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Hypomyelination and congenital cataract
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Peripheral neuropathy and neurology's response
Hi. I've posted a couple of times recently so I'll start with a precise and then my ask! I was diagnosed with Vitamin B12 deficiency in 2015 - I wasn't tested for PA. I have self-injected for 4 years (hydroxocobalamin) - and got my life back by injecting every other day (sometimes increasing to daily
Hi. I've posted a couple of times recently so I'll start with a precise and then my ask! I was diagnosed with Vitamin B12 deficiency in 2015 - I wasn't tested for PA. I have self-injected for 4 years (hydroxocobalamin) - and got my life back by injecting every other day (sometimes increasing to daily
LizWilsonpa
in
Pernicious Anaemia Society
7 days ago
Bloating for 2 months
Hi, does anyone suffer with bloating but all the time? For the last couple of months my stomach has felt bloated most days and more recently I have had a gurgling stomach, mucus in my poo, lower back pain, urgency and acid reflux. I am currently having bloods, stool samples etc to rule out other things
Hi, does anyone suffer with bloating but all the time? For the last couple of months my stomach has felt bloated most days and more recently I have had a gurgling stomach, mucus in my poo, lower back pain, urgency and acid reflux. I am currently having bloods, stool samples etc to rule out other things
Starshine83
in
IBS Network
7 days ago
Body jerking/spasms
Since finishing radiotherapy in August for lung cancer, I have these uncontrollable body jerking throughout the night, arms, legs, head etc. Also, twice now, I've fallen to the floor jerking on and off for nearly 30 minutes. I'm conscious, can hear things, but cannot stop the body movements. Has anyone
Since finishing radiotherapy in August for lung cancer, I have these uncontrollable body jerking throughout the night, arms, legs, head etc. Also, twice now, I've fallen to the floor jerking on and off for nearly 30 minutes. I'm conscious, can hear things, but cannot stop the body movements. Has anyone
olwman
in
The Roy Castle Lung Cancer Foundation
6 months ago
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Functional Gerd/Heartburn
Good day everyone, has anyone ever researched this topic ? I was diagnosed with AIG few months back, started EOD injections and recently developed what feels like heartburn, which I have never had before. The pain is usually in bottom chest area and is accompanied with flatulence and burping. I read
Good day everyone, has anyone ever researched this topic ? I was diagnosed with AIG few months back, started EOD injections and recently developed what feels like heartburn, which I have never had before. The pain is usually in bottom chest area and is accompanied with flatulence and burping. I read
Canadian77
in
Pernicious Anaemia Society
7 days ago
Upper left pain and soreness
Hi …. Does anyone else suffer from upper left quarter / centre pain and discomfort. Side almost feels sore (almost like muscular soreness). Constant belching and flatulence, sometimes loose or constipated. Been going on for 4 months. Had colonoscopy and Abdominal and Pelvic CT scan, all clear but symptoms
Hi …. Does anyone else suffer from upper left quarter / centre pain and discomfort. Side almost feels sore (almost like muscular soreness). Constant belching and flatulence, sometimes loose or constipated. Been going on for 4 months. Had colonoscopy and Abdominal and Pelvic CT scan, all clear but symptoms
Dh19
in
IBS Network
7 days ago
Confused about potential ibs c with overflow diagnosis
So after having a constant list of other symptoms unrelated to bowels i have finally spoke to a gastro who is assuming i have ibs c with overflow. I am on the waiting list for a colonoscopy so this potential diagnosis has been made on a 5 min phone call not an in person appointment. My confusion comes
So after having a constant list of other symptoms unrelated to bowels i have finally spoke to a gastro who is assuming i have ibs c with overflow. I am on the waiting list for a colonoscopy so this potential diagnosis has been made on a 5 min phone call not an in person appointment. My confusion comes
Confused1806
in
IBS Network
7 days ago
bowel blockage
Had bowel resection 6 years ago . Iliostomy bag and then successful reversal . Had an appendectomy about a year later, because my appendix were stuck to my ileostomy scar internally. I had pain and went to the hospital, but my surgery wasn’t emergency. I was scheduled about two weeks later for the appendectomy
Had bowel resection 6 years ago . Iliostomy bag and then successful reversal . Had an appendectomy about a year later, because my appendix were stuck to my ileostomy scar internally. I had pain and went to the hospital, but my surgery wasn’t emergency. I was scheduled about two weeks later for the appendectomy
Gardeningbuff
in
Bowel Disease Support
7 days ago
History of continued low and fluctuating iron levels - advice?
hi folks. Just had my latest bloods back from helpful GP (he’s actually happy for me to sort my thyroid with Roseway! TSH barely exists) My iron is pretty abysmal tho .. Last time i had my transferrin saturation index done it was 40% so bang on mid way. January I think it was. It’s now dropped to19%
hi folks. Just had my latest bloods back from helpful GP (he’s actually happy for me to sort my thyroid with Roseway! TSH barely exists) My iron is pretty abysmal tho .. Last time i had my transferrin saturation index done it was 40% so bang on mid way. January I think it was. It’s now dropped to19%
Starseed56
in
Thyroid UK
8 days ago
pelvic pain
Has anyone tried MRI Defecography tests for rectum and anal pain? It’s a first suggested to me. Don’t know if this may help diagnose this pain.
Has anyone tried MRI Defecography tests for rectum and anal pain? It’s a first suggested to me. Don’t know if this may help diagnose this pain.
Sissy8-1-2019
in
Pelvic Pain Support Network
8 days ago
Will Existing Drugs Stop Cancer's Bone Spread? I don't know but it's driving me crazy!
Just because I cannot know which are the two repurposed drugs that seem to have such great results with metastasis. The chief researcher is Neta Erez who has great reputation in research about bone metastasis. I am inclined to think about Ivermectin as one of the possible components of the cocktail,
Just because I cannot know which are the two repurposed drugs that seem to have such great results with metastasis. The chief researcher is Neta Erez who has great reputation in research about bone metastasis. I am inclined to think about Ivermectin as one of the possible components of the cocktail,
Maxone73
in
Fight Prostate Cancer
8 days ago
Sufficient Investigation?
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
My brother is a bit of an ostrich, over his prostate problems. He ignored his poor urinary flow for years, and despite my repeated advice which he ignored, he subsequently had to be admitted to the emergency department due to significant obstruction. His GFR had fallen dangerously to 10. He was in
Nordman
in
Advanced Prostate Cancer
6 months ago
retroperitoneal mass
Hi,I have been diagnosed with deep infiltrative endometriosis and adenomyosis. On my MRI is also shows a sub rectal mass and a 8cm retroperitoneal mass. My ca125 blood tests have been between 72-94 but that could be caused by the endometriosis. I had a biopsy of the mass on thursday and anxiously waiting
Hi,I have been diagnosed with deep infiltrative endometriosis and adenomyosis. On my MRI is also shows a sub rectal mass and a 8cm retroperitoneal mass. My ca125 blood tests have been between 72-94 but that could be caused by the endometriosis. I had a biopsy of the mass on thursday and anxiously waiting
Eclair88
in
Endometriosis UK
8 days ago
So much stool
saw colorectal 3 days ago was told had so many hard stool pebbles and piles and anal tags just given again 15 suppositories And told needed to be admitted but wasn’t allowed this has gone on since last Oct Pain some days unbearable I take Lactulose Fibogel ducosate what can I do Also told me
saw colorectal 3 days ago was told had so many hard stool pebbles and piles and anal tags just given again 15 suppositories And told needed to be admitted but wasn’t allowed this has gone on since last Oct Pain some days unbearable I take Lactulose Fibogel ducosate what can I do Also told me
Perrie46
in
Bowel Disease Support
8 days ago
little advice from fellow Coeliac’s
hi Was wondering if any other coeliac out there has had similar experience/symptons? I got diagnosed with Coeliac disease about 4 years ago I follow the diet, have separate toaster, chopping board etc I’ve been suffering with terrible upper tummy and back passage cramps, blood and yellow mucus
hi Was wondering if any other coeliac out there has had similar experience/symptons? I got diagnosed with Coeliac disease about 4 years ago I follow the diet, have separate toaster, chopping board etc I’ve been suffering with terrible upper tummy and back passage cramps, blood and yellow mucus
RJane83
in
Gluten Free Guerrillas
9 days ago
B12 and Folate
hi everyone I’ve now decided after lots of help from the very knowledgeable people on this forum that I need Vit supplements Can I take B12 and Folate? My folate is really quite low but also need B12 Thanks in advance
hi everyone I’ve now decided after lots of help from the very knowledgeable people on this forum that I need Vit supplements Can I take B12 and Folate? My folate is really quite low but also need B12 Thanks in advance
wolthebuilder
in
Thyroid UK
9 days ago
Advice on IBD
Hiya I was just wondering if other plp have experienced similar symptoms to me. I first became quite ill in dec last year where I woke up feeling sick, shaking and a lot of pain in my stomach. Went to hospital quite a few times in a lot of pain and they thought it was gastrorientis and then thought
Hiya I was just wondering if other plp have experienced similar symptoms to me. I first became quite ill in dec last year where I woke up feeling sick, shaking and a lot of pain in my stomach. Went to hospital quite a few times in a lot of pain and they thought it was gastrorientis and then thought
Buddybella
in
Crohn's and Colitis Support
9 days ago
labs results that contraindicate one another
Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was 845 four years ago). New doctor had me test for IF antibodies immediately after giving me a B12 injection which was negative and she stated
Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was 845 four years ago). New doctor had me test for IF antibodies immediately after giving me a B12 injection which was negative and she stated
Katep66875
in
Pernicious Anaemia Society
9 days ago
Pain on the right side near groin.
Hi there I have IBS D but for a while now I've been having pain in my lower right side near groin. It comes and goes and I have back ache on the lower right side. I had a colonoscopy 2 year ago all was ok just a polyp removed.Does anyone experience the same pain. Thank you 😊
Hi there I have IBS D but for a while now I've been having pain in my lower right side near groin. It comes and goes and I have back ache on the lower right side. I had a colonoscopy 2 year ago all was ok just a polyp removed.Does anyone experience the same pain. Thank you 😊
daydream1
in
IBS Network
10 days ago
Has anyone had stomach pain since being on Foster Nexthaler?
I'm having really bad stomach pain at night. My GP seems to think it an ulcer but 2 rounds of Lanzoprazole then Omeprazole have not helped. It's getting so I'm scared to eat and sleep. While I was up in the middle of the night last night, I suddenly thought that the onset of my stomach issues has coincided
I'm having really bad stomach pain at night. My GP seems to think it an ulcer but 2 rounds of Lanzoprazole then Omeprazole have not helped. It's getting so I'm scared to eat and sleep. While I was up in the middle of the night last night, I suddenly thought that the onset of my stomach issues has coincided
Kimmmmmmmmmmm
in
Asthma Community Forum
10 days ago
Active b12 versus serum b12
My Medichecks active b12 is 63.1 (range is 37.5-188) but my serum b12 tested at my gp surgery shows top of range. Should I supplement? I also have hypothyroidism. Thank you
My Medichecks active b12 is 63.1 (range is 37.5-188) but my serum b12 tested at my gp surgery shows top of range. Should I supplement? I also have hypothyroidism. Thank you
Eton
in
Pernicious Anaemia Society
11 days ago
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