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Hypomyelination and congenital cataract
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COVID VACCINE.?
I had PMR from 2013-2018 when I had the all clear. Posting this new information because i have had all my covid vaccines, but since the last 2 boosters I have had aching shoulders and legs pain. My doctor after blood tests because my cp level is 13 I have PMR again and has put me on pred.again 15mgs
I had PMR from 2013-2018 when I had the all clear. Posting this new information because i have had all my covid vaccines, but since the last 2 boosters I have had aching shoulders and legs pain. My doctor after blood tests because my cp level is 13 I have PMR again and has put me on pred.again 15mgs
Zampalion
in
PMRGCAuk
3 months ago
diarrhoea and constipation
I’ve had ibs since in my thirties now 69.I had a flare up Friday ,terrible pains but had job to go to loo.The next day my stools were lose,and I began to feel better yesterday had a job to go again.even though I fell like I want to go today,can’t .I go most days .Pains have come back,which is relieved
I’ve had ibs since in my thirties now 69.I had a flare up Friday ,terrible pains but had job to go to loo.The next day my stools were lose,and I began to feel better yesterday had a job to go again.even though I fell like I want to go today,can’t .I go most days .Pains have come back,which is relieved
mousey1
in
IBS Network
6 months ago
Iron Panel Results
I've just received the results for my blood test today. TSH: 3.46 T4: 11.5 (7.86 - 14.41) Serum Iron: 14.7 umol/L (8.8-27) Serum Transferrin: 2.9 g/L (2.2 -4) Percentage Iron Saturation: 22% Serum TIBC: 65 umol/L (45 - 70) RBC: 4.89 (3.8 - 5.8) From my research online, it seems my iron saturation
I've just received the results for my blood test today. TSH: 3.46 T4: 11.5 (7.86 - 14.41) Serum Iron: 14.7 umol/L (8.8-27) Serum Transferrin: 2.9 g/L (2.2 -4) Percentage Iron Saturation: 22% Serum TIBC: 65 umol/L (45 - 70) RBC: 4.89 (3.8 - 5.8) From my research online, it seems my iron saturation
katyy94x
in
Thyroid UK
6 months ago
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Active B12 test results
Hi I had been unwell for sometime and wasn't sure what it was. I was very anxious and had terrible tummy trouble & hideous indegestion. Dr order Bloods and they all came back normal except Magnesium and potassium and I think Folate? for which i took a course of meds. The Potassium and Folate seemed
Hi I had been unwell for sometime and wasn't sure what it was. I was very anxious and had terrible tummy trouble & hideous indegestion. Dr order Bloods and they all came back normal except Magnesium and potassium and I think Folate? for which i took a course of meds. The Potassium and Folate seemed
Doeyditdot
in
Pernicious Anaemia Society
6 months ago
Median PFS for FCR treated CLL patients with IGHV-M was 14.6 years vs 4.2 years for patients with IGHV-UM. V+O and I+R look to be superior
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
AussieNeil
Partner
in
CLL Support
3 months ago
Hip pain from faslodex?
I did post this on a reply to another post but I’m not sure if anyone will see it……..does anyone have hip pain after faslodex. . I have been on this for a handful of years and the hip pain just started within the last 4 months. No problems at the injection site. This is specially my hip. Initially it
I did post this on a reply to another post but I’m not sure if anyone will see it……..does anyone have hip pain after faslodex. . I have been on this for a handful of years and the hip pain just started within the last 4 months. No problems at the injection site. This is specially my hip. Initially it
Fight2016
in
SHARE Metastatic Breast Cancer
8 months ago
Elevated Gamma-GT and gallbladder stone
I posted a while back about how my GGT value was increasing over time and with every repeat blood test it was elevated further. All other enzyme values in normal range, I had an ultrasound this week and it showed one gallbladder stone. I have no symptoms of gallbladder issues - no abdominal pain etc
I posted a while back about how my GGT value was increasing over time and with every repeat blood test it was elevated further. All other enzyme values in normal range, I had an ultrasound this week and it showed one gallbladder stone. I have no symptoms of gallbladder issues - no abdominal pain etc
kjs81
in
British Liver Trust
3 months ago
confused about treatment options
I keep going back and forth between various treatment options. In the next week or so, I’m having appointments with a surgeon (tomorrow) and a radiation oncologist (February 6). Basic story: cancer on left side of prostate and in my pelvic lymph nodes (“hyper avid lymph node in the left external iliac
I keep going back and forth between various treatment options. In the next week or so, I’m having appointments with a surgeon (tomorrow) and a radiation oncologist (February 6). Basic story: cancer on left side of prostate and in my pelvic lymph nodes (“hyper avid lymph node in the left external iliac
Jpburns
in
Advanced Prostate Cancer
8 months ago
Just need some advice on self injecting.
Just need to come up with a safe plan for what to do about my B12 injections. After several years of symptoms like chronic fatigue, brain fog, dizziness, pins and needles, sore lips, dry skin, breathlessness etc I was finally diagnosed with a B12 deficiency in 2011. My B12 level was 154. By this
Just need to come up with a safe plan for what to do about my B12 injections. After several years of symptoms like chronic fatigue, brain fog, dizziness, pins and needles, sore lips, dry skin, breathlessness etc I was finally diagnosed with a B12 deficiency in 2011. My B12 level was 154. By this
Hayley31
in
Pernicious Anaemia Society
6 months ago
Lactose free Levo
Good morning,I'm wondering if anyone has experience of switching to lactose free Levothyroxene and it helping with fatigue specifically? I have always been somewhat dairy/cows milk intolerant. I get all the usual symptoms but over the past few years have discovered what I can manage (butter, hard cheese
Good morning,I'm wondering if anyone has experience of switching to lactose free Levothyroxene and it helping with fatigue specifically? I have always been somewhat dairy/cows milk intolerant. I get all the usual symptoms but over the past few years have discovered what I can manage (butter, hard cheese
Dahliasanddaisies
in
Thyroid UK
6 months ago
Ercp.
My mother is cirrhosis patient and due to minor bleeding spot under her stomach doctor recommend ERCP to heal the bleeding spots. I am worried because i search about ercp and google shows horrible things. Is it safe to do ercp? Please do reply
My mother is cirrhosis patient and due to minor bleeding spot under her stomach doctor recommend ERCP to heal the bleeding spots. I am worried because i search about ercp and google shows horrible things. Is it safe to do ercp? Please do reply
Javi234
in
British Liver Trust
3 months ago
Fibro my wifes diagnosis
Hi there my wife had the diagnosis yesterday fibromyalgia as she had been having pain everywhere for about 2 years My wife around 5 years ago had a tumour removed from her tummy which when the hospital removed it found it to be nearly 5 stone in weight hence why my wife felt that it was the repercussions
Hi there my wife had the diagnosis yesterday fibromyalgia as she had been having pain everywhere for about 2 years My wife around 5 years ago had a tumour removed from her tummy which when the hospital removed it found it to be nearly 5 stone in weight hence why my wife felt that it was the repercussions
Ang4john
in
Fibromyalgia Action UK
8 months ago
FDA Clearance of FK-PC101, a Novel Personalized Prostate Cancer Immunotherapy
not for stage 4 fighters...but still... "The trial, CELLVX-230, is a randomized, multicenter, open-label study of irradiated autologous cellular vaccine in men with high-risk prostate cancer post-radical prostatectomy. It will be conducted through a partnership with the Society of Urologic Oncology
not for stage 4 fighters...but still... "The trial, CELLVX-230, is a randomized, multicenter, open-label study of irradiated autologous cellular vaccine in men with high-risk prostate cancer post-radical prostatectomy. It will be conducted through a partnership with the Society of Urologic Oncology
Maxone73
in
Advanced Prostate Cancer
8 months ago
some PBC general pieces of information
Facts at-a-Glance Primary Biliary Cholangitis (PBC) affects mostly women, but more men are now being diagnosed. Primary Biliary Cholangitis (PBC) is a chronic disease in which the small bile ducts in the liver become injured and inflamed and are eventually destroyed. Researchers estimate that in the
Facts at-a-Glance Primary Biliary Cholangitis (PBC) affects mostly women, but more men are now being diagnosed. Primary Biliary Cholangitis (PBC) is a chronic disease in which the small bile ducts in the liver become injured and inflamed and are eventually destroyed. Researchers estimate that in the
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Update on dads visit with his MO today
Took dad to his MO today, the appointment I was dreading, I was thinking they would say, were done since he has suspected LMD . This was not the case at all. His labs were all better than they have ever been, psa was 2 and kidney functions, testosterone everything was better than they have ever been
Took dad to his MO today, the appointment I was dreading, I was thinking they would say, were done since he has suspected LMD . This was not the case at all. His labs were all better than they have ever been, psa was 2 and kidney functions, testosterone everything was better than they have ever been
Radtech40
in
Advanced Prostate Cancer
8 months ago
Retzius Sparing surgeon recommendations
Hello everyone. I’m 49 years old. I was diagnosed with PCa in 2018. It was determined Gleason 3+3 after biopsy, so we decided on Active Surveillance. I checked PSA religiously every 6 months and it hovered around 5 the whole time since the diagnosis. Last year during summer I believe I started experiencing
Hello everyone. I’m 49 years old. I was diagnosed with PCa in 2018. It was determined Gleason 3+3 after biopsy, so we decided on Active Surveillance. I checked PSA religiously every 6 months and it hovered around 5 the whole time since the diagnosis. Last year during summer I believe I started experiencing
UnexpectedPC
in
Prostate Cancer Network
8 months ago
HRT after Thyroid Cancer
Hi everyone this is my first post. I had papillary thyroid cancer 12 years ago when I was 26. Radical neck dissection full thyroidectomy dozen lymph nodes removed. I've been on a rollercoaster with thyroxine for all that time struggling to feel well. Just got a new diagnosis of significant endometriosis
Hi everyone this is my first post. I had papillary thyroid cancer 12 years ago when I was 26. Radical neck dissection full thyroidectomy dozen lymph nodes removed. I've been on a rollercoaster with thyroxine for all that time struggling to feel well. Just got a new diagnosis of significant endometriosis
DarkStar85
in
Thyroid UK
8 months ago
Add Nubeqa to Orgovyx?
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
vintage42
in
Advanced Prostate Cancer
8 months ago
MRI Results Help Please!
Hope everyone is doing well. I got my MRI results today and was looking for help with some of the jargon please. I know there is a lady who is very good with the medical terminology. Googled serosal disease and that didn't sound good. Dr told me it's significant endo, adeno, bowl stuck to ovaries. But
Hope everyone is doing well. I got my MRI results today and was looking for help with some of the jargon please. I know there is a lady who is very good with the medical terminology. Googled serosal disease and that didn't sound good. Dr told me it's significant endo, adeno, bowl stuck to ovaries. But
DarkStar85
in
Endometriosis UK
8 months ago
asking for advice
brief synopsis Cervical cancer 1985 with surgery and radiation treatment Urostomy 1991 Artificial sphincter 2003 Urostomy revised and most of small bowel cut out because of adhesions leaving only 1.2m 2006 Colostomy formed 2007 Constant mucus from rectum In 2023 developed high inflammatory markers
brief synopsis Cervical cancer 1985 with surgery and radiation treatment Urostomy 1991 Artificial sphincter 2003 Urostomy revised and most of small bowel cut out because of adhesions leaving only 1.2m 2006 Colostomy formed 2007 Constant mucus from rectum In 2023 developed high inflammatory markers
Imakelace
in
Pelvic Pain Support Network
8 months ago
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