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Need some help with blood test results.
My
Immunoglobulin
A was slightly elevated at 476, lab range was 463. Has this happened to anyone else? Does this mean a gluten intolerance moreso than Celiac Disease? I also have Hashimoto's thyroiditis.
My
Immunoglobulin
A was slightly elevated at 476, lab range was 463. Has this happened to anyone else? Does this mean a gluten intolerance moreso than Celiac Disease? I also have Hashimoto's thyroiditis.
bmolsen1
in
Gluten Free Guerrillas
7 years ago
11 year old son ITP
I am seeking some insight. Brief history of my son. He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta. His platelets range from 10,000 - 65,000. When he has episodes of bleeding
I am seeking some insight. Brief history of my son. He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta. His platelets range from 10,000 - 65,000. When he has episodes of bleeding
Bishoprena
in
ITP Support Association
7 years ago
AMAs but normal bloodwork
I had written a couple of posts awhile back when I had AMAs in my blood and was waiting for follow- up bloodwork. I am posting my results from Nov. 8th so that anyone in my situation can see. I had high Alt in July because of Alcohol use. The dr did extra blood tests and I had AMAs in my blood. I
I had written a couple of posts awhile back when I had AMAs in my blood and was waiting for follow- up bloodwork. I am posting my results from Nov. 8th so that anyone in my situation can see. I had high Alt in July because of Alcohol use. The dr did extra blood tests and I had AMAs in my blood. I
SSMPCW123
in
PBC Foundation
7 years ago
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I'm new here - and glad I'm probably not crazy afterall
Hi, I've been following this support group for a few months now and have learned so much about Hughe's Syndrome. My story is long (like most everyone's) and I hope you can bare with me. I am 51 years old and live in Missouri - USA. I had never heard about Hughe's Syndrome until I had blood work
Hi, I've been following this support group for a few months now and have learned so much about Hughe's Syndrome. My story is long (like most everyone's) and I hope you can bare with me. I am 51 years old and live in Missouri - USA. I had never heard about Hughe's Syndrome until I had blood work
Tyler3
in
Hughes Syndrome APS Forum
7 years ago
GRand daughter
She's 10 and and it's been 1 year now and every month sometime twice a month she drops to 1000 and 4000 nothing is working and IVIG isn't holding he count high enough we are lost on answers
She's 10 and and it's been 1 year now and every month sometime twice a month she drops to 1000 and 4000 nothing is working and IVIG isn't holding he count high enough we are lost on answers
Kayla2007
in
ITP Support Association
7 years ago
My son
My son had a kidney transplant when he was 3 in 2005, now at age 16 the Nephi wants to try again for the 4th time to get a biopsy. Kidney is hidden so all attempts have been a failure. Had to pay of course for them but no answers. Okay so I have to say this he has kidney stones in that transplanted
My son had a kidney transplant when he was 3 in 2005, now at age 16 the Nephi wants to try again for the 4th time to get a biopsy. Kidney is hidden so all attempts have been a failure. Had to pay of course for them but no answers. Okay so I have to say this he has kidney stones in that transplanted
ScoobyDoo910
in
Early CKD Support
7 years ago
Can I get IVIG?
Due to normal CK levels I’m not on steroids and don’t want to go on them either. But consultants are saying there’s no obvious signs of muscle weakness despite what I say. I’ve noticed a weird shape around my muscle bicep on my left arm this past 4 weeks and can’t carry anything. I had my first physio
Due to normal CK levels I’m not on steroids and don’t want to go on them either. But consultants are saying there’s no obvious signs of muscle weakness despite what I say. I’ve noticed a weird shape around my muscle bicep on my left arm this past 4 weeks and can’t carry anything. I had my first physio
MissFG
in
Myositis UK
7 years ago
RA OA now hypogammaglobulinaemia
I am now told that my
immunoglobulin
treatment will most likely have to continue for the rest of my life so as to maintain my now near normal antibody levels, OMG whatever next???????? Neil
I am now told that my
immunoglobulin
treatment will most likely have to continue for the rest of my life so as to maintain my now near normal antibody levels, OMG whatever next???????? Neil
8124
in
NRAS
7 years ago
Coverage for revolade
I’ve had ITP now for 6 months and so far fails on ivig and prednesone. I go to see a hematologist finally but only one time because the only one my doctor could get to see me is far to get to. So I was going to ask him if I could try revolade but there are two problems. One I have an enlarged heart
I’ve had ITP now for 6 months and so far fails on ivig and prednesone. I go to see a hematologist finally but only one time because the only one my doctor could get to see me is far to get to. So I was going to ask him if I could try revolade but there are two problems. One I have an enlarged heart
wjoyful
in
ITP Support Association
7 years ago
Is it safe to just take Promacta 50mg every other day since my platelets are high and I don't have a lower dose.
Hi All, I am at 311,000 platelets on 50mg promacta since 11/23 before that on 75mg Promacta. I am tapering slowly off prednisone. I am down to 4.5mg today Prednisone :). My hematologist said stop the Prednisone cold turkey as he has suggested I do before because he is confused what is keeping the platelets
Hi All, I am at 311,000 platelets on 50mg promacta since 11/23 before that on 75mg Promacta. I am tapering slowly off prednisone. I am down to 4.5mg today Prednisone :). My hematologist said stop the Prednisone cold turkey as he has suggested I do before because he is confused what is keeping the platelets
CDmom
in
ITP Support Association
7 years ago
Apparently time for treatment
Two years ago I was so angry and confused. I had no ideal there were so many others experiencing CLL. I started to read all the post and would wake during the night when it would wake me up to read lol the new post. I responded to a few post but realized I was very fortunate to be in the watch and wait
Two years ago I was so angry and confused. I had no ideal there were so many others experiencing CLL. I started to read all the post and would wake during the night when it would wake me up to read lol the new post. I responded to a few post but realized I was very fortunate to be in the watch and wait
Sallyurnotal
in
CLL Support
7 years ago
Infusion
Just undergoing my first
immunoglobulin
infusion - had to laugh as the nurse went through the possible side effects - shivering, headache, nausea and the best ' a sense of impeding doom' 🤣🤣🤣🤣🤣🤣🤣- that's ok then, that's my familiar
Just undergoing my first
immunoglobulin
infusion - had to laugh as the nurse went through the possible side effects - shivering, headache, nausea and the best ' a sense of impeding doom' 🤣🤣🤣🤣🤣🤣🤣- that's ok then, that's my familiar
Sepsur
in
CLL Support
7 years ago
Introductions
Hi all, I was dx with dermatomyositis sine myositis due to my Chronic Lymphocytic Leukemia (CLL). It took just over 6 months of biopsies, blood tests, the other dermatologists coming in and looking at me. Once dx I chose to start on the CLL treatment. After 6 months of that (12 months on steroids) I
Hi all, I was dx with dermatomyositis sine myositis due to my Chronic Lymphocytic Leukemia (CLL). It took just over 6 months of biopsies, blood tests, the other dermatologists coming in and looking at me. Once dx I chose to start on the CLL treatment. After 6 months of that (12 months on steroids) I
Eliotf
in
Myositis UK
7 years ago
CD38 POSITIVE AND ZAP -70 POSITIVE
New to this forum but not new to CLL as I was diagnosed in Sept of '07 and so far no treatment but rather watch and wait. I was recently reviewing my flow cytometry from Sept of '07 and saw that I'm CD38 POSITIVE AND ZAP-70 POSITIVE so, I Googled it and it scares me! The article was suggesting that
New to this forum but not new to CLL as I was diagnosed in Sept of '07 and so far no treatment but rather watch and wait. I was recently reviewing my flow cytometry from Sept of '07 and saw that I'm CD38 POSITIVE AND ZAP-70 POSITIVE so, I Googled it and it scares me! The article was suggesting that
Ladydi49
in
CLL Support
7 years ago
Dark circles after transplant
The medications I'm on currently are: Tenofovir, Advagraf and
Immunoglobulin
injections entry 2 weeks. Has anyone experienced anything like this and do you have any suggestions for me? Thank you
The medications I'm on currently are: Tenofovir, Advagraf and
Immunoglobulin
injections entry 2 weeks. Has anyone experienced anything like this and do you have any suggestions for me? Thank you
Hidden
in
British Liver Trust
7 years ago
Pelvic pain after eating,weeing and arousal
I am on
immunoglobulin
therapy due to a compromised immune system,my immu nurse has ordered me to.see my gp tomoro but has anyone got any ideas what ot could be? Feeling g frustrated
I am on
immunoglobulin
therapy due to a compromised immune system,my immu nurse has ordered me to.see my gp tomoro but has anyone got any ideas what ot could be? Feeling g frustrated
Charlottefos
in
Pelvic Pain Support Network
7 years ago
Arguing With Lung Doctor
Why WELL 3 rotten inhalers AND nebuliser and standerd atibiotcs is best all lung care involves WELL he said thats best NHS lung care gets and this nothing else. Well i disagreed AND said if thats what you belive thats whats up with lung care. So asked him about my IGM antibodes only to be told things
Why WELL 3 rotten inhalers AND nebuliser and standerd atibiotcs is best all lung care involves WELL he said thats best NHS lung care gets and this nothing else. Well i disagreed AND said if thats what you belive thats whats up with lung care. So asked him about my IGM antibodes only to be told things
Hidden
in
Lung Conditions Community Forum
7 years ago
Recent PBC diagnosis
Hi I was diagnosed with PBC in July after 3 years of raised liver enzymes and tiredness and itching, this was all put down to stress and the menopause as well as being treated for scabies 3 time lol also shift work as I’m a paramedic, I changed GP’s and was referred to Gastro at Hospital had lots of
Hi I was diagnosed with PBC in July after 3 years of raised liver enzymes and tiredness and itching, this was all put down to stress and the menopause as well as being treated for scabies 3 time lol also shift work as I’m a paramedic, I changed GP’s and was referred to Gastro at Hospital had lots of
Rozm2004
in
PBC Foundation
7 years ago
Myasthenia Gravis
Hello Friends, I have MG, been two years. Underwent IVIG and 13 months of Plasma Pherfesses(sp). I have been on Cellcept for 22 months. I started a prednisone taper after 18 months at 60mg. In four months I was completely off. The pred caused severe osteoporosis, Glaucoma & cataracts as well as a long
Hello Friends, I have MG, been two years. Underwent IVIG and 13 months of Plasma Pherfesses(sp). I have been on Cellcept for 22 months. I started a prednisone taper after 18 months at 60mg. In four months I was completely off. The pred caused severe osteoporosis, Glaucoma & cataracts as well as a long
Mgsucks
in
PMRGCAuk
7 years ago
Candida?
My journey has been long since my first experience with the stomach virus. Many twists and turns and very unfortunate (and unbelievable) events have transpired. Doctors have randomly chose drugs that all seemed to make things dramatically worse (predisone, cortical steroids, antibiotic regiments, protonix
My journey has been long since my first experience with the stomach virus. Many twists and turns and very unfortunate (and unbelievable) events have transpired. Doctors have randomly chose drugs that all seemed to make things dramatically worse (predisone, cortical steroids, antibiotic regiments, protonix
Hidden
in
Anxiety Support
7 years ago
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