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Hypomyelination and congenital cataract
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Started hospice
My dad has had a significant decline over the past three weeks since seeing my dad’s oncologist. We had a petscan that showed an advancement into three new bones and the old cancer that was “sleeping” has woken up. Zytiga never worked. About two weeks ago my dad started sleeping 15-20 hours a day
My dad has had a significant decline over the past three weeks since seeing my dad’s oncologist. We had a petscan that showed an advancement into three new bones and the old cancer that was “sleeping” has woken up. Zytiga never worked. About two weeks ago my dad started sleeping 15-20 hours a day
lgutman
in
Advanced Prostate Cancer
19 days ago
apixaban and hematuria
Has anyone else had this issue? I have now had second serious episode of hematuria ( gross blood in my urine ) that was initially diagnosed as likely UTI, but later not confirmed by tests, and have been told it’s likely a result of my taking blood thinner. I am curious 🤨. My blood work showed small
Has anyone else had this issue? I have now had second serious episode of hematuria ( gross blood in my urine ) that was initially diagnosed as likely UTI, but later not confirmed by tests, and have been told it’s likely a result of my taking blood thinner. I am curious 🤨. My blood work showed small
37Polly
in
Atrial Fibrillation Support
19 days ago
HAS ANYONE EVER TRIED ELECTRICAL STIMULATION OF A TUMOR?
I'm experimenting with an EMS (muscle exercise machine that uses electrodes and electrical stimulation for muscle growth and healing) on a collection of swollen lymph glands on my left pelvis (probably cancerous - feels like a mass more than a collection of lymph nodes...waiting for CT results and oncologist
I'm experimenting with an EMS (muscle exercise machine that uses electrodes and electrical stimulation for muscle growth and healing) on a collection of swollen lymph glands on my left pelvis (probably cancerous - feels like a mass more than a collection of lymph nodes...waiting for CT results and oncologist
Jsbach1953
in
Advanced Prostate Cancer
20 days ago
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BNT324/DB-1311 Receives Fast Track Designation From FDA for mCRPC
Fast track designation has been granted by the FDA to the antibody-drug conjugate (ADC) BNT324/DB-1311 to potentially treat patients with unresectable advanced or metastatic castration-resistant prostate cancer (mCRPC) whose disease had progressed on or after standard systemic regimens.1 The next-generation
Fast track designation has been granted by the FDA to the antibody-drug conjugate (ADC) BNT324/DB-1311 to potentially treat patients with unresectable advanced or metastatic castration-resistant prostate cancer (mCRPC) whose disease had progressed on or after standard systemic regimens.1 The next-generation
God_Loves_Me
in
Advanced Prostate Cancer
20 days ago
Advice on my Situation
Just finished my first year on AS. My initial biopsy and the most recent one were both downgraded by Johns Hopkins.
Most recent biopsy findings from JH:
Gleason 3+3: Two cores (30%,40%) Gleason 3+3: Two cores (5%,60%) My intitial MRI last year was graded as a Pirad 5. My second MRI
Just finished my first year on AS. My initial biopsy and the most recent one were both downgraded by Johns Hopkins.
Most recent biopsy findings from JH:
Gleason 3+3: Two cores (30%,40%) Gleason 3+3: Two cores (5%,60%) My intitial MRI last year was graded as a Pirad 5. My second MRI
tcott54
in
Prostate Cancer Network
21 days ago
First recurrence, which coctail to choose?
Dear Ladies, My worst nightmare came true. I had some indications on CT scan already in January, that something is cooking. In June CA125 was increased to 100 and another scan was done that confirmed more activity incl some new ascites in abdomen and 1,5 cm hyperdensity in liver. We were then a
Dear Ladies, My worst nightmare came true. I had some indications on CT scan already in January, that something is cooking. In June CA125 was increased to 100 and another scan was done that confirmed more activity incl some new ascites in abdomen and 1,5 cm hyperdensity in liver. We were then a
Beatyourself
in
My Ovacome
21 days ago
5FU/CAL, any experience? (5 fluorouracil/calcipotriene)
Just wondering if anyone has had treatment for actinic keratosis on the nose or face? I just started treatment for multiple AK's on the nose with FU/CAL cream (5FU-Calcipotriene compound) I have read that it activates lymphocytes and wondering if anyone using this compound has experienced any changes
Just wondering if anyone has had treatment for actinic keratosis on the nose or face? I just started treatment for multiple AK's on the nose with FU/CAL cream (5FU-Calcipotriene compound) I have read that it activates lymphocytes and wondering if anyone using this compound has experienced any changes
Meatloaf9
in
MPN Voice
21 days ago
Raised Thyroglobulin ab
Hi. I had a total thyroidectomy and radio iodine treatment in 2016 for Papillary Ca. I've been having annual monitoring since with no concerns. My most recent blood test shows normal thyroglobulin but raised thyroglobulin antibodies at 40. My latest is TSH 0.7 and T4 in normal range. What I want to know
Hi. I had a total thyroidectomy and radio iodine treatment in 2016 for Papillary Ca. I've been having annual monitoring since with no concerns. My most recent blood test shows normal thyroglobulin but raised thyroglobulin antibodies at 40. My latest is TSH 0.7 and T4 in normal range. What I want to know
Hattiem
in
Thyroid Cancer Support
21 days ago
New knowledge about neuroendocrine prostate cancer
CDC7, I have always hated that guy since I watched Star Wars...or was it another guy? "These results nominate CDC7 inhibition as a therapeutic strategy to constrain lineage plasticity, as well as to effectively treat NE tumors de novo or after transformation. As simurosertib clinical efficacy trials
CDC7, I have always hated that guy since I watched Star Wars...or was it another guy? "These results nominate CDC7 inhibition as a therapeutic strategy to constrain lineage plasticity, as well as to effectively treat NE tumors de novo or after transformation. As simurosertib clinical efficacy trials
Maxone73
in
Advanced Prostate Cancer
21 days ago
Diagnosed 4+3
Hello all, Yesterday I was diagnosed with prostate cancer & would appreciate any guidance. Awaiting to be scheduled for PSMA PET Scan PSA 18.987 MRI - 1 Lesion 9mm Pathology: 4+3 A. Right Posterior Medial Adenocarcinoma; Gleason Score 6(3+3); Grade Group 1; Tumor measures 8 mm
Hello all, Yesterday I was diagnosed with prostate cancer & would appreciate any guidance. Awaiting to be scheduled for PSMA PET Scan PSA 18.987 MRI - 1 Lesion 9mm Pathology: 4+3 A. Right Posterior Medial Adenocarcinoma; Gleason Score 6(3+3); Grade Group 1; Tumor measures 8 mm
bl2307
in
Prostate Cancer Network
22 days ago
yoday
went to surgeon for consult. I enjoyed talking to him and his candor. I was told by him radiation treatment would be better choice due to complications for two other surgery's. i have had bowel resection and hernia sergery with mesh. We called the radiologist to get things going with him. Need to
went to surgeon for consult. I enjoyed talking to him and his candor. I was told by him radiation treatment would be better choice due to complications for two other surgery's. i have had bowel resection and hernia sergery with mesh. We called the radiologist to get things going with him. Need to
Laguy01
in
Prostate Cancer Network
22 days ago
Verzenio alone
I was wondering if anyone has used Verzenio after Ibrance and Fulvestrant have failed? I did get a couple good years on the Ibrance/Fulvestrant I am ER+ HR- and have used all my hormone treatment options and am facing IV Chemo. However my Dr. says Verzenio may be an option. ‘Thanks for any encouraging
I was wondering if anyone has used Verzenio after Ibrance and Fulvestrant have failed? I did get a couple good years on the Ibrance/Fulvestrant I am ER+ HR- and have used all my hormone treatment options and am facing IV Chemo. However my Dr. says Verzenio may be an option. ‘Thanks for any encouraging
DinNorCal
in
SHARE Metastatic Breast Cancer
22 days ago
Preparation for mammogram
I’ve had an appointment letter for my first mammogram. Always been apprehensive about this as heard it’s painful and know lady who needed physiotherapy on her shoulder afterwards. I have PMR to contend with now and whilst the afternoon slot should help, wondered if there is anything I can do make
I’ve had an appointment letter for my first mammogram. Always been apprehensive about this as heard it’s painful and know lady who needed physiotherapy on her shoulder afterwards. I have PMR to contend with now and whilst the afternoon slot should help, wondered if there is anything I can do make
Body_bonkers
in
PMRGCAuk
22 days ago
side effects
i have prostate cancer with gleson scale of 8. Trying to figure out if radiation or surgery is the best course of action. Can any body talk about their experiences with erectial issues and inconsonance. I am 58 and looking st the future.
i have prostate cancer with gleson scale of 8. Trying to figure out if radiation or surgery is the best course of action. Can any body talk about their experiences with erectial issues and inconsonance. I am 58 and looking st the future.
Laguy01
in
Prostate Cancer Network
23 days ago
mr. Smith
just got diagnosed with prostate cancer with gleson scale of 8. I have had CAT scan and bone scan, they came back good. My urologist is suggesting surgery or possibly surgery, radiation and hormone therapy. The radiologist says proton or IMTR radiation plus hormone treatment. I have appointment to
just got diagnosed with prostate cancer with gleson scale of 8. I have had CAT scan and bone scan, they came back good. My urologist is suggesting surgery or possibly surgery, radiation and hormone therapy. The radiologist says proton or IMTR radiation plus hormone treatment. I have appointment to
Laguy01
in
Prostate Cancer Network
23 days ago
And breathe …..
On a blood test from my GP 3 weeks ago the results showed blasts, where previously I hadn’t had any. Obviously this caused me a great deal of worry. I had blood taken on Tuesday and spoke to haematologist this afternoon. He said he’d looked at the blood film on both tests himself and couldn’t see anything
On a blood test from my GP 3 weeks ago the results showed blasts, where previously I hadn’t had any. Obviously this caused me a great deal of worry. I had blood taken on Tuesday and spoke to haematologist this afternoon. He said he’d looked at the blood film on both tests himself and couldn’t see anything
lizzziep
in
MPN Voice
23 days ago
Post Chemo Scan Consultation - Good News
Hello wonderful women I saw the Oncologist yesterday, 5 weeks after my post chemo scan, which was clear! What a long time to wait! Some ladies will know that I was staged at 2B because they were concerned that it was cancer cells making the ovary stick to the sigmoid colon. But 'pathologically' the
Hello wonderful women I saw the Oncologist yesterday, 5 weeks after my post chemo scan, which was clear! What a long time to wait! Some ladies will know that I was staged at 2B because they were concerned that it was cancer cells making the ovary stick to the sigmoid colon. But 'pathologically' the
Emcee71
in
My Ovacome
24 days ago
CT scan
My CT scan is showing metastases of lung, heart and liver, and suspicious lymph nodes! I’m currently on Faslodex for three years for right Lung Tumor from MBC. Please pray for a miracle! God bless all of you ladies! I see the oncologist on Friday. Susie
My CT scan is showing metastases of lung, heart and liver, and suspicious lymph nodes! I’m currently on Faslodex for three years for right Lung Tumor from MBC. Please pray for a miracle! God bless all of you ladies! I see the oncologist on Friday. Susie
Likes
in
SHARE Metastatic Breast Cancer
24 days ago
cocoacandy
Being treated for metastatic breast cancer with monthly injections of Faslodex . I have the pungent oder ( as I call it ) for at least a week after the injections . Like many others on here the doctor said they never heard of this symptom . I am wondering how others with it are describing the smell
Being treated for metastatic breast cancer with monthly injections of Faslodex . I have the pungent oder ( as I call it ) for at least a week after the injections . Like many others on here the doctor said they never heard of this symptom . I am wondering how others with it are describing the smell
Cocoacandy
in
SHARE Metastatic Breast Cancer
24 days ago
Rant warning......
Morning my friends. So I had an appointment at the kellgren centre last week a follow up on last year. Went well came out with a plan for my local rheumy which was nerve tests on feet due to altered sensation, chase up over due dexa scan and to start tacrolimus. Bloods and urine were done with the results
Morning my friends. So I had an appointment at the kellgren centre last week a follow up on last year. Went well came out with a plan for my local rheumy which was nerve tests on feet due to altered sensation, chase up over due dexa scan and to start tacrolimus. Bloods and urine were done with the results
Spanielmadlady
in
LUPUS UK
24 days ago
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