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Professor Graham Hughes' Blog January 2018
[u]BLOG : January 2018[/u]
January 2018 is proving a dark, rather depressing start to the year. A number of our team have been hit by the ‘flu’ epidemic sweeping the country. Added to which, the sun has made only rare appearances so far. Last week I gave a lecture to colleagues in Cambridge.
[u]BLOG : January 2018[/u]
January 2018 is proving a dark, rather depressing start to the year. A number of our team have been hit by the ‘flu’ epidemic sweeping the country. Added to which, the sun has made only rare appearances so far. Last week I gave a lecture to colleagues in Cambridge.
MaryF
Administrator
in
Hughes Syndrome APS Forum
7 years ago
🔎 Lung Clinic
Well seen my lung doctor 👩⚕️ and the decided the going to stop ✋ my maintenance antibiotic’s as they don’t believe you can suffer as many infections as I have. I.e new infection every 3 to 4 weeks. Well I told them septic events can happen quicker than I can make appointments to see them. But what
Well seen my lung doctor 👩⚕️ and the decided the going to stop ✋ my maintenance antibiotic’s as they don’t believe you can suffer as many infections as I have. I.e new infection every 3 to 4 weeks. Well I told them septic events can happen quicker than I can make appointments to see them. But what
Hidden
in
Lung Conditions Community Forum
7 years ago
Sinusitis and bronchitis and cough that won't go away
Hi all...hope everybody is doing well. I have had sinusitis and bronchitis and cough since Oct 1st 2017...no fever, night sweats or weight loss. I just finished 3 ivig infusions and have 3 more schedule due to my IGg being low. The cough is mostly tight and congested and other times I can move it
Hi all...hope everybody is doing well. I have had sinusitis and bronchitis and cough since Oct 1st 2017...no fever, night sweats or weight loss. I just finished 3 ivig infusions and have 3 more schedule due to my IGg being low. The cough is mostly tight and congested and other times I can move it
Ladydi49
in
CLL Support
7 years ago
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Annual Patient Conference videos (USA)
The Myositis Organization (a US based forum) has links on the front page for the annual Myositis Patient Conference. The presentations are on YouTube, so easy to watch. Some are just the screens used in the presentation and some include the video of the presentation as well. There is much good info
The Myositis Organization (a US based forum) has links on the front page for the annual Myositis Patient Conference. The presentations are on YouTube, so easy to watch. Some are just the screens used in the presentation and some include the video of the presentation as well. There is much good info
MAuk
in
Myositis UK
7 years ago
Hasminoto's, GERD, and Lupus
I was diagnosed last week with Hashimoto's, and it was completely unexpected. I had ultrasounds done, by my rheumatologist's request, and the doctor who performed the ultrasounds told me I had Hashimoto's. He told me to speak with my rheumatologist and will most likely have more blood work done, and
I was diagnosed last week with Hashimoto's, and it was completely unexpected. I had ultrasounds done, by my rheumatologist's request, and the doctor who performed the ultrasounds told me I had Hashimoto's. He told me to speak with my rheumatologist and will most likely have more blood work done, and
Golobolbol
in
Thyroid UK
7 years ago
Going Crazy!
My 11yr old was diagnosed with ITP Nov 29 with a count of 0. Was admitted into All Childrens hospital and given 2 IVIG treatments that brought numbers up to 35....that was great! But has now dropped to 1 and has been holding at 1 for 3 weeks now. Put on a 4 day dose of steroids that did absolutely nothing
My 11yr old was diagnosed with ITP Nov 29 with a count of 0. Was admitted into All Childrens hospital and given 2 IVIG treatments that brought numbers up to 35....that was great! But has now dropped to 1 and has been holding at 1 for 3 weeks now. Put on a 4 day dose of steroids that did absolutely nothing
Chickensmom
in
ITP Support Association
7 years ago
I don’t have to eat my hat!
Repeat ANA, ANCA and
immunoglobulin
today. Also a C3 and C4, shall have to look those ones up unless anyone can enlighten me? I know I had ANA, IG and rheum factor done in September, so assume they were OK then. So I shan’t panic, this seems like a responsible thing to check.
Repeat ANA, ANCA and
immunoglobulin
today. Also a C3 and C4, shall have to look those ones up unless anyone can enlighten me? I know I had ANA, IG and rheum factor done in September, so assume they were OK then. So I shan’t panic, this seems like a responsible thing to check.
Soraya_PMR
in
PMRGCAuk
7 years ago
Toddler - acute? Chronic? Slow progress
My 13 month old was dx with itp with platelets at just 1k about 6 weeks ago. Ivig x2 was not successful and we have been on a steroid for about 5 weeks now. Took awhile but saw a jump from 1k to 15k then slow until we made it to 30k. Saw a very small drop when weaning back on his steroid and then a big
My 13 month old was dx with itp with platelets at just 1k about 6 weeks ago. Ivig x2 was not successful and we have been on a steroid for about 5 weeks now. Took awhile but saw a jump from 1k to 15k then slow until we made it to 30k. Saw a very small drop when weaning back on his steroid and then a big
Zzbb
in
ITP Support Association
7 years ago
Igm levels
I read that almost everyone diagnosed with PBC has an elevated Igm level. I am curious to know if that is true? I have elevated ALP and 24.3 on an AMA - M2, but actually have an Igm level in the 60’s which is the very low end of the reference range.
I read that almost everyone diagnosed with PBC has an elevated Igm level. I am curious to know if that is true? I have elevated ALP and 24.3 on an AMA - M2, but actually have an Igm level in the 60’s which is the very low end of the reference range.
Dwaffle16
in
PBC Foundation
7 years ago
May be starting to get somewhere...
This led to all my
immunoglobulin
levels being checked and all coming back below range. IgA 0.20 (0.8 - 4.0 g/L) IgG 3.65 (5.5 - 16.5 g/L) IgM 0.24 (0.4 - 2.0 g/L) I’m not sure how significant the low levels are but My GP is referring me to an Immunologist.
This led to all my
immunoglobulin
levels being checked and all coming back below range. IgA 0.20 (0.8 - 4.0 g/L) IgG 3.65 (5.5 - 16.5 g/L) IgM 0.24 (0.4 - 2.0 g/L) I’m not sure how significant the low levels are but My GP is referring me to an Immunologist.
TheMaybeGirl
in
Foggy's "Invisible Illness" Support
7 years ago
where do I go from here, help from the experts please.
I am having the following on 8th January 2018 at 8.10am TFT's serum free T4 level serum t3 level thyroid peroxidase antibody autoimmunity profile
immunoglobulin
Some responses on here have been mixed, that I should be on medication and others have said as my TSH is normal I shouldn't.
I am having the following on 8th January 2018 at 8.10am TFT's serum free T4 level serum t3 level thyroid peroxidase antibody autoimmunity profile
immunoglobulin
Some responses on here have been mixed, that I should be on medication and others have said as my TSH is normal I shouldn't.
Peanut31
in
Thyroid UK
7 years ago
Chronic ITP
My wife suffering from ITP since Mar 2012. Plt count below 50000 with steroide. She stoped all medicines in Jan 2015 to Apr 2017 till that we not had any child, 5 year marriage life. In Apr 17 we start treatment for ITP again to become parent. Our PLT count was 40000 before treatment in Apr 17. My doctor
My wife suffering from ITP since Mar 2012. Plt count below 50000 with steroide. She stoped all medicines in Jan 2015 to Apr 2017 till that we not had any child, 5 year marriage life. In Apr 17 we start treatment for ITP again to become parent. Our PLT count was 40000 before treatment in Apr 17. My doctor
jangirdinesh
in
ITP Support Association
7 years ago
Bronchiectasis and Haemophilius Influenza Vaccination
Mum also has had
immunoglobulin
treatment sporadically as she was diagnosed non Hodgkins 3 years ago and sees the haematology dept twice yearly (and finished her only cycle of chemo back in Sept 2014).
Mum also has had
immunoglobulin
treatment sporadically as she was diagnosed non Hodgkins 3 years ago and sees the haematology dept twice yearly (and finished her only cycle of chemo back in Sept 2014).
Hidden
in
Lung Conditions Community Forum
7 years ago
Newbie: Not felt right for Decades. CFS or hypo thyroid or both? Advice needed on action please!
I remember him saying I had '
immunoglobulin
g' but not much else, except that I had enough thyroxine for now, but as my body was killing off my thyroid I would need medication in the future. In 1999 after I had had my third baby, I was started on Levothyroxine.
I remember him saying I had '
immunoglobulin
g' but not much else, except that I had enough thyroxine for now, but as my body was killing off my thyroid I would need medication in the future. In 1999 after I had had my third baby, I was started on Levothyroxine.
Clover29
in
Thyroid UK
7 years ago
Living with Behcet's Syndrome for 22yrs
Hello every one, I live in the U.S.A. I have a great doctor. I was diagnosed @ 18 yrs old in November 1995. Nobody knew what I had or what to do until I found a new Dr. just being hired by my insurance. His name Dr. Andrew Nguyen. The first thing he did was start me on Remicade infusions on February
Hello every one, I live in the U.S.A. I have a great doctor. I was diagnosed @ 18 yrs old in November 1995. Nobody knew what I had or what to do until I found a new Dr. just being hired by my insurance. His name Dr. Andrew Nguyen. The first thing he did was start me on Remicade infusions on February
FRNSCGRL27
in
Behçet's UK
7 years ago
Equivocal AMA
I have chronic severe daily nausea with many other chronic issues such as burning urination. I am in so much pain on a regular basis that I am unable to participate in normal life activities. My Aunt was recently diagnosed with PBC which got me wondering about myself. I am only 24 and have had an elevated
I have chronic severe daily nausea with many other chronic issues such as burning urination. I am in so much pain on a regular basis that I am unable to participate in normal life activities. My Aunt was recently diagnosed with PBC which got me wondering about myself. I am only 24 and have had an elevated
Dwaffle16
in
PBC Foundation
7 years ago
Leukeran (Chlorambucil) Rash?
In May of this year, I was diagnosed with Stage III CLL, and then a CLL specialist bumped that to Stage IV. In August, I started a course of monthly treatments with Gazyva and IVIg, and then 70mg of Leukeran at 15-day intervals. In November I began itching with each round of Leukeran, and then the itch
In May of this year, I was diagnosed with Stage III CLL, and then a CLL specialist bumped that to Stage IV. In August, I started a course of monthly treatments with Gazyva and IVIg, and then 70mg of Leukeran at 15-day intervals. In November I began itching with each round of Leukeran, and then the itch
Smedley54
in
CLL Support
7 years ago
Ukrainian led research into thyroid
http://www.resonantfm.com/laser-treatment-of-hypothyroidism-part-ii/ The human data on red and near infrared light treatment of hypothyroidism mostly falls into two categories. The low power output non-pulsed series of studies which I have discussed here and the pulsed studies with much higher peak
http://www.resonantfm.com/laser-treatment-of-hypothyroidism-part-ii/ The human data on red and near infrared light treatment of hypothyroidism mostly falls into two categories. The low power output non-pulsed series of studies which I have discussed here and the pulsed studies with much higher peak
marsaday
in
Thyroid UK
7 years ago
immunoglobulin replacement therapy
I have an immunology appointment on Monday with a view to me starting
immunoglobulin
replacement treatment as I keep getting chest and sinus infections. My low
immunoglobulin
levels are caused by rituximab. Has anyone had this treatment? did it work?
I have an immunology appointment on Monday with a view to me starting
immunoglobulin
replacement treatment as I keep getting chest and sinus infections. My low
immunoglobulin
levels are caused by rituximab. Has anyone had this treatment? did it work?
Mooka
in
Vasculitis UK
7 years ago
IVIG
Hi all I recently had my second of 3 ivig infusions as I have had sinusitis and bronchitis for almost 3 months. Currently I'm finally feeling better and no side effects. My main issue is and has been for years is shortness of breath which I'm thinking is due to enlarged lymph nodes in my lungs and
Hi all I recently had my second of 3 ivig infusions as I have had sinusitis and bronchitis for almost 3 months. Currently I'm finally feeling better and no side effects. My main issue is and has been for years is shortness of breath which I'm thinking is due to enlarged lymph nodes in my lungs and
Ladydi49
in
CLL Support
7 years ago
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