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IBM Home exercise program
Jo-Goode2 days ago
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1252tim3 days ago
Hi. I was diagnosed with IBM last year. I got a cross trainer but had to sell it when I became weaker. I’m thinking of getting a recumbent c...
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Hello and here’s my very short story.
Jgbgt9 days ago
So today I am in a bed in the local DGH with IV steroids for 3 days. It’s really scary. I’m a healthy (I thought) 34 year old male with wif...
4 Replies1 Like
Myositis UK Meetup Afternoon Tea - Manchester 19th May
Jo-Goode10 days ago
Myositis UK Afternoon Tea, Chancellors Hotel, Manchester
Saturday 19th May 2018 - 2pm
Guest Speakers: Dr Hector Chinoy & Liza McCann
This Valentine's Day #LoveYourHeart
Jo-Goode11 days ago
This Valentine's Day #LoveYourHeart ❤️
Most people with auto immune disease do not know they are at an increased risk of developing a heart c...
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Follow Myositis UK on Twitter & Facebook
Jo-Goode12 days ago
Myositis UK posts on facebook & Twitter
VonnieD25 days ago
Today I took my first dose of methotrexate and prednisolone. It's taken a little while since being diagnosed with Polymyositis in November ...
1 Reply2 Likes
Annual Patient Conference videos (USA)
MAuka month ago
The Myositis Organization (a US based forum) has links on the front page for the annual Myositis Patient Conference. The presentations are o...
My angry rash
Dessabooa month ago
Well... how'd you like that! *lol*
3 Replies1 Like
Im new xx
Lisawill2 months ago
Hi I have suffered from this rash plus ongoing tiredness and muscle aches for about 7 years now, sometimes without any symptoms at all but s...
Oral steroids vs IM injections?
MAuk2 months ago
One of the rheumatologist I saw claimed that IM steroids had fewer side effects to oral ones. The neurologist said there was no difference....
Hello I’m new
VictoriaVic2 months ago
Hi I’m getting tests done at the minute by GP for a range of autoimmune and muscle connective disease. However I’m convinced I have dermatom...
2 Replies1 Like
EMG next week
Parkerc2 months ago
Hi everyone, I am due to have an EMG next week to test for DM. Has anyone had this done? Does it hurt and is it reliable? This is my last ch...
Dermatomyotisis Treatment Options
Littlegem222 months ago
Hi there. I am new on here. I am am a 36 year old female.I was diagnosed with dermatomyositis about 10 years ago but my CK levels were not ...
New member here , recently diagnosed with Dermatomyositis 😐
Mark_A_UK2 months ago
Hello members , i'm Mark , i joined here at the weekend , at the end of May 2017 a bright red rash started covering my face ,which i presum...
Happy New Year!
Jo-Goode2 months ago
Myositis UK celebrates 30 years as a registered charity in 2018!
From everyone on the Myositis UK team we would like to wish you Good Health ...
2 Replies2 Likes
Wishing you Happy Christmas from Myositis UK!
3 Replies2 Likes
New guide on Myositis by Hector Chinoy & Bob Cooper
New guide on Myositis by Hector Chinoy and Bob Cooper, aimed at physicians & trainees in the field of Rheumatology - £26.99 Oxford Universit...
Anyone here with NAM?
Interested in medication options. I'm a type 2 diabetic but in control with a small dose of Gliclazide. Had a...
Rsheppard2 months ago
Hi I have dermatomyositis, treated with rituximab 10 weekly but am recently- last few months - suffering severe eye pain anyone experiencing...
Can I get IVIG?
MissFG3 months ago
Due to normal CK levels I’m not on steroids and don’t want to go on them either.
But consultants are saying there’s no obvious signs of muscl...
Eliotf3 months ago
I was dx with dermatomyositis sine myositis due to my Chronic Lymphocytic Leukemia (CLL). It took just over 6 months of biopsies, bl...
8 Replies1 Like
neater eater and the neater arm support
johnRobertson3 months ago
I have an appointment tomorrow with a representative of Neater Eater company, coming to the house to demonstrate two of their products. I...
One week to the Myositis Christmas Meetup!
Jo-Goode3 months ago
Only a week to the Myositis Christmas Meetup 🎄 😬
Free to Myositis UK members (membership free)
Join @ myositis.org.uk/join.asp
VonnieD3 months ago
I've recently been diagnosed with Polymyositis. I'm due to see the rheumatologist for the first time and not sure what to expect. My hope fo...
12 Replies3 Likes
Fundraise for Myositis while you shop online at no extra cost
Fundraise for Myositis while you shop ⛄
Join easyfundraising and you can collect free donations for us every time you buy something online. I...
Myositis UK Christmas Draw
Tickets are now available for the Myositis UK Christmas Draw, with a top prize of £500🎄
1st Prize £500, 2nd £150, 3rd £50 & other prizes 🎁
Poly or IBM?
Not long diagnosed but symptoms getting worse over weeks not months. Mycophenolate I couldn’t tolerate so waiting to hear from bloods if I c...
Challenges with Polymyositis and possible lung damage scarring
SouthernNIna3 months ago
Hello, my dad has been diagnosed with polymyositis and as an affect of the medicines he has been taking his lungs have been damaged with sca...
P.E.G. (Percutaneous endoscopic gastrostomy)
stillhoping4 months ago
" Percutaneous endoscopic gastrostomy is an endoscopic medical procedure in which a tube is passed into a patient's stomach through the abdo...
Do you suffer pain with your Myositis?
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