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Mixed news from the CLL-VR study into SARS-Cov-2 vaccination in chronic lymphocytic leukemia
A pre-proof letter in the journal Cancer Cell was released on 6 May, to report on the latest findings of the Birmingham CLL-VR study determining antibody and cellular immune responses after 3rd and 4th SARS-CoV-2 vaccine doses in CLL patients . It contains encouraging news for many CLL patients and
A pre-proof letter in the journal Cancer Cell was released on 6 May, to report on the latest findings of the Birmingham CLL-VR study determining antibody and cellular immune responses after 3rd and 4th SARS-CoV-2 vaccine doses in CLL patients . It contains encouraging news for many CLL patients and
CLLerinOz
Volunteer
in
CLL Support
2 years ago
Kidney Transplant Recipients Benefit from fourth COVID 19 Vacine Dose
In a case series, 92 KTRs from 3 French university hospitals had antispike
immunoglobulin
G (IgG) titers less than 143 binding antibody units (BAU) per mL at 1 month after a third dose.
In a case series, 92 KTRs from 3 French university hospitals had antispike
immunoglobulin
G (IgG) titers less than 143 binding antibody units (BAU) per mL at 1 month after a third dose.
Graham49
in
Kidney Transplant Patient Support
2 years ago
Possibility of wrong diagnosis Osteporosis Be Aware
Back in October was diagnosed with severe Osteoporosis, fractured a vertebrae stood at the kitchen sink. My T-scores were -2.7 hip and 4.8 spine. I was diagnosed over the phone following a Dexa scan. I was so shocked as this was all out of the blue. The doctor prescribed me Alendronic Acid. As I
Back in October was diagnosed with severe Osteoporosis, fractured a vertebrae stood at the kitchen sink. My T-scores were -2.7 hip and 4.8 spine. I was diagnosed over the phone following a Dexa scan. I was so shocked as this was all out of the blue. The doctor prescribed me Alendronic Acid. As I
Daisi124
in
Bone Health and Osteoporosis UK
2 years ago
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Have diagnosis now
Got a letter from consultant now and it is confirmed that I have alcohol related cirrhosis. Consultant said "The key here though is not so much how much scarring there is in the liver, but how the liver is functioning, and on your liver blood tests your liver is functioning pretty well at present.
Got a letter from consultant now and it is confirmed that I have alcohol related cirrhosis. Consultant said "The key here though is not so much how much scarring there is in the liver, but how the liver is functioning, and on your liver blood tests your liver is functioning pretty well at present.
eileenet49
in
British Liver Trust
2 years ago
Low platelets
My platelets range from 20,000 to 50,000 the kasg 7 years. My spleen is 2x the size if my liver. I also have advanced cirrhosis which has been stable. Hematologist tried ivig therapy which got me to 50,000 for 2 to 3 weeks, but that did not last long. Any suggestions on any natural ways to raise or at
My platelets range from 20,000 to 50,000 the kasg 7 years. My spleen is 2x the size if my liver. I also have advanced cirrhosis which has been stable. Hematologist tried ivig therapy which got me to 50,000 for 2 to 3 weeks, but that did not last long. Any suggestions on any natural ways to raise or at
AlleyBoy
in
CLL Support
2 years ago
How careful do I need to be when on IVIGs??
Hi all, for our next cycle I will be given IVIGs in an attempt to suppress my NK cells which we’ve found are in the high range. I won’t be taking steroids/intralipids, just the IVIG infusions. My question is around just how careful I need to be when on the immune suppression treatment?? Our doctor
Hi all, for our next cycle I will be given IVIGs in an attempt to suppress my NK cells which we’ve found are in the high range. I won’t be taking steroids/intralipids, just the IVIG infusions. My question is around just how careful I need to be when on the immune suppression treatment?? Our doctor
Bistbee
in
Fertility Network UK
2 years ago
Immunoglobulins
My nurse asked me to do an
immunoglobulin
test among others before my Rituximab infusion. The paper says igm igg and some more and then the latter B. What are they and what do they show? Thanks
My nurse asked me to do an
immunoglobulin
test among others before my Rituximab infusion. The paper says igm igg and some more and then the latter B. What are they and what do they show? Thanks
ks1966
in
NRAS
2 years ago
Booster recs after 5 vaccine administration snd Evusheld
Hi I have relapsed CLL and immune globulin Deficency. I had no antibody response to 4 separate Pfizer vaccinations 12/28/20, 1/20/21, 4/30/21 and 5/20/21. I get IVIG and had some antibodies on 8/20/21 I received vacation # 5 FULL Moderna 11/23/21 and had a response of 600 on a scale of 0-2500. I received
Hi I have relapsed CLL and immune globulin Deficency. I had no antibody response to 4 separate Pfizer vaccinations 12/28/20, 1/20/21, 4/30/21 and 5/20/21. I get IVIG and had some antibodies on 8/20/21 I received vacation # 5 FULL Moderna 11/23/21 and had a response of 600 on a scale of 0-2500. I received
skipro
in
CLL Support
2 years ago
Preparing for FTET - anybody else doing immunes?
Hello everyone, I am back here after a 2 year hiatus! I needed some off after my 7 rounds of egg collections. I am now preparing for embryo transfer at the grand age of 45. I'm so old in the ferility world that my clinic is requesting me to do a comprehensive health check before allowing me to transfer
Hello everyone, I am back here after a 2 year hiatus! I needed some off after my 7 rounds of egg collections. I am now preparing for embryo transfer at the grand age of 45. I'm so old in the ferility world that my clinic is requesting me to do a comprehensive health check before allowing me to transfer
Dogpark
in
Fertility Network UK
2 years ago
Swollen optic nerves - both sides
Has anyone had swollen optic nerves? I noticed a misty area in my left eye. My optometrist sent me straight to ER. My spinal fluid level is good - 16. 2 CT scans were negative, MRI showed nothing relevant. I do not have headaches or other symptoms. Except my eyes feel full. They think not
Has anyone had swollen optic nerves? I noticed a misty area in my left eye. My optometrist sent me straight to ER. My spinal fluid level is good - 16. 2 CT scans were negative, MRI showed nothing relevant. I do not have headaches or other symptoms. Except my eyes feel full. They think not
Jane424
in
PMRGCAuk
2 years ago
NIGHT SWEATS, LUNG INFECTION, AND IMMUNE SYSTEM
I realize there are multiple issues here, but I was wanting some input. Feb 4 I tested positive and had been sick with sore throat and bad head cold for three days. Got the Monoclonal Infusion on the 5th, and over three weeks had decreasing symptoms until totally gone. I tested Negative twelve days
I realize there are multiple issues here, but I was wanting some input. Feb 4 I tested positive and had been sick with sore throat and bad head cold for three days. Got the Monoclonal Infusion on the 5th, and over three weeks had decreasing symptoms until totally gone. I tested Negative twelve days
wizzard166
in
CLL Support
2 years ago
Five years of IVF: this is what I learnt
Dearest all, I promised myself that once my journey was over, I would share what I wish I had known before embarking on this rollercoaster - all the brutal lessons I have learnt over a heartbreaking five-year journey that involved five egg collections, numerous transfers and miscarriages. Please remember
Dearest all, I promised myself that once my journey was over, I would share what I wish I had known before embarking on this rollercoaster - all the brutal lessons I have learnt over a heartbreaking five-year journey that involved five egg collections, numerous transfers and miscarriages. Please remember
Seren0119
in
Fertility Network UK
2 years ago
Finally more thyroid results! Is this Hashi's?
as well as my peroxidase antibodies but I can't see any mention of T3 and T4 and I don't really understand the other set of results under the
immunoglobulin
level heading.
as well as my peroxidase antibodies but I can't see any mention of T3 and T4 and I don't really understand the other set of results under the
immunoglobulin
level heading.
rustymoon88
in
Thyroid UK
2 years ago
Did anyone have MGUS progress into CLL, and after treatment for CLL, did your MGUS improve or no longer exist?
Hi I'm new to the CLL community. My name is Vicki. I was diagnosed with M.G.U.S. (Monoclonal Gammopathy of Undetermined Significance) 15 years ago. It is an abnormal protein (M protein) in the blood and a precancerous condition to Multiple Myeloma, Lymphoma, CLL etc. I was diagnosed in October 2021
Hi I'm new to the CLL community. My name is Vicki. I was diagnosed with M.G.U.S. (Monoclonal Gammopathy of Undetermined Significance) 15 years ago. It is an abnormal protein (M protein) in the blood and a precancerous condition to Multiple Myeloma, Lymphoma, CLL etc. I was diagnosed in October 2021
Luv2Craft
in
CLL Support
2 years ago
Can an enlarged spleen be related to an undiagnosed liver problem
His blood tests have come back all clear apart from a slight dip in his
immunoglobulin
count which was slightly low. Hes just had a bone marrow biopsy and we need to wait for the results. Very grateful for any help.
His blood tests have come back all clear apart from a slight dip in his
immunoglobulin
count which was slightly low. Hes just had a bone marrow biopsy and we need to wait for the results. Very grateful for any help.
Chelseachelsea
in
British Liver Trust
3 years ago
Did anyone have MGUS progress into CLL, and after treatment for CLL, did your MGUS improve or no longer exist?
Hi I'm new to the CLL community. My name is Vicki. I was diagnosed with M.G.U.S. (Monoclonal Gammopathy of Undetermined Significance) 15 years ago. It is an abnormal protein (M protein) in the blood and a precancerous condition to Multiple Myeloma, Lymphoma, CLL etc. I was diagnosed in October 2021
Hi I'm new to the CLL community. My name is Vicki. I was diagnosed with M.G.U.S. (Monoclonal Gammopathy of Undetermined Significance) 15 years ago. It is an abnormal protein (M protein) in the blood and a precancerous condition to Multiple Myeloma, Lymphoma, CLL etc. I was diagnosed in October 2021
Luv2Craft
in
CLL America Support
2 years ago
Venetoclax+Rituximab OR Acalabrutinib - What is the best choice?
Hi All, At my last appointment with my consultant I was told that I was nearing the need for treatment for my relapsed CLL. Quick History Diagnosed 2009 W&W till 2017 then FCR for 6 months - achieved MRD Negative Came out of remission March 2021, but now TP53 Variation (I assume that
Hi All, At my last appointment with my consultant I was told that I was nearing the need for treatment for my relapsed CLL. Quick History Diagnosed 2009 W&W till 2017 then FCR for 6 months - achieved MRD Negative Came out of remission March 2021, but now TP53 Variation (I assume that
Rich316
in
CLL Support
2 years ago
Venetoclax: The Final Stretch……Do You Have A Uric Acid Problem
I’ve just finished my tenth year since my Stage IV diagnosis of CLL and my questions today are about the incidence of gout in patients who have been in various forms of treatment. Early on, my Uric Acid was only an issue in case that tumor lysis syndrome was an outcome of the treatment. Later on
I’ve just finished my tenth year since my Stage IV diagnosis of CLL and my questions today are about the incidence of gout in patients who have been in various forms of treatment. Early on, my Uric Acid was only an issue in case that tumor lysis syndrome was an outcome of the treatment. Later on
KevinCLLITP
in
CLL Support
2 years ago
Acalabruitinib and Obinutuzumab
Acalabrutinib Dr is suggesting adding Obinutuzumab would like to know more about it. The Acalabrutinib is my 3rd BTK inhibitors I started with Ibrutinib and had many side effects including afib which lead to an ablation procedure Then LOXO 305 which caused me serious liver problems recently all
Acalabrutinib Dr is suggesting adding Obinutuzumab would like to know more about it. The Acalabrutinib is my 3rd BTK inhibitors I started with Ibrutinib and had many side effects including afib which lead to an ablation procedure Then LOXO 305 which caused me serious liver problems recently all
Porter01
in
CLL Support
2 years ago
Anybody using Arizona Health Care Cost Containment System (AHCCCS)
Hi is anybody using AHCCCS in Arizona to get medications for CLL and IVIG treatments?
Hi is anybody using AHCCCS in Arizona to get medications for CLL and IVIG treatments?
pragnar
in
CLL Support
2 years ago
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