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Myelofibrosis- GVHD graft, versus, host, disease.
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
3 months ago
Myelofibrosis - GVHD - graft, versus, host, disease
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
3 months ago
Restart
I completed couch to 5k a few years ago & loved the experience - I was then addicted to running, to the freedom, how it helped clear my mind, distressed me, made me fitter, I could go on . However in November 2022 I got the worst news ever- I had cancer - by December 25th I was laid in hospital after
I completed couch to 5k a few years ago & loved the experience - I was then addicted to running, to the freedom, how it helped clear my mind, distressed me, made me fitter, I could go on . However in November 2022 I got the worst news ever- I had cancer - by December 25th I was laid in hospital after
MissTwiggy
Graduate
in
Couch to 5K
10 months ago
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thrush in mouth
I have had antibiotics lately and have thrush in my mouth. I have been prescribed Nystan to take 4 times a day. The nurse /practioner said also rinse my mouth after using my steroid inhaler.The problem is do I rinse and spit or rinse and swallow? Swallowing is so much easier
I have had antibiotics lately and have thrush in my mouth. I have been prescribed Nystan to take 4 times a day. The nurse /practioner said also rinse my mouth after using my steroid inhaler.The problem is do I rinse and spit or rinse and swallow? Swallowing is so much easier
Karate-Kid1
in
Lung Conditions Community Forum
6 months ago
Bile Acid Diarrhoea
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
Whitesugar
in
IBS Network
8 months ago
Rosacea due to B12 deficiency?
Hi, I have been diagnosed with vitamin b12 deficiency and starting the loading doses after firstly being prescribed oral. I had felt unwell for at least a year and had lots of the usual symptoms but I developed a rare form of rosacea (rosacea fulminans) at the end of last year which the GPs had not ever
Hi, I have been diagnosed with vitamin b12 deficiency and starting the loading doses after firstly being prescribed oral. I had felt unwell for at least a year and had lots of the usual symptoms but I developed a rare form of rosacea (rosacea fulminans) at the end of last year which the GPs had not ever
Bebe74
in
Pernicious Anaemia Society
8 months ago
Anxiety
Good evening all, last week I faced panic attack, after anytime In my mind thinking my heart is palpitations and there is something worng with my heart after that I went gp for consult and I shared him everything , after gp told me you have anxiety and he suggested me cipralex medicine, I want knows
Good evening all, last week I faced panic attack, after anytime In my mind thinking my heart is palpitations and there is something worng with my heart after that I went gp for consult and I shared him everything , after gp told me you have anxiety and he suggested me cipralex medicine, I want knows
Rajlover
in
Anxiety and Depression Support
6 months ago
Prostatic Artery Embolization
I’m 67 year old and have been suffering with BPH for years. Don’t want to do TURP or lasers. I’m interested in doing PAE. Has anyone had this procedure done. Does it work. I had a cystoscope and the urologist found a medial lobe at the neck of the bladder. Would PAE work if the blockage is located there
I’m 67 year old and have been suffering with BPH for years. Don’t want to do TURP or lasers. I’m interested in doing PAE. Has anyone had this procedure done. Does it work. I had a cystoscope and the urologist found a medial lobe at the neck of the bladder. Would PAE work if the blockage is located there
Roenken
in
Men's Health Forum
10 months ago
WHAT ARE THE CURRENT EFFECTIVE SALVAGE TREATMENTS IN CASE OF A REOCCURRENCE IF YOU HAVE HAD SBRT,IMRT, WITH PLACEMENT OF GOLD BARS?
It appears that if you had SBRT or like myself IMRT and you were given
gold markers
you cannot do any of the following
salvage treatments in case of a reoccurrence
: Proton therapy, Hifu, Tulsa Pro , Etc. Is this true???? Again a significant fact left out before treatment...
In addition
It appears that if you had SBRT or like myself IMRT and you were given
gold markers
you cannot do any of the following
salvage treatments in case of a reoccurrence
: Proton therapy, Hifu, Tulsa Pro , Etc. Is this true???? Again a significant fact left out before treatment...
In addition
JWS13
in
Advanced Prostate Cancer
10 months ago
Trochanteric Bursitis Pain Relief
After six weeks of serious hip pain finally orthopedic doctor diagnosed bursitis. Treatment take hydrocodone for pain and a lidocaine gel topically which also has a long acting ingredient. Given stretching exercises to do at home for the muscle that is next to the inflamed bursa. I have also started
After six weeks of serious hip pain finally orthopedic doctor diagnosed bursitis. Treatment take hydrocodone for pain and a lidocaine gel topically which also has a long acting ingredient. Given stretching exercises to do at home for the muscle that is next to the inflamed bursa. I have also started
Darkchocolate1
in
PMRGCAuk
2 years ago
anyone else feel wierd after discontinuing Piqray / Faslodex?
Hi all, my docs took me off Piqray and Faslodex a week ago. Since then I’ve had worse night sweats and diarrhea then when I was on the drugs! Plus a lingering headache and overall yucky feeling. I assumed it would resolve after a couple days but it’s been a full week. Has anyone else experienced that
Hi all, my docs took me off Piqray and Faslodex a week ago. Since then I’ve had worse night sweats and diarrhea then when I was on the drugs! Plus a lingering headache and overall yucky feeling. I assumed it would resolve after a couple days but it’s been a full week. Has anyone else experienced that
LDR1
in
SHARE Metastatic Breast Cancer
10 months ago
Reacting to piqray.
Don’t want to worry anyone, but just wanting to know if anyone has had this reaction to Piqray. I’m into my second week. On Piqray and Fulvestrant. At first I thought it was only my bottom, (left side) near site of injection, that was itchy. Then I started feeling a prickly feeling all over my body.
Don’t want to worry anyone, but just wanting to know if anyone has had this reaction to Piqray. I’m into my second week. On Piqray and Fulvestrant. At first I thought it was only my bottom, (left side) near site of injection, that was itchy. Then I started feeling a prickly feeling all over my body.
Timtam56
in
SHARE Metastatic Breast Cancer
10 months ago
double up
I have now seen a Gp re the bleeding piles and she’s confirmed they look sore I can confirm they feel sore I was incredibly anxious waiting to go into see her but calmed down a bit now I’am home so my question is doctor has now doubled up my fybogel to 2 a day that would help on days when I’am constipated
I have now seen a Gp re the bleeding piles and she’s confirmed they look sore I can confirm they feel sore I was incredibly anxious waiting to go into see her but calmed down a bit now I’am home so my question is doctor has now doubled up my fybogel to 2 a day that would help on days when I’am constipated
Poppyseed8
in
IBS Network
8 months ago
Recently started Acalabrutinib
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Healthgiddy
in
CLL Support
6 months ago
Latest vitamin and iron test results following last post.
Vitamin D 80.3 nmol/L (50-150) Folic Acid 12.3 ug/L (>2.7) Iron 21 umol/L (9-30) Transferrin 2.1 g/L 1 (1.7-3.4g/L) Transferrin Saturation 38% (16-55%) Ferretin 143 ug/L (20-300) Vitamin B12 873 ng/L (160-800) Advice as always appreciated. Thank you.
Vitamin D 80.3 nmol/L (50-150) Folic Acid 12.3 ug/L (>2.7) Iron 21 umol/L (9-30) Transferrin 2.1 g/L 1 (1.7-3.4g/L) Transferrin Saturation 38% (16-55%) Ferretin 143 ug/L (20-300) Vitamin B12 873 ng/L (160-800) Advice as always appreciated. Thank you.
Pawsedagain
in
Thyroid UK
8 months ago
Second opinion required
Had a lot of dental work done last year and kind of still going through recovery. I had two extracts, three temp bridges one perm bridge that was fitted in July, four composite fillings, cap then ended up with a root filling through the cap. My bridge is so uncomfortable still unable to eat properly
Had a lot of dental work done last year and kind of still going through recovery. I had two extracts, three temp bridges one perm bridge that was fitted in July, four composite fillings, cap then ended up with a root filling through the cap. My bridge is so uncomfortable still unable to eat properly
janetmtt
in
Dentistry Health Support
8 months ago
Continued Journey
I will be starting the prep for my Bone Marrow Transplant (June 27) Friday. I have 5 days of chemo starting Friday this week, with a rest day before the BMT. Apprehension has been growing in me but it is balanced by others that have successfully made this journey. Also, my Drs. And team give an
I will be starting the prep for my Bone Marrow Transplant (June 27) Friday. I have 5 days of chemo starting Friday this week, with a rest day before the BMT. Apprehension has been growing in me but it is balanced by others that have successfully made this journey. Also, my Drs. And team give an
FiArt12X
in
CLL Support
3 months ago
Struggling with abdominal cramps and bloating in the evenings and mornings
I'm recently diagnosed in September. I'm taking 200mg twice daily of mebeverine which helps with going to the toilet daily but I'm finding that I'm getting bad abdominal cramping and bloating in the evenings and the morning which then settles during the day, only to flare up again later on. Does anyone
I'm recently diagnosed in September. I'm taking 200mg twice daily of mebeverine which helps with going to the toilet daily but I'm finding that I'm getting bad abdominal cramping and bloating in the evenings and the morning which then settles during the day, only to flare up again later on. Does anyone
Jackrussellmum35
in
IBS Network
8 months ago
Buprenorphine and Nausea
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
davchar23
in
Restless Legs Syndrome
6 months ago
Oesophagus/Stomach issues - where to start?
My complaint has been going on for at least 10 years now and the symptoms get worse every year but I am unsure of how to proceed. My symptoms. Every intake of breath seems to increase the pressure in my oesophagus and every few seconds I have to either break the seal by flexing my throat to intake
My complaint has been going on for at least 10 years now and the symptoms get worse every year but I am unsure of how to proceed. My symptoms. Every intake of breath seems to increase the pressure in my oesophagus and every few seconds I have to either break the seal by flexing my throat to intake
hankpym
in
IBS Network
8 months ago
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