Search
Search
About
Log in
Join
Experiences with
Haemolytic anaemia
Posts
Communities
7,590 public posts
Filter results
Ongoing anemia
Hello, I am thinking if my wife has ongoing anemia due to a bleed the Drs can't or won't find. Why wait for four months to give her red blood cells when she last had RBC transfusion 4 months ago it brought her Hgb up to 115, then three months ago had iron infusion. Which didn't really increase her Hgb
Hello, I am thinking if my wife has ongoing anemia due to a bleed the Drs can't or won't find. Why wait for four months to give her red blood cells when she last had RBC transfusion 4 months ago it brought her Hgb up to 115, then three months ago had iron infusion. Which didn't really increase her Hgb
jointpain
in
MPN Voice
9 months ago
? RSV vaccine
Hi folks, I seem to remember a mention of the RSV shot not being great for CLL pts? Anyone have info or thoughts on this? And another question: I got my latest Covid booster a few weeks ago. During the injection (by a pharmacist) I noted I didn’t feel the med going into my muscle, and looked down quickly
Hi folks, I seem to remember a mention of the RSV shot not being great for CLL pts? Anyone have info or thoughts on this? And another question: I got my latest Covid booster a few weeks ago. During the injection (by a pharmacist) I noted I didn’t feel the med going into my muscle, and looked down quickly
Islandjewel23
in
CLL Support
9 months ago
Sourcing Hydroxocobalamin, help please
Edit: Solved this issue. Thanks. Supplies now on order :) I've been self-injecting for a few years now, as GP refuses to diagnose B12 deficiency, in spite of several indications. I now need to buy more hydroxocobalamin but haven't kept a note of where I've previously bought from, in Germany.
Edit: Solved this issue. Thanks. Supplies now on order :) I've been self-injecting for a few years now, as GP refuses to diagnose B12 deficiency, in spite of several indications. I now need to buy more hydroxocobalamin but haven't kept a note of where I've previously bought from, in Germany.
JMN2017
in
Pernicious Anaemia Society
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Low Blood Sugar
Anyone know of receiving 5Mg / day of folic acid due to the findings below From My Haematologist to my Dr which is the usual 4 weekly report he sends' Dapsone is giving rise to compensated haemolysis without anemia as indicated by a reticulocyte count of 161.7 and haemolysis is the cause of the abnormally
Anyone know of receiving 5Mg / day of folic acid due to the findings below From My Haematologist to my Dr which is the usual 4 weekly report he sends' Dapsone is giving rise to compensated haemolysis without anemia as indicated by a reticulocyte count of 161.7 and haemolysis is the cause of the abnormally
uide3095
in
CLL Support
9 months ago
Update B12 appointment . help needed
Thank you all for your advice . Had an appointment yesterday and despite feeling exhausted dizzy and having some pins and needles in my hand. (NHS website says 2_3months with malabsorption issues.) . I was told they cannot go against local NHS guidance and got to wait for 12 weeks for my B12 jab. I
Thank you all for your advice . Had an appointment yesterday and despite feeling exhausted dizzy and having some pins and needles in my hand. (NHS website says 2_3months with malabsorption issues.) . I was told they cannot go against local NHS guidance and got to wait for 12 weeks for my B12 jab. I
Welshtoffee
in
Pernicious Anaemia Society
5 months ago
All symptoms back
Hi, Symptoms are now back with avengence. My breathing and headaches are terrible. I have moved my Endo forward to next week and having new bloods this morning. Any suggestions of issues for my consultant? I am going to ask to raise to at least 100 of meds - obviously depending on my bloods. Heart issues
Hi, Symptoms are now back with avengence. My breathing and headaches are terrible. I have moved my Endo forward to next week and having new bloods this morning. Any suggestions of issues for my consultant? I am going to ask to raise to at least 100 of meds - obviously depending on my bloods. Heart issues
JCMartin
in
Thyroid UK
5 months ago
Buprenorphine and Naloxone 2mg/0.5 mg sublingual film
I need help from the members who have taken it or the brand name Suboxone. The oxycodone I have been taking since 2015 has lost effect therefore Doctor B prescribed Buprenorphine and Naloxone for me. The first day I experienced horrendous side effects, severe vertigo, nausea and vomting and anxiety
I need help from the members who have taken it or the brand name Suboxone. The oxycodone I have been taking since 2015 has lost effect therefore Doctor B prescribed Buprenorphine and Naloxone for me. The first day I experienced horrendous side effects, severe vertigo, nausea and vomting and anxiety
halperinchen
in
Restless Legs Syndrome
9 months ago
Vitamin BT Results
Good Morning All Further to my last post when it was suggested that my Folate levels were on the low side I have since been supplementing with an additional 400 daily in adition to the folate in my B Complex capsule - making a daily Folate intake of 800. My GP has just ordered BT for Vitamin D
Good Morning All Further to my last post when it was suggested that my Folate levels were on the low side I have since been supplementing with an additional 400 daily in adition to the folate in my B Complex capsule - making a daily Folate intake of 800. My GP has just ordered BT for Vitamin D
Lemondrizz
in
Thyroid UK
5 months ago
Question about mood
does anyone else get depression like symptoms, anxiety like symptoms and just an overall flat affect as you wait the month out for your next injection? I was self injecting in between but the needle jabs are starting to really hurt now so I stopped.
does anyone else get depression like symptoms, anxiety like symptoms and just an overall flat affect as you wait the month out for your next injection? I was self injecting in between but the needle jabs are starting to really hurt now so I stopped.
Schpsych2414
in
Pernicious Anaemia Society
9 months ago
Methylmalonic Acid Test
Can anyone tell me whether the MMA test can be obtained through the NHS? I saw a GP yesterday (I am still dizzy following falling backwards again a week ago) I am going for my blood test on Thursday to see if my folate level has improved after taking a folate /B12 supplement for 4 months on instruction
Can anyone tell me whether the MMA test can be obtained through the NHS? I saw a GP yesterday (I am still dizzy following falling backwards again a week ago) I am going for my blood test on Thursday to see if my folate level has improved after taking a folate /B12 supplement for 4 months on instruction
LynneG
in
Pernicious Anaemia Society
9 months ago
iron transfusion
Hi I’m just wondering how long people in the uk have waited for an iron infusion. I requested an iron infusion months and months ago as I can’t tolerate iron orally. Unfortunately my doctor forgot to put me on the waiting list and only amended that about a month ago after I mentioning that I was waiting
Hi I’m just wondering how long people in the uk have waited for an iron infusion. I requested an iron infusion months and months ago as I can’t tolerate iron orally. Unfortunately my doctor forgot to put me on the waiting list and only amended that about a month ago after I mentioning that I was waiting
Heather-rose
in
Restless Legs Syndrome
9 months ago
The value of yogurt for pred
I've been away for the last two weekends, so rather than bother with yogurt I had my pred (2.5mg) with a pot of Bircher muesli. The first time, about an hour later I had a nasty taste in my mouth and acid reflux. It was the pred dissolving, but I thought perhaps it was 'one of those things'. Anyway
I've been away for the last two weekends, so rather than bother with yogurt I had my pred (2.5mg) with a pot of Bircher muesli. The first time, about an hour later I had a nasty taste in my mouth and acid reflux. It was the pred dissolving, but I thought perhaps it was 'one of those things'. Anyway
Viveka
in
PMRGCAuk
9 months ago
Vitamin/supplements
Can I ask what vitamins would be useful to try to support healthy thyroid function. I know iron, and vitamin B12 are important, I wondered if a specific Thyriod supplement was useful. I found this one, does anyone else take this? https://heynutrition.com/products/thyroid-complex?_gl=1*1d25mkn*_gcl_aw
Can I ask what vitamins would be useful to try to support healthy thyroid function. I know iron, and vitamin B12 are important, I wondered if a specific Thyriod supplement was useful. I found this one, does anyone else take this? https://heynutrition.com/products/thyroid-complex?_gl=1*1d25mkn*_gcl_aw
Fee52
in
Thyroid UK
9 months ago
Oral iron regimen
I had an iron infusion (Newcastle uk) last December which put my serum ferritin up from 37 to 237, and helped considerably. However, it has gradually slipped back to 180, so I am hoping to start the oral gentle iron. Please can someone remind me of the best time to take these, and dosage. The tablets
I had an iron infusion (Newcastle uk) last December which put my serum ferritin up from 37 to 237, and helped considerably. However, it has gradually slipped back to 180, so I am hoping to start the oral gentle iron. Please can someone remind me of the best time to take these, and dosage. The tablets
Edengirl58
in
Restless Legs Syndrome
9 months ago
Clunking, Fading and Sleep
This is written from the perspective of having experienced life long B12 deficiency and injecting 5+- times a day consistently for the last 5 weeks. 1 mg methylcobalamin and .25 mg hydroxocobalamin with 6 mg adenosylcobalamin SL. Which lead to consistent improvement weekly. I am well aware that I or
This is written from the perspective of having experienced life long B12 deficiency and injecting 5+- times a day consistently for the last 5 weeks. 1 mg methylcobalamin and .25 mg hydroxocobalamin with 6 mg adenosylcobalamin SL. Which lead to consistent improvement weekly. I am well aware that I or
WIZARD6787
in
Pernicious Anaemia Society
9 months ago
B12 very high with normal blood results?.
hey, hoping someone with some b12 knowledge can give me some advice for when I see my doctor. Last year I was having some b12 injections paid privately, my last one was in early August. They actually made me feel better, but had to stop because of cost. Then in October I started getting severe deficient
hey, hoping someone with some b12 knowledge can give me some advice for when I see my doctor. Last year I was having some b12 injections paid privately, my last one was in early August. They actually made me feel better, but had to stop because of cost. Then in October I started getting severe deficient
Jodie782
in
Pernicious Anaemia Society
6 months ago
PV - Folic Acid and Vit D
Hi Please excuse if this has been asked before, I’m sure it has but can’t find the post 😬 I have PV and had blood done at Dr recently and was told I needed to take folic acid and Vit D. I take HU which has recently been reduced by 1 tablet a week and last bloods were HCT 38, Hb 13.4, WBC 7.6
Hi Please excuse if this has been asked before, I’m sure it has but can’t find the post 😬 I have PV and had blood done at Dr recently and was told I needed to take folic acid and Vit D. I take HU which has recently been reduced by 1 tablet a week and last bloods were HCT 38, Hb 13.4, WBC 7.6
Hocus58
in
MPN Voice
9 months ago
B12 injections frequency
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Welshtoffee
in
Pernicious Anaemia Society
6 months ago
Blood result and raised MCV
Hi everyone. I had a recent blood test as I've been supplementing with gentle iron, general A-Z vits and B12 since the spring. I particularly wanted to check up on my iron/ferritin status. I've never had a positive diagnosis of PA, or even of B12 deficiency as my levels have always been 'in range'.
Hi everyone. I had a recent blood test as I've been supplementing with gentle iron, general A-Z vits and B12 since the spring. I particularly wanted to check up on my iron/ferritin status. I've never had a positive diagnosis of PA, or even of B12 deficiency as my levels have always been 'in range'.
KBird01
in
Pernicious Anaemia Society
9 months ago
one last question ( hopefully)
I have finally managed to get an appointment with my GP where I hope to convince him to give me B12 injections more often that once every 8 weeks and I never had a loading doses so am hoping for that too. I hope I can get him to do some tests, like size shape and number of red blood cells, intrinsic
I have finally managed to get an appointment with my GP where I hope to convince him to give me B12 injections more often that once every 8 weeks and I never had a loading doses so am hoping for that too. I hope I can get him to do some tests, like size shape and number of red blood cells, intrinsic
totallyFrustrated
in
Pernicious Anaemia Society
9 months ago
1
...
19
20
21
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
3527 results
Thyroid UK
2432 results
Restless Legs Syndrome
352 results
View top 10 communities
Sort by
Most Relevant
Newest