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yorkshiregirl4
Hello there, I am new to this group but have been able to find out so much more about Pernicious Anaemia from your helpful posts. Like so many members I have struggled to get a diagnosis for many, many months and am still struggling to receive appropriate medical assistance. I now have a Pernicious
Hello there, I am new to this group but have been able to find out so much more about Pernicious Anaemia from your helpful posts. Like so many members I have struggled to get a diagnosis for many, many months and am still struggling to receive appropriate medical assistance. I now have a Pernicious
yorkshiregirl4
in
Pernicious Anaemia Society
1 year ago
Weird blood results- more results
Fao. Seaside Suzie & Slow Dragon Further tests taken 3 Jan 2023. Do I still need test for Pernicious anaemia? I have done research on vit b12 deficiency after your advice and I am contacting my doctor to request vitamin injections and further consultation on this condition [u]RBC[/u] Haemoglobin
Fao. Seaside Suzie & Slow Dragon Further tests taken 3 Jan 2023. Do I still need test for Pernicious anaemia? I have done research on vit b12 deficiency after your advice and I am contacting my doctor to request vitamin injections and further consultation on this condition [u]RBC[/u] Haemoglobin
Stefcon1
in
Thyroid UK
1 year ago
Query re. folic acid dosage and related issues
I’m still confused with regard to correct amounts of folic acid and B6 when injecting B12 EOD or ED, assuming it’s for life. Is there a danger of overdosing folic acid or B6 do we know? Also not entirely clear about taking iron if spare folic acid becomes ferritin and is stored as iron. Or if this
I’m still confused with regard to correct amounts of folic acid and B6 when injecting B12 EOD or ED, assuming it’s for life. Is there a danger of overdosing folic acid or B6 do we know? Also not entirely clear about taking iron if spare folic acid becomes ferritin and is stored as iron. Or if this
Yervaud
in
Pernicious Anaemia Society
1 year ago
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Transferrin saturation iron results query please?
Hi,After testing via both usual companies and all failing for iron/ferritin have finally received some results through Monitormyheath,the NHS. I'm a bit confused by results, & contact is very slow,so thought I'd ask here meanwhile please. It said results wld be given as haemoglobin and transferrin as
Hi,After testing via both usual companies and all failing for iron/ferritin have finally received some results through Monitormyheath,the NHS. I'm a bit confused by results, & contact is very slow,so thought I'd ask here meanwhile please. It said results wld be given as haemoglobin and transferrin as
Jo5454
in
Thyroid UK
1 year ago
Latest bloods- advice please :)
Hi all, My dad has had his levo increased several times last year by private endo. He was on 75mcg and the endo has increased it steadily that now he is on 125mg daily. His most recent bloods (done through medichecks, 9am before any food drink or levo) TSH X 0.21 mIU/L (Range: 0.27 - 4.2) Free T3
Hi all, My dad has had his levo increased several times last year by private endo. He was on 75mcg and the endo has increased it steadily that now he is on 125mg daily. His most recent bloods (done through medichecks, 9am before any food drink or levo) TSH X 0.21 mIU/L (Range: 0.27 - 4.2) Free T3
Needleandthread44
in
Thyroid UK
1 year ago
b12=999 but low folate
I’ve just had bloods and my folate came back as low but my b12 was 999. My white blood count was also high along with neutrophils monocytes eoisenophils and lymphocytes. I have to get retested in two weeks but has anyone else experienced this? I’ve been put on 5mg daily of iron for 4 months but could
I’ve just had bloods and my folate came back as low but my b12 was 999. My white blood count was also high along with neutrophils monocytes eoisenophils and lymphocytes. I have to get retested in two weeks but has anyone else experienced this? I’ve been put on 5mg daily of iron for 4 months but could
Tiredguy94
in
Pernicious Anaemia Society
1 year ago
Iron Levels
Thanks to all who have advised me recently - Its been very helpful. It was suggested I post my blood test results here. Can anyone advise what they mean as far as rls is concerned? Ferritin 260 Iron 20.9 TIBC 40.9 % Saturation 51.1 Haemoglobin 149 Thank you!
Thanks to all who have advised me recently - Its been very helpful. It was suggested I post my blood test results here. Can anyone advise what they mean as far as rls is concerned? Ferritin 260 Iron 20.9 TIBC 40.9 % Saturation 51.1 Haemoglobin 149 Thank you!
GaryHB
in
Restless Legs Syndrome
1 year ago
Folate Deficiency
Hi Everyone I've just joined, so glad I found this group, wish I'd found it years ago. Great to find a place where everyone can be so open. I have a question and would be so grateful if anyone has experienced this could give any insight, I have a folate deficiency at the moment and have been prescribed
Hi Everyone I've just joined, so glad I found this group, wish I'd found it years ago. Great to find a place where everyone can be so open. I have a question and would be so grateful if anyone has experienced this could give any insight, I have a folate deficiency at the moment and have been prescribed
Galaxy2
in
Gluten Free Guerrillas
1 year ago
Burning Mouth Syndrome?
Hello, My first time here, searching for help and info. I have what seems to be "burning mouth syndrome" though it should be called Burning Tongue syndrome as it is the tongue it affects, at least in my case. It is extremely painful and I have had it for a couple years now. I have tried all manner
Hello, My first time here, searching for help and info. I have what seems to be "burning mouth syndrome" though it should be called Burning Tongue syndrome as it is the tongue it affects, at least in my case. It is extremely painful and I have had it for a couple years now. I have tried all manner
minxabroad
in
Pernicious Anaemia Society
1 year ago
[i][b]Evaluation of FT4 Levels by Immunoassay Requires Specific Reference Intervals in Pregnant Women[/b][/i]
[i]
Evaluation of FT4 Levels by Immunoassay Requires Specific Reference Intervals in Pregnant Women
[/i] [i][/i] [i]Eijun Nishihara and Takashi Akamizu[/i] [i]Published Online:14 Mar 2023https://doi.org/10.1089/ct.2023;35.93-95[/i] https://www.liebertpub.com/doi/10.1089/ct.2023%3B35.93-95
[i]
Evaluation of FT4 Levels by Immunoassay Requires Specific Reference Intervals in Pregnant Women
[/i] [i][/i] [i]Eijun Nishihara and Takashi Akamizu[/i] [i]Published Online:14 Mar 2023https://doi.org/10.1089/ct.2023;35.93-95[/i] https://www.liebertpub.com/doi/10.1089/ct.2023%3B35.93-95
helvella
Thyroid UK
in
Thyroid UK
1 year ago
New Google AI called Bard
I’ve been trying out Bard with various questions. Still beta, so US spelling and orientation, but I think it made a pretty good fist of this one:- Why don’t doctors treat Pernicious Anaemia properly? Pernicious anemia is a type of anemia that is caused by a lack of vitamin B12. It is a serious condition
I’ve been trying out Bard with various questions. Still beta, so US spelling and orientation, but I think it made a pretty good fist of this one:- Why don’t doctors treat Pernicious Anaemia properly? Pernicious anemia is a type of anemia that is caused by a lack of vitamin B12. It is a serious condition
Midnight_Voice
in
Pernicious Anaemia Society
1 year ago
Results please
Im taking teva levothyroxine 75mcg and t3, 5mcg at morning with levo then 10mcg afternoon.My symptoms have greatly improved with the addition of t3, but having increasing problems with low stomach acid. Any advice will be most welcome 🌸🌸🌸🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 75mcg and t3, 5mcg at morning with levo then 10mcg afternoon.My symptoms have greatly improved with the addition of t3, but having increasing problems with low stomach acid. Any advice will be most welcome 🌸🌸🌸🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
1 year ago
Iron tablets and T3 timing?
I'm trying to raise my low ferritin (33 at last test) and am taking ferrous sulphate twice a day (will be testing my levels again soon).I was previously taking my T3 meds once a day but am having a bit of trouble tolerating a recent 5mcg increase (was taking 10, now 15mcg) so I'd like to try splitting
I'm trying to raise my low ferritin (33 at last test) and am taking ferrous sulphate twice a day (will be testing my levels again soon).I was previously taking my T3 meds once a day but am having a bit of trouble tolerating a recent 5mcg increase (was taking 10, now 15mcg) so I'd like to try splitting
Smorzando
in
Thyroid UK
1 year ago
High Platelets
My hubby is the sufferer, he is 65 and has had PMR for four years. He started on 15mg of Prednisolone and has had a few up and downs but is currently on 4mg. To be honest I don’t think he had many blood tests in the early days but in the last two years when he has had a full blood count done his platelets
My hubby is the sufferer, he is 65 and has had PMR for four years. He started on 15mg of Prednisolone and has had a few up and downs but is currently on 4mg. To be honest I don’t think he had many blood tests in the early days but in the last two years when he has had a full blood count done his platelets
Hollieby
in
PMRGCAuk
1 year ago
RLS and Bruxism/TMJ
I was just wondering if anyone else on here alsohas trouble with TMJ or teeth grinding? Strangely, my dentist was the first to mention it, before RLS was diagnosed. I never put them together until I was reading that it has neurological origins. Also linked to anxiety, which I have. I look forward
I was just wondering if anyone else on here alsohas trouble with TMJ or teeth grinding? Strangely, my dentist was the first to mention it, before RLS was diagnosed. I never put them together until I was reading that it has neurological origins. Also linked to anxiety, which I have. I look forward
Fleur29
in
Restless Legs Syndrome
1 year ago
mCV blood test
a quick google tells me this relates to red blood cells and vitamins B12 and folate. Just wanted to check with you experts if this is correct? I have had a few full count blood tests and my levels have been 99 and 103 from a range of 75-105. I haven’t had blood tests yet that separate the vitamins
a quick google tells me this relates to red blood cells and vitamins B12 and folate. Just wanted to check with you experts if this is correct? I have had a few full count blood tests and my levels have been 99 and 103 from a range of 75-105. I haven’t had blood tests yet that separate the vitamins
Carsey2411
in
Thyroid UK
1 year ago
Advice for self-injecting.
Hello, I am going to experiment with self injecting. Have ordered this off amazon.de: Pascoe® Vitamin B12 Depot Injectopaz 1500 μg 10 x 1 ml Ingredients: 1 ampoule 1 ml contains: active ingredient: hydroxocobalamine acetate 1500 μg. Other ingredients: sodium chloride, water for injection purposes
Hello, I am going to experiment with self injecting. Have ordered this off amazon.de: Pascoe® Vitamin B12 Depot Injectopaz 1500 μg 10 x 1 ml Ingredients: 1 ampoule 1 ml contains: active ingredient: hydroxocobalamine acetate 1500 μg. Other ingredients: sodium chloride, water for injection purposes
DocAJB
in
Pernicious Anaemia Society
1 year ago
Iron panel test help please
Hello everyone- A quick question. I’m planning on doing a medichecks iron panel test in 7 days to recheck my iron levels to see if they’ve improved with supplementation. I know to stop Biotin/ B vits for a week before blood tests but do I also need to stop taking my iron supplements too? Advice would
Hello everyone- A quick question. I’m planning on doing a medichecks iron panel test in 7 days to recheck my iron levels to see if they’ve improved with supplementation. I know to stop Biotin/ B vits for a week before blood tests but do I also need to stop taking my iron supplements too? Advice would
LucyYoga
in
Thyroid UK
1 year ago
Latest vitamin results. My thyroid results from previous posts. Where to from here?
Serum vitamin D level (XE2e7) 37 nmol/L [25 - 300] Serum folate level (42U5.) 1.5 ng/ml [4 - 27] Serum vitamin B12 level (XE2pf) 341 ng/L [130 - 800] Serum ferritin level (XE24r) 125 ng/ml [30 - 400]
Serum vitamin D level (XE2e7) 37 nmol/L [25 - 300] Serum folate level (42U5.) 1.5 ng/ml [4 - 27] Serum vitamin B12 level (XE2pf) 341 ng/L [130 - 800] Serum ferritin level (XE24r) 125 ng/ml [30 - 400]
Dshadzz07
in
Thyroid UK
1 year ago
Folate (again)
Sorry, forgot to add the results. FOLATE - SERUM 08 Dec 2022 19.4 nmol/L (8.8s - 60.8 R) VITAMIN B12 - ACTIVE 08 Dec 2022 131 pmol/L (37.5 - 188 R) VITAMIN D 08 Dec 2022 123 nmol/L (50 - 250 R)
Sorry, forgot to add the results. FOLATE - SERUM 08 Dec 2022 19.4 nmol/L (8.8s - 60.8 R) VITAMIN B12 - ACTIVE 08 Dec 2022 131 pmol/L (37.5 - 188 R) VITAMIN D 08 Dec 2022 123 nmol/L (50 - 250 R)
dottyb09
in
Thyroid UK
1 year ago
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