Hi, we are coming up on two years since my husband finished a 6 month treatment with fcr. We had been told he had a "complete response with incomplete recovery of the bone marrow." His blood counts improve some then dwindle some; currently neutropenic again barely above 500.
His onco has been insisting on two month visits (he does receive IVIG treatment every two months). Now wants to do a CT scan at the next two month visit to look for large nodes internally that would not be palpable (he did have a large mass near his spleen before treatment).
ALC is within normal limits and he does well except for recurring lung trouble/cough and some fatigue.
We are both unhappy about the prospect of another CT. The onco is highly trained and has lots of experience with CLL although he is not a CLL specialist.
Would bulky nodes in and of themselves be a reason for further treatment?