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Hello everyone and thank you for allowing me to join today and help me in my journey being newly diagnosed with pernicious anemia
Are the injections painful ? How long till I feel better? Thanks Loveslife123
Are the injections painful ? How long till I feel better? Thanks Loveslife123
Loveslife123
in
Pernicious Anaemia Society
2 years ago
What will 2022 bring?
I wanted to be able to feel more positive for 2022 and wish people a happy new year. But after watching the news last night (never do this before bed!) I can feel the fear and anxiety building again after having my family safely at home for the past couple of weeks. Lack of availability on LFD and PCR
I wanted to be able to feel more positive for 2022 and wish people a happy new year. But after watching the news last night (never do this before bed!) I can feel the fear and anxiety building again after having my family safely at home for the past couple of weeks. Lack of availability on LFD and PCR
MWxxxx
in
MPN Voice
2 years ago
Iron question
Hi all. I was reading a recently cited Mayo Clinic paper, and it stated that "A common oral iron regimen [for RLS] is 325 mg of ferrous sulfate (65 mg elemental iron) ..." I've been taking two 25-mg capsules (every two days) of Ferrous Bisglycinate Chelate (the Ferrochel trademarked brand, marketed
Hi all. I was reading a recently cited Mayo Clinic paper, and it stated that "A common oral iron regimen [for RLS] is 325 mg of ferrous sulfate (65 mg elemental iron) ..." I've been taking two 25-mg capsules (every two days) of Ferrous Bisglycinate Chelate (the Ferrochel trademarked brand, marketed
Dougg
in
Restless Legs Syndrome
2 years ago
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Understanding your blood test
Hi all, Happy New Year etc! I have finally managed to translate my blood test results and for anyone else out there who is also bemused, I am attaching a guide to help you understand the basics. Ranges are often slightly different, or expressed differently in different countries or even clinics but really
Hi all, Happy New Year etc! I have finally managed to translate my blood test results and for anyone else out there who is also bemused, I am attaching a guide to help you understand the basics. Ranges are often slightly different, or expressed differently in different countries or even clinics but really
Quercus53
in
MPN Voice
2 years ago
Menopause and Sickle Cell
I am experiencing menopause because, I haven't had a period in many months. But what I notice is that I'm experiencing sickle cell crisis more often. After reading a lot information, I discovered that since the hormones protecting me and now going down, I'm at risk of many things, including stroke, heart
I am experiencing menopause because, I haven't had a period in many months. But what I notice is that I'm experiencing sickle cell crisis more often. After reading a lot information, I discovered that since the hormones protecting me and now going down, I'm at risk of many things, including stroke, heart
Iyalode26
in
Sickle Cell Society
2 years ago
Gastritis
Gastritis query My Rheumy started me on Etoricixib and it gave me awful gastritis, so stopped the drug and it settled almost back to normal then one day I took a Neurofen and it set me back - awful taste in my mouth, can’t eat much - have been put on Famotidine but no help-I had HPylori a few years ago
Gastritis query My Rheumy started me on Etoricixib and it gave me awful gastritis, so stopped the drug and it settled almost back to normal then one day I took a Neurofen and it set me back - awful taste in my mouth, can’t eat much - have been put on Famotidine but no help-I had HPylori a few years ago
bakingD
in
PMRGCAuk
2 years ago
Vitamins
Can someone please list all the vitamins (including calcium, because I am a woman) that are helpful to take daily for RLS including the amount to take daily, strengths, and times of day to take them? I'm confused because I know you have to be careful not to take magnesium with other things, iron, vitamin
Can someone please list all the vitamins (including calcium, because I am a woman) that are helpful to take daily for RLS including the amount to take daily, strengths, and times of day to take them? I'm confused because I know you have to be careful not to take magnesium with other things, iron, vitamin
LanaCSR
in
Restless Legs Syndrome
2 years ago
Thank you for your replies to my post about Plavix
I want to thank everyone for replying to my post about Plavix and PV. I have an appointment with my hematologist in late January and will have lots to talk about with him. I hope that I can have some positive blood test results. Wondering if anyone else is experienced fatigue when they started taking
I want to thank everyone for replying to my post about Plavix and PV. I have an appointment with my hematologist in late January and will have lots to talk about with him. I hope that I can have some positive blood test results. Wondering if anyone else is experienced fatigue when they started taking
Bluetoday1
in
MPN Voice
2 years ago
Anemia and Different Blood Test Results Help
I have been taking iron for anemia for some time. My latest CBC had some different test results on it. I researched and they relate to different shapes of red blood cells. I just wonder if they mean anything as relating to the anemia. Here are the findings - Anisocytosis1+ Polychromasia1+ Hypochromia1
I have been taking iron for anemia for some time. My latest CBC had some different test results on it. I researched and they relate to different shapes of red blood cells. I just wonder if they mean anything as relating to the anemia. Here are the findings - Anisocytosis1+ Polychromasia1+ Hypochromia1
Pumpkin2009
in
LUPUS UK
2 years ago
Official: Hydroxocobalamin increases my nervousness/anxiety
I’ve been trialing Cyanocobalamin for the past month and experienced limited side effects but went for my NHS injection on Monday and subsequently the nervousness and tingling has heightened again 🤯 It’s official that Hydroxocobalamin has a negative effect on my nerves - anyone else suffering?
I’ve been trialing Cyanocobalamin for the past month and experienced limited side effects but went for my NHS injection on Monday and subsequently the nervousness and tingling has heightened again 🤯 It’s official that Hydroxocobalamin has a negative effect on my nerves - anyone else suffering?
User2020-1
in
Pernicious Anaemia Society
2 years ago
Buprenorphine annual review
Every year I am required to visit to drug and Alcohol clinic this is a legal requirement in Queensland in doing so this allows my GP to prescribed my buprenorphine. I was the first person on this new program. Restless legs was not a Disease that Dr Jeremy Hayllar was overly familiar with. Both my GP
Every year I am required to visit to drug and Alcohol clinic this is a legal requirement in Queensland in doing so this allows my GP to prescribed my buprenorphine. I was the first person on this new program. Restless legs was not a Disease that Dr Jeremy Hayllar was overly familiar with. Both my GP
Shumbah
in
Restless Legs Syndrome
2 years ago
Why muscles soon after taking B12 timed release or taking iron pills show improvement?
I had severe muscle pain and extreme muscle weakness but by taking B12 timed release and iron almost they improved, but as soon as I carry an object or do anything put sine pressure in my muscles those symptoms return back back after taking iron pills and B12 timed release they get improved. I think
I had severe muscle pain and extreme muscle weakness but by taking B12 timed release and iron almost they improved, but as soon as I carry an object or do anything put sine pressure in my muscles those symptoms return back back after taking iron pills and B12 timed release they get improved. I think
Hamayeshguy
in
Pernicious Anaemia Society
3 years ago
Dipyridamole update
I have been on 100mg x2, one at about 4pm and one closer to 8pm. It is recommended to take Dipyridamole on an empty stomach. This is still lower than the effective dosage in the study and I intend to increase it. I have cut pregabalin from 300mg to 150mg. My goal is to cut it again when the 150mg
I have been on 100mg x2, one at about 4pm and one closer to 8pm. It is recommended to take Dipyridamole on an empty stomach. This is still lower than the effective dosage in the study and I intend to increase it. I have cut pregabalin from 300mg to 150mg. My goal is to cut it again when the 150mg
WideBody
in
Restless Legs Syndrome
2 years ago
Possible way GCA can turn on.
I was watching a YouTube channel yesterday that had to do with women getting fillers on their face. The doctor was teaching a class and had a woman in the chair and he was marking up her face for the fillers and was extremely careful about showing exactly where needles cannot be hit on our face because
I was watching a YouTube channel yesterday that had to do with women getting fillers on their face. The doctor was teaching a class and had a woman in the chair and he was marking up her face for the fillers and was extremely careful about showing exactly where needles cannot be hit on our face because
Aleish
in
PMRGCAuk
3 years ago
Help with Blood Test Results Please
Hi there I was hoping to see if anyone could help me with my latest blood test results please: Active Vitamin B12 67 pmol/L (Range 25-108) Homocysteine 14.0 (range 3.7-13.9 umol/L) Methylmalonic acid 0.14 (Range 0.29 umol/L) Intrinsic Factor 0 (Range 0-6 U/mL) Vitamin D 37 (Range 76-250 nmol/L) Serum
Hi there I was hoping to see if anyone could help me with my latest blood test results please: Active Vitamin B12 67 pmol/L (Range 25-108) Homocysteine 14.0 (range 3.7-13.9 umol/L) Methylmalonic acid 0.14 (Range 0.29 umol/L) Intrinsic Factor 0 (Range 0-6 U/mL) Vitamin D 37 (Range 76-250 nmol/L) Serum
Mrss25
in
Pernicious Anaemia Society
3 years ago
ENT
I depair. Got my first ever ENT appointment. By telephone I explained can't use a landline so on mobile speaker phone as part of the problem . Sets of tinnitus of varying degrees abd head pains. He was irritated and rushed He just said; Symptoms? I asked if he had any background. B12 problems He
I depair. Got my first ever ENT appointment. By telephone I explained can't use a landline so on mobile speaker phone as part of the problem . Sets of tinnitus of varying degrees abd head pains. He was irritated and rushed He just said; Symptoms? I asked if he had any background. B12 problems He
Nackapan
in
Pernicious Anaemia Society
3 years ago
Needle size and dosage
Hi everyone, thanks so much for support and advice. It's been invaluable and given me the confidence to purchase vit b12. Could someone tell me which needles to use for intramuscular injections. Thank you
Hi everyone, thanks so much for support and advice. It's been invaluable and given me the confidence to purchase vit b12. Could someone tell me which needles to use for intramuscular injections. Thank you
Mrsmr
in
Pernicious Anaemia Society
3 years ago
Guidelines regarding getting your booster if you’ve had your third primary vaccine
I had my third primary vaccine in October, but because the system didn’t cope with such things, it was entered as a booster, with a note identifying it as a primary. With this latest announcement, does anyone know what we should be doing to get our boosters? As I had to chase my GP surgery to get the
I had my third primary vaccine in October, but because the system didn’t cope with such things, it was entered as a booster, with a note identifying it as a primary. With this latest announcement, does anyone know what we should be doing to get our boosters? As I had to chase my GP surgery to get the
Angel_doll
in
PMRGCAuk
3 years ago
Pfizer booster and CEFUROXIME (AS AXETIL) allergy
Hi Has anyone had the Pfizer vaccine with an allergies to penicillin and CEFUROXIME (AS AXETIL). I had astra zeneca for my first 2 doses but I'm going for my booster tomorrow and it will be Pfizer so I'm really nervous
Hi Has anyone had the Pfizer vaccine with an allergies to penicillin and CEFUROXIME (AS AXETIL). I had astra zeneca for my first 2 doses but I'm going for my booster tomorrow and it will be Pfizer so I'm really nervous
Alw75
in
Asthma Community Forum
3 years ago
Iron decreased after supplementation?!
After finding my ferritin levels were low as part of a full iron panel from Thriva in October (and on advice from my GP once she found out I am vegetarian), I started supplementing with liquid iron (15mg per day). After re-testing my iron panel 5 weeks later several of the results have got quite a bit
After finding my ferritin levels were low as part of a full iron panel from Thriva in October (and on advice from my GP once she found out I am vegetarian), I started supplementing with liquid iron (15mg per day). After re-testing my iron panel 5 weeks later several of the results have got quite a bit
StellaTed
in
Thyroid UK
3 years ago
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