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Normalization of CBC without medical treatment
Has anyone on this forum diagnosed with ET/PV with corresponding elevation in hemoglobin, hematocrit, RBC and platelet experience normalization (meaning CBC goes back to normal range without medical treatment)?
Has anyone on this forum diagnosed with ET/PV with corresponding elevation in hemoglobin, hematocrit, RBC and platelet experience normalization (meaning CBC goes back to normal range without medical treatment)?
markgenious1981
in
MPN Voice
3 years ago
Does this sound ok?
My adult daughter was recently in hospital with a prolapsed disc and had a blood test which showed Hb of 10. Her GP did an iron profile and B12 as her uncle and grandfather had PA. B12 was 169 and ferritin 13 and HCT MCV and transferrin results abnormal. He is starting her on loading B12 injections
My adult daughter was recently in hospital with a prolapsed disc and had a blood test which showed Hb of 10. Her GP did an iron profile and B12 as her uncle and grandfather had PA. B12 was 169 and ferritin 13 and HCT MCV and transferrin results abnormal. He is starting her on loading B12 injections
Lunadoo
in
Pernicious Anaemia Society
3 years ago
Diagnosis. - which blood test?
I appear to have all the symptoms, minus the red tongue, but have only had a CBC. Should I ask for a more sensitive blood tes, and if so, which one? I’m aware that it took years to diagnose my mother with pernicious anemia
I appear to have all the symptoms, minus the red tongue, but have only had a CBC. Should I ask for a more sensitive blood tes, and if so, which one? I’m aware that it took years to diagnose my mother with pernicious anemia
AFGran
in
Pernicious Anaemia Society
3 years ago
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Floradix
Hello all. Being disabled with many things wrong with me I've also suffered with RLS all my life. I'm 51 now. A few months ago it started to get really bad to the point of sleeping 1 to 2 hours sleep a night. I have tried many things over the years but not from the doctor. I finally spoke to him about
Hello all. Being disabled with many things wrong with me I've also suffered with RLS all my life. I'm 51 now. A few months ago it started to get really bad to the point of sleeping 1 to 2 hours sleep a night. I have tried many things over the years but not from the doctor. I finally spoke to him about
Gizzmo14
in
Restless Legs Syndrome
3 years ago
B12 & Pernicious Anaemia advice please
I've just been told yesterday I have B12 deficiency, injections starting on Monday. I'm pretty sure my dad (who passed away of covid in July) had pernicious anaemia I've had FBC & Vitamin Assays, low B12 & Folate Advice on whether to start 💉 or ask for investigation into pernicious anaemia? & any
I've just been told yesterday I have B12 deficiency, injections starting on Monday. I'm pretty sure my dad (who passed away of covid in July) had pernicious anaemia I've had FBC & Vitamin Assays, low B12 & Folate Advice on whether to start 💉 or ask for investigation into pernicious anaemia? & any
Mazcan
in
Pernicious Anaemia Society
3 years ago
blood work info and possible spleen removal
Good morning , this is my first post and have been following the site for a few months .appreciate all the info VERY much . i am 73 year old male . healthy for my age except for CLL diagnosed in april . i am at stage 3 already .... my first visit to oncologist prescribed calquence . so far i am not taking
Good morning , this is my first post and have been following the site for a few months .appreciate all the info VERY much . i am 73 year old male . healthy for my age except for CLL diagnosed in april . i am at stage 3 already .... my first visit to oncologist prescribed calquence . so far i am not taking
craterlake
in
CLL Support
3 years ago
I am new here and about to start venetoclax/rituximab treatment.
CLL diagnosed in 2012. No treatment for CLL so far other than rituximab to treat haemolytic anemia. My question is: Having just completed 4 weekly doses of Rituximab and achieved excellent recovery from haemolytic anemia, can I start immediately the venetoclax/rituximab treatment or do I have to wait
CLL diagnosed in 2012. No treatment for CLL so far other than rituximab to treat haemolytic anemia. My question is: Having just completed 4 weekly doses of Rituximab and achieved excellent recovery from haemolytic anemia, can I start immediately the venetoclax/rituximab treatment or do I have to wait
RamsesII
in
CLL Support
3 years ago
Iron result help please
Hi, here are recent iron numbers, can anyone shed light please? A nutritionist I see put me on B12 but not feeling better and symptoms of swing frim hypo to hyper thyroid could be iron - related? No energy! Ferritin. 149.20 (30-70) Folate 3.50.((15-25) Serum iron 9.50 (15-23.7) %trans sat 17.50.
Hi, here are recent iron numbers, can anyone shed light please? A nutritionist I see put me on B12 but not feeling better and symptoms of swing frim hypo to hyper thyroid could be iron - related? No energy! Ferritin. 149.20 (30-70) Folate 3.50.((15-25) Serum iron 9.50 (15-23.7) %trans sat 17.50.
Fritillary339
in
Thyroid UK
3 years ago
High systolic blood pressure but normal diastolic blood pressure meaning in B12 deficiency, do you have the same issue?
My systolic blood pressure 14.5 mm hg and diastolic blood pressure is between 9.2 to 8.1 Is that normal and I have mostly muscle weakness neuropathy. Higher systolic blood pressure is the root cause of heart attack. I'm to see my cardiologist on October. My High systolic blood pressure is not related
My systolic blood pressure 14.5 mm hg and diastolic blood pressure is between 9.2 to 8.1 Is that normal and I have mostly muscle weakness neuropathy. Higher systolic blood pressure is the root cause of heart attack. I'm to see my cardiologist on October. My High systolic blood pressure is not related
Hamayeshguy
in
Pernicious Anaemia Society
3 years ago
B12 Injections: do they cure Pernicious Anemia?
Hi, I have just been diagnosed with PA, related to vitamin B12 deficiency. My GP has prescribed a course of vitamin B12 injections (12 over the next month followed by a quarterly booster). I would be interested in hearing from you if you have had the course. Did it cure your Pernicious Anemia?
Hi, I have just been diagnosed with PA, related to vitamin B12 deficiency. My GP has prescribed a course of vitamin B12 injections (12 over the next month followed by a quarterly booster). I would be interested in hearing from you if you have had the course. Did it cure your Pernicious Anemia?
Twinsgrandad
in
Pernicious Anaemia Society
3 years ago
Recovery Time from Levothyroxine side effects
How long does it take to recover from adverse side effects following a change from Teva Levothyroxine to another brand without Mannitol. Symptoms include: headaches, fatigue, joint pains and generally feelin unwell.
How long does it take to recover from adverse side effects following a change from Teva Levothyroxine to another brand without Mannitol. Symptoms include: headaches, fatigue, joint pains and generally feelin unwell.
Dodger
in
Thyroid UK
3 years ago
Iron/bloods... confused!
Hi, I was diagnosed with iron deficiency anaemia in May and have been taking iron (gentle iron) and recently had a blood test to see if it had improved. I was annoyed to find that they didn't test ferritin again, just a full blood count. My haemoglobin is now 135 (range 120-150) so bang on. I spoke
Hi, I was diagnosed with iron deficiency anaemia in May and have been taking iron (gentle iron) and recently had a blood test to see if it had improved. I was annoyed to find that they didn't test ferritin again, just a full blood count. My haemoglobin is now 135 (range 120-150) so bang on. I spoke
Curlygal
in
Pernicious Anaemia Society
3 years ago
Given Pernicious Anaemia diagnosis today
Hi I have had a phone call today, telling me that I have this condition. I have to repeat the blood test tomorrow (for levels?) and start a course of 6 initial jabs over two weeks as soon as that is back. It does explain so much re the symptoms I have been having for a long time. In past years I have
Hi I have had a phone call today, telling me that I have this condition. I have to repeat the blood test tomorrow (for levels?) and start a course of 6 initial jabs over two weeks as soon as that is back. It does explain so much re the symptoms I have been having for a long time. In past years I have
emmjay77
in
Pernicious Anaemia Society
3 years ago
Advice on ferritin of 18
So here are my recent b12 and ferritin results. B12 looks ok, but ferritin is 18 (range is 15 - 300).I’m tired and my hair is falling out. My TSH is suppressed, and T3 and T4 towards the top of the range. I have no worries about these levels. Question?- will maintaining my healthy, iron rich diet, along
So here are my recent b12 and ferritin results. B12 looks ok, but ferritin is 18 (range is 15 - 300).I’m tired and my hair is falling out. My TSH is suppressed, and T3 and T4 towards the top of the range. I have no worries about these levels. Question?- will maintaining my healthy, iron rich diet, along
Boon79
in
Thyroid UK
3 years ago
Interdependance of iron load and thyroid function
The interrelationship between iron load and thyroid function is pretty well accepted, but I post here a paper showing the effect in children (can extrapolate safely to adults I think). It underlines the need for good iron loading to help rule out or confirm hypothyroidism.
Journal of Clinical and
The interrelationship between iron load and thyroid function is pretty well accepted, but I post here a paper showing the effect in children (can extrapolate safely to adults I think). It underlines the need for good iron loading to help rule out or confirm hypothyroidism.
Journal of Clinical and
diogenes
in
Thyroid UK
3 years ago
Elevated Liver Enzymes (ALT and AST)?
Anyone deal with elevated liver numbers? Its become a struggle since increasing from 25mg to 50mg Peg. Last time I didnt touch alcohol for two weeks and both numbers were generally in line (around 40). This go around same story but both numbers were in the low 60s. Curious if others deal with inconsistent
Anyone deal with elevated liver numbers? Its become a struggle since increasing from 25mg to 50mg Peg. Last time I didnt touch alcohol for two weeks and both numbers were generally in line (around 40). This go around same story but both numbers were in the low 60s. Curious if others deal with inconsistent
JT_Marlin
in
MPN Voice
3 years ago
Iron deficiency anemia yes or no??
Hi there, I’ve just been reading some of the above posts and wondered if you could advise me?? I have Sjögrens and hypothyroidism and over the years I’ve been low on all vitamins tested eg, vit d, folate, vit b12 and recently I had a ferritin test at 31 ( range 13-150). I suffer with rsl . I’ve suffered
Hi there, I’ve just been reading some of the above posts and wondered if you could advise me?? I have Sjögrens and hypothyroidism and over the years I’ve been low on all vitamins tested eg, vit d, folate, vit b12 and recently I had a ferritin test at 31 ( range 13-150). I suffer with rsl . I’ve suffered
Onedge
in
Pernicious Anaemia Society
3 years ago
Iron deficiency anemia yes or no??
Hi there, I’ve just been reading some of the above posts and wondered if you could advise me?? I have Sjögrens and hypothyroidism and over the years I’ve been low on all vitamins tested eg, vit d, folate, vit b12 and recently I had a ferritin test at 31 ( range 13-150). I suffer with rsl . I’ve suffered
Hi there, I’ve just been reading some of the above posts and wondered if you could advise me?? I have Sjögrens and hypothyroidism and over the years I’ve been low on all vitamins tested eg, vit d, folate, vit b12 and recently I had a ferritin test at 31 ( range 13-150). I suffer with rsl . I’ve suffered
Onedge
in
Thyroid UK
3 years ago
Not diagnosed, but suspected
Edit: letter from haematologist- BCR/ABL and JAK2 are negative m, awaiting rarer test results, but he thinks could be related to infection / endocrine issues. Relieved, but puzzled! Thank you everyone for replying, I guess I was premature in posting!! Hi. I’m just struggling today as I’m in that waiting
Edit: letter from haematologist- BCR/ABL and JAK2 are negative m, awaiting rarer test results, but he thinks could be related to infection / endocrine issues. Relieved, but puzzled! Thank you everyone for replying, I guess I was premature in posting!! Hi. I’m just struggling today as I’m in that waiting
KayS68
in
MPN Voice
3 years ago
COVID booster jab now in doubt?
Hi, Trying to work this out rationally and objectively but would appreciate input from others in the same boat. The news today revealed that WHO are not happy with countries going ahead with booster (3rd) jabs when other less developed countries like Africa are still trying to source for first jabs.
Hi, Trying to work this out rationally and objectively but would appreciate input from others in the same boat. The news today revealed that WHO are not happy with countries going ahead with booster (3rd) jabs when other less developed countries like Africa are still trying to source for first jabs.
Flinda
in
NRAS
3 years ago
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