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friend has shingles - advice please
hi, Can I have some advice please. my friend who is a beautician is scheduled to do a facial & nails for me tomorrow. I’ve had chicken pox and her Dr has said she shouldn’t pass it in because it’s on her bottom and she won’t be touching it so in that respect it’s in a good place. Any thoughts? Thank
hi, Can I have some advice please. my friend who is a beautician is scheduled to do a facial & nails for me tomorrow. I’ve had chicken pox and her Dr has said she shouldn’t pass it in because it’s on her bottom and she won’t be touching it so in that respect it’s in a good place. Any thoughts? Thank
MalloryMoss
in
PMRGCAuk
6 months ago
what to do - advice please
afternoon all, one of my very occasional posts for some advice basically I am feeling rubbish! (Aren’t we all they say) This time last year I note that I was going down from 7mgs to 6.5mgs but put myself back up to 12 mgs because I was aching and then 15mgs, caught a mild dose of COVID as well, with
afternoon all, one of my very occasional posts for some advice basically I am feeling rubbish! (Aren’t we all they say) This time last year I note that I was going down from 7mgs to 6.5mgs but put myself back up to 12 mgs because I was aching and then 15mgs, caught a mild dose of COVID as well, with
Billiebobdog
in
PMRGCAuk
8 months ago
Recovery from colds/flu whilst on Adalimumab
Hello,I was diagnosed with Crohn's 18 months ago and have been on Adalimumab for the last 12 months. In that time I have managed to avoid colds/flu until a couple of weeks ago. Have felt quite unwell and presently doesn't seem to be ending. My question is really to other people who have a reduced immune
Hello,I was diagnosed with Crohn's 18 months ago and have been on Adalimumab for the last 12 months. In that time I have managed to avoid colds/flu until a couple of weeks ago. Have felt quite unwell and presently doesn't seem to be ending. My question is really to other people who have a reduced immune
UmaDaisy
in
Crohn's and Colitis Support
6 months ago
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Doxycycline long term use
Hi, I’m 11 months into my 15 month treatment for CLL. I’m on Ibrutinib with Venetoclax and it’s suited me well, and I’m really pleased that my bloods now appear to be normal. I’m also on Co-Trimoxazole antibiotic and Aciclovir antiviral to deal with any infections should they arise during my treatment
Hi, I’m 11 months into my 15 month treatment for CLL. I’m on Ibrutinib with Venetoclax and it’s suited me well, and I’m really pleased that my bloods now appear to be normal. I’m also on Co-Trimoxazole antibiotic and Aciclovir antiviral to deal with any infections should they arise during my treatment
Smiley60
in
CLL Support
8 days ago
Influenza A
So I contracted Influenza A and was pretty ill for 4 days but still not so good despite 6 days on Tamiflu. Wondering if anyone has 1 had influenza and how it went 2 if my decision to take Tamiflu for 10 instead of 5 days is reasonable ( my docs have always doubled the time for antibiotics for bacterial
So I contracted Influenza A and was pretty ill for 4 days but still not so good despite 6 days on Tamiflu. Wondering if anyone has 1 had influenza and how it went 2 if my decision to take Tamiflu for 10 instead of 5 days is reasonable ( my docs have always doubled the time for antibiotics for bacterial
skipro
in
CLL Support
12 days ago
Pneumonia vaccine
Has anyone over 65 received the Pneumonia vaccine-Prevnar 20? I have ET Jak2+ and it was suggested by my GP. I read somewhere that we have to be careful with vaccines. Thank you,
Has anyone over 65 received the Pneumonia vaccine-Prevnar 20? I have ET Jak2+ and it was suggested by my GP. I read somewhere that we have to be careful with vaccines. Thank you,
mbr8076
in
MPN Voice
6 months ago
Feel like giving up.
For unknown reasons other than we think Rituxumab is not working for you any more my medication was changed to Kevzera (Sarilulmab) in November. The work up checks were done and good to go apart from a Chest X Ray as I hadn't had one for a while. A shadow area was found on my lung with suspected
For unknown reasons other than we think Rituxumab is not working for you any more my medication was changed to Kevzera (Sarilulmab) in November. The work up checks were done and good to go apart from a Chest X Ray as I hadn't had one for a while. A shadow area was found on my lung with suspected
3LittleBirds2
in
NRAS
4 months ago
Wish me luck.
We are having our Thanksgiving dinner today (a day late) with my husband's side of the family. Last year we had Thanksgiving dinner with them and it turned out to be a Covid superspreader event. Ten out of the twelve people in attendance came down with Covid. The two that didn't had it a few months
We are having our Thanksgiving dinner today (a day late) with my husband's side of the family. Last year we had Thanksgiving dinner with them and it turned out to be a Covid superspreader event. Ten out of the twelve people in attendance came down with Covid. The two that didn't had it a few months
punkster
in
Anxiety and Depression Support
8 months ago
Arnica cream for jab reactions
Just posting in case it's useful to anyone else...🤞 I've posted previously about a hive style reaction I get after SC injections on my tummy. I've tried allsorts, including strong antihistamines and mild steroid cream, to ease the itch and calm the redness. I've now found that Arnica cream is the
Just posting in case it's useful to anyone else...🤞 I've posted previously about a hive style reaction I get after SC injections on my tummy. I've tried allsorts, including strong antihistamines and mild steroid cream, to ease the itch and calm the redness. I've now found that Arnica cream is the
ClaireWF1346
in
Pernicious Anaemia Society
24 days ago
Peg and Ear infection
Hi all! New to the forum, what a great community and resource. I was diagnosed with PV recently at age 53 and started a Pegasys a month ago, only 45 mcg every two weeks for a slow start. No initial side effects, but 10 days ago got a sudden ear infection that hasn’t responded to antibiotics. Fullness
Hi all! New to the forum, what a great community and resource. I was diagnosed with PV recently at age 53 and started a Pegasys a month ago, only 45 mcg every two weeks for a slow start. No initial side effects, but 10 days ago got a sudden ear infection that hasn’t responded to antibiotics. Fullness
Fabfam5
in
MPN Voice
6 months ago
Buprenorphine Depression Again
Hi All, As I have written before, I live in Brasil where the only access I have to Buprenorphine is in the form of a patch. And it is expensive. So when I was in California recently, I asked my neurologist to write a prescription for Buprenorphine in tablet form. With my insurance it is quite cheap.
Hi All, As I have written before, I live in Brasil where the only access I have to Buprenorphine is in the form of a patch. And it is expensive. So when I was in California recently, I asked my neurologist to write a prescription for Buprenorphine in tablet form. With my insurance it is quite cheap.
RiversW
in
Restless Legs Syndrome
24 days ago
Advice Yeast Infection
Hi everyone, I just got a yeast infection after so many years. I went to Dr. and they gave me 150 mg of Diflucan. I took it and after the first day I started to feel better. Now today is the fourth day and am starting to feel like it’s coming back. I also have been eating yogurt daily. Could it be just
Hi everyone, I just got a yeast infection after so many years. I went to Dr. and they gave me 150 mg of Diflucan. I took it and after the first day I started to feel better. Now today is the fourth day and am starting to feel like it’s coming back. I also have been eating yogurt daily. Could it be just
Jances13
in
Women's Health
24 days ago
Covid
Hi I’ve just tested positive for Covid . I’m on 5 mg of prednisone and 15 mg methotrexate. Is there any advice about how to manage meds while having Covid. I feel very achy and it feels like I’m having a flare. Thanjs in advance for any advice.
Hi I’ve just tested positive for Covid . I’m on 5 mg of prednisone and 15 mg methotrexate. Is there any advice about how to manage meds while having Covid. I feel very achy and it feels like I’m having a flare. Thanjs in advance for any advice.
Belfastman
in
PMRGCAuk
8 months ago
It's mortar and pestle time - Ginkgo update
Holland & Barrett have discontinued 30mg Ginkgo tablets, leaving 60mg and 120mg on the shelf. No more convenience for a 3 x 30mg dose. I tried a 120 but the increase in tinnitus which happens for me on dose day was uncomfortable so I won't be doing that again. It looks like more is not necessarily better
Holland & Barrett have discontinued 30mg Ginkgo tablets, leaving 60mg and 120mg on the shelf. No more convenience for a 3 x 30mg dose. I tried a 120 but the increase in tinnitus which happens for me on dose day was uncomfortable so I won't be doing that again. It looks like more is not necessarily better
Ray200
in
Tinnitus UK
27 days ago
Massachusetts Opioid Register Year 4 results
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
Joolsg
in
Restless Legs Syndrome
28 days ago
MSA-C with ataxia rebound
I have not been diagnosed as yet. A neurologist I am seeing is committed to finding out what is causing the symptoms. I was diagnosed with large fiber polyneuropathy with ataxia in 2021. Since then dysautonomia has presented itself. Exercise for balance has really helped but unfortunately my ataxia is
I have not been diagnosed as yet. A neurologist I am seeing is committed to finding out what is causing the symptoms. I was diagnosed with large fiber polyneuropathy with ataxia in 2021. Since then dysautonomia has presented itself. Exercise for balance has really helped but unfortunately my ataxia is
rideabike
in
Multiple System Atrophy Trust
8 months ago
Bursitis of toes & Steroid Injection
I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can as the base is soft & spongy. I had surgery Oct 22 for severe arthritis in the large toe & at first I feared it had spread. Two trips to GP (
I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can as the base is soft & spongy. I had surgery Oct 22 for severe arthritis in the large toe & at first I feared it had spread. Two trips to GP (
sarahsch
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Bursitis of the toes & Steroid Injection.
I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can as the base is soft & spongy. I had surgery Oct 22 for severe arthritis in the large toe & at first I feared it had spread. Two trips to GP (
I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can as the base is soft & spongy. I had surgery Oct 22 for severe arthritis in the large toe & at first I feared it had spread. Two trips to GP (
sarahsch
in
LUPUS UK
4 months ago
Tigger is bouncing around Winnie the Pooh, because he is happy his RLS is better
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasn’t 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasn’t 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
HipHop1972
in
Restless Legs Syndrome
1 month ago
Quinoric side effects
Hi all, I hope you’re keeping tip top as best you can. So, I have been on hydroxychloquine for 5 years this year. I’ve mostly been given the brand Quinoric which is increasingly upsetting my tummy. I already have gastrointestinal issues from endometriosis and the Lupus meds aggravate it. I understand
Hi all, I hope you’re keeping tip top as best you can. So, I have been on hydroxychloquine for 5 years this year. I’ve mostly been given the brand Quinoric which is increasingly upsetting my tummy. I already have gastrointestinal issues from endometriosis and the Lupus meds aggravate it. I understand
BloominUterus
in
LUPUS UK
6 months ago
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