Coverage for revolade

[wjoyful]

I’ve had ITP now for 6 months and so far fails on ivig and prednesone.

I go to see a hematologist finally but only one time because the only one my doctor could get to see me is far to get to. So I was going to ask him if I could try revolade but there are two problems. One I have an enlarged heart and I am taking heart meds and two my insurance won’t cover it and it’s 2300 a month which is more than I make a month. Is it covered in the uk? How do you all that take it a Ford it or do you get help from a government agency. Don’t really know what to do because I’m running out of options and I just found s job that I don’t have to climb layers anymore and I don’t want to have my spleen out.

[LifeafterITP]

In the UK Revolade (Eltrombopag) is funded by the National Health Service to people who have failed to respond to first line treatments. My haematologist discussed removing my spleen (after first doing an Indium test to check my spleen is the problem) or giving me a daily Revolade tablet. I opted to keep my spleen and take the Revolade. I have been taking it for the last 3 years and it has kept my platelets at a safe level and allowed me to have a normal active live without any real side effects. Like any treatment it will not work or be suitable for everyone with ITP or other conditions.

I am fortunate I have the NHS and Revolade, without both of them my life would be very different.

I do hope you find a suitable affordable treatment and l’m sure your haematologist will have a solution for you. Take care.

[prudencepayes]

Hi Wjoyful. I'm so sorry to hear that you are having these problems. I am taking revolade but in the UK we don't have to get insurance cover because the National Health Service provides free health care for all citizens. We do realise how very lucky we are.

There are many other ITP treatments that you could investigate such as Rituximab infusions, or the drugs azathioprine or mycophenalate mofetil. perhaps you could discuss those options with your doctor?

Good luck. Do let us know how its going.

[wjoyful in reply to prudencepayes]

Thank you so much for the info. I’ll write the names down and ask him

[JJMcLaren]

Sometimes the drug companies have discounts or even free meds if you Google it online.