Myositis UK | HealthUnlocked
504 members • 321 posts
Anyone get calcinosis?
I'm still VERY far from getting a diagnosis (thank you, NHS) and I'd have given up long since if it wasn't for my near-constant facial (and nipple) rashes and...
I'm still VERY far from getting a diagnosis (thank you, NHS) and I'd have given ...
16 days ago
Anyone Had High Ferritin Levels?
Just had a very depressing doctor's visit where I was told I couldn't be referred to a myositis specialist and would just have to wait to see an ordinary...
Just had a very depressing doctor's visit where I was told I couldn't be referre...
17 days ago
21and new to having dermato, looking for guidance on how the treatment will be!
I recently found I have dermatomyositis. My ck is high(450) and adolase is high as well.. I am only 21 so this is shaking my world a bit. I thought I just had...
I recently found I have dermatomyositis. My ck is high(450) and adolase is high ...
a month ago
High Ferritin and High LDH - any thoughts?
My last blood test brought up strange results, which my doctor wants to 'discuss' with me. I'm seeing her on Monday. I have had high ferritin for over a year...
My last blood test brought up strange results, which my doctor wants to 'discuss...
12 days ago
Hair Loss with Dermatomyositis
Hi, I’m quite young (22) and was diagnosed with Dermatomyositis back in September, after suddenly becoming so severely inflamed in my joints that I was...
Hi, I’m quite young (22) and was diagnosed with Dermatomyositis back in Septem...
a month ago
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