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Haemolytic anaemia
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Acalabrutinib to treat CLL & AIHA
I have been on W&W since 2018 but in this last year have had four admissions to hospital with Auto Immune
Haemolytic
Anaemia
, all admissions required blood transfusions and I felt pretty poorly with breathlessness, fatigue and very low Hb.
I have been on W&W since 2018 but in this last year have had four admissions to hospital with Auto Immune
Haemolytic
Anaemia
, all admissions required blood transfusions and I felt pretty poorly with breathlessness, fatigue and very low Hb.
Wen_dy
in
CLL Support
7 months ago
Haematologist’s unsupportive B12 response
My own research brings up
haemolytic
anaemia
, another autoimmune disease where the immune system attacks red blood cells. Thank you all in advance 🙏☺️
My own research brings up
haemolytic
anaemia
, another autoimmune disease where the immune system attacks red blood cells. Thank you all in advance 🙏☺️
GoneWithTheWind1972
in
Pernicious Anaemia Society
3 months ago
Buscopan Injection For Colonoscopy
As anyone had a Buscopan injection before a colonoscopy, concerned as have AFib, Hypothyroidism and
Haemolytic
Anaemia
. Is it necessary to have one of these injections?
As anyone had a Buscopan injection before a colonoscopy, concerned as have AFib, Hypothyroidism and
Haemolytic
Anaemia
. Is it necessary to have one of these injections?
thyreoidea
in
Thyroid UK
10 months ago
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TSH 50.5
I have congenital
haemolytic
anaemia
( pyruvate kinase deficiency) with associated iron overload. I am 68 years old. Should I be having antibody tests? Which medication shoul I be on? Is there anything I can do to assist myself?
I have congenital
haemolytic
anaemia
( pyruvate kinase deficiency) with associated iron overload. I am 68 years old. Should I be having antibody tests? Which medication shoul I be on? Is there anything I can do to assist myself?
Porcelet
in
Thyroid UK
8 months ago
Does anyone on this forum have Primary Auto Immune Haemolytic Anaemia (AIHA)
Are there any other people on this forum who have Primary Auto Immune
Haemolytic
Anaemia
(AIHA)
Are there any other people on this forum who have Primary Auto Immune
Haemolytic
Anaemia
(AIHA)
thyreoidea
in
Thyroid UK
1 year ago
another iron infusion? and low ALT level
Hello, dear RLS friends! I would really appreciate your advice regarding my mother's ferritin levels. So she is currently on 0.375 mg (some days up to 0.5 mg) and 900 mg neurontin. I know DAs are not optimal, but at this point it would really be a problem to withdraw, especially that mom did start with
Hello, dear RLS friends! I would really appreciate your advice regarding my mother's ferritin levels. So she is currently on 0.375 mg (some days up to 0.5 mg) and 900 mg neurontin. I know DAs are not optimal, but at this point it would really be a problem to withdraw, especially that mom did start with
daisydaisy26
in
Restless Legs Syndrome
10 hours ago
Intrinsic Factor (IF) Antibodies testing while on B12
Hello folks - If someone has IF Antibodies and is taking b12 ...would that affect an IF and IF Antibodies blood test..? I dont think it should - as if you have errosive gastritis / malabsorbtion issues etc, you got them...and the B12 wont improve that in any way...? Thanks lovely PA folks
Hello folks - If someone has IF Antibodies and is taking b12 ...would that affect an IF and IF Antibodies blood test..? I dont think it should - as if you have errosive gastritis / malabsorbtion issues etc, you got them...and the B12 wont improve that in any way...? Thanks lovely PA folks
Treesong2023
in
Pernicious Anaemia Society
16 hours ago
Cofactors - B complex?
should I be starting on a B complex? I had iron infusion end of May and have been on EOD B12 injections since then. I am also taking folic acid 5mg every day and a spray vitamin D & K. I have been reading that some people take a B complex, but the one I saw also has folate in it and don’t want to
should I be starting on a B complex? I had iron infusion end of May and have been on EOD B12 injections since then. I am also taking folic acid 5mg every day and a spray vitamin D & K. I have been reading that some people take a B complex, but the one I saw also has folate in it and don’t want to
Chickens44
in
Pernicious Anaemia Society
2 days ago
Diet and B vitamins
Hello, I take a daily supplement dose of plant based vitamin B12 Complex and try to eat a range of foods that are healthy. I drink alcohol - maybe 5 units four/five times a week and I read that maybe I should take additional B vitamins to cover myself against there being insufficient to counteract this
Hello, I take a daily supplement dose of plant based vitamin B12 Complex and try to eat a range of foods that are healthy. I drink alcohol - maybe 5 units four/five times a week and I read that maybe I should take additional B vitamins to cover myself against there being insufficient to counteract this
Fishing_fred
in
Healthy Eating
2 days ago
After some B12 advice following results
Hi everyone, thanks in advance for reading. These sites and forums have been so useful since having found out I was deficient in a few things a few months ago. Following a blood test, it showed I had low B12, deficient in Folate and Vit D and low iron, but not deficient. This topic was not one I knew
Hi everyone, thanks in advance for reading. These sites and forums have been so useful since having found out I was deficient in a few things a few months ago. Following a blood test, it showed I had low B12, deficient in Folate and Vit D and low iron, but not deficient. This topic was not one I knew
BlackberryJam
in
Pernicious Anaemia Society
3 days ago
Help with self-injecting
Hi everyone. As scared as I am to think of self-injecting, I finally placed an order for B12 ampoules today. (Thanks, Wedgewood for the info!) I have injections every eight weeks but like clockwork at four weeks in, I always have trouble while out on walks, feel like I am going to fall over
Hi everyone. As scared as I am to think of self-injecting, I finally placed an order for B12 ampoules today. (Thanks, Wedgewood for the info!) I have injections every eight weeks but like clockwork at four weeks in, I always have trouble while out on walks, feel like I am going to fall over
rubyone
in
Pernicious Anaemia Society
6 days ago
Tolterodine.
Have recently had prostate surgery and on follow up with surgeon,been told I have Overactive Bladder (OAB)and been prescribed Tolterodine.Checked on HealthUnlocked Bladder site but they only discuss whether it works for bladder problem.Will it have any affect on my RLS?
Have recently had prostate surgery and on follow up with surgeon,been told I have Overactive Bladder (OAB)and been prescribed Tolterodine.Checked on HealthUnlocked Bladder site but they only discuss whether it works for bladder problem.Will it have any affect on my RLS?
Lambretta175
in
Restless Legs Syndrome
7 days ago
Would I absorb B12 in tablet form if I had PA?
Hi all, On a hunt to figure out the cause of my continued iron loss... Had an iron infusion in July 2021 and I'm now back to deficiency. GP has done all they can, confirmed by private GP. The guidelines now assume iron loss is related to periods... except mine are very light and only last a day so
Hi all, On a hunt to figure out the cause of my continued iron loss... Had an iron infusion in July 2021 and I'm now back to deficiency. GP has done all they can, confirmed by private GP. The guidelines now assume iron loss is related to periods... except mine are very light and only last a day so
WitchingHour2point0
in
Pernicious Anaemia Society
8 days ago
Iron infusion
I've been si eod for 18mnths now, I have had blood tests to keep an eye on ferritin, iron and folate every 4/5 months in that time,the results are checked by a private Dr who diagnosed me with PA after months of back and forth to gp feeling awful ( PA runs in the family)My iron has depleted now so I
I've been si eod for 18mnths now, I have had blood tests to keep an eye on ferritin, iron and folate every 4/5 months in that time,the results are checked by a private Dr who diagnosed me with PA after months of back and forth to gp feeling awful ( PA runs in the family)My iron has depleted now so I
Charlie27612
in
Pernicious Anaemia Society
9 days ago
My daughter's blood tests, could someone take a look please .
My daughter is 12. She doesn't have any diagnosed thyroid problems but our GP has run various blood tests due to regular nosebleeds and occasional migraines with aura. I persuaded them to check her thyroid and iron panel aswell. I've pushed for this with our family history of autoimmune thyroid problems
My daughter is 12. She doesn't have any diagnosed thyroid problems but our GP has run various blood tests due to regular nosebleeds and occasional migraines with aura. I persuaded them to check her thyroid and iron panel aswell. I've pushed for this with our family history of autoimmune thyroid problems
JUUJOO
in
Thyroid UK
10 days ago
iron tests
my iron blood tests results are as follows : Ferritin =73. ng/ml Folic acid =11.3 ng/ml Iron =113. ug/dl Do I need to take iron supplement. ? For aching/ restless legs at night. I will be grateful for recommendations
my iron blood tests results are as follows : Ferritin =73. ng/ml Folic acid =11.3 ng/ml Iron =113. ug/dl Do I need to take iron supplement. ? For aching/ restless legs at night. I will be grateful for recommendations
Tennis52
in
Restless Legs Syndrome
11 days ago
Serum ferritin too high?
Can anyone tell me whether 286 is too high for a serum ferritin level? I had an iron infusion a few months ago and this is my new level. I have been feeling very anxious, having panic attacks, not sleeping etc... and was wondering if it could be because of this? At the same time of the infusion I
Can anyone tell me whether 286 is too high for a serum ferritin level? I had an iron infusion a few months ago and this is my new level. I have been feeling very anxious, having panic attacks, not sleeping etc... and was wondering if it could be because of this? At the same time of the infusion I
Krysagnes
in
Pernicious Anaemia Society
14 days ago
Neutrophils
Hi everyone new here. I've just got my bloods back from gp and I have low white cell count (neutrophils) this leaves me open to infection as I'm sure your all aware that is a side effect of Roactemra. The consultant has now stopped my injection for 1 week and then repeat bloods in 4 weeks. My question
Hi everyone new here. I've just got my bloods back from gp and I have low white cell count (neutrophils) this leaves me open to infection as I'm sure your all aware that is a side effect of Roactemra. The consultant has now stopped my injection for 1 week and then repeat bloods in 4 weeks. My question
Headpain24
in
PMRGCAuk
14 days ago
Face to face consultation
I was diagnosed with PV in Dec 2015. I used to be quite active on this site and received so much reassurance and good advice in those early confusing days. Since my husband's death in Sept 2020, I have not been active on here, however I read posts occasionally. I have not had a face to face consultation
I was diagnosed with PV in Dec 2015. I used to be quite active on this site and received so much reassurance and good advice in those early confusing days. Since my husband's death in Sept 2020, I have not been active on here, however I read posts occasionally. I have not had a face to face consultation
Fionnuaghla
in
MPN Voice
14 days ago
Gastritis
any gastritis sufferers out there who have suffered from severe shoulder and neck pain when their stomach is bloated?
any gastritis sufferers out there who have suffered from severe shoulder and neck pain when their stomach is bloated?
Bleakley1
in
PMRGCAuk
15 days ago
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