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Haemolytic anaemia
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New papers on PA
There are often new interesting papers on pernicious anemia. I will add them to this thread to keep them all in one place. I'll try to the pick the ones I think are most novel & relevant, but plenty are published every month. To see more, check Google Scholar https://scholar.google.com/scholar?start=
There are often new interesting papers on pernicious anemia. I will add them to this thread to keep them all in one place. I'll try to the pick the ones I think are most novel & relevant, but plenty are published every month. To see more, check Google Scholar https://scholar.google.com/scholar?start=
jade_s
in
Pernicious Anaemia Society
11 months ago
Results Advice
Hi I’m looking for some advice on my recent bloods please, since my last test I dropped my levo back to 100mg a day and increased my lio by 5mg so I’m a little confused as to why my T3 has dropped🤷♀️the only thing I can think of is that I’ve been using Morningside lio for my 10mg dose in the morning
Hi I’m looking for some advice on my recent bloods please, since my last test I dropped my levo back to 100mg a day and increased my lio by 5mg so I’m a little confused as to why my T3 has dropped🤷♀️the only thing I can think of is that I’ve been using Morningside lio for my 10mg dose in the morning
PrincessAnnie
in
Thyroid UK
9 months ago
Targinact
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
Quiltingmum
in
Restless Legs Syndrome
9 months ago
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Anaemia or CLL? Time for re-referral?
I am of the opinion that she should be referred back to the Haematologist rather than aiming to correct the Haemoglobin level by treating for
Anaemia
. Also, could this be a case of Autoimmune
Haemolytic
Anaemia
as discussed in 'Livingwith67’s post a couple of months ago?
I am of the opinion that she should be referred back to the Haematologist rather than aiming to correct the Haemoglobin level by treating for
Anaemia
. Also, could this be a case of Autoimmune
Haemolytic
Anaemia
as discussed in 'Livingwith67’s post a couple of months ago?
NavyDavy
in
CLL Support
1 year ago
Ups and downs update
I finally received a phone call from my GP who was incredibly nice and friendly. But…… she wasn’t prepared to act on the advice I quoted from both NHS and NICE that as I was still suffering from pins and needles I needed every other day B12 injections until there was no further improvement. After
I finally received a phone call from my GP who was incredibly nice and friendly. But…… she wasn’t prepared to act on the advice I quoted from both NHS and NICE that as I was still suffering from pins and needles I needed every other day B12 injections until there was no further improvement. After
Kerrieblue
in
Pernicious Anaemia Society
1 year ago
Blood Results
Hello, I am wondering if anyone can Help me to try and understand what is going on with my blood test results. I have always had low ferritin in single figures and after years of low B12 I was eventually in March 21 put on B12 injections every 3 months for life . The ferritin improved slowly but my
Hello, I am wondering if anyone can Help me to try and understand what is going on with my blood test results. I have always had low ferritin in single figures and after years of low B12 I was eventually in March 21 put on B12 injections every 3 months for life . The ferritin improved slowly but my
B52s
in
Pernicious Anaemia Society
1 year ago
Promethazine Hydrochloride
hi I have been desperate for sleep but my RLS has been so bad that I’ve found it impossible I managed to get a GP appointment and told her my story and background and although she was sympathetic said the RLS I’d very difficult to control I told her I had no desire to go back on to a DA and my problems
hi I have been desperate for sleep but my RLS has been so bad that I’ve found it impossible I managed to get a GP appointment and told her my story and background and although she was sympathetic said the RLS I’d very difficult to control I told her I had no desire to go back on to a DA and my problems
Hoochybaby
in
Restless Legs Syndrome
9 months ago
Visit to Haematology Dept.
This morning I had a appointment to see the consultant haematologist at Scarborough Hospital, the first I have seen for about 3 years, the was because my total white blood count & Lymphocyte count had shot up from my April blood test, she examined me and took more blood, the results were a lot better
This morning I had a appointment to see the consultant haematologist at Scarborough Hospital, the first I have seen for about 3 years, the was because my total white blood count & Lymphocyte count had shot up from my April blood test, she examined me and took more blood, the results were a lot better
Ellim
in
CLL Support
1 year ago
Late covid
My health centre is the same one that my parents used and took me and my siblings to. I am 76 years old. The building and street locations have changed and of course the doctors too but we in our town have always considered the present building to be our local, first port of call when we or our own
My health centre is the same one that my parents used and took me and my siblings to. I am 76 years old. The building and street locations have changed and of course the doctors too but we in our town have always considered the present building to be our local, first port of call when we or our own
3rdNettydoon
in
Pernicious Anaemia Society
11 months ago
Some results, at last
I had some blood sent for Next Generation Sequencing back in March, I’ve been waiting for the results. Consultant phoned this afternoon, he says I am now post ET MF or words to that effect! My platelets are currently 559, I’m on one capsule of Anagrelide twice a day. I was extremely anaemic and after
I had some blood sent for Next Generation Sequencing back in March, I’ve been waiting for the results. Consultant phoned this afternoon, he says I am now post ET MF or words to that effect! My platelets are currently 559, I’m on one capsule of Anagrelide twice a day. I was extremely anaemic and after
lizzziep
in
MPN Voice
1 year ago
Brighton Marathon 2024
We have secured three places for Brighton Marathon Sunday 7th April 2024 in the name of The Pernicious Anaemia Society. We are looking for runners who want to help us raise awareness and raise money for the Pernicious Anaemia Society. I'm not suggesting that anyone here struggling with PA or B12
We have secured three places for Brighton Marathon Sunday 7th April 2024 in the name of The Pernicious Anaemia Society. We are looking for runners who want to help us raise awareness and raise money for the Pernicious Anaemia Society. I'm not suggesting that anyone here struggling with PA or B12
PAScomms
in
Pernicious Anaemia Society
11 months ago
Lanzoprazole and low B12
Hi guys I am worried and I don’t know if I am worried about nothing. In a nutshell, in 2018 hubby starts heart meds and has done so ever since. One of which is landoprazole 15mg every day. Purpose to protect his stomach from the potential harm from taking 75mg asprin to thin his blood. A couple
Hi guys I am worried and I don’t know if I am worried about nothing. In a nutshell, in 2018 hubby starts heart meds and has done so ever since. One of which is landoprazole 15mg every day. Purpose to protect his stomach from the potential harm from taking 75mg asprin to thin his blood. A couple
Wwwdot
in
Pernicious Anaemia Society
1 year ago
Vitamins
Hi allI posted here last week my vitamin test results from medichecks. My active B12 and folate were low so as per advice on the forum I have held off supplementing until my GP tests for pernicious anaemia. My mother had PA and I certainly do have some symptoms of B12 deficiency. I'm due to get my bloods
Hi allI posted here last week my vitamin test results from medichecks. My active B12 and folate were low so as per advice on the forum I have held off supplementing until my GP tests for pernicious anaemia. My mother had PA and I certainly do have some symptoms of B12 deficiency. I'm due to get my bloods
Hollybushroad
in
Thyroid UK
1 year ago
Transferrin Saturation
I have a GP appointment a week Monday. Recently had a Medichecks nutrition test and results: Ferritin : 44.2 ug/L (R. 13 - 150) Vit. B12: 67.6 pmol/L (R.37.5 - 150) Vit.D: 119/nmolL (R50 - 200) Medichecks GP said B12 on the low side, as is Ferritin. He recommended I have a serum MMA
I have a GP appointment a week Monday. Recently had a Medichecks nutrition test and results: Ferritin : 44.2 ug/L (R. 13 - 150) Vit. B12: 67.6 pmol/L (R.37.5 - 150) Vit.D: 119/nmolL (R50 - 200) Medichecks GP said B12 on the low side, as is Ferritin. He recommended I have a serum MMA
notpink
in
Thyroid UK
1 year ago
UK person wanting injectable methylcobalamin
Hello everyone, I'm based in the UK and have Pernicious Anaemia. I was able to buy methylcobalamin 1mg for self-injection online from Arnika Apotheke in Germany back in 2019/2020 and had it shipped to the UK. But a year ago, in 2022, when I messaged to purchase more, they said they were no longer able
Hello everyone, I'm based in the UK and have Pernicious Anaemia. I was able to buy methylcobalamin 1mg for self-injection online from Arnika Apotheke in Germany back in 2019/2020 and had it shipped to the UK. But a year ago, in 2022, when I messaged to purchase more, they said they were no longer able
Seasidesunshine1979
in
Pernicious Anaemia Society
1 year ago
Blood Test results
Hi Having finally got broadband working again I was able to check my blood test results. They included: Serum Iron: 25.2 umol/L [range 10.6 - 28.3] Serum transferrin: 2.42 g/L [range 2.02 - 3.63] Serum ferritin level: 70 ng/ml [range 30 - 400] Transferrin saturation index : 42% Blood tests for
Hi Having finally got broadband working again I was able to check my blood test results. They included: Serum Iron: 25.2 umol/L [range 10.6 - 28.3] Serum transferrin: 2.42 g/L [range 2.02 - 3.63] Serum ferritin level: 70 ng/ml [range 30 - 400] Transferrin saturation index : 42% Blood tests for
Rameau
in
Restless Legs Syndrome
1 year ago
Advice on blood test please
Hi everyone Just got these results back today A few elevated levels..one below Also elevated APTT 38.5 (26.9-34.5) below range GFR 74 (90-200) Any idea please ..feeling pretty rough x
Hi everyone Just got these results back today A few elevated levels..one below Also elevated APTT 38.5 (26.9-34.5) below range GFR 74 (90-200) Any idea please ..feeling pretty rough x
Lincsangel1
in
Pernicious Anaemia Society
11 months ago
Pernicious Anaemia Society - communications team
We have set up this "user" as the communications team from the Pernicious Anaemia Society. We are not moderators on this forum and will not be answering any questions or commenting on specific circumstances or posts for individuals. This is a forum for discussion amongst users and a community for
We have set up this "user" as the communications team from the Pernicious Anaemia Society. We are not moderators on this forum and will not be answering any questions or commenting on specific circumstances or posts for individuals. This is a forum for discussion amongst users and a community for
PAScomms
in
Pernicious Anaemia Society
11 months ago
High Folate, Low Normal B12
Regarding folate masking a B12 defciency…my folate was 24 ng/mL and my B12 was 252 pg/mL when I asked to be tested for deficiency in January. I was having neurological symptoms such as anxiety, pulsatile tinnitus, tingling in legs and feet. Other symptoms include digestive issues (I believe I have low
Regarding folate masking a B12 defciency…my folate was 24 ng/mL and my B12 was 252 pg/mL when I asked to be tested for deficiency in January. I was having neurological symptoms such as anxiety, pulsatile tinnitus, tingling in legs and feet. Other symptoms include digestive issues (I believe I have low
JHEW0836
in
Pernicious Anaemia Society
1 year ago
Iron blood test results
Please see below results. Would appreciate some advice. I have changed the brand of iron supplement I am taking, as I was struggling to raise my levels previously. Now take 2x Thorne Gentle Iron on alternate days.
[u]Inflammation[/u]
CRP HS 4.21 mg/L (Range: 0 - 5) *see note below
[u]Iron
Please see below results. Would appreciate some advice. I have changed the brand of iron supplement I am taking, as I was struggling to raise my levels previously. Now take 2x Thorne Gentle Iron on alternate days.
[u]Inflammation[/u]
CRP HS 4.21 mg/L (Range: 0 - 5) *see note below
[u]Iron
Molly161018
in
Thyroid UK
1 year ago
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