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Haemolytic anaemia
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From Low to Extremely high Ferritin - inflammation?
After months of my ferritin level at 7 (about 10 months) last year in August I had another blood test and it leaped up to 534. My dr said that it was artificially high because he saw some inflammatory marker, (I can’t say which one it was). A year later, blood test found it is 391. I had no iron supplementation
After months of my ferritin level at 7 (about 10 months) last year in August I had another blood test and it leaped up to 534. My dr said that it was artificially high because he saw some inflammatory marker, (I can’t say which one it was). A year later, blood test found it is 391. I had no iron supplementation
Purplegirl2
in
Pernicious Anaemia Society
3 years ago
Low Hemoglobin
Wondering if anyone runs a low hemoglobin level ( without bleeding or low iron ) while on ibrutinib or other BTKs ? I have been running 11.7 and 11.8 Thanks
Wondering if anyone runs a low hemoglobin level ( without bleeding or low iron ) while on ibrutinib or other BTKs ? I have been running 11.7 and 11.8 Thanks
Davidcara
in
CLL Support
3 years ago
Failing many meds over the years.
I have failed so many meds over the many years I’ve had RA. Very seldom for one to last even a year. So much so that my doctor is going back and we are trying some over again. Well today he said he was gonna put me on Kineret. It’s a once a day shot. He are you ok giving yourself an injection a day
I have failed so many meds over the many years I’ve had RA. Very seldom for one to last even a year. So much so that my doctor is going back and we are trying some over again. Well today he said he was gonna put me on Kineret. It’s a once a day shot. He are you ok giving yourself an injection a day
precious123
in
NRAS
3 years ago
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Bllod Count Results
I have many of the symptoms of hypothyroidism and requested blood tests from my GP. The tests came back 'normal' though the Gp has asked to see me this week to discuss my symptoms. My results are detialed below though I don't see any specific tests for hypothyroidism. Would I expect hypo to show up in
I have many of the symptoms of hypothyroidism and requested blood tests from my GP. The tests came back 'normal' though the Gp has asked to see me this week to discuss my symptoms. My results are detialed below though I don't see any specific tests for hypothyroidism. Would I expect hypo to show up in
Gradge
in
Thyroid UK
3 years ago
TPO Antibodies
Hi I am new to this and wondering if anyone could shed any light. I've just had an autoimmune test and come back that I have TPO antibodies that are level 10.6. I also suffer with low haemoglobin levels, really bad leg aches etc Haematocrit 0.369 Mean cell haemoglobin level 25.1 pg Mean cell haemoglobin
Hi I am new to this and wondering if anyone could shed any light. I've just had an autoimmune test and come back that I have TPO antibodies that are level 10.6. I also suffer with low haemoglobin levels, really bad leg aches etc Haematocrit 0.369 Mean cell haemoglobin level 25.1 pg Mean cell haemoglobin
DMsentance
in
Thyroid UK
3 years ago
Tonsil stones if you have no tonsils
Does anyone know if you can get tonsil stones if you had your tonsils removed I have powered on here before I have went having tonsil throat issues for months now I have had severalll nw appts with the ENT I have now developed a really bad sis is issue and I fell like I have stones on my throat and my
Does anyone know if you can get tonsil stones if you had your tonsils removed I have powered on here before I have went having tonsil throat issues for months now I have had severalll nw appts with the ENT I have now developed a really bad sis is issue and I fell like I have stones on my throat and my
Crystalynn
in
Thyroid UK
3 years ago
Is this Garbage or truth?
Cobalamin therapy details. The 1000-μg dose begins repletion of stores (up to 150 μg is retained from that injection by most patients). The question is how much is retained by the body from a single 1000mcg injection. Is injecting less better if you suffer too many sides from 1000mcg so why not inject
Cobalamin therapy details. The 1000-μg dose begins repletion of stores (up to 150 μg is retained from that injection by most patients). The question is how much is retained by the body from a single 1000mcg injection. Is injecting less better if you suffer too many sides from 1000mcg so why not inject
WorkingProgress
in
Pernicious Anaemia Society
3 years ago
as anyone got Pagets disease of the bone
I have an underactive thyroid and for the last few years I have had high alkaline phosphatase in my blood. They always thought that was because I had low vitamin D I was given vitamin D supplements but they never increased my vitamin d level, I finally decided to take sublingual vit d plus vitamin
I have an underactive thyroid and for the last few years I have had high alkaline phosphatase in my blood. They always thought that was because I had low vitamin D I was given vitamin D supplements but they never increased my vitamin d level, I finally decided to take sublingual vit d plus vitamin
jojomac23
in
Thyroid UK
3 years ago
Terry nails
I'm a 23 year guy from india I've b12 and iron deficiency anemia. I commented on someone's post on Terry nails which was posted on pernicious anemia group and someone told me to post this question on thyroid group. Does Terry nail indicate thyroid problem ? Has anyone experienced Terry nails before
I'm a 23 year guy from india I've b12 and iron deficiency anemia. I commented on someone's post on Terry nails which was posted on pernicious anemia group and someone told me to post this question on thyroid group. Does Terry nail indicate thyroid problem ? Has anyone experienced Terry nails before
Akashrajput
in
Thyroid UK
3 years ago
Low folic acid advice
Hi, i have been having some light headedness in last week and have had a burning tongue for a couple of months. A blood test on Thursday revealed low folic acid and i have been put on 5mg folic acid for 3 months. I have come onto this forum as when i try and research low folic acid it seems to attach
Hi, i have been having some light headedness in last week and have had a burning tongue for a couple of months. A blood test on Thursday revealed low folic acid and i have been put on 5mg folic acid for 3 months. I have come onto this forum as when i try and research low folic acid it seems to attach
Jaid123
in
Pernicious Anaemia Society
3 years ago
Levothyroxine sodium oral solution to control thyroid function in a patient with hypothyroidism and celiac disease
How can it take over twelve years to get to an adequate dose? Yes, I recognise that Tirosint Sol was not available in 2007, but the failure even to consider gluten for so long is unforgivable. (Tirosint Sol seems limited to the USA at present. Certainly not heard of anyone in the UK getting it.) [
How can it take over twelve years to get to an adequate dose? Yes, I recognise that Tirosint Sol was not available in 2007, but the failure even to consider gluten for so long is unforgivable. (Tirosint Sol seems limited to the USA at present. Certainly not heard of anyone in the UK getting it.) [
helvella
Thyroid UK
in
Thyroid UK
3 years ago
Newly diagnosed with low b12
Hi, I am new here :) I went for a blood test to check fertility as I have PCOS. I had a call from my Dr a week later saying: - my B12 is concerningly low at: 70 - my Iron levels are great so I don’t have anemia or pernicious anemia I have been signed up for 6 B12 injections over 2 weeks (mon, weds
Hi, I am new here :) I went for a blood test to check fertility as I have PCOS. I had a call from my Dr a week later saying: - my B12 is concerningly low at: 70 - my Iron levels are great so I don’t have anemia or pernicious anemia I have been signed up for 6 B12 injections over 2 weeks (mon, weds
Squiggletree
in
Pernicious Anaemia Society
3 years ago
anaemia and hydroxyl and platelets
My platelets were 800 three months ago and have gradually been coming down and were 510. The last blood test said they were at 540 and my haemoglobin has come down to the level of anaemia. Surely the hydroxyl caused this but because my platelets have gone up by 30 she has upped my hydroxyl! I also don't
My platelets were 800 three months ago and have gradually been coming down and were 510. The last blood test said they were at 540 and my haemoglobin has come down to the level of anaemia. Surely the hydroxyl caused this but because my platelets have gone up by 30 she has upped my hydroxyl! I also don't
Hidden
in
MPN Voice
3 years ago
Is it normal to feel super tired after injection?
Hi guys, I was recently diagnosed with PA following 2 positive intrinsic factor antibody tests. I had my first injection of B12 a couple of days ago and have felt super tired and a bit nauseous since. Now I feel tired anyway most of the time, but its been worse this last couple of days. Is this normal
Hi guys, I was recently diagnosed with PA following 2 positive intrinsic factor antibody tests. I had my first injection of B12 a couple of days ago and have felt super tired and a bit nauseous since. Now I feel tired anyway most of the time, but its been worse this last couple of days. Is this normal
JSD100
in
Pernicious Anaemia Society
3 years ago
To take or not to take?
I was diagnosed with PMR and GCA in 2018 and have only managed to get to 5mgs of Preds without a flare. I have not seen the Rheumatologist for 18 months. When I last saw him he said I had to continue on Disprin 75 mg or I would have a stroke. My GP thinks I should stop them . Some time ago I went to
I was diagnosed with PMR and GCA in 2018 and have only managed to get to 5mgs of Preds without a flare. I have not seen the Rheumatologist for 18 months. When I last saw him he said I had to continue on Disprin 75 mg or I would have a stroke. My GP thinks I should stop them . Some time ago I went to
garden49
in
PMRGCAuk
3 years ago
Where do I get tested for Permicious Anaemia?
Hi all. Sorry you may be thinking I'm posting this on the wrong community but reason I am posting here is because it is about vitamin b12 and I know that is a huge topic when it comes to thyroid. I posted my results before on here, my thyroid and antibodies came out fine but by vitamin d and active V
Hi all. Sorry you may be thinking I'm posting this on the wrong community but reason I am posting here is because it is about vitamin b12 and I know that is a huge topic when it comes to thyroid. I posted my results before on here, my thyroid and antibodies came out fine but by vitamin d and active V
Hidden
in
Thyroid UK
3 years ago
non anaemic iron deficiency (low ferritin)
Anybody else have this? Did taking the ferrous sulfate help?
Anybody else have this? Did taking the ferrous sulfate help?
Brychni
in
NRAS
3 years ago
Possible coeliac?
I’ve just had some blood results back due to iron deficiency. I also had my first booster jab after loading dose for low B12. Iron is just back in range but results say that serum tissue triglutaminase is high and consistent with coeliac disease. Got an appointment with doctor next week but wondering
I’ve just had some blood results back due to iron deficiency. I also had my first booster jab after loading dose for low B12. Iron is just back in range but results say that serum tissue triglutaminase is high and consistent with coeliac disease. Got an appointment with doctor next week but wondering
MrsBRE
in
Pernicious Anaemia Society
3 years ago
Declining b12
Hi all, since my last post my Medichecks active b12 came in at 39, which is borderline. Doctors retested my serum b12 and it has come down from 209 to 190, when I actually started taking supplements! I fought my GP and had an intrinsic factor antibody test today (haven’t taken b12 since April 27th so
Hi all, since my last post my Medichecks active b12 came in at 39, which is borderline. Doctors retested my serum b12 and it has come down from 209 to 190, when I actually started taking supplements! I fought my GP and had an intrinsic factor antibody test today (haven’t taken b12 since April 27th so
CanIHaveYourJuiceBox
in
Pernicious Anaemia Society
3 years ago
Investigating the Influence of Excipients on the Stability of Levothyroxine Sodium Pentahydrate
There has been a tiny rivulet of papers questioning the formulation of levothyroxine products. Time and again, the papers identify problems with excipients of which a large proportion of real products contain at least one. I'm sure it is not the entire picture. But this rivulet has been flowing for
There has been a tiny rivulet of papers questioning the formulation of levothyroxine products. Time and again, the papers identify problems with excipients of which a large proportion of real products contain at least one. I'm sure it is not the entire picture. But this rivulet has been flowing for
helvella
Thyroid UK
in
Thyroid UK
3 years ago
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