Myositis UK | HealthUnlocked

hi all Ill be honest I really am at what I think could be the start of polymyositus and wanted to ask peoples opinion.. Started about 4 - 5 weeks ago with...

Hello All! About two months ago I had a bad chest infection, during which I became surprisingly weak, mostly thighs and upper arm and the strength didn't...

I have no idea what to call this and, I'm posting here purely because of my Pm - scl 100 antibody, but I have developed weird hard, scaly, rough patches of...

I have at last been diagnosed with Polymyositis, having gone privately to the London Neurology Clinic. I am on prednisonal and a tummy lining tablet for the...

Hi comunity, I'm a 63 years old male from Belgium. I was diagnosed with NAM in september this year. Actualy I'm under Medrol ( corticoïdes 48g) and...

I developed severe loss of muscle strength about 15 years back followed on by extreme arm muscle pain - so severe I cannot even take a BP test or use my arms...

Hi All I started with health issues in the 1980's but struggled to get and definite diagnosis. This changed when I was sent to a Guys and St Thomas'. They...

I have had a muscle condition in my lower legs and now my arms with difficulty swallowing which has degenerated over the last 3 months. I had 3 weeks in...

Neutrophil highLymphocytes low Divide top by bottom and you get NLRatio. Mine is high at 11 Does anyone else have this?

I am self diagnosing the pain I am enduring most of the day and all of the night. Can anyone tell me if there is a myositis consultant in The Midlands, either...

hi everyone, I need a little advise please 🙂 I really haven’t been well since January went to the doctors as I just didn’t feel right my muscles were hurting...

Hi I was diagnosed with Polymyositis 2 years ago after a muscle biopsy on my left thigh The area where the muscle biopsy took place is still very painful so...

Hi I’m new to this site, I was diagnosed yesterday with Dermatomyositis, I’m having trouble pronouncing it let alone the spelling so hope I’ve got it correct....

I know pretty much most of this is in my Bio and is just a copy paste to introduce myself. Can be scary when you have been a relatively healthy person all...

does anyone have myositis and ptosis or myositis and mg

Hello all, my 11 year old was suddenly taken ill early July this year (2024) and after a week in hospital was diagnosed with Myosotis. She currently is not...

Brychni 23 hours ago•3 Replies Hello 👋 I posted this message on the Raynaud's and scleroderma group but after some research wondered if anyone here can...

My GP discovered that I had elevated liver enzyme 7800 April 23 and sent me an ambulance to be thoroughly checked and went through CT San, MRI etc, seen by...

The Summer edition of "Myositis News" is now available online. https://www.myositis.org.uk/wp-content/uploads/2024/07/Myositis-News-Summer-2024.pdf

Where is the conference please ? Kind regards Carol

This years Myositis UK AGM & Conference is approaching, but still time to book a place 🙂 It will be held on Sunday 14th July 2024 at the Woodland Grange,...

My husband has been in hospital since the 26th of May, he was a patient for 6 days before we had a diagnosis of dermatomyositis. He is currently in intensive...

"Long time member of PMRUK. What I thought was r/o, new physical evidence has brought me here. The PMR community has been great for the past 2 years, but they...

diagnosed 4 days ago INM never heard of it before so gathering as much info as I can in preparation

Hi, Well where to start?? My left eye went purple /red a few weeks ago and we thought it was an eye infection. 5 day course of antibiotics and it seemed to...

I think I put this in the wrong thread originally so I’m re sending, hopefully in the right place. Hello. I’m new here. My name is Lilia. I have...

I’m still awaiting formal diagnosis. Tested positive for Anti Mi2, ANA 360 and had rashes across my neck, shoulders, eyebrows, behind ears and side of head...

Hello everyone. Still going through the phase of being diagnosed even though I do have a current diagnosis of mctd. But my Ssa Ro52 was positive and Ana 1:640...

Hi, I'm Ian. Sorry for this long post. Just found out today after a 7+ yr journey of trying to figure out what is wrong with me that I have markers for...

evening forum keep waiting for mri result ( had mri scan 5 weeks ago). Rang rheumatologist secretary and have been told will be posted results this week(...