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Myositis UK

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Extreme fatigue after 1st dose AstraZeneca vaccine?

Hi I received my vaccine on 20th February 2021. I have Polymyositis Jo-1. I wo...

in

Hi there! I will be happy to share and discuss a good life experience with myos...

A question about Anti Jo1

Hello, I've had weird blood results since I was a child, my neutrophils (white b...

ANA test result?

Hi Im new on here, and not even sure I'm on the right sight. But I just wanted t...

Unsure

Was diagnosed with APS syndrome in March 2020 after two blood test for lupus ant...

Does anyone else have experience of these symptoms?

At current I have poor mobility due to odd sporadic leg pains that follow no pat...

Anybody be seen by Dr Grattan for mcas?

Just wondering if anyone been seen by Dr Grattan and how do you rate him? Was th...

How to excercise with Dermatomyositis

Hi, my name is Joanne. I was diagnosed with Dermatomyositis in February 2019. I ...

Not alone? Dermatomyositis

Hi, I'm Dia. I was diagnosed with dermatomyositis back in early 2019, but didn't...

ibm

I have ibm - is there really no treatment? Is it recommended to walk, despite th...

Do they routinely test back muscles during an MRI & EMG?

I'm due to have an MRI and EMG some time in the distant future (I'm in the UK an...

Anyone have Drug-induced Myositis?

Hi, I've had a diagnosis of MCAS (Mast Cell Activation Syndrome), but I had an a...

Morning Fatigue

I have Dermatomyositis, Rheumatoid Arthritis, Interstitial Lung Disease and Rayn...

Need help

Hello.I have severe dermatomyositis. I have been diagnosed 2 months ago. I have ...

Waxy mouth & soapy taste?

Hi, dx Dermatomyositis in Aug 2020. Been on prednisolone (45mg/day) and methotre...

Advice on refluxes and sculp /skin ruch

any suggestion about how to cure esand skin rush ( skulp/hands ) ?

New member

Good morning. I am new here having recently been diagnosed with Dermatomyositis....

Myositis

Just been diagnosed, by post, with TIF-5 positive myositis and associated parane...

Virtual thesis seminar on 16 September at 6PM BST (1pm EDT) with Kyla Britson.

PLEASE NOTE: This event will start at 6PM UK time, not 5PM as previously adverti...

Just diagnosed

Newly diagnosed at a young age, feeling extremely overwhelmed and uncertain abou...

Hello I'm new here and it's good to be able to contact people who may be going through the same feelings of isolation following my diagnosis

I was finally diagnosed with Dermatomyositis in April last year after about 5 ye...

Newly Diagnosed

Diagnosed 6 days ago with Dermatomyositis following muscle biopsy. Have been ref...

Just diagnosed and uncertain about the future and what it may hold

Hi In so many ways I have been so fortunate up until aged 60 I have enjoyed a ve...

Does anyone suffer with muscular bruising in the thighs? I rub my hand on my legs and its painfully sore

When I press on my hands on my thighs I can feel small knot which are very painf...

Recently diagnosed Looking for a positive out look on DM!

Hi All, I was recently diagnosed on the 6th July with Anti-synthetase, DM -anti ...

12 years to diagnose dermatomyositis

New here and dropping in to say hi! Pasting what I put into my bio below. It t...

IBM sleep well

I would like to find the best mattress for people with IBM. I am struggling with...

IVIG(intravenous immunogbulin)

Is anyone taking IVIG(intravenous immunogbulin) for dermatomyositis? Is it helpi...

Rituxan

Is anyone taking Rituxan for Dermatomyositis? Is it helping your condition?
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