, my immunity is suppressed. (I have constant, intractable oral thrush which does not respond to treatment, which may point to immuno-suppression). Has anyone else experienced this?
Now, my resp consultant is checking my
immunoglobulin
levels to see if, for some reason, my immunity is suppressed. (I have constant, intractable oral thrush which does not respond to treatment, which may point to immuno-suppression). Has anyone else experienced this?
yaf_user681_25830
in
Asthma Community Forum
17 years ago
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