Myositis UK is a community providing information and support to individuals and their families affected by Dermatomyositis, Polymyositis, Inclusion...Read more
Feeling down today
Eboracum12 days ago
Hello everyone, I've had a real down day today...
13 Replies1 Like
New - anyone else had normal bloods but muscle pain weakness ??
Eboracuma month ago
Hello I've just joined this site today - and now have the app on my mobile...
Interesting New Technology if you have IBM
bon-bon4 days ago
Goldyukr12 hours ago
The last couple of haircuts I got, my hairdresser asked if my hair had started thinning (particularly when she was looking at the back of my...
Colin B's intro.
fbcburnett9 days ago
3 Replies2 Likes
Just been diagnosed with polymyositis
gtn30107213 days ago
Hi need help been working all my life I am a 44 year old male with diabetìc all my life I have just be diagnosed with polymyositis the last ...
BYM 338 dosage shared
bon-bon22 days ago
Two participants in the trial on the U.S. site were told what their dosages were. One received 3mg and one 10mg. Wondering if those involv...
Manchester Afternoon Tea Meetup held on Saturday 20th May
Jo-Goode6 days ago
Over 40 people attended our Manchester Afternoon Tea Meetup on Saturday 20th May...
2 Replies1 Like
Fundraising for Myositis UK - Race at your Pace 100 mile walk in throughout May challenge.
SuzellaBuhlmann6 days ago
Hiya, I am so pleased to say that I have completed my challenge of 100 miles within the month of May 😀 I am not stopping there as i will se...
2 Replies3 Likes
Statins and Myositis
SDRMa month ago
Does anyone have any experience of muscle pain caused by statin medications...
2nd Global Myositis Conference
Jo-Goode25 days ago
Wishing all the myositis doctors, nurses, scientists, and physiotherapists a successful meeting at the 2nd Global Conference on Myositis, es...
Feeling hopeful after meeting the lovely Dr Chinoy!
Eboracum18 days ago
Just on our way home after having my first appointment with Dr Chinoy , firstly what a lovely gentleman...
1 Reply3 Likes
Chair with vertical lift
Wighton4 days ago
Hi everyone, I have noticed several posts re chair with vertical lift (no tilt) but now I need to find out more I can't find the posts! Any ...
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Myositis and Exercise
Can anyone throw light on another issue I am interested in, related to myositis of skeletal muscle - thighs, buttocks, and sometimes lower l...
New Study - Hiker’s Feet
Jo-Goode24 days ago
Closing this week! - Steroid Survey
Jo-Goodea month ago
Dear Myositis UK member...
Do you suffer pain with your Myositis?
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