Hi all,

I was dx with dermatomyositis sine myositis due to my Chronic Lymphocytic Leukemia (CLL). It took just over 6 months of biopsies, blood tests, the other dermatologists coming in and looking at me. Once dx I chose to start on the CLL treatment. After 6 months of that (12 months on steroids) I ask d to start on IVIG. This happens this week. I am told it is a tough road for me due to all the added layers of complexity

2 Replies

  • Not an easy road, thinking of you and best wishes.

  • Hi, I've been on IVIG for several years with no issues, as long as you have a very slow infusion rate and plenty of water you should be fine. Good luck.

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